July 4th
2009
1:12 PM
Today, I completed 10 days of taking 100 mg twice a day. It was prescribed to me by my dentist to prevent infection (took a tooth out). I had severe depression, nausea, dizziness, anxiety. I got to a point that I believed I needed psychological help. This is not me, so I begun research. Thanks to this site, I called my dentist and kaiser to told me to stop taking it since 10 is the maximum. The doctors do not believe it causes depression, but what do they know in my own personal experience with doctors with prescriptions they have put me through hell. I WANT TO THANK YOU ALL...YOU WERE MY HELP...MY SANITY. GOD BLESS EVERYONE...I AM JUST HOPING NO MORE SIDE EFFECTS ON THE LONG RUN...AND TO BE BACK TO MY NORMAL POSITIVE, OPTIMISTIC AND FUNNY SELF. HAPPY 4TH OF JULY!
-- By stellacali5 | Reply | (1) replies | Private Message me
July 13th
2008
12:51 PM
My father who is going to be 80 on July 15th started taking remeron back in January of 2008 for depression he was in and out hospital and rehab since October. He almost died in October but he fought his way and hes physically doing better now. He was put on remeron cuz his depression was so bad that he just wante to give up, he started on half a pill at bed time..(7.5 i believe) he was doing his exercises and again..he bounced back from a deep depression within days :) February 7th 2008 my dad finally came home after being away for 4months he became very very talkative like hyper, couldn't sleep and got agitated very easily(thats not my dad) on June 18th 2008 the doctor that comes to the house asked what was going on..i told her HES NOT SLEEPING..and hes very like hyper, so she INCREASED HIS REMERON!!! full dose 15mg. well.. July 2nd things changed for the worse, He talked about things that happened years ago, he went as far back as the days of THE DEPRESSION..yeaaaars ago;
just things he never talked bout before...July 3rd he was showing signs of being VERY LOST..VERY DISORIENTED...like he would get up to use his potty(as he calls it) and thats rite next to his bed, and he went rite past it and into my kitchen way. just standing there, NOT KNOWING WHERE HE WAS. and he would repeat himself over and over and over, not remembering what he said, :( very sad )
The 4th of July i had him taken to the HOSPITAL to be checked out cuz he just wasn't acting right, i thought maybe he was on the verge of another stroke his BP was 150/101 HIGH....i think maybe cuz of the agitation,(HE GOT MAD...DIDN'T WANT TO GO TO THE HOSPITAL: )but i needed to know what was going on..they sent him home, they said possible early dymentia, NOT..i don't agree....june 18th -july 2nd IS EXACTLY 2 WEEKS..WHICH IS HOW LONG IT TAKES FOR MEDICATION TO GET INTO THE SYSTEM...i believe its the REMERON causing these problems.i took him to his psych and he asked my what was it increased? i said the doc increased it cuz he wasn't sleeping, well the psych was NOT HAPPY wit this...he was like U CANT DO THAT ITS NOT FOR SLEEP ITS FOR DEPRESSION..U DO THAT AND UR GONNA HAVE BIG PROBLEMS.... Well thats exactly what we are having.So then i was told to decrease him back down to 7.5 and if no change in a week -2 weeks...to stop it...well im stopping it tonight. I am hoping to see him better soon..if anyone agrees with me PLEASE LET ME KNOW...he was perfectly fine b4 the increase in this medication...BESIDE THE EXCESSIVE TALKING..but i am willing to deal that..i just want him back to the way he was. Its soo frustrating and sad to see him this way :(
July 5th
2008
1:00 PM
I was prescribe SMZ-TMP 800-160 DS 3 days ago on July 2nd for an infected hair follicle in my right armpit. I took the first does that evening and not long after felt really nauseated, almost like I had the flu. I consulted the page they always give you with prescriptions and it said that nausea was a side effect and that should go away after a couple of days. Well the next morning when I woke up I had no appetite and still felt a little nauseated but not as bad as the night before. I did take the 2nd dose and by mid morning the nausea was getting worse and by early afternoon I was developing a fever. Took a couple of Tylenol and toughed it out through the rest of the day at the office. When I got home I took my temp and found it to 101.3, took some Tylenol and called my pharmacists and he indicated that temp and nausea were really nothing to worry about. Felling a little reassured but still like I had the flu I took the 3rd does and about an hour after I took I started to feel the worse yet. I checked my temp again and found it had climbed to above 102 and for some strange reason my tongue would go numb for short intervals, almost like it had been shot full of novocain. I got absolutely no sleep that night, and given that the info sheet said to notify your doctor right away of you develop a persistent fever that next morning, July 4th, I called the office number and got the answering service and they had the doctor paged and when he finally called me back he was quite concerned over my reaction to this medicine and said I had to be seen by someone today because of the persistent fever. Being that it was the 4th of July the only option was the ER so off I went. They ran a few tests and found that yes I was having an adverse reaction to this evil medicine but I should be fine in a couple days. It is now July 5th, more then 36 hours since I took the last does, and the nausea is finally gone and my appetite is slowly coming back, but I still have a fever but it is slowly coming down as well or maybe the Tylenol is finally working, either way I hope by the end of the weekend to be feeling better.
-- By guy_from_ga | Reply | (1) replies | Private Message me
June 19th
2008
10:04 PM
WOW, I am so happy to find this site. I am a 56 yr old female. I too am on Toprol. I was on 75 mg 2 x's a day for HPB and mitral valve prolapse pain. Then yesterday the Dr. increased my dose to 100 mg 2x's a day .Today my ankles and feet blew up like balloons. I have been having profuse sweating and was cold and clammy for the past year and no Dr could tell me why!! NO sex drive , depression,sleep apnea, severe insomnia, brain fog, short term memory issues, moody, irritable, my husband has threatened to leave me. NO appetite!! Floaters in my eyes started a few months ago, I have so many symptoms that I have read in all your posts. No quality of life for the past year. I have felt like I was losing my mind, gained 35 lbs in past 2 years without changing my eating habits. I gained the weight after I had lost 50 lbs. Been on Toprol about 2 1/2 years ( I think ) Every symptom I have experienced I have read in your posts!! I have type 2 diabetes and am on glucophage, I also take 10 other scripts. I have fibromyalgia and chronic fatigue, RSD in my left arm, muscle pain and joint pain. Pain in my right upper qaudrant. Nausea/ some vomiting, NO ENERGY, Loss of interest in most of life. So now after reading all your posts I have to ask myself, are all my symptoms linked to the Toprol and not syndromes or illnesses? I am calling my doctor in the morning and getting off this med!! They will just have to put me on something else!!!
So how do I post to receive replies?
Joyce47oh
May 9th
2008
6:48 PM
I had my Mirena IUD removed on Monday, May 5, 2008. I had it inserted on November 10, 2005. I was having major side effects from the birth control, and every doc I went to said that there is no way that Mirena would cause the side effects I was having because the "progesterone amounts are too low to cause these side effects". I have had the following side effects:
WEIGHT GAIN
JOINT PAIN
LUMPS IN BREASTS
BREAST TENDERNESS
HUNGER (as if i were pregnant)
DEPRESSION
LOSS OF SEX DRIVE
HAIR LOSS
SWOLLEN ABDOMEN (BLOATED?)
HEADACHES
GROUCHY/ON EDGE
ACNE
CYST (had a couple weeks ago... i was on vacation in Vegas and had a cyst burst.. never had these issues... this was the last straw)
STABBING PAINS IN ABDOMEN AND IN AREA OF OVARIES
PMS SYMPTOMS EVERY OTHER WEEK FOR TWO YEARS
BREAST GROWTH D TO DD
VAGINAL BLEEDING AFTER INTERCOURSE
FATIGUE
TENDERNESS OF ABDOMEN
BACK PAIN
HIP PAIN
As of today, Friday, May 9, 2008 (4 days after Mirena has been removed) I have lost 9 pounds. I am sure this is probably water weight? I am feeling a little better every day. The night I got home from having it removed, I had major mood swings... would be happy one minute and crying my eyes out the next!!! I would not recommend this IUD to ANYONE.. not even on my worst enemy (if I had one). This needs to be taken off the market. It is not safe! I have spent thousands of dollars on ultrasounds on my breasts (thinking i could have cancer because the lumps i had in my breast) and on other doctors bills to figure out what was wrong with me.. only to find out that "Mirena is not the cause"!!!!
-- By mon_cheree | Reply | (14) replies | Private Message me
May 6th
2008
1:10 PM
Hello,
I was reading the information you posted about the side effects you were having from mirena. I too have been having problems-40 lb weight gain in 5 months and extreme hives/welts with joint pain. I called the FDA in Florida go to there website and they sent me a packet-also would love to get involved in a class-action lawsuit. I have since contacted a Class-action lawyer by the name of Justin Wikin 850-916-7450 to procede with a lawsuit email me with questions if needed
******
Amaya A.
-- By amayaa | Reply | (5) replies | Private Message me
January 6th
2008
10:50 AM
Haven't seen anyone mention any sexual SE's but I know I'm not imagining this. It's not a lack of libido but, it's as if my wiring has been disconnected.
A lack of sensation. Major bummer. I can live without sodas but not this!
That was my major reason for getting off the Topamax. My doctor was very incredulous about this being a SE of the Topamax but he didn't argue with me. I came across this site just looking to see if anyone else had experienced this. After getting here I can not believe all the things I have been brushing aside as due to something else. Stomach pain and diarrhea, severe GERD, depression and morbid thinking, oh and my gosh the trouble searching for words and connecting thoughts--I thought I was loosing it, shortness of breath and weakness that I was attributing to weight gain! I have only been on 25 mg a day for 6 months. The migraines did improve and the paresthesia in my hands subsided over time. But all this other crap that has slipped in and I have been passing off as aging or just wondering what else was up with my body and mind. Sheese! Thank goodness for this site! I am tapering off this crap-- and I feel like crap. Weakness and fatigue and a weird pain in the side of my head that is not a headache exactly. I hope I'm back to normal soon, this is awful!
January 3th
2008
10:40 PM
I was diagnosed with Crohn's disease in July. I had my colonoscopy/endoscopy the day before 4th of July. Got sick with what I thought was the flu on June 26th. That's when I first landed in the hospital (dehydrated & sick). After the diagnosis I was first put on Entocort and Pentasa (Pentasa is supposed to be a remission drug - keep you from having flare-ups). Entocort didn't work so they switched me to Prednisone. I've been on Prednisone for about 6 months now. Going from 20 mg to 40 mg and then I'm finally weaned down to 5 mg. I get to go completely off of it Jan. 13th. Scared of what other side effects might occur from coming off the drug. While on it I've had emotional problems, acne(never had a problem with it before), moon face, gained 30 pounds, joint pain (I was in therapy for as long as insurance covered. - I recommend water therapy, it helps for some people as it did me), trouble sleeping (haven't slept a full night since I got sick), certain days I'm really really thirsty, I've had sort of what I'd call restless leg (I had this before I was on this medicine but it has gotten significantly worse - mostly at night or when lying down), and dry skin.I have to say though that the WORST side effect is the FOG. It's horrible. I enjoy learning and using my brain and when I'm on this I can't think, I mix up words, and it feels like my brain is covered in cobwebs.I had to drop a calc 2 class and that got me off the track I'd set with my academics. My inflammation rate is down where it's supposed to be as of the last blood test a couple weeks ago. So I guess the Prednisone and Remicade are doing what they are supposed to - but I still don't feel as if the pain (not associated with Prednisone - caused by the disease) has gone completely away even if the inflammation has gone down. And Prednisone's effects are just horrible. Some nights I feel depressed and just want to cry and cry. The past months have been trying because of several hospital stays, switching to many different doctors (gastrointernologists, nephrologist, urologist (kidney stones), primary doctor - and they think maybe I should see a rheumatologist), and Pentasa (it began shutting my kidneys down). I just hope that when I come off the Prednisone the side effects will fade (hopefully quickly but lets be realistic - ill just be happy if they go away sometime in the next few months) and I won't flare up again. Anyone know the best way to get rid of the weight? I'm already drinking lots of water and I go walking and do exercises everyday.
QUESTION: When tapering Prednisone does anyone have a place(s) on their stomach that are sunken in and feels dry compared to the skin around it?
Anyways, I hope that everyone overcomes their difficulties, whatever they might be or concern. It's hard to have a life when you are constantly fighting your own body to stay healthy.There are plenty of situations in life that are already hard enough to deal with without medical issues of your own. Best of luck to all!
-- By tesa | Reply | (4) replies | Private Message me
July 12th
2004
1:03 PM
my husband has been on toprol for 2yrs had no problems till about 2 months ago he take 50 mg in morning and 50 at night his bp is around 210/110 without but when he takes it its 160-90 he says he notices short of breath sick to stomach no sex drive tired see the problem is that hes been in the hospital 3 times for low heart rate 25-30 beats a min and bp 60/20 they think its the meds he went in on the 4th of july and was put on life support and a external pace maker for 6 days they not sure what happened but they think its a reaction to the med i am scared for the next time i wish they could figure out whats wrong hes only 41 any one else been through this?
-- By tawnyameier | Reply | Private Message me
Mirena (3) Toprol-XL (2) PredniSONE (1) SMZ-TMP DS (1) Topamax (1) Remeron (1) Chantix (1) Doxycycline Hyclate (1)
July 5th
2009
1:55 AM
Dear EZ-RUST ... you must be a doctor with that attitude towards everyone ! I just had surgery 2 weeks ago to remove an ovary/tubes/cysts and so on from Endometriosis. I had the Mirena inserted at that time. MY DOCTOR told me that is is a great thing and I totally trust his judgment being a specialist, also, I did my research and read a lot of these comments regarding side effects prior to my insertion, and I thought wow, that's crazy, but I thought everyone responds to meds differently, I knew two other girlfriends in my office that were looking into this and one is going to be getting this as well. So I did cover everything, got the good reviews from another friend, plus read us on the Mirena... Positive = no bleeding since put in other than mild spotting after surgery, but that spotting was probably related to surgery ...... BUT I now have some side effects after 2 days and thought it was a intestinal / bowel issue ... but I have the acne, mild headaces, look 6 months pregnant = after only 1 1/2 weeks of this being inserted !!!!!!!!! Plus the moodiness which that can be caused by anything in general as well as a sore lower back. I WILL be having this removed as soon as I am back in Canada, I am in the USA enjoying the 4th of July celebrations .... But you are a bit harsh, judging other people ! Conditions are conditions ! Having your opinion is one thing but being so defensive makes me think you work for the company !
-- By serenity42 | Reply | Private Message me