June 10th
2008
5:55 PM
PRAISE GOD for all of the stories shared on this site. And I've only read page one. My husband called me back today to say that he "googled" Singulair and found some interesting things (to say the least). While we were on the phone, my three-year-old was in the throes of another meltdown, kicking me, hitting me, throwing whatever he could get his hands on. My older two boys, 8 and 12, were ordered, once again, to lock themselves in their rooms to avoid being hurt by him. He will throw stuff, bite, hit, kick, and, at times, spit on us. This disturbing behavior is rather constant lately. He is like a mad man. Very scary.
Caleb has been on Singulair since about age 1, when he was diagnosed with chronic sinusitis and allergic rhinitis. Unfortunately, we initially equated his rages with the onset of "terrible two's" and dismissed his behavior to a chorus of "oh, he's just a boy!" My husband felt, at times, that I was just not disciplining him properly. I intuitively knew, having raised two other boys, that this behavior was abnormal, even for severe tantrums. We received a variety of suggestions from his pediatrician, caregivers, and grandparents, all to no avail. We have several calm days but things always deteriorate back to insanity. He is VERY unpredictable.
Last Thanksgiving, Caleb (age 3) was kicked out of his daycare setting for biting and hitting. Once I witnessed him run as fast as he could into a group of playing children, falling on them, kicking them. He would walk up to sweet little girls half his size and push them down as hard as he could. It was a nightmare. My husband had to take 3 weeks of leave to stay home with him while we prayed and searched for new care. We had him evaluated and he was staffed into the "developmentally delayed" program in our school district (for poor adaptive skills and personal/social behaviors). We recently had his tonsils removed, hoping that some of the sinusitis symptoms and behaviors would improve. They really haven't. This past week we have been looking into the Feingold diet. We have been PRAYING for answers. The last time we spoke with his developmental neurologist, he recommended a trial of Risperdol (sp?). We feel like more meds would be like a band-aid, not a solution. But his rage is becoming unbearable.
So, that brings us to today. I was so moved by your accounts. Unlike so many of you, we don't have much of a "before" to go by. But his "after" sounds VERY much like what you have all described. It's probably the pure rage that I see on his face that is the scariest part. And at the same time he seems desperate and vulnerable. He truly seems to snap. If we had pool chairs, I can just picture him throwing them (citing another post :).
We are going to throw the Singulair away. He will never, ever have it again. Even if this isn't the cause of his problems, I certainly don't want to exacerbate any behaviors with this toxic medicine. I will post again just to let anyone who's interested know if this changes his behavior. I am praying that my entry will help someone else, just as all the other postings have helped me. I have renewed hope.
I have copied many of your comments to a Word document. I will be sharing it with a high ranking officer at the medical clinic/hospital on Keesler Air Force Base. I hope that he will discuss this with his staff and that perhaps we can at least make a difference here. I, too, will be filing a report with the FDA. I can only pray that this medicine has not permanently altered his developing brain.
-- By calebsmom | Reply | (4) replies | Private Message me
June 5th
2008
9:55 AM
Update.... well my 6yr old son came off Singulair on 3-29. His sinuses drained finally (only waiting past year for that to happen) 9 days after coming off. His sinus problems have been gradually going away. He is now only taking claritin and sudafed when absolutely needed. BUT he started with sore throats. He never had a problem with tonsils only adenoids which they took out in Feb. Now since stopping the Singulair his tonsils have become constantly infected and twice the size so he will be having them removed in July. Some of the antibiotic don't seem to be working as he has been on them so much over past year. Im wondering if the Singulair was hiding the fact there was a problem with the tonsils as well.
-- By sp2008 | Reply | (3) replies | Private Message me
April 7th
2008
10:00 AM
Update.. well today is the 10th day off of Singulair for my 6yr old son. He is doing wonderful. One of the issues he has been dealing with over last year was constant sinus infections. Just curious if anyone else out there experienced thick mucus/sinus infections. His got to the point that his adenoids became enlarged from constant infections but even after surgery in Feb his sinus did not seem to drain completely. Well yesterday he finally started having discharge of what seems to be a lining in his sinus(what they saw on cat scan before surgery). He has no cold symptons and I have been giving him mucinex & saline washes to help thin it out but I have been doing this along.. I have been waiting for this to happen for months now! I don't feel its coincidence that its after we stopped the Singulair his sinuses are finally draining (without antibiotics)
-- By sp2008 | Reply | (2) replies | Private Message me
March 30th
2008
10:17 AM
As a pediatrician I write for singulair every day.
The medication is for allergies.
Allergies cause adenoidal swelling, which cause sleep disturbances which makes the child tired the next day with makes him over weight, less attentive, hyper and eventually act out.
This in turn makes the child experience parental, peers and teachers criticism/ abuse, with leads to the child feel inadequate, embarrassed, frustrated and eventually depressed and suicidal.
Yes, singulair does cause behavioral change but they appear within the first couple of peels, the rest is due to allergies, lack of medical care, i.e. sleep, singulair, and zyrtec deficiency.
Allergy shots cause 4 times the incidence of suicidally than singulair, and Ritalin 10 times more.
They say in hebrew "once a stone is thrown into a well, thousands of smart people won't find it".
Check it, it's true.
March 28th
2008
12:10 PM
My almost 7 year old son was prescribed Singulair 3 years ago for severe asthma and allergies. It worked great--for a while. No hospitalizations, incidences of bi-lateral mucous plugs and pneumonia decreased, etc. I thought it was a miracle drug for him. This past summer/fall however, the nightmares, sleepless nights, multiple sinus infections, moodiness and mild anxiety, extreme hunger (he can now eat my 6'7" 260 lb. husband under the table and my son only weighs 52 lbs.), thirst, leg pains, reflux and very frequent complaints of stomach aches and nausea, etc. began. He was even admitted to our local Children's hospital in November for a severe upper respiratory infection that affected his asthma and blood oxygen levels and for the first time ever, did not respond to therapy. He was on oxygen for 3 days. Not realizing all this was likely due to Singulair, I took him to his ped. pulmonologist, pediatrician, ped. allergist, a ped. gasteroenterologist, and an ENT. None of our doctors suspected the Singulair--and I still have confidence that they are all good doctors. In December, he had surgery to cauterize the inferior turbinates in his nose and remove his adenoids to try to alleviate the sinus infections. At the same time, we had an upper G.I. series done to see if we could find what was causing all the stomach aches and reflux. The GI doctor found nothing. I am just sick to think that Singulair did all this to him, that we put him through surgery to try and "fix" the symptoms, and doctors and parents didn't know enough about the side effects of this drug to suspect it as a possible culprit!! I called our pulmonologist and pediatrician this morning to report my suspicions and took him off it. I sure hope his symptoms will improve.
-- By allergymom | Reply | (2) replies | Private Message me
April 2th
2007
7:59 PM
My 3 year old son has had many sinus problems over the past two years. He had his tonsils out last August along with tubes in his ears and removal of his adenoids. He still has constant drainage from his eyes and nose so he has been on Zyrtec for about a year without any side effects. About 3 weeks ago his ENT suggested singulair to help with all the sinus drainage that just won't go away. I just related it to a number of problems he has experienced in the past 3 weeks. My son has delayed speach and does not communicate well. He kept complaining of a tummy ache and we went to our family practitioner and "it's just a stomach bug". I also noticed that he has been waking up during the night and getting into bed with us. I know he has been having more dreams, but He is not able to tell us if they are nightmares. Just tonight when I was putting him in the bathI noticed a rash around the base of his penis and he would scream if we tried to examine him. I am sure that it is Candida Albicans and that is when I googled Singulair and Candidiasis and found all the other side affects that are on this site and others.
-- By jillyscraps | Reply | Private Message me
March 15th
2006
7:24 PM
i posted last oct/nov of 2005 and have quite a progression with my 7 year old daughter. in october we decided to take her off of singular due to anger, hyperactivity, chronic illness. she was on at the time singulair 5mg, zyrtec, nasonex, advair 250/500, constant antibiotics and orapred.... and still not well. she was tested for chrones disease due to chronic stomach upset, several ct scans due to recurring sinus infections. we removed her adenoids in december....still sick. i finally took her off all her medication except nasonex, and advair 100 1x a day and had a blood test done called elisa. docs thought i was crazy and said it was worthless. turns out she is allergic to several foods. wierd ones like garlic, onion, melon, bananas, beans etc.....anyway, she is no longer on any of these foods and no longer needs ANY medication....it has been 2 months...we'll see, but there really seems to be something to it. ****** feel free to email me to discuss. we have been through it all!!! hope it helps someone a little. apparently, all those years on antibiotics only made things worse and weakened her immune system which created this horrible cycle.
-- By jenglass | Reply | Private Message me
June 26th
2008
1:35 PM
Update. The count down is on. Next week on Tues my 6yr old son will be having his tonsils removed. Only 5 months after the adenoids were removed. I am hoping once this is over the improvements I have seen will just get better! His sinus drained in April, 9 days after coming off Singulair after battling sinus infections for entire year or more actually. When his sinus drained the infection went right into the tonsils and he has had tonsillitis ever since. One thing I wanted to share is that around the same time he came off singulair we started omega 3 supplement. Both my son and I stopped Singulair the same day. We both started the Omega 3. Last week I had to stop his dose because of the upcoming surgery because it can thin the blood. I noticed this last week his nasal allergies kicked in. He did pretty good through this allergy season and wasn't on any meds a lot of the days. I hardly had to take allergy meds this time around also. Im allergic to trees/grass and this is usually my bad time. I really feel the omega 3 has helped a lot!!! I am also waiting to get the results of his blood tests to see if his cholesterol has gone down. Just wanted to share!
-- By sp2008 | Reply | (6) replies | Private Message me