April 19th
2009
2:04 AM
I to was put on Lipitor 20mg. took it about 1 month and had such pain in my leg muscles I couldn't hardly walk . I went to my doctor he said go off it and I should start Zocor in . A month the pain was worse I couldn't even walk around the mall . I couldn't sleep at night the pain was terrible. Once again I told the doctor he said stop it and we will wait 6 weeks and start Crestor. In six weeks the pain should be gone. It didn't go away I could hardly walk at my job teaching at a Pre School. The pain unreal.I have type 2 diabetes under control for years. Still is.I was told I had arthritis. But now they tell me I have spinal stenosis. I'm on paxil for the depression they said I had and. I feel as bad now as I did 4 years ago when I was on statins. I can hardly walk, my life is pain in my muscles that never leaves and now my back. I was active and watched my weight and walked 3 miles a day. Since taking these meds. I can no longer work, go shopping or go anyplace I have to walk . I have gained a lot of weight . I have something wrong with my knee .I have tried to explain this to 3 doctors and no one listens to me. My health turned for the worse when I started taking Lipitor in 2005. I don't think I'll ever get my life back I am only 58 years old and can't work to support myself.I can't even hold my 1 month old grandson and walk or lift him from his bed. Reading all your messages . I know my health going down like this is from the statin drugs I took . When I sit , I can't walk when I stand Then .I gotta sit in 5 to 10 minutes.And the pain in my knee has progressed. No doctor wants to hear my story and believe me. Thank God I found this web site and read this for my self now I know I'm not crazy. How can I get myself better ? Will I live the rest of my life in pain, and not able to function.Every time I see a doctor they give me another pill to take. I want to just throw them all away .There must to be an answer to this.
-- By dar2920 | Reply | (5) replies | Private Message me
April 9th
2009
12:59 PM
My son used a nebulizer 2 to 4 times a day every day from the time he was one and a half years old. When he had just turned three his doctor prescribed Singulair. It was like a wonder drug for us! It took care of his asthma and we didn't have to use the nebulizer any more. He's been on it ever since -- he's 10 now -- he also takes zyrtec and has a rescue inhaler that he uses maybe once a week. About every other year he requires a course of steroids and a week of regular nebulizer use. Also, for the past year he has also required a daily inhaled steroid.
Now, about his mood issues. My son has always been sensitive and intense, moody. The first time I became alarmed was when he was 7, and he told me he wanted to burn his hands on the stove to punish himself for forgetting his homework. I consulted a psychologist who evaluated him and said he was not clinically depressed. Since then he has had periodic "dark" episodes -- especially in the winter. He has said he wants to die. He has had crying jags over things that are upsetting (loss of a pet was the worst) but it seems excessive for him to be saying he "just wants it all to end." He has told me that he is always unhappy and that he hates himself. He has also had problems with moody acting-out with friends. He will brood about hurt feelings until he loses his temper and screams at the friend. I have worked very hard with him on learning to manage his emotions. He hit a friend at school who was teasing him. He accepted his consequences willingly and willingly wrote letters of apology -- he told me he thinks he has anger problems and doesn't want to be this way. And his character is that he is a sweet, caring boy who can't stand to see anyone hurt, but also can't stand to be hurt.
A couple of years ago I asked his allergist if any of the meds he's on are linked with depression. He said no. We have a family history of depression, and I thought my son had gotten the worst combo of all the genes.
Recently, this all got to the point that I decided he needed to see a psychiatrist and quite possibly take medication for depression. Before I made the appointment he had a check-up with his allergist. Going down his list of meds the dr. said, recently Singulair has been linked with depression, have you noticed any moodiness or sadness? My first thought was that I have, but that he's always been like this. My 2nd thought was that he has been on Singulair for most of his life. I said yes and that I'd like to try him off of it.
My son resisted going off of it. He has had enough negative experiences with asthma that he didn't want to risk it, but I insisted. I didn't expect to see any change, but I thought it was important, as I was going to take him to a psychiatrist to consider depression meds, to see how he did off of it for a couple of months.
Less than a week later, he had been in a wonderful mood -- to the point of being silly and giddy all evening -- for 3 days in a row. The kind of mood that I don't see him in often, and when I do I think to myself, "he should be like this more often." One evening he even realized he had forgotten to bring home a homework assignment. I thought, "oh no, here we go, his evening is ruined." But he talked through his options with me, looked a little uncertain, and said, well, okay, I guess I'll have to tell my teacher I don't have it. I'll tell her I'll make it up at lunch if she wants me to. That was it! He didn't mention it again. I didn't say anything about his mood, because I really don't think I can know anything after just a few days -- it could be coincidental. The next day, he said to me that he thinks being off the Singulair is "working." He has now told me that a couple of more times.
I am tentative, but amazed. Even if my son does have a predisposition to be depressed, maybe the Singulair was making everything worse, and things really can improve for him. I am afraid to be to hopeful. At the same time, I feel guilty for giving this medicine to him for 7 years without a second thought.
As an aside, my son has periodically complained of leg pains, that I always told him were growing pains.
I would love any feedback that anyone can give me. So far (these two weeks), his asthma has been controlled with pulmacort, zyrtec and albuterol, so that aspect is okay.
March 19th
2009
8:56 AM
Hey I see Im not the only one with problems that the doctors blam on other things!! I have always been so healthy UNTIL I had twins in Feb 06 and had Mirena put in Oct 06 and almost immediately started having side effects.I started to read up and realized the ones I had were all listed as side effects with it.The first side effects weren't that bad but OMG now I am horrible.I have so many side effects and am wondering if anyone is in the same boat??Mine are:weight gain,hair loss,facial hair,migraines,irritability,fatigue,NO sex drive,anxiety,depression,fluttering in my stomach,back and joint pain,pain during sex,stomach spasms,the list goes ON and ON, oh and lets not forget they say I have PCOS!! Now I wish they could tell me how I went from perfectly healthy to THIS!! I have been to 3 different docs and asked to have it removed but surprise surprise they all did not want to remove it and now I have NO insurance..I am to the point if I could take the thing out myself I would!! I am SOOO miserable and if I say I want it out who are they to tell me no?? Can anyone else relate?? I AM GOING CRAZY!!!
-- By twinzmom214 | Reply | (5) replies | Private Message me
March 7th
2009
9:46 PM
I really don't know what to do, I hurt so bad every single day I could cry. I was given Levaquin in March 2008 when I had pneumonia. I took it for 10 days and I hurt so bad still was very sick so I was put on it for another 10 days, so I took the Levaquin for a total of 20 days. I thought all this sickness was from the pneumonia. I had trouble getting out of bed, I could not even bend my knees, my feet, knees, elbows, and fingers were swelled up and I was getting all kinds of cracking in all my joints, headaches, stomach pains, all kinds of muscle pains. When I went back to work, I was telling a girl at work how I hurt and she asked me what kind of antibiotic I was taking, I told her and she said they had it on the world news . I said why is it still on the market. I seen 3 doctors about this and they think I'm nuts! They sent me for all kinds of xrays for all different parts of my body, what is that going to show! Its been a year and I still ache, I keep swelling up, joint and muscle pains, cracking, stomach troubles, problems sleeping, its terrible. I take pain medication for my back, I have 2 herniated discs, and I have to take more pain meds for all these other pains, this is not going to work. I even went to see a rheumatologists and he said I don't have arthritis. So Levaquin done a number on me. If anyone can help, or know what to do let me know!
-- By minpin44 | Reply | (1) replies | Private Message me
February 21th
2009
3:18 PM
I read with interest several of the posts here. I have been on Lipitor for about 5 years. I have been experiencing leg pain, back pain, neck, and hand pain for likely 4 of the last 5 years. I have arthritis, I thought. Two weeks ago I ran out of Lipitor. I read several other forums where Vitamin C and Omega 3 were suggested as a possibles to replacing the Lipitor along with generous amounts of water. I said, What the hell, I will give that a try. Within days of stopping the Lipitor, most all the pain has subsided to the extent that I have not had to take any other Pain management medications at all. I was prescribed Perocet for the pain I have been experiencing. Two weeks ago, I had a tough time opening a bottle of soda, or even a relish or pickle jar. Today I can! Coincidence, I think not!!
-- By fltgrn | Reply | (6) replies | Private Message me
January 10th
2009
2:58 PM
I have severe allergies and cronic sinusitis... like a lot of people on here I have taken all the allergy drugs they make for the past 9 years... Ive had tons of procedures done and sinus surgery last Feb '08. Nothing helps. Ive taken oral steriods many times but recently my new ENT decided to give me a Kenalog shot in Sept. Nothing was explained to me other than it was a steroid. The nurse put it in my left shoulder. I have had all the symptoms people are describing on here except the indent. I have been progressively getting sicker and feeling worse and worse over the past few months. I feel like I could go to bed and just stay there. Now this past Monday he gave me another Kenalog shot in my left shoulder. I heard something on a tv show that it causes depression so I jumped on this site and feel sick about all the messages I have read about people's terrible side effects. I feel like my doctor who I trusted let me down. I am so worried that my shoulder is going to have a big grey dent like everyone is describing on here. I am just so tired of being ill.
-- By lisamartinez13 | Reply | (1) replies | Private Message me
September 11th
2008
4:25 PM
I was on Lisiniprol for 91 days as an ACE inhibitor for diabetes and kidney protection. All was find except for a constant feeling of burning blood all the time. It was tolerable though.
But on day 91 I developed hives. 14 days after that I was broken out from scalp to sole of my feet -- feeling miserable and no relief in site.
Dr. told me that I was allergic to something and to take benadryl. 3 doctors later I was told that I had hives and had to learn to live with it. He increased my benadryl.
I took myself off all my meds except insulin -- not knowing what was going on. I researched and discovered the this drug should NOT have been given to me because I also have SJOGRENS (an autoimmune disease akin to Lupus).
The hives got worse, my benadryl was increased by the drs. Finally I passed out due to benadryl toxicisity (overdosed) and they put me on prednisone.
To this day -- 6 months later -- I still have hive outbreaks that are miserable. I have missed a day from work every 7-10 days. The prednisone helps, but as a diabetic it sends y blood sugars through the roof. My rheumo has put me on doxepin (an antidepressant) because it has an antihystamine property that seems to be helping.
It is also useful for the rheumotoid arthritis that comes from Sjogrens and such. I am sleepy a lot -- but that could be from the doxepin.
I will never take Lisiniprol or any other ACE inhibitor. I am suffering and the worse part of it: the doctors and medical profession don't care and simply tell me to learn to live with it.
-- By hwylder | Reply | Private Message me
April 12th
2008
3:58 PM
Generic for Zocor. In Nov. blood which was drawn as a pre-op surgery for another health problem was drawn and showed high cholesterol levels. I was put on meds right away. Was not given the option to try diet alone. Not knowing (and still learning) #'s, I felt the Dr. knew what was best for me. I too experience the waking, weird dreams, nausea or bloating and pains in thighs,upper back,collar bone, hips (inside and outside) until I sometimes can barely stand or walk. Have actually attempted walking in 'bent forward' position to cross the room occasionaly as the pain and difficulty of standing errect would not subside until I have reach the other side of room anyway.
There are 3 doctors in the office I go to. As if I don't hear it enough from my family members, one of the Drs.indicates it is because I am OLD that I have some conditions. But the main Dr. has showed concerns that I am on the medication. But he always blames my pains on ARTHRITIS. They are the skilled ones.......I am the one in pain ....but the #'s are going down.
I am afraid to eat most things as I also have FATTY LIVER.
-- By shy1 | Reply | Private Message me
March 30th
2008
9:27 PM
I am a 43 year old women with 2 children. After my second child I started having problems with infections and pain during sexual intercourse After 5 years and 3 doctors I was diagnosed with endometriosis. I had surgery and still had some discomfort so my doctor suggested the Lupron shots. I was very concerned about the side effects. I talked to my husband and prayed about it a lot and decided to go with the injections. I just had my last of 6 Lupron injections the other day. I have experienced most of the side effects such as fatigue, mood swings, joint pain, lack of desire for sex and night sweats but have handled it pretty well. I was very concerned about the weight gain so I started a pretty intense exercise schedule (work out everyday) I have lost 5 pounds and feel the exercise helps with the fatigue. Even though I did experience the side affects due to the fact that I did not take my add back therapy like I should have I feel so much better than before I started the Lupron injections.
-- By rmhitch | Reply | Private Message me
January 10th
2008
11:37 AM
I've had my Mirena for about 15 and a half months and I am having it removed today at 2 o'clock. At first I had sharp pains when I would sit down and I felt like the cords were poking me and irritating me. My OB/GYN requires patients to come back one month after having it put in so he can check it and make sure it is still in place. At this visit he also trimmed the cords although he acted like he didn't believe me when I told him that I could feel them poking me when I sat down and that it hurt. At first I didn't notice any bad side effects, but I did have one good one: my periods stopped, but I still had occasional and sporadic spotting. I didn't think to look for any bad side effects because I got the device under the impression that it had no bad side effects. I thought it only had a rare complication of perforating the uterus, but since mine was in place at the one month check, I didn't think about anymore until I started thinking about having another baby recently. I went online to see if I had to have a doctor remove the Mirena or if I could do it myself, and I found out that it's best done by a professional because bad things can happen and then you'd have to go to the doctor anyway. Plus, I didn't want to hurt my chances of having another baby. While online I discovered this whole world of message boards where women were having a lot of the same problems I'd been having in recent months and they all blamed their Mirenas. Some claimed that their problems had gone away since having it removed. I never thought to link my circumstances to the Mirena, but when I saw how many women are having the exact same problems as me I knew that I needed to go ahead and get mine out ASAP. Here is a list of my side effects, and I've found other women have had them as well with Mirena: weight gain, bloated stomach, depression, short temper with husband and daughter, acne, low sex drive, spotting, cramps, constipation, and back pain. There may be more, but I can't remember them all right now. Some of them may not even be related to the device, but I've read of so many women with Mirena who are having or have had the same issues, so I suspect a link between my problems and Mirena. I hope this helps someone out there looking for answers. God Bless!
-- By melathome | Reply | (56) replies | Private Message me
December 30th
2007
11:50 AM
How long will my pain last knees, legs, feet arms all my joints,,,, I feel like I am 100 years old! How long will it take to get better, my doctor took blood Friday to see what was going on but I haven't heard anything yet
-- By vickie1252 | Reply | (2) replies | Private Message me
September 30th
2007
11:28 AM
I am a 56 year old female who was very active ranching, balng hay taking care of irrigation etc. 3 years ago I had pain in my left arm and my heart was racing went to the E.R. where they did a 12 lead ekg. Could not find anything wrong other than my blood pressure was up to 160/90 they gave me ToprolXl 100 mg and told me to see my primary care physcian. Which I did. He continued the medication.
Since that time I have complained to all of the symtoms I have seen on this site. With one exception. Two months ago I was watching TV and had double vision. It only lasted for a few seconds but noticed the next day my peripheral vision was gone. I made an appt with an opthomologist and he spent 3 hours with me and recommended an MRI which was conducted some 2 weeks later. I was referred to a neurologist who ran a lot of blood work. My first batch of blood work showed a raging inflamation. They started testing for MS, lymes, lupus etc. Last week i met with my neurologist for the follow up blood work report. Everything is normal he says but by the way you have myathenia gravis. You get double vision again you call me I will give you medicine. Like I am a two year old.
I have researched myasthenia and the one thing you dont want to do is be on a beta blocker or a calcium channel blocker, as both of these will aggravate the condition. I called him to ask that he change my blood pressure medication. He says I wont do that. My primary care physcian is no longer in practice with the original medical group and has left the area. I saw him only 2 weeks ago and nothing was mentioned. The point is folks Don't trust anyone. Oh and by the way the side effects you are seeing mimic myasthenia gravis. Now no one knows what causes it for sure. Stress is a factor. But if you have not been tested get yourself tested. I may not even have this disease but I am getting off this medication and I am going to find out for sure what in the heck is going on. By the way I have seen a cardiologist last month without a referral because I wanted answers and he says there is absolutely nothing wrong with my heart...so why was I put on this medication? Heaven help us all.
-- By rawson | Reply | (3) replies | Private Message me
July 27th
2007
1:32 PM
Just got back from the dr. She said it is definitly caused by Levaquin. The knee pain etc. is from this drug. She said it putme right over the edge after taking it for only one week. Hopefully it will subside. This is a powerful drug that attacks cartilage and joints and should not be used by people prone to arthritic conditions. Anyway, I feel better knowing I don"t have Lyme or anything more serious. GoodLuck to all of you out there, hang in there.Marsh
-- By marsh | Reply | (3) replies | Private Message me
January 17th
2007
6:32 PM
I am so glad I found this website. I have had a lot of questions answered about my husband's health issues. My husband is a relatively healthy 32 year old and has been on 5mg Lisnopril for almost 5 years for slightly high BP and has had a lot of problems since he has started taking it. The most severe problem he has experienced lately is vision loss in his eye. He started complaining in late November of Floaters and Grainy Vision in his left eye. This will last about a week and then subside only to return a few days later. The vision problems will come on suddenly and get so bad that he can't see or read out of his left eye. He sees lines, floaters, cobwebs, colors, and grainy spots. My husband went to his family doctor when it first started and was told not to worry about it.
Last week I took him to the eye doctor, who could not even see in his eye because there was so many floaters. The opthamologist immediately sent us to a retina specialist who thought he had a detached or torn retina. Well, we have been to the specialist twice and he can't find anything that would be causing this problem. We've had 3 doctors and a pharmacist tell us that Lisinopril would not cause this vision problem. Since I have found this site and read posts from others who have had the same vision problems, I am convinced that this is causing his problems.
Some other side effects he has had is memory loss, confusion, aches and pains, weight gain, headaches, fatigue and dizziness. Thank goodness he has not had the awful coughing that countless others have experienced.
Needless to say he is not taking this medicine anymore. If anyone else has had similar vision problems please contact me.
-- By butterflym28 | Reply | (2) replies | Private Message me
December 9th
2005
10:35 AM
Wow! I am so fortunate to have run across this site! I am 51 and have very hbp so was put on Lisinopril in March '05. I had no idea that the terrible cough that I have experienced since then was related to this medication, until I read this.. The only reason that I found this was was due to me getting a list of my medications to take to the 'ENT specialist' due to my very long lasting cough and no sleep issues. I started to really notice this cough in June and I described it to my husband as a feeling of something sharp sticking me in the right side of my throat and then turning in to a spasm feeling that would make me cough like a smoker and still bring tears to my eyes*wiping my eyes as I type this* and still coughing. I have done this for so long now and I do have allergies but I have just gone through 3 ys of immunatherapy so I figured that was part of that issue. I have had a terrible 7 months and have seen 3 doctors of which none have said anything about this being a side effect! I am very angry for my 'lost' summer and no sleep! I have been put on a z-pak, kenlog shot, two different cough syrups with phenegren and nothing has helped. duh I also had two ugly bladder infections for no reason. and I had dirareah for 5 weeks. I work out and and really are pretty healthy otherwise but I have had a horrible year. When I read this site prior to going to the ENT dr. I shouted for joy to know that Lisinopril was the problem and I found it thanks to all of you. I took my info to my dr on tues and expressed my anger. All he said was 'let's try you on another one!" I have been on Diovan for 4 days and have had a horrible headache. Called the doc today.Now what? I am exausted!
-- By karole | Reply | Private Message me
August 2th
2005
7:47 AM
Came down with whooping cough 7 weeks ago.
Took antibiotic after antibiotic, nothing touched the shortness of breath or the wheezing tight whooping cough I had.
My dogs vet heard my cough and couldn't believe the 3 doctors I had been to see hadn't started prednisone yet.
Started on 5.0 mgs that same day. Cough is almost gone and I can actually breath again.
Thought I had a few side effects, blurry vision, sweats, etc. Told myself it was all in my head from reading articles and peoples experiences/side-effects from the stuff.
Just like that, side effects gone. Has anyone thought about the placebo effect? or Psychosomatic side-effects?
Personally, I think this stuff is a wonder drug. But then again, I value being able to breath! Bet the asthmatic community's would agree with me.
May 29th
2004
6:18 PM
have been taking zoloft for 15 mths, gradually gone up to 300mg, and have been on that dosage for 10 mths. have experienced most symptons, dry mouth, vivid dreams (bad) tremors, weight gain. have recently had suspected seizure and have had eec, cat scan and am waiting for mmr . I have pins and needles on right side of head, involuntary spasms,, vague days and extreme tiredness. I could sleep most of the day and at night. I have to be very careful not to over exert because symptons are worse. have been worried about symptons being like ms but having visited this site am wondering if it's all down to the zoloft. Iwant to stop taking it.
-- By clare | Reply | (1) replies | Private Message me
Lisinopril (3) Levaquin (3) Lipitor (3) Mirena (2) Toprol-XL (1) PredniSONE (1) Singulair (1) Zocor (1) Kenalog (1) Zoloft (1) Topamax (1) Lupron (1) Simvastatin (1)
June 19th
2009
10:12 PM
I became extremely ill after beginning Topamax. A trip to Urgent Care started me on Z pack for URI and gave me cough medicine. Cough along with incontinence and exhaustion became more severe over 3 weeks. Wheezing worsened but chest xrays done by my PCP showed no pneumonia. I have asthma and allergies which were treated by my PCP with Singulair, Advair and a rescue inhaler with no success. It wasn't until I started thinking about possibility of Topamax playing a part and doing research myself that the puzzle was solved. 3 doctors and a pharmacist knew nothing about the affect this drug has on asthmatics. I was miserable for an entire month due to this drug which could have been completely avoided if doctors were better informed. I had to convince my physicians by taking myself off Topamax in order to alleviate my symptoms. I hate to think where I would be today if I had continued taking the drug and had not found this web page!
-- By juniorjr | Reply | (1) replies | Private Message me