Marfan Syndrome
Also called: Arachnodactyly Marfan syndrome is a disorder that affects connective tissue. Connective tissues are proteins that support skin, bones, blood vessels and other organs. One of these proteins is fibrillin. A problem with the fibrillin gene causes Marfan syndrome. more...
Marfan Syndrome Discussions
Hi My boyfriend, suffering from the Marfan syndrome, has since several month severe pain in the lower back and the legs. Doctors diagnosed a dural ectasia. They exclude surgery and suggest pain management. But even with classic pain medicine, his pain is intense. I am looking for other Marfs having the same problem. Which treatment helps to ease their pain? Thanks
by isa, 0 replies, updated 5 months ago.Start a new topic about Marfan Syndrome
What is Marfan Syndrome?
Also called: Arachnodactyly
Marfan syndrome is a disorder that affects connective tissue. Connective tissues are proteins that support skin, bones, blood vessels and other organs. One of these proteins is fibrillin. A problem with the fibrillin gene causes Marfan syndrome. Marfan syndrome can be mild to severe, and the symptoms can vary. People with Marfan syndrome are often very tall, thin and loose jointed. Most people with Marfan syndrome have heart and blood vessel problems, such as a weakness in the aorta or heart valves that leak. They may also have problems with their bones, eyes, skin, nervous system and lungs.
