Adenomyosis symptoms and conditions

I went from a rational non-emotional women to a crazy person!!! I feel awful. I would rather have pain than feel this way. I can't sleep though constantly fatigued. Achy body, headaches. Everything tastes like cardboard so I'm not eating well though I have gained a few pounds. I am severely emotional. I almost left my husband this weekend whom I adore, can't stop crying, very depressed and irritable. I want nothing more than to be alone and sleep, which no one can live that way. I am a mother of 3, a wife, and have a full time job. I can't function properly. I will never undergo hormone treatment after I get through this! I am currently on Lupron, just had laporoscopy 2 weeks ago for the 5th time all for endometriosis and I'm only 25. I started Premarin today to assist this anxiety and mood swings. Wish my family and I luck.

i do believe this is the most horrific form of birth control ever created. i had this suggested as a birth control option after giving birth to my 3rd child. after having a bad experience in labor there was no way i wanted anymore. i would love to have a hysterectomy. hrt. i could probably cope with a lot better than being put through hell asnd back every month.
mine was suggested my my gynecologist and i do suffer strange reactions to anaesthesia so seemed to be a good idea to have this put in to see if it worked. how wrong was i. i was a very very angry person. i never ever suffered any nervous conditions before so this was new to me when i completely lost the plot. i was put on beta blockers and i thought i was having a heart attack on them. i suffered worse periods . cramps fatigue . headaches . my skin is still spotty. i always had a lovely complexion before this. my immune system isn't what it used to be. the list went on and on. i didn't like it at all. i asked for removal and they said i had to wait for another gynecology appointment. i knew all the side effects were off this thing in me. i had to wait for an appointment to get it removed./ said 9 months was the normal wait. i think they get paid to test run this contraception. and at what cost? our health

i will voice my opinion about this as its disgusting how much these fat cat pharmaceutical companies profit on what should be free to British citizens.its getting so bad in the nhs we are told to get seen quicker we have to pay. but 20 or 30 years ago people would have laughed at that.

has any real tests ever been carried out on what is in these devices and how it affects so many women in a really bad way.

my problem was when i finally got a sympathetic locum doctor at my gp surgery to agree to remove it. she asked me to give a sample for pregnancy. can you imagine how hysterical i was . yes i was pregnant. so much for the 99.9 % effectiveness. that meant i couldn't have it removed. one idiotic nurse congratulated me

i screamed are you insane woman . congratulations!! what is wrong with you? do i look happy?

the doctor was more sympathetic. everything was a daze at first. she explained chances are i will either miscarry or have the baby and dispel it in childbirth. on my own again. i had a miscarriage 2 days later. not impressed with this at all. i then had to wait 2 weeks for an emergency scan as chances were it came away complete.

how did i feel .angry. empty. physically and mentally drained. i think if i could have i would have ripped that thing right out of me

so i had the scan. luckily it had came away. i begged them to take it out. sent me back to the doctors a week later. and they removed it. i refused to do another pregnancy test said , please just get on with it.
two hours later i was feeling a lot calmer.

i so thoroughly enjoyed having that thing removed for good . never again would i have that in me. or any other coil.

however this is the beginning of a very upsetting case of long term side effects at there worst.

i decided to get sterilized after all this . understandable as being highly fertile sex was a big issue and i wouldn't meet anyone let alone sleep with a man. fear was the biggest thing. getting pregnant was a big no no.

i got sterilized. this is where the problems start for 3 months periods would be getting worse. horrific migraines. couldn't fathom it. my cramp was bad before but god this was like hell. about 6 months passed and steadily was getting worse each month. no amount of painkillers would help. and i could see in myself my skin getting worse. spots. my eyes feeling tired. red sometimes. itchy and dry. feeling sick and tired. then unable to get any sleep on a night. catch 22 . cant sleep then cant get up .i could sleep all day and night no doubt if it was possible . mood swings very bad depression. so much so i had a breakdown in December 07. i took 6 weeks off work and it helped somewhat .but still the periods and bad painsdwere getting worse. i am not a whimsy sort of person. cramp is tolerable this is so bad i cry and cry and wonder why i have to be suffering like this every 3 weeks. i nearly pass out with the pain. i do not like going to see my gp as i find them no use at times. feel like a conveyor belt and you lucky to get ten minutes as the norm is 5. i finally went up to the doctors July 08 and he gave me lots of pills and said i shouldn't mess with mother nature and get sterilized. i don't think he got that right. i still blame that coil. my depression is quite bad at times. my pain is a constant dull ache in my abdomen still. i feel like its on fire when i have my period. i have to work out when i am due on my period and take a week off work. its really bad. i end up in bed. due to the fact i cannot stand upright. it is so bad it feels like labor. but its excruciating. i feel ive aged a lot in the last yr too. i cry most days as i am so tired and feel myself dreading the next one. i try to remain positive and think it will last a week and then i will have two weeks where its not so bad. but my cycle is so messed up that i suffer headaches a week after the bleeding and i am still suffering occasional contractions. if anyone has any experience like this i would be grateful of some sort of assistance be it advise or medical. i don't mind any sort of critical opinion either. i have a very open mind to all sorts of issues so will take any advise on board. i may see an end to my battle of suffering. i am waiting for another hospital appointment to see my gynecologist and hopefully it will be very soon.

tracy.

Hi, I'm writing this as well as having posted on the lupron petition. This is a nasty nasty drug. I had endo, adenomyosis, and nearly bled to death. I couldn't get a hysterectomy because I couldn't get insurance for a pre-existing condition. My gyno said Lupron's maker would donate a dose. I had a stroke about three days after taking the drug. I had complete double vision. I lost my memory, my mind, I had to have blood transfusions, I had horrible hot flashes, my memory still hasn't recovered nearly 8 years later. I would recommend that anyone who has taken Lupron do a mercury detox, because it is preserved with thimerosol, that's what turns it silver. The memory problems will subside somewhat when you do a heavy metal detox. Montmorillonite Bentonite can help. I have done some research and have read that endo can be caused by an infection, and that colloidal silver may be of use in treatment. I would go holistic, I would deal with the pain, or with anything other than Lupron, it wrecked me and I haven 't really been healthy since then.

Beware, don't fall for the hype, it's just not worth it. BTW, I finally had that hysterectomy. I've never felt better. But I'm glad I waited until after I was able to have a kid.

i have been using the ring for the last three months for menstrual suppression because of a suspected case of adenomyosis. I have noticed lately that my whole vagina and cervix area are swollen and sore. I also too do not want to have sex and i could rip anyones head off at the drop of a hat...which is worse...bleeding for a year or feeling like you have vaginal elephantitis?

I'm 23 and I was diagnosed with adenomyosis, which is internal endometriosis (in which the endometriotic tissue grows within my uterine wall) I have been on Lupron since Nov 2007. I do not recommend this treatment to anyone unless they are in dire need. Though I am supposed to be on it for 6 months, I will not be continuing Lupron due to the negative side effects I have experienced. I've been experiencing extreme mood swings, from being enraged, on edge, anxious, emotional, or very depressed. I get intense head aches, very nauseas, swelling in my stomach at times as well as stomach pain, blurry vision, achy bones and joints, confusion, hard time concentrating, forgetfulness, insomnia, cramps and pressure...and the list goes on.
Please inform yourself and do lots of research before ever thinking of taking Lupron. I would never do this again, especially after realizing the harmful effects it has had on my body physically and mentally. I've learned to trust that the best people to listen to are those that have actually experienced this drug, rather than those that are trying to promote it. Everyone that I have talked to that has either taken Lupron or knows someone that has, have had the similar experiences to mine.
I'm disappointed about my experience with Lupron, and I would never recommend this treatment to anyone.

I took one injection of Lupron for fibroids in Nov. 2001. It totally changed my life, I am no longer the same person I was before. It started with severe migraine headaches for 14 days straight and attacks of nausea, lack of appetite. I used to have a strong stomach - now I was very easily nauseated. I never went for the second shot. I began to have panic attacks regularly (I had not had them for over 20 yrs). I was tired all the time, and a person who used to work out at the gym 5 days a week - eventually I quit. Now I just walk. I feel about 65 yrs old (I am just 49). I look old, my face began to droop, my hair thinned. I had bouts of depression coupled with general anxiety. My migraines worsened. My sex drive dropped to zero, I feel almost "sexless". I used to be confident, now I was afraid of everything. I now suffer from irritable bowel syndrome - with bouts of diarrhea, bloating and severe gas pains. I have trouble eating sometimes.. I have had all the tests and no one can find anything wrong with me,and none of the doctors think all these problems are due to Lupron. But, I know - I was NOT like this before Lupron. It ruined my life. I just wish my doctor would have informed me of all the terrible side effects - she only told me about hot flashes. I looked into suing her for malpractice but the lawyers said they could not build a case with no real medical evidence that my symptoms are caused by Lupron. I just wish I had known then what I know now. I tell everyone - NEVER take Lupron. Six years later and I still feel like this. Oh what I wouldn't give to have not taken that drug.

I just finished my last shot in my six month treatment of Lupron. My doc tells me he wants me to do another six months because he has never seen anyone with so few side effects. I haven't had any hot flashes, very few headaches, I'm a little achy now and then, and my moodiness is tolerable. The only thing I would like to change is my ability to get a full night's sleep. I always feel exhausted and like I don't have too much energy. My question, however, is about blood pressure. Since I have started the Lupron, my pressures have consistently been 20 points higher than normal and it's getting to the point where my doc says I need to do something (like hypertension meds) for my own safety. Does anyone else have this from the Lupron? I am 27 and the Lupron has completely taken away my endo pain!!

I just finished my first month. I have endo and adenomyosis. Those symptoms are SO much better. The most frequent side effects for me are hot flashes, memory loss, breast size reduction, slight weight gain, and fatigue ~ but the worst is the migraines. The are pretty much daily.

Awful little thing. Horrible cramping after insertion, bled for 2 weeks straight, back pain, front pain, cold legs, cold feet, crying jags, depression, bloating (couldn't button even my fat jeans), flat hair, eye dryness. Had doc remove it today. Hooray!! Smiled for the first time since before it went in. Adenomyosis is less painful than this little sucker.

am 23 years old.took my first 3 month shot 4-1-04.so i am only two months into it.Don't think i will get the next one.and hate dr's that lie.one thing i have found diff then the rest of you all is instead of dryness i seem to be overly wet.and my breast seem to be bigger some days.I am getting the shot for adenomyosis.it has not helped the pain at all.at first i was not swelled up like i was before the shot.but then the dr added back.and now swollen again but my pee problem did not start back.i was peeing every 30 min.s before the shot. ican't sleep depressed throwing up and wanting sweets and salts all the time.mooded and want to be shut away from every one.when i do sleep it has been between 6am and 2 or 3 pm. i know it is driving my bf crazy because he likes to spend lots of time with me yet all i want to do is stay in bed.if i only get the first 3 month shot and not the next will it still help me get pregant?i will be getting married in the next few months and we want to start trying right away.Also dose anyone know how long before it is safe to get pregant afthe the shot?I have had headachs and back,shoulder neck pain and new pains in tummy.I hate this shot feel like i am losing it some days.i for one was doing better with out it. kim

I am 33 years old and and am going next week for my fourth shot. I'm due to get t a total of six for adenomyosis which is similar to enym. I had surgery three months ago to remove fibroids but found out I had this condition. I have not slept in three months. I get up an average of four to six times a night. The hot flashes are the absolute worst so my doctor put me on premrin which has helped with the intensity of the hot flashes, but it makes my eyes very puffy. Since I have been on lupron, I have gained some weight and no matter how hard I work out, I can't seem to drop the pounds. My hair is growing like weeds and my memory (I'm in grad school) is beyond frightening. I can't remember one minute to the next which is really disturbing. I don't have periods anymore. My sex drive has not changed. I'm hoping this is working and I was just wondering if anyone out there went through this and went back to normal and if they did, how long did it take? It's nice to know I'm not as alone as I thought I was before I read all these testimonials.