Aggressive treatment symptoms and conditions

Hey all. I have had asthmatic bronchitis for about 6 weeks now and I have never had asthma or bronchitis before. It started off as a normal flu for 3 days with fever. Then when the flu went away, I started having trouble breathing and shortness of breath. I never had that before. The doctor told me it was bronchitis. All tests were fine. I was taking azithromycin (took 3 paks of them) and that was the only thing that made me feel normal, but it did not get rid of the infection. Then I was placed on cipro and steroids. Now I'm not on any antibiotics. I'm taking steroids and just started the advair inhaler. I was having asthma attacks and everything. Very scary. I was just wondering how long it took you to get over it and what you did to get over it. I have been to so many doctors and had so many tests done. It's affecting my life. I won't leave the house due to fear of having another asthma attack. I just hope I feel normal again soon, please.

I took Imuran for 3 weeks....150mg/day....started week one with only 50mgs/day, week 2 100mg and then in week 3 got up to the 150mg/day.

Then the aches and pains began....fevers on and off ....and then finally high fevers and rigors ultimately ended up in the hospital in Boston for 4 days.
All of the test pointed to Imuran side effects which caused the fevers etc.

I have been diagnosed with CIDP....and my neuro wanted to put me on a tad more aggressive treatment plan in addition to the IVIg treatment which I am on every 3 weeks, 5x/week. Infusions take almost 3 hors a day...40grams of Gammaguard daily for the 5 days.

I'm a 34 year old petite 110 lb female and have been on Prednisone for 7 weeks now for a kidney disease (Focal Segmental Glomerulosclerosis). The treatment is supposed to be 3-4 months to see if I go into remission. If not, then I'm "steroid resistant" and they will have to move to a more aggressive treatment (a type of chemo). So I'm praying that this prednisone works!!

The first 2 weeks were a peice of case, then I developed many side effects, but the following being the most troublesome:

- 2 weeks - Edema. I got really bad fluid retention in my lower body and was put on a diuretic. A few days later my heart started pounding so hard I thought it would pop right out of my chest. Well turns out I was totally dehydrated from the diuretic so I'm off that now but the edema seems to be under control anyway (following a low-sodium/low carb diet). At the same time as the edema my skin dried right up too, and I need to put moisturizer on all the time. Even when I bend over I feel the skin on my back stretching.
- 2 weeks - Bloating. Really bad bloating. I'm bloated constantly now. Eating a low sodium diet helps, but not much. At night I weigh 5 lbs more than I do in the morning. I have terrible gas (burping mostly) all of the time. Sometimes it looks like I'm 6 months pregnant! And I'm sure people think I am because as I mentioned I'm normally thin and now I have to wear looser clothing to hide my belly, which doesn't really work and just looks obvious.
- 3 weeks - Sore knees. It feels like there's something growing in between my kneecaps that make it very difficult to climb stairs and it feels spongy when I walk. I can not put any pressure on my knees, I can't squat down, bend to pick something up, kneel, anything. And it gets worse at night.
- 4 week - Moonface. And my face has been blowing up like a balloon ever since. As I sit here and type I can actually feel it throbbing and growing still. I've got fat on my neck under my chin now that actually feels like it's choking me if I sit hunched over. I'm finding the moonface very difficult to cope with. I do not like to look in the mirror any more. I feel like a candy apple.
- 4 weeks - Cramps. Terrible terrible hand and feet cramps. Sometimes if I'm using my hands to chop vegetables or write or even use a fork, my hand cramps up like a lobster claw. I try to use the other hand then the same thing. And then almost every day, my feet. First one, then the other. Excruitiating cramps that seem to go in 15 minute intervals that make it impossible to walk, stand, sit, anything.
- 4 weeks - Very moody and aggitated. I am usually very easy going, now i have patience for nothing. I will be in a good mood one minute, the next I feel like I can kill someone. My boyfirend and our dogs are being very patient with me... I just hope they know it's the drugs not me! I just don't seem to have any control over my emotions.
- 5 weeks - Extreme fatigue. I used to have lots of energy, especially at the beginning of my Prednisone journey. But now I'm just wasted all of the time. I walk to and from work and the last couple weeks I want to just lay down on the side of the road and have a nap as I walk home. I used to do pilates (as much as possible with the sore knees) but it's too hard now. And forget about any elliptical training or cycling. It's enough just to get to and from work and I'm just exhausted.

There are more issues and I could go on forever, but those are the most troublesome. I just try so hard to stay positive but it's very hard sometimes. I pray that this is working, and that it is not all for not. I can't wait to be off these drugs, and my heart goes out to each and every one of you enduring the same thing and pray that it works for your too.

Good luck everyone.

:)J