Adhesions symptoms and conditions

For me, it has been about 10 years, I think, since I was on lupron. I got a shot every 3 months for almost 2 years. At the time, the Dr. told me that the Lupron was still in the experimental stages but they thought it would be beneficial for me to try. I had a mini lap done because of a softball sized cyst rupturing so she couldn't see anything in my abd with the regular lap. I was diagnosed with stage 4 endo and started not long after on the lupron. I do not envy any woman that has or is going through menopause because the mood swings and hot flashes that I remember, were aweful.
Since the end of my Lupron, many years ago, I have noticed a few things that I never really put in line with the shots, ex...severe headaches, bad memory loss (to the point that I sometimes cannot remember things I just did), joint and muscle pain.
For me, the Lupron was a God send for the endo, I was cleared after about a year and went back 2 years ago for another lap and that was clear of endo but I have bad adhesions.
Before all of this started, I was a very active person with horseback riding, clogging (a type of celtic dance), and a very dependable person. Things are getting worse for me and I am only 32 yrs. old.
This is one of those moments, I know there was a reason for me to write this but now after being so long from reading the other comments, I cannot remember what my point was. No need to delete this though.
If anyone knows of anything that I can do to help with the memory issues, please help me out. All kidding aside, I cannot remember to take the vitamins that are suppose to help me remember.

ok, so I am 28yrs old just had my lap for endo on October 1 and my doctor has recommended lupron, and am going to be getting the med in a week to 2weeks,but after reading this I am soooooooooo scared to even get near this med. Its like you either take this with the hope of saving fertility and no pain..or not and have endo ravage your body and you will live with unbearable pain!!! I have no idea what to do,and i am so scared after reading this. Is there anyone that did not have weight gain, headaches etc...anyone that can testify that lupron actually worked for them? did any one have a baby after doing this. my bigs thing is being able to have a baby. Cause right now its my health on the line, my ability to have children, my ability to have a normal life free of endo pain or these crazy, horrible side effects...please help me!!!

Looking back at a post, it was 8 months ago when i first posted re long periods. and I'd had 3 two week ones then. So 11 months of bleeding...I've been to the docs, taken more hormones, different hormones, tried not having sex, tried having lots, but still bleeding and bleeding. Mirena used to be great. Have had it for over 3 years..... but it just stopped working. The acne has got worse.. the mood swings are worse, the dizzy spells before the "period" pain.....

I feel so guilty for recommending it to so many people as the answer... but it just isn't right for me anymore. Got an appointment to have it removed - scared of the removal pain and possible Crash... always struggled to keep hormones in check!

Thanks to all for their posts ... nice to know we are not alone. Would be nice to hear from anyone who has used Mirena to control Endometriosis.... or is thinking of it.... think it's pretty good... but hard to tell as it was inserted when I had my lapaoscapy and removed the adhesions. All Mirena side affects confused with endo.... but still think Mirena is the big cause.... enough is enough. Three years is a long time. (and a period constantly for nearly a year is insane!!) Good luck.....xx

I don't for one second believe anyone saying this drug worked for them with no side effects.

I also don't believe it actually does anything, going by the amount of people saying it doesn't do crap. Seek alternative medicine, and Doctor Redwine of Oregon. These drugs only mask the symptons of the condition and do not treat it at all. the only thing close to a cure is Excision surgery to remove the Adhesions and Endo cells from organ walls.

Don't buy your doctors bullshit for a second. they don't know crap about what causes endometriosis let alone what treats it. Estrogen is required for much more then just reproductive capabilities in a womans body and this garbage drains it to dangerously low levels. risking permanent infertility.

Last year I had so much pain that I ended up in the emergency room twice. I was tested for everything and finally my doctor send me to the lab for an ultra sound. I was diagnosed with ovarian cysts and small fibroids. I was scheduled for a surgery and I was diagnosed with endometriosis on January 20, 2009 by laproscopic surgery. The doctor said my endometriosis is severe and the adhesions are all over my ovaries, bowel and bladder. I had another surgery march 3, 2009 to remove an ovarian cyst and endometrioma. The surgery was suppose to take 3 minutes or so and ended up taking 2 hours. The organs were stuck down so bad that the doctor ended up having to remove my right ovary and fallopian tube. The doctor scheduled me to start LUPRON on April 15, but after reading the comments here, I have decided not to try lupron. I am not in any pain now from my endometriosis, so I prefer to weigh my options. I ordered many books on the natural treatment of endometriosis and will try that avenue. I suggest that you read and research before trying any drugs, because at the end of the day we will be the ones suffering not the doctors.

Only on it for 1 month so far and already having issues. I apparently have the worst case of endometriosis all my doctors have seen, including a cancer specialist that had to do all my surgeries because of the severity. Granted, I am only 31 years old and have had a full hysterectomy. So, after 3 surgeries I am still having severe abdominal pain and bleeding (don't know where that is coming from since I don't have a uterus anymore) so they said try Lupron and I finally gave in. Now I started getting such severe pain in my lower back that I can't stand for longer than 15 minutes and terrible side aches. I started getting headaches (which I already take pills for for years now),and have gotten the hot flashes as well. What are we to do ladies? I am so sick of complaining to the doctors about pain. You feel as if you are a big cry baby. What are my options here and does this ever stop?

I have just turned 30 and like many of you have tried all sorts of different types of contraception, most of which have caused some sort of reaction but i was told that the Mirena would be best as so low in hormones and would help reduce the heavy bleeding that started with the implant.

For 3 years everything was fine, i then started to get spots around my jaw line and back which I've never suffered with before, bloated, tired, pilled on the pounds....not surprisingly though as i was always craving food, really nasty stomach and back aches, i started bleeding all over the place with no rhyme or reason. I went to the doctor as I thought there was something wrong and it took quite a time for me to put it all together but the doctor just thought i was being over dramatic. To put my mind at rest he sent me for a scan which showed up lots of adhesions from where i had my son.

I came home and looked the Mirena up....why i never did this before i have no idea and now am so mad with myself as i could have got this sorted out months ago...hence to say i was back down the Doctors that day to get it removed. Its only been 5 days now and i have the flu but i feel a million times better...i'm bleeding still but thats it to be expected, at least its helping to get rid of any of the hormones which are left in there. The more i read i can see that i have many other "problems" the same as many other ladies, my husband said its like i had PMT but i never believed him.

Thank you to this site as if i hadn't of read all your comments i would still be suffering. The only downside is that it looks like we will be having to use condoms (latex free which are not nice due to an allergy) till we have finished having kids. I do feel sorry for my husband but i think I've gone through enough over the last 10 years with pill, injection, implant and the coil. Roll on the male pill i say!

I am sure glad I found this sight. I was trying to find out if the Prilosec OTC may be why I have had sharp pains in my right side, where my liver is located, and after reading the effects that Prilosec has had on other people I am throwing mine away. I am scheduled to see a doctor in regards to bad dizzy spells, pains that run from my left shoulder, up my neck, my left ear rings terribly, and tremendous pressure behind my left eye. I was fearful that I have a blockage in a vein to my brain. My left leg from above my knee has gone numb, I can't wiggle my toes, I get tremendous cramps in my left calf at least 6 times a night. I feel like a basket case and I have done nothing to make any of these things start happening. A year after having my gall bladder removed and adhesions cut away from my stomach the doctor gave me Prilosec to see if it would help with some very minor stomach pains I was having. As a matter of fact I took a Prilosec an hour ago because of the pain in my liver area and as I write this I have a bad headache, my left arm is tingly, the left side of my neck is tight, I am dizzy, and feel like I want to vomit. No more Prilosec for me and I am definately telling my friend who is on it after he had his esophogus removed 5 years ago due to cancer about what I have read here tonight. He can't figure out why he felt so much better 4 years after his cancer was removed but feels so terrible now. They gave him Prilosec 6 months ago to help him with a phlegm problem. I thank you all for your input on this message board. You helped me out tremendously. I have only been on it for a couple weeks and as of right now I am not going to take it again.

I have been on yasmin for about 14 months. the first 6-9 months were great. Now i have terrible pains "inside" it feels like a knife stabbing with no rhyme or reasin for when they occur. OB says its adhesions..which I have had before...but not like this. Last month I bled 1 week after my period and bleed for 2 weeks. Went to the OB she said its just a side effect. Well I am tired, sore breasts, stomach pains, no sex drive. My husband is so upset he thinks its him. We argued terribly. Well I went back to OB yesterday becuase I was still bleeding. She did an exam, and an ultrasound. No looks for cancer, no endometriosis. She said that the birth control cause cells that are normally in the uterus to grow outside on my cervix and they were bleeding. She recommended that I come off BC and see if the bleeding stops. If it doesnt then I have to go back in Jan for her to cauterize my cervix ( essentially burning off those cells) which I am not too keen on. Please let me know if you hav these side effect. I can give u my home email address

Have taken Reglan just for just one and a half weeks to help with my diabetes related gastroparesis. Since taking it I have been unable to read, play computer games or even concentrate on TV. I chucked it yesterday morning and already feeling a bit better. I am gonna try again maybe in a few days just to confirm that this drug is the cause, but it looks awfully coincidental. That's why I'm looking up side effects on the web today, gave them no thought until yesterday.

I have actually not started my Lupron injections yet. I am scheduled to start tomorrow and I wanted to do a little more research before I start and after reading some of these posts, quite frankly I am freaking out. I have had a total hysterectomy due to endometriosis, adhesions, cysts and several other conditions. Now I am thinking "why do I need these injections?" I don't want to have these side effects. I have felt better in the last 6 weeks (since my last surgery) than I have in 4 years. I am scared now if I start these injections I am going to feel like crap again and I feel like my family just got me back. If I no longer have any female organs, why would I be put on Lupron? My doctor says to prevent anymore endo from forming, but doesn't endo form only if you are producing hormones? I feel so ignorant about all this and it is my body. How stupid am I for not knowing all this?

I am twenty years old and was doing great with birth control pills until I formed 2 cysts that ruptured. He tried five different pills and none of them worked. I still formed cysts and they all ruptured. My mom had adynemosis which is the worst kind of endo. So he did a lapro. surgery and found adhesions on my appendix and bowel and endo everywhere. He almost removed my appendix and part of my bowel. He recommended me to try Lupron and just like many of you I was scared because I read all these posts. However I have had my fourth shot. I do have side effects but it is better than what I was dealing with. Hearing your doctor say it is either this, Depo or Hysterocretomy is scary being on twenty. My doctor is going to Washington University since I live in St. Louis and I am going to be a part of a study to help other women. I think people should investigate the side effects from trusted research sites. You do lose bose lose but most of it is avoided if you only take it for six months. If you do lose some most of the deposits will come back. THe side effects are hell sometimes but your doctor can help give you a different add back therapy. I am just happy they are saving my ovaries for now but I just don't know what to do when my six months are up. If your scared about Lupron you should be but you should also see the benefits coming from someone that has seen them. However, it is like if you have a good experience somewhere you are less likely to scream about it but if you have had a bad experience the more people you will tell and make it seem worse then it is. If you are reading this to see if you should take Lupron, stop. Go talk to your doctor because he is the one that meets with the drug reps and see the studies. The people that post are getting heresay. If you don't try something then you can't talk bad about it. Hope this helps because I know I was so scared and then my doctor showed me clinical studies and did warn me alot about the side effects but he also told me if I experience them we can give you something for it. In other words, talk to your doctor and stop reading all these posting because they make it worse.

I have been taking Effexor for a year now. Not for depression but for chronic pelvic pain due th adhesions from a surgery. Not real sure if it is working. The side effects seem to be worse. No sex drive, not interested in things that I used to be interested in, Leg shaking while sitting, weight gain. Considering talking with the doctor to stop taking it.