October 17th
2009
12:11 PM
When I took SMZ-TMP DS; The day after i could not move my legs without being in agony pain. I didn't think anything about it. The next day i had painful, red knots on my ankles and as the day went on they started to grow in size and more started to appear. I immediately stopped taking the drug and called my doctor. I could not sleep cause I was in so much pain. I would lay still on my back but when it was time to get up in the morning i had to literally lift my legs with my hands and get someone to carry me to the doctors office. He said that I had a very interesting case and that to never take this medication again. Right now I am still in a lot of pain and taking anit inflammatory medication to help with the knots and pain. I am still in bed not getting up and now I have 40 knots on my legs. He called the knots Erythema Nodosum. My tissue got infected with this medication.
-- By vjg12 | Reply | Private Message me
September 28th
2009
5:40 PM
I'm 24 years old and have never had a child. I've jumped around to different birth control methods.
I was on Depo-provera which made me gain mad weight, stop having my period all together and loss of sex drive. Then I decided to try Nuvaring...another poor mistake. I started having my period again and lost the Depo weight (plus some) but I became a loaded gun waiting to go off! I was biting everyone's head off and felt extremely bitter. It never stayed in place though and I felt like I was always fooling with it.
My next great venture (with which I'm still experiencing the "joys" of) was Mirena. I went to have it put in while on my period, a rather light one. The insertion wasn't agony but was no pic-nic in the damn park either. Afterwards I reinserted my tampon as my Gyno said was fine to do. I was in a world of pain by this time. I only walked a block before stopping at the nearest restroom and realizing that I was covered in blood and the pain was getting worse with each passing moment.
My boyfriend came to get me and I spent the rest of the evening crying, in pain and in the fetal position. It got better after a few weeks just in time for my check-up. The Gyno went on about the pain being 'normal' and that 'it would fade over time'.
Well, it's been 2 1/2 years and it still hurts. Sex in certain positions kill me, my hair is thinning, I've gain all the Depo weight back and just to remind me the bastard is there I feel stabbing pains randomly that last from a few seconds to a couple of days. I can still feel the string but c'mon....what's the freaking deal??
September 15th
2009
8:55 PM
I have been taking Lipitor for about 6 years suddenly developed a rash on my shoulders and chest. My doctor diagnosed SCABIES!!so I treated myself for that then the rash progressed so I had a biopsy done and after 3 months of agony my slin specialist had taken me off Lipitor as theh test showed a reaction to a drug. I am still itchy prickly and burning on arms legs and hands and cannot tolerate cortisone cream so am on tablets for a week..can anyone relate to this condition? My scalp is also very dry and scaly.
-- By kathybrian50 | Reply | (3) replies | Private Message me
August 24th
2009
2:06 PM
I'm not sure how big of a joke this website can be when there are real women out there having real issues with the Mirena. I feel like some women are very fortunate to have not had these issues. If your body does not react in a negative way to the Mirena then you are very lucky and it is a great form of birth control if you don't have to go through the pain and agony that others have. Women should not blame all illnesses, weight gain, pain, or other symptoms to the Mirena, but if that is the last resort having it removed to see if it could be the cause is a very easy procedure to have done. If it relieves some or all of the symptoms that these women are having then it is a good move. If you haven't felt the pain and fatigue that some of the women on here have then you have not idea what it can do to your life and your body.
I'm glad to hear that some women are doing great on this form of birth control, but I also believe that some women's bodies are rejecting the Mirena and it is causing a lot of problems. Remember to research the good and the bad and always let a doctor help you decide what is best for you. As far as Mirena goes you do not have to take no for an answer. If you want it removed then do so. If it doesn't help you'll know you need to look elsewhere for what is causing your symptoms.
Good luck to all of you.
-- By wantmylifeback | Reply | Private Message me
July 22th
2009
12:13 AM
Dear Medications.com:
I cannot thank you enough for this site. Just yesterday I was prescribed Cipro for a nagging UTI which seemed to only partially get better with Doxycycline HYC. After only 3 Cipro pills I am stopping!! And will never take Cipro again. I take responsibility for rushing back to my doctor at the emergency care clinic and asking 'now what' after the Doxycycline was finished--we Americans are so quick to want the next candy pill with more strength! So even though my initial urinalysis showed no dangerous / STD bacteria present, because I was still urinating too frequently my doc suggested Cipro. I trusted him and took the first pill last night--I got a terrible headache, woke up promptly at 3:30 AM and had trouble returning to sleep. Got up this morning, took the 2nd pill and by early afternoon, was so tired and aching I had to lay down for 1.5 hrs..I felt miserable. Then this afternoon, after taking my 3rd pill, that's when I began to feel occasional tingling in my joints, hot pain in my knee capsules, continuing low-grade ache to my head, the feeling that my esophagus was shrinking, etc..... EVERYTHING you guys all have reported.
I got on the internet and thank God I found your site. After 2 hrs of my own research and the testimony of so many people, including tons of once-healthy, athletic persons whose lives have been destroyed irreparably by Cipro, I took my healthcare into my own hands, called my pharmacist and said 'I'm finished touching Cipro...never again will I take it.'.
This drug is more toxic than anything I've ever taken, and the way my body has begun to react in only 24 hrs, it is obvious that the drug co's are playing with fire on this compound. We as people must stand up and take action, and educate our doctors. I am taking some info. into him tomorrow, telling him i will be on a strict cranberry juice and kidney/liver tea detox program for the next few weeks to see if these 'natural' methods might help me rid my system of the bacteria.
In any case, I refuse to use Cipro ever again and hope that many more people will read these pages before ingesting any or too much of this dangerous drug.
d. r.
48-yr old sporty, and very healthy guy who wants to stay that way!
July 20th
2009
2:34 AM
I was given Levaquin for a kidney infection. It seemed to help break my fever but after only one dose, I broke out in rash and later that night had tingling in my legs. My hand felt numb. When I called the oncall doctor she told attributed to anxiety. I told her I was anxious because all of a sudden my hand had gone numb and knowing that was a danger sign I refused to take anymore. Later that night, I could not walk or stand or bear weight on my legs. My shins and Achilles tendons were burning and only because of the internet did I know what was happening to me. Only 1 out of three doctors would agree I was having a drug reaction. For some odd reason, the doctors REFUSE to believe or acknowledge this was caused by Levaquin. No wonder the side effects are "rare" if no doctor will acknowledge the pain their patients are going through....how can the drug companies get any real feedback. Funny thing is only after I sent an email out to my team essentially warning them about this drug did I find out my coworker who had been on medical leave had suffered the same fate of torn achilles tendon and only after 3 months of PT is finally walking without pain. WHAT IS WRONG WITH our world when no one will listen to us. Thank God for the internet. I can walk now and have no pain standing (lasted only 2 and half days) but I am scared about the future as I know the results are lingering. I have been exhausted this whole weekend and wonder if its just me recovering as my PCP had me quit all antibiotics even at the risk of getting my kidney infection back. Well nice to know our stories are the same...and its not in our heads. BTW, my ER doctor told me it was a good drug and very unlikely the cause of my leg pains. They rather believed I had pneumonia or lyme's disease before they would believe it was caused by their beloved drug. All I can think now is I hope one day they are given this drug and it cripples them like it has so many others. Sometimes that is the only way they will acknowledge the truth. It has to happen to them or someone they love.
-- By seaturtlemom | Reply | (1) replies | Private Message me
July 13th
2009
11:23 PM
Hello. I just finished the one month starter pack of Lamictal for depression. I've been noticing some strange things going on with me lately but did not make the connection to the Lamictal until I spoke with my pharmacist (while picking up my official prescription). Mainly the info warned of dizziness, sleeping issues, heart racing and sinus issues. I have had ALL of these. Two weeks into taking the medication I can't sleep well at night. I wake up and my heart is racing. I have to go watch TV to settle down. Plus, I'm extremely EXHAUSTED all day. And finally, the worst symptom is my sinus issues. I have constant mucous in my throat and pressure in my sinuses. I have the worst headaches. I'm popping Advil to deal with my sinus pressure. It's agony. Plus, I'm not motivated and I think I'm a little depressed. I'm going to discuss getting off this medication with my doctor tomorrow.
-- By amber0008 | Reply | (2) replies | Private Message me
July 2th
2009
7:37 PM
I have been off of Levaquin for three weeks . I am experiencing joint and muscle pain from my thighs to my ankles. Wake up in the middle of the night in agony. Soaking in a hot tub gives minor relief. Has anyone found something to ease the pain and help the healing process I need help!!!
-- By hpastor | Reply | Private Message me
May 16th
2009
7:52 PM
Hello everyone..I have many great things to say about Neurontin. It has been a miracle medication for me. I was in a car accident in 2000 as a passenger my face and head hit the windshield at 80mph. my jaw was broke and the back of my teeth were broken.
Little did I know it was extremely traumatic! My MRI's came back fine and I moved on with my life. About 6 months later my life began to change a brown spot covered my eyesight in the left eye. I began falling all the time and having seizures.
I had another MRI's of by brain done it came back negative. Not one Doctor could seem to understand what was wrong with me. I was put on Topamax for bad headaches that seemed to help. I began loosing weight and continued having seizures(Granmal) where you lose ur vision and it began to effect my speech and i would become confused.
My life was like this for 5 long years. Life didn't get better, I began to be soo tired and felt exhausted all the time. One day out of no where , I couldn't raise my head to get out of bed for work, my whole right side was burning and i was in pure agony!!! i will never forget that day. I had to have my Daughter help me up and i could barley walk...I pushed myself to keep going thinking this is all in my mind!! theres nothing wrong with me.. The MRI's are negative. I proceeded with my day in so much pain and limping all day.
It finally went away and I was fine again fo a small amount of time, I started not being able to remember things ....and forgetting from one second to the next and getting lost when I would drive...i began to panic and have anxiety, I felt like my life was out of control. I called my Mom and she said she had noticed a change in me, things I guess I didn't even know. She said I couldn't hold a conversation as before and i would slur my words and I couldn't recall what she would tell me.
My attacks moved to 4-5 times a week sometimes having seizures 2-3 times a day. I ended up having to be taken care of and moving where my Mother was so she could watch over me. I didn't get better. I couldn't work and I couldn't do much of anything.
My Mother took me to a MS specialist and he was the one who noticed there was something wrong! My face and legs would jerk and I couldn't sit still ..I had so much going thru my mind what could be wrong? I had 2 Sets of MRI's this time and it wasn't fine this time...My Spinal Cord was barley attached to my Brain Stem and CV 5-6 in my neck.
I was at the stage of being in a wheelchair not that I hadn't been using one from time to time and needing a cane.
I was sent to ER Surgery and had a stay in the Hospital and really thought I was a lucky Person to have made it for 5yrs without dying. It has been 4years and I still have soo many problems, I'm held together with a steel plate in my neck that holds mt together.
I'm now 41 years old and I wonder what my future holds. I'm not the same girl I used to be and probably never will be. I have to have Neurontin 600mgx4 a day and 1000mg Keppra a day...Without it I would not want to live the pain is unbearable for me! The only negative side affect is my hair falls out and I have severe Insomnia. Neurontin is a Miracle for me!
I wish all of you the BEST! Prayers for all of you.....
-- By shellfulton | Reply | (1) replies | Private Message me
May 14th
2009
8:38 PM
Ironically, when I was in high school, I was sick for 2 years; I had migraines so bad I couldn't read, write or even watch TV. I was nauseated every day.. felt a bit better in the evenings. But my eyes were so sensitive to movement, if i was to move my eyeballs just to look at something move on the TV screen, I would be in agony. At the time, my mother was so worried about me, she took me to see every specialist there was in the city (Winnipeg), I missed 2 years of high school. After seeing about 50 doctors, finally one asked me if I was on the birth control ill and told me to get off it. 3 months later I was completely cured! Since then, i have been so afraid about birth control. i have used nothing but condoms.. until my son was born, my maternity doctor recommended the Mirena. I was skeptical because it had hormones in it, but she assured me they were different hormones then what were in the BC pill, and she said the risks were so low. I thought I would try it, and be on the look-out for the same symptoms I had with the pill. But I didn't have any. No visual problems, no nausea, no headaches... so I thought it was the greatest thing on the planet. Meanwhile, I was miserable, angry at my husband all the time, had no interest in sex whatsoever, was not sleeping.. I thought it was post-partum hormones. We decided our son needed a sibling so i had Mirena removed to get pregnant, and after our daughter was born in Dec '07, i had it put back in... again, thinking I had post-partum depression or something. Even 6 months later after I quit breast-feeding, I still couldn't lose the weight. I was eating chocolate and peanut butter by the cup every single day, crying all the time, had no energy to look after my kids and wanted to nap all the time, and cried when I couldn't! Then a few months later all of a sudden my joints started hurting. My wrists, elbows (like tendinitis), then a couple of days later I was limping because my hip or my knees hurt or my ankles felt swollen and weak. I felt like a hypochondriac because I was always complaining of something. Did I mention the hair loss?
So, sorry for the long story. But most of my symptoms have disappeared since removal if the Mirena this past Valentine's day 2009. However, as I was forewarned, I have recurrent symptoms every month while PMSing. I have never suffered from PMS in my life, until I had Mirena removed. I get depressed, eat more, and my joints hurt so bad, and sex repulses me. My poor husband; A couple of weeks ago I got so grossed out during sex that I made him feel like a creep.
These last 2 weeks, I wasn't supposed to have joint pain, because i wasn't PMSing anymore. But it has gotten worse. That's when I put up my post asking if anyone else has this pain. I was beginning to think I had Fibromyalgia. I also have very dry burning eyes, which is also a symptom on Fibromyalgia. I saw my doctor twice last week, and she thinks I may have it too. Is anyone out there in a similar boat?
April 18th
2009
10:48 PM
Oh I can sympathize with all the others on this killer drug. It has been quoted to me as being the discovery of the century for the treatment of Stroke etc . Well yes it will help with that but it will kill all other parts of your body.
you see when you get to the stage where you need this medication they really do not have much hope for a long future so they do not worry about what affects one will get. They think, 'well you are going to die anyway so it is better to prolong the agony and suffer .
Well I experiences, depression, severe joint and back pain, insomnia, blurred vision, a feeling of flatness of mood . Stomach pain, my hips have never been the same since being on it. I am off it now and take natural Cholesterol support and it is working. It is a nightmare to be on this drug and if you can go to the natural do it and do it now for you life sake.
April 7th
2009
10:37 AM
I had my Mirena IUD inserted two weeks ago today. I had it inserted on day three of my normally five-day period. My period stopped for 2 days following insertion and then I spotted for one day. After that one day, I have been bleeding heavily ever since, and I'm talking super jumbo tampon every 2-3 hours bleeding. Before receiving Mirena, I talked to my GYN, read the pamphlet and researched online. Each resource told me to expect spotting - so I expected spotting for 3-4 weeks after and I am completely blown away by the constant heavy bleeding that I am now being told could potentially last 3-4 months.
I normally do not use oral contraceptives because of my problems with High Blood Pressure, but my doctor felt the low dosage of hormones in Mirena was "ok" for me. Since insertion, I've experienced a slight raise in my blood pressure but the doctor doesn't seem too concerned about it because I am supposedly "adjusting" to the Mirena. I am slightly worried that my constant bleeding and increased blood pressure are not going to subside in the 3-4 months the doctor is recommending I wait it out.
Not to mention how the constant, constant bleeding is ruining my sex life.
I honestly have no idea what kind of standards or limits I need to be setting here for myself. It has only been two weeks, but how much is too much..? I also have to say I am worried as well since I have to have minor surger in 4 weeks and would hate to have HBP/Anemia complications because of this.
-- By keeka7 | Reply | (5) replies | Private Message me
March 25th
2009
11:48 PM
I have had the Mirena since October, 07, right after my daughter was born. Very easy insertion. I have had the usual problems with weight gain, acne, moodiness. I went to get my IUD out on Monday, 3/23. My doctor couldn't find it and I was in agony as he tried to "tease" the string back down out of my uterus. I had always heard the removal was the easy part. I went back today after doping up for the pain, and after thirty minutes, my doc still couldn't find it. Now I have to have an x-ray and surgery done to remove the stupid thing, which has either imbedded in my uterus or perforated into my stomach cavity. It is supposed to be very rare, but it has happened to me, and I just want the thing out of me. I want to get pregnant later this year, and am fearful for my fertility. Think about that very carefully, anyone contemplating it. I had no idea that could happen or I would have NEVER gotten it to begin with.
-- By mrrmom85 | Reply | Private Message me
March 2th
2009
3:28 PM
I just had it put in on Feb. 27, 2009 and it hurt like hell. If i really knew how bad it was going to hurt I never would've done it, never. Now I just dread the day it has to come out. I had some bleeding not much and cramps and lower back pain. It also seems I'm swollen inside and I don't feel any strings. Has anyone else had these experiences?
-- By kelly1424 | Reply | (2) replies | Private Message me
February 25th
2009
4:12 PM
Hi
I did find that life with the MIRENA coil got better as time went on... I had mine from about 4 years ago and had it took out jan 15th 09. A few problems at first, agony putting it in, unable to drive home, my partner had to come and get me. Thats the main reason I didn't get it taken out because it was agony for days! Then I had the terrible acne and weight gain, periods stopped, and no sex drive. But these did go away and it was fine after about 6 months.
I was told that fertility returns to normal right away... but that doesn't seem to be true, I have not had a period yet so was a bit worried, looking at this site and others, it seems periods can be slow to restart and irregular after that. Has anyone else experienced delay in periods starting again after the Mirena was took out? Would be good to hear about this so I don't keep worrying about this.
February 25th
2009
12:24 AM
I was on Avelox in December for a sinus infection. I had some pain and also had anxiety and bad dreams, etc. But I just finished taking 10 days of Levaquin 500 mg for another sinus infection and I feel like my life has turned into a real nightmare!!! I have severe joint and tendon pain, swelling, had several nights of terrible nightmares and for the past few days have had a hard time walking and getting up and down is very painful and difficult! I've had pain in my kidneys for a few days, bloating, etc. At first I thought my fibromyalgia had the worst flareup ever! Now I am really concerned as to what long-term effects I may have from this medication!
I had terrible side effects last year when my doctor had me on Cymbalta for my fibromyalgia. I went off of it on September 26, 2008 and had a mild heart attack on October 17, 2008. I thought it was the worst drug nightmare I would ever live through but now I wonder if the Avelox/Levaquin situation will be!
If anyone knows anything that can help reverse the consequences of being given this terrible medication, please share them! I would rather have lived with my sinus infections than contend with the agony I am now enduring!
M. K. B.
-- By margbeckwith | Reply | Private Message me
February 21th
2009
3:34 PM
Update after removal a week ago:
Today is the first day I have had NO JOINT PAIN! I am so happy all the time, like feeling normal is euphoric compared to how I was before. I have so much energy.. I feel like running a marathon, and I am not a runner! My husband jokes, "I think you were right about the Mirena." Duh! I can't believe the answer to my agony was just around the corner... had I only known all these years that the Mirena was ruining my life. I feel alive again!
There is hope, ladies!!
February 20th
2009
11:45 AM
Further update. I went to get my mirena taken out but the doctor couldn't find the threads, she fished about for a bit while I laid in agony, still couldn't find them. I was then given a scan and they couldn't see it on the scan so I was sent up for an x-ray. Thankfully it showed up on the xray, it has got lodged somewhere in my pelvis/groin. Been sent away to wait for the gyny to call me to get me in for surgery, she isn't there until Monday so I have to somehow get through the weekend, they didn't even give me any pain killers. Please let me know if you know of anyone who has experienced this. I do think I've just been unlucky with the whole mirena experience, sadly its not over yet though!
-- By monkeygirl | Reply | (1) replies | Private Message me
February 19th
2009
8:20 AM
I had the Mirena fitted in August last year. I am 33 and never been pregnant. I did suffer from depression before and horrendous periods, hence why I had it put in, I didn't have it for birth control as I've been single the past year and a half. Anyway, I have NEVER felt pain like when i had it fitted, it felt like they were inserting a knife into my womb. I had to have a pain killer stuck up my bum cos I couldn't move. I was crying and screaming and just generally in a bit of a mess. It eased off after the pain killer. Ever since then I have had bad abdominal pains and even pain in my vagina and in my rectum, when I went for my 6 week check they said that things would improve and it was probably just hte shock of hte coil.
I went to a different doctor after that and they said it wasn't related to the coil and that it was probably IBS and gave me antispasmodics. They have eased it and when I went back 2 weeks ago for the third time in agony they tested me for bowel cancer, chrons disease etc. All tests have come back clear and have now taken it upon myself to have it taken out on Tuesday. I can't bear the pain any more. At one point I thought I had appendicitis. I have been going to bed with a hot water bottle most nights and having hot baths.
My periods never stopped and now I'm getting sore nipples for about a week before I'm due on. Another thing I've noticed is that I've been getting spotty shoulders, its gross!!! I'd be interested to know if anyone has had the same experience as me as far as hte pains go etc!!
-- By monkeygirl | Reply | (1) replies | Private Message me
February 15th
2009
9:34 PM
Yaz has completely ruined my view of birth control. I was on it for 4 months…It was a living heck. I had the worst abdominal pain I’ve ever experienced. It hurt to ride in a car, the bumps on the road and the pressure from the seat belt were pure agony. While on it I had an abnormal pap. My period pain was ten times worse than it had been. Oh and lets not forget the mood swings. Sex was affected the worst, my libido plummeted. Sex was extremely painful. I was on loestrin24 for about a month and the pain did not subside completely until I stopped taking birth control. I’ve been off birth control for about 2 months now and sex is still painful. I hope that soon my body will go back to the way it was before I took yaz.
-- By ashleyamphithere | Reply | Private Message me
February 11th
2009
9:25 AM
I had the Mirena coil inserted April 2008.At the beginning of June 2008 i was starting to get pain in the loin area in both sides. A few weeks went by and i woke up one morning in absolute agony,vomiting and breaking out in sweat. I had to call my GP who thought that it was either a kidney infection or stones. I was prescribed antibiotics which relieved it slightly but the loin pain was always there just not as severe. In July the pain got worse so i was sent for a CT scan which came back normal. I also had blood tests and urine tests. Urine tests showed infection or blood in urine.Sept the pain got so bad that i was hospitalized for a few days and had a scan which again was normal but blood in urine. Was told kidney infection and put on more antibiotics. Also since June had been suffering terrible Anxiety,mood swings, low self esteem,tiredness and worrying about absolutely everything that i could not sleep at nights. I had a few sessions of counseling to try and combat those feelings. I also have terrible acne on my face and neck but not just pimples, they were more like boils which is not a good look especially for a 41 year old women! Then there was the weight gain. I`ve always been a healthy eater and workout 5-6 times a week at the gym but since June last year have put on 10lbs! I just feel so bloated and clothes that were loose on me are now too tight. I`m the heaviest i`ve ever been and so fed up about it as i`ve always been a size 8-10 but now 12-14.After reading this forum and recovering from yet another UTI from last week, i decided to book appoint to have my coil removed this morning. It will interesting to see if the above symptoms stop.Will let you know how things go.
-- By thefelinefriend1968 | Reply | (1) replies | Private Message me
January 21th
2009
8:09 PM
i m 43 year old male, i took lipitor for almost 5 years(20mg) then on February 2008 my doctor increase my dose to 40mg and then my nightmare begin, i work in a company, very physic job, in end of June 2008 i start to feel bizarre, difficulty to walk, get up in the morning was very hard, climbing stair was more and more dificult, i didn't know at this time that lipitor doing that, i just work harder to compensate for my weakness, and continue to take lipitor until September 2008, almost 3 month after feeling the first sign, but i was blaming aging and my weight to be the cause of my sudden weakness. end of September i was unable to do my job anymore, my co-worker start to do my job for me..it was very humiliated, then i call my doctor and tell him how i feel, and he order a blood test, he said to me after that i have a CK result near 6000, he never speak of lipitor side effect yet, i was suspecting a disease, like poliosis or something else...on my side i search on internet for answer, then my girlfriend read about side effect of lipitor, reading the side effect, i saw rhabomyolisis, reading the sign, was like reading my life for the last 3 month, i stop lipitor, after 3 days my urine became normal, a lot of stiffness i my neck stop etc..but my leg and arm where almost destroy, i past two magnetic resonance + one Emg, that s was the test that tell me lipitor destroy my muscle very severely, i saw a specialist who told me that is the most severe reaction to statin that she ever see along some colleague, the most important thing to know is that you can take lipitor for many year an it s ok for you, but the change of dosage is very critical and had to be check,ck and liver tested, it s almost 4 month now and i still not return to work, they think i be ok at the end of march 2009. statin is dangerous don t take that, vitamin C do the same effect without the trouble...
-- By oups2001 | Reply | (4) replies | Private Message me
January 18th
2009
9:07 PM
I am a male 45 years and used simivastin another statin for three and a half years. Over this time i had severe muscle pain at time then about 4 months ago the muscle pain in my legs came on with a vengeance. It started in both thighs then calfs got very tight sore ankles feet and eventually got in to my arms. A deep achey sort of a pain and an irritability that casesa feeling like a toxin in my inside elbows that makes me want to stretch all the time. I feel very weak compared to my former self. I tried many things to alleviate the pain but nothing really took the pain away or even decreased it much. sometimes i would lay and groan in agony. I especially noticed that draghts and weather changes made me feel worse????. I stopped taking the simivastin 6 weeks ago. I have not had a lot of improvement but must admit thet i have been trying to push my self over this and probably done more damage. My ck levels are normal but my liver enzyme is increased a little. I started also to take q10 and L- carnitine along with magnesium. I might be improving a little each day but nothing definite. I saw a rheumatologist who has no diagnosis and isn't to committal on whether the statin is to blame. He put me on celebrex which has finally given me some relief. Can anyone relate to the worsening of symptoms with cooler changes in weather? and is there anything else i could do to hasten recovery? Thank you to all contributors on this board although it is the first time i have contributed this board has been a scores of help to me.
-- By bradadelaide45 | Reply | (3) replies | Private Message me
Yasmin (22) Mirena (20) Levaquin (15) Lipitor (9) Singulair (4) Lisinopril (4) Kenalog (3) Bactrim (3) Loestrin 24 Fe (3) PredniSONE (3) Simvastatin (2) Lupron (2) Neurontin (2) Topamax (2) Doxycycline Hyclate (2) Cipro (2) NuvaRing (2) Methadose (1) Femcon FE (1) Yaz (1) Levoxyl (1) Lamictal (1) Sulfamethoxazole (1) Accuzyme (1) PMS Progesterone (1) Ultracet (1) Zoloft (1) Levothyroxine Sodium (1) Remeron (1) Fosamax (1) Celexa (1) Warfarin Sodium (1) Vytorin (1) MoviPrep (1) SMZ-TMP DS (1)
October 21th
2009
11:51 AM
i discovered that i had hyperthyroidism which was from grave's disease and grave's thyroid eye disease in jan. 2009. at the end of march i had my thyroid removed. never let anyone use the radiation treatment if it is in your eyes. my surgeon said if we had waited another week i would have been dead. they started me on 75 mcg of levoxyl. it made me mean, i prayed to God to let me die in my sleep every night. the dosage was changed to 88 mcg. my hair was falling out by the handfuls. i kept calling my dr. and being told it was normal. i lost 75% of my hair mass almost to non reversible. i have been on appearex and women's rogaine once a day and am using nioxin hair cleanser and conditioner for 2 months. i have new growth thank goodness. my toes almost froze off my feet, the headaches cannot even be described, i gained 40 lbs, this will be the 3rd time in 7 mos. they need to change my dosage to 100 mcg. my body cannot take it. today i am starting synthroid. until i found this site today i had no idea most of my agony was from levoxyl and it's side effects. thanks so much for all the information. good luck to everyone.
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