3 rounds symptoms and conditions

Hello,
How long do side effects last after completing steroid treatment? I've been off of pred for 4 months for crohn's first time. I was on 40/30/20/10 for a 6 week period. When I got to 30 my legs went into extreme pain. They felt like they were on fire, burning knees. Went to several doctors. One said steroid withdrawal, one said inflammation of nerves from Crohn's. Neurologist put me on neurontin to get off of the pain meds. I am still in excruciating pain and wondering if it really is steroid withdrawal. I can barely walk at times with extreme sharp pains, like someone is stabbing me in the legs. Can't stand for long periods of time and pain pills barely touch the pain. During steroid treatment, they gave me 3 rounds of Dilaudid in the ER and I was still crying, and I don't cry. Has anybody ever had this effect this long after being off the drug??

They think that I have either crohns or ulcerative colitis. I have tried antibiotics, lialda, mesalamine enemas, with no improvement. After another colonoscopy they put me on prednisone at 40mgs, 30, 20, 10, then 5 decreasing weekly. Well the first week was okay. I had some of the side affects, insomnia, extreme hunger, and crazy. I could deal with that. But then when I decreased down to 30mg, my body flipped. I awoke from the middle of the night with burning pain in the knees. So bad I took 4 ibuprofen and threw myself in the tub with epsom salt. I thought okay that was weird because I have never had a joint pain in my life. I saw the gastroenterologist that day bc I was still having abdominal pain. He totally blew off the knee pain and said he had no idea what that was. I thought okay maybe it will go away. A few days went by and nothing. 3 days later and I awoke one morning crying in pain because of my legs. I called the on call doctor who also said he had no idea and go to the er. So I went crying hysterically for 4 hours. Even after 3 rounds of dilaudid I was still in pain. They suggested a Rheumatologist. So I went to one a week later who said I was going through steroid withdrawals. And there is nothing we can do but treat the symptoms of pain. I am now down to 10mgs have been out of work for 2 weeks and am absolutely miserable with severe leg pain, muscle weakness and fatigue. He also adjusted the drop down increments to 5 instead of 10. Anyway I will never take this drug again and I think they rushed to this one. Just wanted to share. I am glad I found this website because I went from a fully functioning physically fit 28 year old to a crippled crying crazy person. I think I was scaring my husband, honestly, until we both read some of your postings which were similar.

I was on Humira about 16 months ago and had no side effects at all. I was taken off the drug when I had a resection done last summer (Crohns). My symptoms came back this past January and they put me back on the Humira pen. I got really bad local site reactions: bad bruising, lumps, and eventually scabbing. I went through 3 rounds of the drug this time before the doctors took me off of it. I had my first Remicade infusion one month ago and am keeping my fingers crossed that I would have any side effects.

I have been on prednisone since November 2007 for minimal change disease, 65 mg, in May I started to decrease the dosage (per Drs. orders) and by the time I got to 15 mg all my symptoms came back and I swelled up again. I was again put on a higher dosage of prednisone and put on Cytoxan 75 mg. I am now decreasing prednisone, back to 15 mg every other day and will be off Cytoxan next month. Hopefully this will work. Right now my main complaint of side effects is chest pressure, anything I eat or drink makes my stomach swell and I feel like I can never take a full breath. I recently had chest and abdoman xrays and an ultrasound, all negative. Does anyone have this symptom? I also have moon face, weight gain, hump on back, insomnia, headaches, digestive problems ,shakes, night sweats, vision problems, extreme tiredness and hair loss. How long before all this goes away?

I have taken several rounds of Levaquin, and recently Avelox. After taking 2 rounds of levaquin for a sinus infection last spring I experience many of the myalgia type symptoms, and was tested for Rheumatoid Arthritis, and Lyme's disease, all negative... eventually felt better. I never attributed to the medication. Last fall I again had a sinus infection levaquin again, 2 rounds of 5 days in February, and then Avelox early April. I have never been sicker in my life. I have had many of the CNS effects, and the joint and muscle pain. Agonizing pain that I had never experienced. worse than passing a kidney stone. I am feeling a bit better, and heading back to work today after being unable to go for 10 days. I have also developed some eye problems, that are being managed with drops. I am trying to eat naturally and drinking lots of water. I pray this will go away, and want to warn everyone not to take this medication! Still have back and hip pain, pain in my feet, insomnia, headaches, and anxiety...but is not as severe as 10 days ago. My prayers are with all of you suffering from the side effects of these dangerous drugs.

I've been on Effexor XR 75mg for 8 months with multiple side effects; headache (feels like the top of my head will blow), stomach pains, constant nausea, excessive sweating, body tremors & a skin rash that started on my chest and has moved to my back, arms & on my scalp. The rash has to be an allergic reaction to this medication. I have went through 3 rounds of antibiotics with absolutely no response. After reading the side effects of Effexor, I am going off this drug - cold turkey. I am on day 6. You name the withdrawal symptom I have experienced them!! eg:Excessive swings in body temps- I am either sweating or chilling to the point I have to get in hot tub to stop shaking, Brain zaps, severe nausea. unending diarrhea - still hitting on day 6, nightmares, heart racing, extreme rage but I feel things are a little better today. I am sticking with this until the end. If you are contemplating getting off this drug you should talk to your doctor and keep in mind days 3 thru 6 will be the worst of the withdrawal so be ready to lock yourself in your home for about a week with hot & cold drinks(tea & 7up) blankets and pray for help to see you through.

After 3 rounds of 50 mg Clomid, I experienced numerous adverse side effects.

My doctor prescribed Levaquin 500mg as the 3rd antibiotic to treat a sinus infection that just would not go away. Unfortunately I'd taken 12 of the 14 pills prescribed before I found this site while trying to figure out what was worng with me. I'm experiencing sleeplessness, extreme lethargy, neck pain, muscle & joint pain and I'm having difficulty concentrating at work. I've stopped taking this awful drug and can't wait for that point it works its way out of my system.

I am very sorry to hear about the problems you all have experienced. I thank you for taking the time to post your experiences here so that people like me have others to turn to.