November 8th
2009
11:20 PM
Hello All,
I would like to Thank everyone so much! I thought I was really losing my mind. I started NuvaRing on Sept.27th. The nurse told me I could leave it in for four weeks if i wanted abd not have my cycle. And I did. The doc put me on NR due to the PH in my vagina off. He said it would help. While i think i has helped the PH it has caused: vagina dryness, headaches, nervousness, burning feeling, tiredness, depression, angry Bitchy attitude, low sex drive, paranoid, scared feelings, don't want anyone to talk to me, don't want to party or kick it with my friends, and a weird discharge thats kinda nasty. I also have freaked out on all my male friends. I feel like im somebody else. Some crazy woman. Im 34 years old. And i don't know who I am right now or what I want. I thought about taking this thing out tonight and throwing it in the trash compactor but i have one week to go till my cycle. I was on Desogen pill before and switched for the convince only. Darn NR. Well Thanks ladies this is it for me. And my OBGYN doctor will be having a serious talk next week. Shame on me for not doing more research before switching. And i have a pain in my side and very loose bowels. Run from NR ladies RUN!!!! ******
October 3th
2009
9:25 PM
I hate this thing and can not wait to have it removed!!! I'm 45 and thought this was a great choice for me with menopause on the horizon. NOT! I had the very painful insert on Aug 4th 09 and have been bleeding ever since. 2 weeks of bleeding straight, I'd rather give birth to a razor blade! Then spotted for two weeks. Went back to have a recheck on Sept. 3rd and have had a tampon in all day and night for a month! I 'm now worried about TSS and I'm now also 10 pounds heavier, have experienced tingling in my arms, pain across my shoulder blades and I cry, a lot! I called my Dr. and she said this was normal and would subside! WHAT? Sex is not even an issue because who wants to be down in the red zone! I'm having it expelled on Tues. the 6th and can't wait to lose the symptoms and be back to normal. I look forward to having sex again without towels down like I'm house training a puppy. Good Luck to all of us and yes I think we should sue!
-- By iudnot4me | Reply | (1) replies | Private Message me
July 14th
2009
11:34 PM
I just learned that you can develop Cushing's Syndrome from taking prednisone, and that the doctor that has you on this should warn you that you could develop this. 10 mg a day usually worked for my pain, but I eventually got up to 20 mg a day, and that's when my problems really started. Of course I had already gained enough weight, which caused severe depression, but then I started gaining like crazy, and this is really weird, I was eating less, and had no appetite, but still gaining weight. I started feeling too tired to do anything, I have severe lower back pain, and get short of breath from any little bit of activity I do. I can't even take a shower without sitting on the side of the tub to rest. I also started having restless leg syndrome at night and would wake up several times. I sweat profusely without doing anything. I can just be sitting on the couch watching tv and sweat will start pouring down my face. I keep a towel with me at all times to wipe the sweat off. I definitely have moon face, and I also have sores all over my legs and face. I wish I would wake up and it was all a bad dream, but not so. I feel for everyone that has had these experiences. I am seeing an endocrinologist next week to see if I have Cushing's Syndrome. I don't even know if there is anything to do for it? Has anyone else who has used prednisone been diagnosed with Cushing's Sydrome?
-- By lawhear | Reply | (1) replies | Private Message me
May 3th
2009
4:59 AM
I have been on Yaz for 3 days now and stopping it! I have been on Yasmin previously which never had any problems, just the slight weight gain, predominantly water retention, so this time, a year later, was prescribed Yaz. Immediately I felt very sensitive and down, could have broken into tears over the simplest things and also an increase in appetite. The worst though, as I have never experienced before, very lethargic and interrupted sleep, slight fever, bad nausea though not throwing up, cramping and bloatedness, having period like symptoms. Now reading this page on Yaz, I wish I never had thought to change or experiment with this and would not recommend it.
-- By verseau | Reply | (1) replies | Private Message me
April 15th
2009
1:27 PM
oh my Gosh!!! reading all these posts makes me want to cry. I don't even know where to start from. Before I had Mirena inserted, I thought I'd done all my research - and I asked a lot of questions too. I even knew people who had it. I saw the changes in them and didn't think much of it.
I had the Mirena put in 3months after my son was born. My son just turned 1 (2 days ago) so within a matter of 9 months, I've gained 20 pounds. The sad thing was I was trying to figure out what's causing the weight gain? The thing is that I am such a "eat right freak" that I knew it was definitely no extra calories or fat...and I work out everyday. I breastfed my son until he was 8months...I did every xtra thing I needed to do to make sure that I would not gain any weight.
Less than a month after my son was born, I went back to my pre pregnancy weight (5 pounds lower) and I couldn't wait to show off my body to my friends. I heard about the Mirena and talked to a few friends who had it at the time. I talked to 3 different OBGYNs to make sure I get different perspectives before deciding to have it inserted. I researched online (I obviously missed this website) and did try to get as much info about this plastic thg before I have it done. Its has been the WORST decision of my life.
I have experienced terrible mood swings, no libido whatsoever, depression, severe headache (where i had to find a dark spot and hide because any light just made my head want to explode), tiredness, became very forgetful, tingling feeling in my legs abd arms, and SEVERE BLEEDING for days unend. This came with cramping (which I never experienced until I had my Mirena inserted) and the bleeding was so heavy and clotty. Sometimes, I will have these bleeding episodes more than twice and month and one can last for a minimum of 4days. It has made it very hard for my husband and I to mate and frankly, I'm tired of wearing sanitry pads.
I have become so depressed about my weight (which is my biggest deal) and feel like I have been doing everything but just haven't lost the weight. i now know why. Even as I'm typing this, I'm on hold with my doctor's office to get this damn thing removed. My husband and I have always been good with condoms...at this time, it's a no brainer that we'll go back to my true and trusted source of protection.
I don't recommend this for anyone - whether you've had all your children or whether you're yet to start, don't use Mirena.
Thanks to everyone who posted their experiences here. Reading through your predicaments was like a light just went off in my head...
I can't wait to get this thing removed.
March 22th
2009
7:41 PM
I got my Mirena in September 2008. At first it was great I did not have any side effects. I did notice the weight gain but I figured that I was just eating to much. Then I noticed the nausea and severe migraines. I thought that it was from stress and all of the dieting that I do. Today I started a new diet and I noticed that my face had been getting a lot of acne and that I was very moody. I decided to research the mirena iud because, this is the only thing that I have done different to my body. I am now so scared because of what I am reading. Now I noticed that it is not the dieting that the same symptoms that you all are having I am having. Long periods,moody, low sex drive, nausea and more. I am making an appointment tomorrow to take this thing out. Thank you for the site
-- By tammy123 | Reply | Private Message me
March 13th
2009
1:22 PM
I have had Mirena since October 2007, and since then I have had severe cramps, sharp pain in my pelvis area, abd pain, headaches, mood swings, and NO sex drive. Every time My husband and I have intercourse I bleed and have pain. I have had it rechecked twice in the past year to make sure it is in place, and I couldn't figure out why I was having all these issues. After seeing this website I have decided to have it removed... April 21 .. so I will post again on how things are going!
-- By ashleighgal | Reply | (1) replies | Private Message me
February 9th
2009
1:17 PM
I was diagnosed with SLE (lupus) when I was 14, I'm 21 now, and I've had to be on prednisone all this while. The dosages alternate between 60mg (the highest) and 2.5mg (the lowest), I just went for a routine check up today and found out that my protein level in my urine is at an all time high. So the doctor is pushing me back up to 30mg of prednisone. Its 2 am, and I am sitting in bed crying because I don't want to have to go through everything again; the weight gain, the moon-face, everything. I know I may sound shallow, because ultimately, the medicine is keeping me alive, but the side effects are terrible. Very few people understand that its not fat that you're gaining, and the remarks that I know I am going to get are enough to drive me insane.Is there anyway the water retention or the weight gain can be stopped or decreased?
-- By tiffanyt | Reply | (5) replies | Private Message me
July 18th
2008
12:25 PM
I am a woman in her early 60's. I have slightly elevated BP abd it does tend to spike first thing in the morning, after waking and is much lower (normal) at night. I have tried several different BP meds and had side effects of all of them. The Doctor recently put me on Toprol XL 25mg. After about three weeks, I really did not feel well - extreme fatigue, severe leg and joint pain, depression. I just could not function. I know I am extremely sensitive to medication. I decided to come off the Toprol, after only three weeks and go back to Lisinopril 2.5MG. Now, after only two days of not taking Toprol, I truly feel very weird. Far less tired, but extreme dizziness and a kind of spaced out feeling. Is this just the withdrawal from Toprol...and after only three weeks of taking it? Plus, my BP seems to be very low - the lowest I have ever recorded it. 112/55 last night. Does coming off Toprol actually have a reverse effect and plummit your BP until it is out of your system. If so, why has my doctor told me to triple upon the Lisinopril now I am back on that. Dealing with even slightly elevated BP has become such a major issue for me.
-- By joans0123 | Reply | (2) replies | Private Message me
July 12th
2008
4:25 PM
I have had progressive muscle weakness, pain in my joints with swelling of the knees, ankles and hips. My doctor said it is not related to the antibiotic and to continue taking it. The symptoms are so disabling I can barely make it to the bathroom alone and I have had to miss work. I also told him the inside of my throat felt swollen, and my tongue is turning white. It just isn't a pleasant drug to be on.
-- By ddevore918 | Reply | (5) replies | Private Message me
June 24th
2008
10:42 PM
Most of the "side effects" are die off responses (sometimes referred to as a herxheimer response similar to that which occurs when treating syphillis) from bartonella or borrelia. Levaquin is a potent intracellular antibiotic...where these and other organisms can hide. These can be subclinical infections where (at this time) you are not even aware you are infected. If your "side effects" start around the 3rd day into your prescription...rejoice...and suffer for a while, you are killing something really bad.
-- By evergreen2u | Reply | (10) replies | Private Message me
June 13th
2008
8:44 AM
Not really sure what to say here. Had my Mirena put in March 2007, 6 weeks after the birth of my second daughter. I had taken the pill before this, and twice I fell pregnant on it. I took it religiously, so obviously it just wasn't for me. I decided on Mirena, having heard many wonderful stories about it. I didn't find the procedure for inserting it painful or uncomfortable, but maybe this was because I had given birth such a short time before.
Shortly after having it, I began to feel depressed, and ever since I have been moody, irritable and quite hard to live with. I put this down to post natal depression, and my doctor was reluctant to give me any medication for it, his explanation being 'you've had a baby, your hormones are all over the place, you'll be fine'.
I came on here yesterday, a friend of mine asked me to research whether she could have the Mirena or not, she's got 2 little girls, the oldest just turned 2 and both were C-sections. Anyway, not to babble on . . ..
For the past few months, I've been living with demons in my head, I feel no energy, don't leave the house much, am totally depressed most of the time. My relationship is suffering, I'm very short tempered with my girls & husband.
I've thought about seeing my doctor to see if he can help with the depression, but now I'm wondering if this little piece of plastic is the root of my problems.
Before falling pregnant, I had lost 42lbs, abd I kept it all off during pregnancy through healthy eating. I came out of hospital 1lb lighter than when I fell pregnant. But In the past year, I've put every one of those 42lbs back on, and about 10lb more. I haven't been overeating, and I know I've not been 'dieting', but even after a few weeks of quite intensive exercising, this weight will not budge.
I am also hoping my husband will stumble across this page if I leave it on the pc, I really want him to realize that the 'raving lunatic' he's been living with for the past year or more might in fact not be me being the 'negative, bad person, but maybe that something which I chose to have inside me is the cause.
Now I'm at a point where I don't know what to do. Do I continue with the Mirena, or do I have it taken out? Can I live with the mood swings for another 3 years, indeed can my kids, can my husband? Or do I have it removed, and try find some other form of BC?
I would like to have another child or two in a few years time, so I don't want to do anything permanent, but I'm really in two minds on whther this 'coil' is worth the side effects. I have tears streaming down my face as I type this, tears of happiness that I've maybe found out what is wrong with me, tears of sadness because I don't know what to do .
June 9th
2008
9:26 AM
I wanted to let all the women who are currently experiencing the horrible side effects of Mirena know that all your symptoms will disappear within one week of having the device removed! I had been off of birth control for 8 years as my body could not tolerate the artificial hormones. My Gyno was excited to tell me all about Mirena, a birth control method that would work with limited "localized" progesterone. I was concerned about taking any hormones, but my Gyno, who I really liked, assured me that I had no reason to be concerned. The procedure was easy enough, with only mild cramping for a couple of days, I was initially excited. Three days later, the emotional side effects began. I had extreme anxiety and depression, my insomnia was so bad I went days without sleeping. At 29 years old, I had never experienced any of these symptoms before, and they came on so abruptly, despite the fact that I had no reason to be feeling this way, on paper my life couldn't be better. At its worst, I had no energy for living and felt as though I couldn't live another day. My boyfriend was so concerned about my total transformation and "dead eyes" that he started doing research and found thousands of posts about the horrors of Mirena. I contacted my GYNO and she told me that there was absolutely no connection and that I should look to go on Lexapro. WHAT! I went from a very even tempered, happy women with no history of emotional distress to a nightmare within 4 days and you want to prescribe me a psychiatric drug over the phone. I declined the 'script and demanded an appointment to have it removed, despite her assertion that it would be a waste of money as Mirena wasn't causing my symptoms. I had it taken out and within one week, I was back to myself 100%!!!! To all the women on this board, don't wait to take it out, whatever you paid for it isn't worth the price you pay for it emotionally and physically. I am sure my former GYNO thinks it was psychosomatic, but I know the truth. MAKE YOUR APPOINTMENT TODAY!
-- By gragassi | Reply | (2) replies | Private Message me
May 19th
2008
2:00 PM
This is also a follow up. My daughter 11 was put on Singular 4 years ago. The first symptom we noticed was the rubbing for her thumb abd fingers. We thought that it was anxiety because i had recently been hospitalized. For the past 4 years we have attributed most of her symptoms tp PANDAS. She also found out recently that she has high cholesterol. All of these kids having the same side effects can not be a coincidence. I will file a report with the FDA. We took her off of it about 1&1/2 weeks ago and have seen definite improvement. With everything she's been through I'm sure that she's continue to need support even after this medication gets out of her system.
-- By judyhk | Reply | Private Message me
February 8th
2008
11:54 PM
Just started the NuvaRing. only had it in maybe 2 weeks. tons of pimples and having pelvic pains, lots of bilat flank pain. last 3 days abd bloating and gained 3 pounds (obviously most likely fluid retention). nausea and gastric pain after eating. I had been on the ring quite a few years ago and could not remember why I only used a short time. hmmmmm now I remember! Something quite not right. I went online to see if these symptoms may be short term but from all the other comments does not look like they are. Took the ring out. Also like others foul smelling discharge. This was only after 2 weeks. After reading all comments looks like a poor birth control choice if there are others with good experiences they should report otherwise this medication should really be taken off the market.
-- By ambergol | Reply | Private Message me
November 7th
2007
12:25 PM
I started NuvaRing on Thursday, June 15 2007 and Monday, November 5 was the final draw. I talked with my best friend and admitted to her that something was seriously wrong with me but I didn’t know what. I told my friend I need to talk to someone about how I’ve changed for the worst. Things has gotten so bad with me I actually thought I was Bipolar. So we did some research on NR and when I read the different stories I was blown away because I would have never linked what I was going through to NR.
I had no sex drive non-what so ever, the thought of my boyfriend touching me made me sick to my stomach. I would actually get into physical altercations with him which has never ever happened, my attitude had taken a turn for the worst, I would have thoughts of hurting people that made me angry, I had to wear a panty liner everyday because of the discharge, migraine headaches, pain in my right breast, nausea, abd cramping, feeling tired, waking up in night sweats, felt the need to be alone, and mood swings. Yesterday I called my Dr. and told her I need to get off NR ASAP so she said she would call me back but never did so I took it out for the final time last night. Before I start taking anything else my body will be free of any birth control until NR is totally out my system if this means slipping up and getting pregnant in the process then so be it, it will be a first for me anyway.
NuvaRing was wonderful and the thought of not having to take a pill everyday was even better but the side effects will make you become someone you don’t know and your life will take a turn for the worst and it will have you thinking you are loosing your mind. For those who had no side effects consider your selves lucky because I wouldn’t want anyone to experience what I’ve went through while on NR.
-- By denise11 | Reply | Private Message me
October 19th
2007
3:41 PM
I started taking Lamictal for bi-polar disorder. I did the starter pack about 6 months ago. Then went up to 200mg. I felt like crap. My head was foggy, couldn't remember things, easy stuff like how to spell words that I know I can spell. Upset stomach, blurry vision terrible headaches abd migraines.
I stopped taking it and went back to my shrink and he said it's like have high blood pressure I have to keep taking it.
So I started the starter pack again and I'm up to 100 mg. I ache all over. My bones hurt so bad and after reading all of the info on here I'm going to talk to my doctor about other trestments.
My primary dr. has sent me for blood work and results were normal so she wants addition blood work done, but I think it has a lot to do with the lamictal. I'm glad I found this site, I don't feel like I'm alone.
It's hard feeling this way and friends and family think your faking or crazy, and I'm not. My mood has stabilized on this med but all the side affects suck.
Oh yeah and the weight gain! And no matter what I do I can't lose any weight. The vivid dreams are wild too. One night I woke up sweating with my heart pounding so hard from a nightmare I was having.
Thanks for all the info. I wish you all well and good luck finding the right meds.
-- By ponyislandgirl | Reply | (2) replies | Private Message me
September 27th
2007
9:19 AM
I have had four uniary-track infections from Jan. 07 until Aug. 07. I have runny nose, allegery type sympons. lost taste/smell senses, burning/numbnes/tingling hands feet,muscle/joint pain feet,knees,hips, back, shoulders,upper arms, hands,dry mouth, dry eyes, vision problems/blurred/double vision and times cannot read news print,increased heart pallpation,insomina,headache. had to cancel last infusion due to unary-track infection and while on antibotic. In the past two weeks, i have noticed decrease in most of the above sympons, except burning/numbnes/tingling in feet, and swelling in feed and hands has disappeared. I was due for infusion today, I told Dr. of disappearing sympons, he delayed another two weeks. I also have been diagnoised with chrons disease. I want to continue to see how I feel in next two weeks, before scheduled infusion, other headache,nausea,stomach abd. pains.
-- By rmarybetzler | Reply | (1) replies | Private Message me
September 19th
2007
6:24 PM
I am so glad I found this site. I chose Mirena because the copper IUD was giving me heavy bleeding , so this appeared to be the great solution.
The bleeding decreased but at the same time other symptoms appeared.
After eight months of visiting doctors of all kinds, taking pills for deppression, and going on never-ending diets, I found a doctor whom I have never seen before, and he looked at the facts from a distance.
It was him who suggested that Mirena could possibly have something to do with my gain loss (22 pounds) , mood changes, hair loss, incredible bloating of my stomach after eating and tiredness.
Reading this experiences only made me more certain to have it removed as soon as possible , hoping to get back to my old self soon.
July 20th
2007
12:20 PM
I had my mirena inserted back in May 2007. The insertion was the most painful experience of my life. The Dr. could not get in on the first 3 tries! She said, "well, one more try," and got it in. I almost passed out from the pain. I can count on one hand since then the days that I haven't bled or spotted. I get mystery "shooting pains" in my abdomen a few times a week, sex hurts because of cysts on my ovaries, I have acne on my entire face, scalp, hairline, chest and back. I used to get a couple of zits (maybe) before my period, before Mirena. Now I have full blown acne that leaves scars, and I am never without zits. And to top it off, now I am getting cysts on other parts of my body, too. I don't even want to get started in on my lack of sex drive, or being always tired. I tried to let the staff know that I wanted the copper IUD instead, but they told me it was too late to change my mind. Getting Mirena was a huge mistake, and I can't even afford to have it removed, so I am stuck with it until I get insurance again. My advice, DON'T get Mirena!!!
-- By jamilynnfitz | Reply | (1) replies | Private Message me
July 13th
2007
11:37 AM
Had to stop the drug after 5 days. It was making me feel so incredibly bad and sure I was getting ready to check out. I did not have the cough, but did have the insomnia, muscle ache and cramps, made my lightheadedness which is bad really, really bad. I was getting abd cramps and the eyesight was getting strained. AND, the BP really did not improve. I stopped it, and the PVC's I have were so persistent and unpleasant I did return to my 25mg of toporol XL which I would prefer not to be on. But, I have to be able to function at some basic level. UGH. Liam
-- By liam13 | Reply | Private Message me
September 26th
2006
4:29 PM
experienced ischemic bowel after on 25mg for 4 days reguired hospital stay of 6 days and IV. symptoms of abd cramping bloody stools and severe pain. Believe bp became too low to perfuse intestines. med was ordered to reduce load on aorta due to enlargement.
-- By nsrlf | Reply | Private Message me
April 26th
2006
10:40 AM
My Dr. tells me I can stay on the Aciphex indefinetly, but data suggest this should be taken short term only. What's the scoop ? I have abd. pain a lot., but reflux better.
-- By hbhurley | Reply | Private Message me
April 5th
2006
3:17 PM
Shortness of breath and heavy feeling in the chest area, indigestion has increased and a feeling of tiredness and my heart still feels like its coming out of my chest while taking toprol XL 25mg for 3weeks. My MD feels it might be anxiety, but i think its from the toprol. I go back to the MD tomorrow. Prior to my hysterectomy (partial-still have tubes), i did not have high BP and I think my BP is not really high, now. Prior to surgery it was normally anywhere from 115-120/70-80. After the HYS, I went to the ER for shortness of breath and pounding heartbeat. It was found that I had a DVT in my right leg, so they started me on Lovenox injections, which was discontinued and Coumadin 6mg. At the same time I was given toprol 25mg daily due to pounding heartbeat (but still was in range under 100) and Davarcet for pain. I stopped the Darvecet after 2 days of being dc'd. It worked for maybe a couple of day after but by the weekend I was calling the MD again due to shortness of breath abd pounding heartbeat. An ultrasound, ekg, echo of my heart and nothing was taken of while I was in the hospital for 2 weeks. Help! anybody experiencing the same feeling?
-- By kkkroy | Reply | Private Message me
November 10th
2009
3:32 PM
For me, it has been about 10 years, I think, since I was on lupron. I got a shot every 3 months for almost 2 years. At the time, the Dr. told me that the Lupron was still in the experimental stages but they thought it would be beneficial for me to try. I had a mini lap done because of a softball sized cyst rupturing so she couldn't see anything in my abd with the regular lap. I was diagnosed with stage 4 endo and started not long after on the lupron. I do not envy any woman that has or is going through menopause because the mood swings and hot flashes that I remember, were aweful.
-- By sdennis | Reply | Private Message meSince the end of my Lupron, many years ago, I have noticed a few things that I never really put in line with the shots, ex...severe headaches, bad memory loss (to the point that I sometimes cannot remember things I just did), joint and muscle pain.
For me, the Lupron was a God send for the endo, I was cleared after about a year and went back 2 years ago for another lap and that was clear of endo but I have bad adhesions.
Before all of this started, I was a very active person with horseback riding, clogging (a type of celtic dance), and a very dependable person. Things are getting worse for me and I am only 32 yrs. old.
This is one of those moments, I know there was a reason for me to write this but now after being so long from reading the other comments, I cannot remember what my point was. No need to delete this though.
If anyone knows of anything that I can do to help with the memory issues, please help me out. All kidding aside, I cannot remember to take the vitamins that are suppose to help me remember.