Advocates symptoms and conditions

After you read a representative sampling of this website's testimonials, you certainly ask yourself inter alia: Can this be true? Did thousands of people inject an antibiotic from the fluoroquinolone family, which crippled them for longer or for shorter? Most of us, I suspect, never really get beyond the initial litmus test: Did this medicine poison me or save me? (The answer depends, of course, upon the age, gender, medical condition, and most importantly, the DNA make-up of the individual patient. For hundreds of thousands of patients this antibiotic is a boon. For thousands of other misfortunes this antibiotic is a disaster.) But there is another important question here.

Who gains from self-revelation? To be sure individual sufferers gain certain emotional catharsis from posting their adverse drug reactions (ADRs) to levaquin. E-postings are one-way anonymous tracks that form ruts on a well-traveled trail of tears. Unless these postings are hoaxes written by mischievious gnomes, then they consitute prima facie evidence for a causal link between levaquin injection and sundry crippling ADRs.

Curiously, this e-forum cannot be used as a tool for organizing thousands of potential litigants who might coalesce under a class action lawsuit. Yes, we can analyze each other's anonymous revelations to see if they muster our respective sense of the "ring-of-truth" re: levaquin toxicity, and we may contact each other one-on-one, but no-one can harness this intoxicating communication's technology to reach simultaneously all respondents en masse as a bloc.

So, who wins? The emotionally unburdened e-poster who learns belatedly that s/he is not alone and that prescription medicine likely caused more pain than the underlying malady for which s/he is being treated? Or big pharma that continues to manufacture and market a medication that poses downside risk to many consumers who unwittingly incur more damage than therapeutic value?

Indeed, who wins in a forum where consumers anonymously reveal their symptoms and unconfirmed suspicions? The answer is big pharma wins. Pharmaceutical companies data-mine our postings to estimate the frequency and bredth of ADRs about which consumers complain. House statisticians estimate the ratio of active complainants : silent complainants, i.e., the ratio of complaints who show up on this website to the far heftier percentage of complainants who never post on this website because either they are technology-challenged or they are incurious. House actuarians proceed to estimate how much operating profits their employers must set aside to cover losses in out-of-court settlements or in awards made to plaintiffs in class action lawsuits.

I think this is how the game is played in a behavioral sink where billions are made in a deregulated marketplace that allows predators and prey to interact anonymously. Sorry to be such a downer, but I fathom only the desperate plight of tens of thousands of levaquin consumers for whom no monetary award ever will compensate them adequately for their suffering, and the hundreds of millions of dollars at stake in court awards if consumers ever brought to bear their aggregate numbers and draw a bead on their big pharma tormenters.

I think it a true horror and shame that pharmaceutical companies have not devised a test which determines in advance which patient safely may consume levaquin and which patient's DNA places him or her at risk. I suspect the genome technology is available, but would dig too deeply into big pharm's bottom line. The economics of "parachutes-for-everyone" is infeasible. We are all guinea pigs in a B-grade movie featuring Russian roulette, billion-dollar pay-offs, and an FDA that pretends not to know.

I am a 34 yr old registered nurse and I was given Levaquin for a kidney infection. I was very pleased that by the next day my symptoms from the infection were gone. Unfortunately, after 5 out of 7 days of taking Levaquin I developed pain in my knees, wrists,shoulders,ankles and hands. My hands are swollen and difficult to use even to type this. I am very familiar with Levaquin and give it to patients all the time without even considering these symptoms because they are dismissed as "very rare"! Obviously they are under reported because doctors don't attribute these complaints to the drug side effects. I pray that this pain goes away soon for myself and everyone else. I have learned in my career and in my own experience that though doctors are the ones with the ability to diagnose and treat, WE are the ones that must be our own advocates! I will definitely never give Levaquin without warning patients of potential side effects.

Has anyone heard of a lawsuit that is being filed against the makers of Yaz? I used this pill last year and it was freaking awful (see my post on May 10, 2008). I am not the type to stay quiet when angry. I have made complaints about my former doctors who refused to listen to me about this pill. I sent complaints to the doctors, called the clinic's/hopital's patients advocates departments and I've also written complaints to the Missouri State Board of Healing Arts. It's not the doctors' faults that this pill is so terrible. However, I do think doctors need to realize that health care is a partnership between patient and doctor and need to listen to their patients' worries and concerns. Trust me, what I did was definitely a step in the right direction. Once my family doctor found out I reported him to the state and that I made a complaint to his office manager/patients advocacy administrator he called and left a message on my answering machine. He was so nervous and you could hear it in his voice, he couldn't even recite the phone number where he wanted me to reach him (I saved this message for entertainment purposes). Anyways, like I said before, if anyone knows of a lawsuit being filed I'd like to know. I'm going to go search for information now. Thanks!

I also have a child who has been on this drug for about a month and as I sit here and read these blogs the more I am remembering complaints made by my son. He has been getting into trouble at school lately, irritable, angry, sad, leg pains, stomach aches and also having trouble getting to sleep at night. I am an RN and it took me to glance at the pill bottle today to realize that I needed to do a little more research about this drug when I saw that it said "mood changes and depression". I feel horrible because after a great 2nd grade year I was disappointed that he was not behaving as well this year. I know know that the $60.00 wasted and tiring reprimanding was all a waste of my time! I owe my poor son an apology as I will be taking him off of this drug today! More information and advocacy needs to be available especially when core users are children who have little to no voice!!!

POLL: If you or your child have been adversely affected by Singulair could you please reply to this and let me know what ethnicity you are and skin tone. (fair, med., dark, etc.) I'm interested in the demographics of this drugs effects.
Thank you!

I've been taking Fosamax once a week for about 4 months. During that time what began-before taking Fosamax-as mild pain in my lower back-has gotten progressively worse. This is the only negative possible symptom I’ve experienced, but of late it has increased and spread to my hips. I decided to stop taking it today, and see if it makes any difference. If it does, I will post another reply here with details.

I think all reading these personal accounts should consider this: obviously many medical professionals see far more benefit than loss in the majority of users. My osteoporosis was only diagnosed via a bone scan 6 months ago. -2.5 The increased pain and worsening conditions in my back might in fact be much worse if I hadn’t started taking the Fosamax. One must beware of apophenia setting in with self diagnosis.

Most posting here already had serious medical needs to have Fosamax prescribed in the first place, given a small percentage of diagnostic errors. Most of the conditions I’ve seen described vary greatly, and without a serious study are purely antidotal. I suspect there are legitimate adverse reactions, but for now the percentage and severity remains a big unknown. There seem to be some activists here, so get a campaign going for publicly funded analysis of the now considerable amount of data on file.

If my back gets better, I’ll still be unsure as it might have been a delayed benefit from the drug. Likely I will take Fosamax again either way. If it doesn’t improve in several months I’ll assume F-max wasn’t the cause and begin taking it again. If it gets better, I will take F-max again to see if the problems return when I do. If they don’t I’ll keep taking it. If they do, that will red-line my ‘coincidence meter’ and I’ll never touch the stuff again.

I hope some will find my approach to our common dilemma helpful. We all have to be our own advocates within the modern health care cabal. I worry about the old adage that when we do so, we have a fool for a client. Feel free to criticize my reasoning, and thanks to all the others that took the time to share your experience. It helped me make my decision, and I’ll share the results in about 6 months.

I am so thankful for this website. I have been on Loestrin for about 5 months now. Two months ago I started experiencing many of the symptoms the rest of you have been describing. I started having head aches, insomnia, hot flashes, and then terrible anxiety attacks. I've also been having horrible chest pain that extends out my left arm. At first I thought I was having heart problems, but, like many of you, EKG's and chest x-rays came back normal. The anxiety attacks have gotten so bad that I thought I was going to have to go to the emergency room the other night. When I talked to my doctor about it, we decided its stress and depression, and she prescribed me an anti-depressant. I was supposed to start it today, but I got a wild hair to do some research on Loestrin since its the only other med I take. And lo and behold... Thank goodness I found this before I started the anti-depressants. I plan on calling and getting my BC switched first thing Monday morning. You couldn't shove another Loestrin down my throat. I'm so frustrated, as I'm sure many of you are, that NO ONE told me about this. My doctor did not discuss these extra possible side effects because its a low dose pill. And my general practitioner completely overlooked the fact that it might be the BC pill causing all this. Not that I blame her. I overlooked it too, and it is true, we are our own best advocates. Thank you to all the women who posted on here. Just like many of you, I've been feeling like I'm absolutely crazy lately. With the mood swings and uncontrollable crying, no one understands. I think its ok to say this website might have just saved me several years of being on anti-depressants. Granted, I haven't had any bleeding problems like some women, and I love the three day periods. But I would take a 7 day period over how I feel right now any day. Does anyone have any suggestions of what BC to switch to? And can anyone tell me how long it took for them to get back to normal emotionally? Thank you so much...

i was prescribed Levaquin in April for pneumonia. I took 1 pill in the morning and by mid-evening felt gross. My stomach was in knots, head was fuzzy. I decided to NOT take any more and let my body fight it. Last week I had awful pain in my ear/jaw and thought it was my tooth so didn't go to the DR. right away. Finally I couldn't handle the pain and went. He said I had an ear infection and immediately wrote a script for Levaquin despite me telling him how it made me feel in April. He said it was no big deal, the feelings would go away. I came home and against my better judgment took what I had left from April. (6 pills) I am done them now, but was looking up Levaquin on line because I feel like crap, my ear and jaw still hurt like hell, and tonight my leg started to hurt. I have a flaming esophagus as I sit and type this at 2 in the morning because I cant friggen sleep. Pain my chest feels like I inhaled glass. My husband said he noticed I haven't been acting right...news to me. I'm cranky because all this crap did was make me feel worse. DR. told me to take 2 aleve in the a.m. and Tylenol/Motrin every 4 hours after that for pain. I just got done reading that NSAIDs shouldn't be taken with Levaquin. Nice to know after the fact. My stomach has been turning for 5 days and food is absolutely disgusting. I have awful diarrhea from this med too, which the doctor said was normal.. good to know that spending hours on the toilet was"normal". I've been teary too. Crying over nothing, literally sitting at the pc playing a game of cards and I busted into hysterical sobbing OVER CARDS!! Hopefully I will feel better in a few days and nothing else happens. DO NOT TAKE LEVAQUIN!!! Save yourself the trouble.

This morning I had my Mirena taken out. This came about ONLY after my husband called to say he didn't understand why when I've called two days in a row with concerns and wanting it out they were reluctant...Similar story I read on this blog that another woman didn't get results until her husband called as well. I find it appalling that unless our husband's call we're not being taken seriously about the side effects this is having on our bodies.

They doctor's still aren't convinced that it is the Mirena that is making me have side effects, rather think its PPD. While I'm not discounting that, I find it odd that I am having the same symptoms as other women, its not like I pulled this stuff out of thin air!

I have to say I feel relief that this is out of my body. I will give it time and see how things go, but for now feel confident about my decision and will not let others make me feel crazy or bad about this decision. Bottom line we know our bodies and minds best and need to be better advocates when it comes to our health.

My Mirena Removal....
So i posted here a few weeks ago after I found this site. I had EVERY side effect listed and was so freaked out that i immediately made an appointment for removal.
For those of you reading and wondering what the removal is like..
Well, NOTHING like the insertion. I was so so nervous and it was over before we actually started. The DR was surprised that i was back in his office to have this removed. He then proceeded to do an ultrasound to be sure it was placed properly before removal. And yes, all was OK on the position of it. I explained to him my reasons and he looked at me like he had never heard this before. I honestly can not imagine with all the women he sees that NONE of them have complained. But...as I was getting dressed afterwards, I took a good look in his office. There was Mirena literature ALL over the place. In fact, that was the ONLY thing he was advertising. Not to mention...they made me pay up front with the insertion back in Nivember...billed my insurance and I still have yet to receive my reimbursement. Oh yeah, and that...they charge more than the actual Mirena costs, then they bill your insurance for the price they know they will pay and the DR then makes about $150 profit. Nice.
Ok, back to my side effects post Mirena. The removal was not painful at all. I did spot for about a week- nothing too heavy but it was clotty and def there.
A couple of days after the removal it felt like I was coming out of my skin something terrible. I figured this was my body adjusting to the lack of hormones. I also had some headaches.
It has now been 2 weeks and the spotting has disappeared. I also can see the bloating of my stomach is starting to go away. It looked like I was about 4 mos preggo while I was on it. I also have an increased sex drive. And sleep-- well let me tell you, I have not slept this good in a very long time. I am actually sleeping more than 6 hours now and the night sweats have also discontinued.
I can't believe EVERY time I come to this site and look up Mirena ALL the people that have posted their experience as being negative. Yet, the DR looks at me like I am crazy! I have been seeing him for years and I have never complained about something like this. I really am so happy that I have it out and wish I would have done my research on this prior to insertion (which was one of the most painful things ever!)
So..for those of you out there that are either contemplating having it inserted...I say NO WAY. And for those of you out there that are nervous about the removal or not sure..I SAY YES, DO IT! For our bodies to be reacting this way, it is clear to me that it should not be inside of us. Listen to your bodies...they really do speak to you and let you know when something is not right. Forget about the DR saying it is safe or he has not heard of any of these side effects...YOU be the judge.
Good luck! And I promise it gets better once you get that lil' demon out!
Mona

My son was diagnosed w/ ADD/ADHD when he was 7. My husband and I were not advocates of giving drugs to a child and avoided it for some time. But as I watched him struggle and become depressed because he couldn't focus, etc .etc, I remembered what it was like when I was his age. (I am also ADD). You can say what you want about drugs but when my little boy was looking up at me crying and pleading for help "please help me, please...please come to school with me and tell me what to do, remind me because I forget what the teacher says right after she says it".... To see him struggle like that at such a young age we had to do something. He was a very confident and happy kid prior to starting school and after being in school for a few years being the kid that was always getting corrected by the teacher or being called out more than others for not paying attention was taking it's toll on his personality.
He did not start out on Adderall, but another Ritalin type drug. But it made a drastic change in his life - he was happier, able to focus and his self esteem came back. Later he was changed over to Adderall. He said it didn't make him feel nervous like the Ritalin type drugs. I am also on Adderall and it has made such a positive difference in my life as well. I didn't realize how much I had to struggle to stay focused, how much I procrastinated and how overwhelmed I used to feel on a regular basis until I stopped having those issues...what a relief!!! I don't have the stress eating issue anymore because I don't feel as stressed. The only side effect I noticed was my eyes getting red and a some dry mouth.
Adderall has a calming effect on me, I don't feel nervous, I don't feel detached, or any of that stuff several other folks wrote about. My son doesn't either, he is calm and happy and is doing great in school. Neither of us have any issues when we don't take the medication - as far as craving it, etc. In fact, from the initial research I've done and my own personal experience,many who are truly ADD and not misdiagnosed are less apt to become addicted than those who are not truly ADD. When we don't take it we might be a little less apt to remember that important thing we were supposed to do because we got distracted! But we don't seem to have any other withdrawal symptoms or tiredness, etc. So far it has been positive choice.

So for all you people having social issues, hearing voices, having chest pains, feeling strong urges to take the medicine even when you don't want to - YOU PROBABLY SHOULD NOT TAKE IT! All medications effect everyone differently and not all people can take or tolerate the same medicine. And for all you folks that are able to spend 10mins w/ your kids and get good results...well good for you, but DON'T JUDGE those of us for which that technique didn't work. During the summers we usually don't make him take any medication and we spend a lot of time talking through the issues that arise, practicing focus without medication, etc. We spend a lot of time reassuring him that it's OK to make mistakes when you're trying to change your behavior and that we love him just like he is. We hope that eventually as he matures that he will find it easier to do this on his own with out medication to help. However, if he doesn't, then I would rather see him be happy on medication than to struggle and be depressed without it.

Peace.

Struggling with a sinus infection that threatened to bore into my brain, resulting, ultimately, in seizures and death, I've been taking Levaquin now for three days. I'm experiencing anxiety and sleeplessness, however, it's not from the medication. It's from all the hyperbole on the internet.

Look, I understand that many have had adverse reactions to this medication. One dose of penicillin can kill you without warning. At anytime. No warning. I suspect that few of those labellings Levaquin "poison" would ever bother to consider that - or anything else. All wrapped up in your misery, you spout off with rhetoric that is really better left to lawyers and politicians.

If you were uninformed of the possible side-effects of this medication, blame your doctor. I see that the last post here is dated November 2007, and the bottom of this first page takes us to October 2006. Perhaps one could take a bit of responsibility for oneself and do some research on one's own before popping a pill handed out by a disinterested physician. This information is out there - and yes, your doctor could have seen it, too. But he didn't bother, did he? Neither did you.

So, yes, with my first dose, and despite the impact drill driving through my eye-socket, I waited for the seizures, swelling and signs of imminent demise. Nothing. Sorry. Oh, my sinuses feel better, I don't have a brain infection, and so I won't die frothing at the mouth on my living room floor.

I'm sorry you feel bad - and if you hadn't run off at the mouth calling what may be one of the last effective antibiotics "poison", I might mean that with some sincerity. Oh, and lest you forget, antibiotics are poison by definition - the idea being that they affect/poison/kill the source more than they do the host.

So let's stop the hyperbole, and simply say you had a bad reaction to this medication. Not everyone does. Your option might have been to skip the doctor and the meds altogether, and see how you'd fare. But that would leave the responsibility, and the blame, all on you, then, wouldn't it? Far better to spread it around some.

Hi all,

I am 27 and I have been on Yasmin for about 5 months now. Initially the doctor put me on it for depression/anxiety and moodswings. Apparently the constant dose of hormones (especially progesterone) helps your body control emotions and moods. And even in Singapore, there has been a LOT of advertisements on this drug and i know many of my friends are on it too. THe doctors here are huge advocates of this drug.

In the first 3 months of being on the pill, i had really bad side effects - ranging from sore breasts to chest pain to insomnia. But the last two months have been relatively symptom free. Infact, I have lost weight and my skin looks great! My boyfriend and parents claim that my mood is more stable and I am more confident.

But for some reason after reading all these posts about how for some women the nightmare continues even after stopping the pill, I am so scared to stop it!! Do you guys have any idea how long the symptoms continue after stopping the pill??

I'm another exmple of someone happy to have found this website and now off of Yasmine. I was on Yasmine for a couple of years with no problems or side effects until a couple of weeks ago I ended up in the hospital with chest pains. I'm 47, non-smoker/drinker. No family history of heart problems and not overweight. When the paramedics arrived at my house my bp was 210/189-it's usually 120/69. I spent the night in the hospital underwent multiple tests which all came back negative. I knew and told any doctor that would listen to me that it had to be hormonal, but I heard the same thing it seems they tell all of you with the same complaint. Anxiety attack caused by stress. I knew better, and did the research, found your site and called my gyn to tell her I would be discontinuing the Yasmine that day. We HAVE to be the advocates for our own good health. Thanks again for all of your contributions on this website-it's how I knew my gut feeling was right on.
Barbara