August 19th
2009
7:48 AM
My 9 year old daughter got her first shot in Dec. 2008 and her second in Feb. and the last in June. We have have been to the doctor a lot of times due to headaches with the doctor's opinion being that it's "allergies". She is now on allergy shots with still no relief from the headaches. I listened to her pediatrician and got her the shots. I feel so bad now after reading all the problems others are having with this vaccine. She also has had a change in her attitude aggression,moodiness,cries often, and she says she's depressed. If anybody has any suggestions for us please let me know. I love my little girl and know I'm worried.
-- By hlo30 | Reply | (9) replies | Private Message me
July 31th
2009
1:13 PM
I have had life-threatening spasmodic breathing episodes for the last year. My GP attributed it to asthma, because that's what it looked like, and they have given me prednisone shots and later on, antibiotic shots, to control it (for about 6 weeks at a time). I have well-controlled type II diabetes, so predisone can cause it to go out of control fairly quickly. Prednisone also caused some occasional pain in my feet, probably because of the elevated blood sugar. All the asthma drugs they gave me actually made me sicker, like Advair, etc. Lo and behold, I was able to talk my doctor into a referral to an allergist, and my allergy numbers are off the charts! All grasses, most trees, and many animals were high enough to cause anaphylaxis, especially when surrounded by more than one. Anaphylaxis can cause the labored breathing I suffered. Meanwhile, I have the lung capacity of an Olympic swimmer. I have an elderly friend who has gone to the hospital several times this year with the same problem. After I found out my results, I talked to his wife, and they discussed the allergy and infection aspect with the doctor. Turns out he had fairly severe allergies and infections that made his life-long asthma go way out of control. With a medicine for infection, he is 10 times better - the asthma is under control because it is not being jump-started by the low-level infections he suffered. I don't even have asthma, it just looks like asthma. I will begin years of allergy shots, just like in my 20's. (I am 55). The upshoot? Some people are suffering severe asthma symptoms. Others have a combo of problems which are exacerbating the asthma-like problems. Doctors who think you only have asthma tend to only treat asthma. Prednisone greatly reduces inflammation, which is a common factor in all the above diseases. So, calming the symptom doesn't mean treating the source. You long-term asthmatics should also look inot taking allergy tests if it is considered safe (they DO inject a small amount of allergens in your skin), and not spend 100% of your time with the pulmonary specialist who is only looking at your lungs. Also, you really need to do some cause and effect testing with antibiotics or similar to see if you have some type of infection. My friend and I are both on our way to better health because we went beyond treating the symptoms.
-- By itslaurie | Reply | Private Message me
July 10th
2009
11:17 PM
Wow. Not sure what to think here. I was in the ER today with heart palpitations and chest pain - really bad pain. . . thought I was having a heart attack. Mine started low sort of in the stomach and worked it's way up and settled in my chest. I could breathe but the pain was overwhelming. I sat on my yoga mat in the park took a few pepto tablets, called the Dr. and after almost an hour of pushing on my diaphram and trying to breathe and ease the pain I had to get help. Guess what - like most of you I'm extremely healthy. The EKG, stomach and chest x-rays and blood work (all done today) are fine. And I've been on Yasmin for too many years to count. This is not the first time I've had tightness in my chest or palpitations. One night I thought my heart was coming through my chest for hours on end I sat straight up out of bed and went to the ER the next morning on the advice of my allergist. Again all was fine. I always thought it was some "allergic" reaction to some other test I'd had done with a reaction to dye or some other medical interaction since I tend to be allergic to many things and get allergy shots. This really makes me think about getting off this pill, and I just happened to stumble onto this when I typed "chest pain" in as part of my search. It has been less obvious for me since this has happened infrequently but twice now in a few weeks. And it is rather frightening. Best of luck to all - thanks for the posts.
-- By yasmin47 | Reply | (2) replies | Private Message me
January 10th
2009
2:58 PM
I have severe allergies and cronic sinusitis... like a lot of people on here I have taken all the allergy drugs they make for the past 9 years... Ive had tons of procedures done and sinus surgery last Feb '08. Nothing helps. Ive taken oral steriods many times but recently my new ENT decided to give me a Kenalog shot in Sept. Nothing was explained to me other than it was a steroid. The nurse put it in my left shoulder. I have had all the symptoms people are describing on here except the indent. I have been progressively getting sicker and feeling worse and worse over the past few months. I feel like I could go to bed and just stay there. Now this past Monday he gave me another Kenalog shot in my left shoulder. I heard something on a tv show that it causes depression so I jumped on this site and feel sick about all the messages I have read about people's terrible side effects. I feel like my doctor who I trusted let me down. I am so worried that my shoulder is going to have a big grey dent like everyone is describing on here. I am just so tired of being ill.
-- By lisamartinez13 | Reply | (1) replies | Private Message me
November 2th
2008
2:57 PM
i've been taking the 100/50 advair for years now. i have only ever taken one dose a day, frankly out of cheapness. i was unwilling to take anything that expensive twice a day! in the beginning of my asthma experience, i was also put on singulair but again, when i filled the prescription and saw how much it cost, i never refilled it (boy, am i grateful for that after reading what people have posted about it!)
i cough up lots of yellow glom from my lungs and i blow similar stuff from my nose. a CT scan showed my sinuses to be completely blocked with polyps and the doctors said that if i had the surgery, i could get off advair.
in dec of 2006, i had the surgery but within weeks of going without advair, my lungs were tight again and i couldn't breathe and had to do a week of prednisone to open things up. back to advair for maintenance, but this time the surgeon added 2 nasal sprays (veramyst & astelin) and other inhalers (ventolin & maxair), plus wanted me to go to an allergy doctor for immunology injections.
the surgeon also told me that polyps could grow back in a month after surgery! wish he had told me this before the surgery. i certainly knew that they could grow back but i figured i'd have a good 20 years! now i'm told that i need these 4 other medications, plus advair, plus allergy shots to keep my polyps from growing back!
i still have no sense of smell, i still sniff, cough up glom and have constant sinus infection, just like i did before having a $25,000 operation!
however, i don't take the other medication- just the advair once a day or once every other day.
i never thought i had any side effects until i started reading here. happily i have not gained weight. but a few years ago, i did notice a lot more hair in the shower drain. and my voice is often hoarse. i didn't connect this to advair use until i read people's complaints here.
i am determined to get off this crap!
i have a resistance pump to exercise my lungs and strengthen their capacity.
also trying a dry salt inhaler and various supplements.
this is a great site. we need to get all our complaints to the FDA- they have to stop allowing drug companies to profit while using us as unsuspecting guinea pigs
October 18th
2008
9:14 PM
After reading all the side effects from Advair. I am glad I decided to wean myself off this horrible drug. My pulmonologist gave me a sample after I was diagnosed with asthma in March. Before I was diagnosed with asthma I had a severe bout of bronchitis followed by pneumonia. At first I felt much better using Advair, but then the horror kicked in. I experienced hoarseness and felt like I had an obstruction in my throat. I am not going into all of the side effects I experienced with this drug because it is a repeat of what people are saying on this website.
I stopped taking it two weeks ago. I am already noticing how much better I feel. The withdrawal has been difficult. I have no intention of taking this drug again. I plan on using alternative medicine in the future.
This drug must be taken off the market!!!!
-- By val2486 | Reply | (2) replies | Private Message me
October 9th
2008
11:25 PM
My son requires two forms of medications to stop the running nose, singulair and pediox. The two together were a very good combination and it did work. By eliminating the signulair on Oct. 6th, his nose is already running and he is coughing. We have tried Zyrtek and a few others I can't even remember, but none work as well. If anyone has any suggestions, please let me know. I will be calling his pediatrician for other suggestions, but I know she will be against us taking him off of the singulair, especially since he has had pneumonia in the past.
-- By jcrispy | Reply | (3) replies | Private Message me
September 29th
2008
12:04 AM
I am a loving mother of a 5 1/2 year old boy. He has been on Singulair for over 3 years. In this past 3 years my son has suffered in an unspeakable amount. He came down with Rota Virus and was hospitalized at 2. He then came in contact with Pneumonia in the hospital while he was there. They automatically put him on Singulair, Zyrtec, Prednisone, and antibiotics to treat the pneumonia. Since that day, my son has gone though more tests than I have in my entire life. He has had asthma, sinusitis, leg cramping ( to the point he cannot walk for 2 years), IBS, Acid reflux,(they gave him laxatives for a year that made things worse and addicted to them also), stomach pain, constipation and diarrhea back and forth. He also got Erythema Mulitforme TWICE, while on this drug. All of which the doctors said could NOT be caused by Singulair. He has had several Upper GI's and CT scans. Along with Barium enemas, several hundreds of blood tests, and many many pokes and prodded that were not necessary. All since he has been on Singulair. He now has frequent bathroom trips, depression, confusion, and anger outbursts. He also has to go to the restroom every 5 minutes. He has had genital swelling, and many other aches and pains. None of which his "doctor" ever said could be a result of Singulair. I am 100% sure it was!!!! He currently has anxiety and emotional sporadic issues causing problems in school The teachers and counselors say that it is so strange because there is no TRIGGER and the outbursts are completely inconsistent. His preschool teacher and director are sure he has ADHD. Well, we had him tested and he does not have any part of it. He has no learning disability what-so-ever. So that brought me back to square one. He is in a positive loving enviroment. How could he be depressed and want to hurt everyone around him? He cannot sit still. He cries and says he is 'stupid" and "can't think" like the other boys. He has nightmares and cannot sleep alone. He is scared of everyone and everything. So, as I sit here crying, I realized that this has all been a reaction of his "medicine" Singulair. He never should have gone through all of those painful tests, only to prove they couldn't find anything. So many treatments and sound full advice speeches from his doctors. How could they be so naive and selfish in the life of my son?
When I called my pediatrician of 5 years, she told me that " parents that have children with behavioral problems will LOOK for something to blame their problems on." She also said "drug companies only put side effects on their labels to PROTECT the drug companies. (as she laughed at me) They are not always valid". Then she said "if you take you child off of Singulair you will be playing Russian Roulette in his life." Then she said that all children around 5 or 6 go though this emotional time in their lives." She told me that if I take my child off of Singulair that she would no longer be a part of his health regimen for his asthma. She told me to see a Pulmonologist for further treatment.
Who is paying who? This is my son's life???????? I decided to go with my mother-gut instinct and get him off of this medicine. No matter what. He has been a different person since. He is currently going though a lot of side effects and withdrawals (leg pain, insomnia, hic-ups, emotional distress) but every day is getting better. How can the drug companies say that this is a "wonder drug?" There are more reported side effected patients then clinical studied patients! How can a "medication" that stimulates the brain not be connected to other problems? This "medication" interferes with the bio synthesis and action of LTs and has been marketed as NOVEL medication against asthma and allergic rhinitis. Who the hell is playing God here??? The pocket books of Merck or our over PAID "doctors?" Who pays the price? Our children? Or us. Thank god I found this before it was too late. I would not be able to withstand the pain of losing my son due to their lack of scientific evidence. They are lucky I am one of the smart ones. I will not settle for less than Justice for the drug companies and their paid "doctors?" You all end up in the same place. HELL
There are 18 million people on this drug. Most of them are children. Please save a life if not your own child's life. Thank You
-- By daisydookes | Reply | (14) replies | Private Message me
September 19th
2008
9:42 PM
I was on topamax for about 2 years. I took it for frequent migraines caused by my sinus's. I had all the normal side affects but got used to it after awhile. The only one i didn't get used to was the hair loss. During this time I started allergy injections and now i'm up to my maintenance level. So i decided to ween myself slowly off the topamax. I have been off for about 2 months now and I have been fine on the headache side, but i have started to get other symptoms (i think withdrawal symptoms). They have progressively gotten higher in number as the days go by. First my hair loss has not stopped. I gained about 10-15lbs, I am edgy and climbing the walls all day. I have a really hard time relaxing. I recently developed horrible insomnia, and about a week ago i started having digestive problems including water retention, bloating, gas, irregular bowl movements, and acid reflux. And I've recently had bouts of tightness in my chest and throat which make it difficult to breath (lasts about an hour). I didn't have any of these symptoms while i was on the topamax (except the hair loss), nor did I have them before it.
I am seeing an endocrinologist in a few weeks to make sure nothing on that front is causing any of this, but i really feel it's from taking and going off the topamax. If you can find other ways to deal with your migraines, DO!
September 11th
2008
4:13 PM
My daughter was taking a deadly cocktail of Zyrtec, Advair, and Singulair. She was on these medications for three years. At the time we thought that it was fantastic that her severe asthma and allergies were finally under control. After about six months of being on the medications we saw her slowly decline into a state of depression and withdrawal, she had constant headaches, she couldn't sleep, she was no longer interested in any of her friends or activities. She went from a loving and sweet girl to an angry and bitter person. In 2003 she committed suicide. Six months after her death reports started to come out about the links to Singulair and depression and suicide. Perhaps it was the combination of the three drugs in her case. If we would have had any idea what the effects of these drugs were we would have taken her off of them immediately! Please spread the word about the dangers of Singulair, Zyrtec, and Advair. Go on to the other sites and read what people have been posting and you will be shocked. The Singulair survivors are banning together to try and get this medication pulled. Do what you can to spread the word!
-- By sarahsmom | Reply | (2) replies | Private Message me
August 1th
2008
9:29 AM
My daughter who just turn 7 has been on and off Zyrtec for the past 6 months. This last time it finally clicked... She was on it for about 3-4 weeks and I notice her mood changed and she was now very angry at anything and started hitting her sibblings and throwing things at me out of anger. She also was waking up at night either with bad dreams, or couldn't sleep. My husband and I realized that this all started about the time we put her back on Zyrtec. Two days ago, I took her off it and the next day she was an "Angel" compared to before. WOW what a difference. I did notice today (day two) she was sneezing more and didn't feel as well physically. So we are not out woods yet.
She also has been taking Singular for several years and I have been reading more about that medicine as well. I am not sure if needs to be taken off that yet, and will do an experiment. The timing isn't the best since school starts in just two weeks, but it might be worth it to have a happy child again.
On a side note, last year in school, they diagnosed her as having social anxiety. She is "extremely" shy and closed off in school. It would take her hours to do her homework which should have taken about 30 min. I am curious if stopping singular would help clear her head and make her less anxious. (She was on Zyrtec as well during that time).
This would be such an answer to prayer if it works. My two sons are so much happier than my daughter and I always wondered why. This may be the answer!
-- By aroswell3 | Reply | (4) replies | Private Message me
June 26th
2008
12:25 AM
I've been on Advair for probably 5 years. It has kept my asthma under control very well. Right now I take 250/50 and I'm down to one puff a day. I notice some of the side effects mentioned here, especially leg cramps. My weight has always fluctuated, so I can't blame that on Advair, in fact, I lost 60 pounds a couple of years ago while on Advair. I do have hoarseness that I'm sure is attributed to Advair. I take allergy shots and I'm almost to a maintenance level now. I'm hoping that between the shots, acupuncture, and a low dose of Advair, I will maintain my asthma control without the side effects. By the way, I also take Singulair which I think helps.
-- By sunmoonie | Reply | (1) replies | Private Message me
May 29th
2008
3:00 PM
In November, 2007, we moved to a new house. I immediately developed a terrible cough, which I attributed to new house construction dust, plus I had started spending 4 days a week at our cabin in the woods, which tends to be damp and moldy. I just figured my allergies were really kicking in. The doctor treated me for a "sinus infection" with antibiotics and codeine cough syrup. Over the next three months, with no improvement in the violent coughing spells, the doctor ran me through 2 more rounds of antibiotics, plus 2 rounds of steroids.
I sing in a competitive choral group and were preparing to travel to Italy for an international choral competition. The terrible coughing was really messing up my rehearsals and the concerts that we had to do prior to leaving for Italy. Since November, I've probably been through 6-8 bottles of Tussionex. That is the only relief I can get from the cough, especially at night, and for concerts. I know the druggist has me on a list somewhere as an excessive cough syrup user.
Then my doctor sent me to an allergist, who administered the 80 pin pricks, concluding that I'm allergic to grasses, dust, mold, summer trees, etc. So she started me on nasal spray, fexofenadine, and singulair. AND weekly allergy shots.
Anyway, it has been CONSTANT COUGHING since November. When I went back for my 2 month check up at the allergist, I told her my symptoms had not changed, still couging, coughing, coughing. She looked at my chart and said, "You know, I see that you take Lisinopril. That can sometimes cause cough." She asked when the coughing started, and when I started taking the drug. NOVEMBER, 2007 was the answer to both questions. YOU ARE KIDDING ME!!! AFTER ALL I'VE BEEN THROUGH WITH THIS, WHY DID MY REGULAR DR NOT SUGGEST THIS?????
Needless to say, I've quit the Lisinopril, then my regular doctor put me on Tekturna (which also has cough as a side effect.) I'm going to quit all of them for a while and see if the cough stops after all this junk is out of my system.
It has been a nightmare!!!
-- By beth_m | Reply | Private Message me
May 6th
2008
10:54 PM
I am an individual that started taking Singulair about a year ago. I've had allergies to weeds, grasses, and pollens since I was a little girl and have taken a variety of meds including Claritin, Zyrtec, Allegra, Flonase, and allergy shots. Last summer, my usual Claritin just wasn't enough so my doc prescribed Singulair. It worked wonders for my allergies. Soon after, I began to feel "numb" -- that's the best word to describe what I felt. I was depressed. It just so happened that my mother had had surgery and I had moved to a different city about the same time as beginning the Singulair. When I began feeling depressed and disconnected from the world, my doc and I contributed it to depression from life transitions. It didn't go away though. For a year, I isolated myself. I didn't talk to friends and family. I missed over 10 days of work just because I didn't want to get out of bed. I slept almost 15 hours a day, gained 60 lbs, didn't clean my house. I didn't really do anything and I didn't care. I felt so disconnected from the world. I didn't cry. I didn't feel suicidal, but I knew that something was wrong with me. I thought I was having a breakdown or something. My doc checked several things but all test results were normal. It wasn't until my mother seen a CNN report on Singulair that I began to link my depression to when I started the drug. I immediately quit taking Singulair and felt better within 4-5 days. After 2 1/2 weeks, I was back to being my old self. It was so scary feeling so isolated, numb, and disconnected from the world. I never would've thought about it being a side effect from an allergy medicine.
-- By kentuckycuz | Reply | (1) replies | Private Message me
May 1th
2008
12:03 AM
I was diagnosed with allergy induced asthma in my freshman year of high school. I was given Advair for a couple of weeks to help deal with a major attack I experienced. After seeing an allergy-asthma specialist I was told to continue with the Advair until I could get my AIA under control. I was also placed on Singulair, Flonase, MaxAir AutoHaler (for emergencies), Acuneb (also for emergencies) and I was already on Zyrtec and an eye drop Patanol. At the time my Zyrtec and the Astelin I was on were not enough to treat both the allergies and asthma. I also began taking allergy shots. I was an athlete playing fast pitch softball, conditioning P.E. including weight lifting and running, and I was also doing aerobics in my regular P.E. class. I swam often, was an active outdoors man, rode horses, and ate a fairly healthy diet. I could not figure out why I weighed 145 lbs at 5'2. My doctor said I was healthy and that I shouldn't worry about my weight but now that I am a 19 year old 5'3 weighing 130 lbs I realize that my weight gain was not normal. Although I do not play softball right now, I practice belly dancing and yoga. I often go hiking, running and swimming and I walk about 30 minutes a day to get to and from classes at LSU. I worked hard to keep a healthy diet, and exercise often so that I would not gain the dreaded freshman 15. It took me two years to get down to 130 lbs and I never attributed my weight gain and inability to lose weight to my Advair until I was off it for almost a year and then had to start taking it again to deal with a flare up. In less than two weeks I had gained almost 10 lbs and was feeling miserable.After I got to college, I would often go for runs to help keep myself in shape. I got to the point where I had to quit running because I was always short of breath and I would have severe asthma attacks. I was on all of the above mentioned medications and often on Prednisone for sinus infections. I also experienced the dry cough and the tightness of chest. I experienced almost daily headaches -some were attributed to stress but I am not sure if the Advair caused the others. I was also very groggy, dizzy, and EXTREMELY moody. I disliked the way I was feeling while I was on Advair and took myself off it earlier than I was recommended. Since then I have been feeling a lot better and I am able to control my occasional flare ups with zyrtec and flonase and occasionally singulair if I feel my asthma acting up. I got dizzy easily for a few weeks after I took myself I was not told by my doctor that I needed to rinse my mouth out to avoid thrush, nor was I told about the possible weight gain and some of the other side effects. I am going to stop taking Advair unless I absolutely need it and I am not going to stay on it for long, especially if I start feeling like I was before.
-- By spirithawk06 | Reply | (2) replies | Private Message me
April 13th
2008
6:11 PM
Oh my gosh, I am just shocked after reading these posts. I am taking my son off of Singulair immediatedly!!!! I knew I wasn't crazy!! My son was on Singulair for over 2 years and it was awful. He was so hyper and uncontrollable. He couldn't control his temper. He had headaches everyday. He was put on it due to severe allergies and asthma. He is on other medications as well as allergy shots. I kept telling the doctor that I think the singulair was causing his bad behavior problems. He was just so hard to handle. He couldn't sit still for anything. The teacher couldn't get him to sit still in his chair. It just wasn't normal behavior for him. The teacher even thought he had ADD!! I didn't accept that however. The doctor just thought I was crazy and told me that Singulair wouldn't cause those symptoms. She said it actually would work opposit that and cause him to be sleepy. Well I took him off of it anyways and he did get pretty sick. His asthma acted up ect. But he eventually felt better and his behavior improved drastically. He wasn't so hyper and he could actually sleep at night and wasn't so scared at night. Just within the last week he has been pretty sick due to allergy season, his asthma has been bad and the doctor told me to put him back on the Singulair. So I did he has been on it for four days now and he is HORRIBLE.. It was an instant change. My husband and I can't control him and he can't sleep at night and has headaches every day. I am so glad I found this sight. I am taking him off immediately.
Thank you all so much for your comments. This medicine should be outlawed. I don't care what the doctors say. By the way my son is 9 years old. I certainly had no idea that it has caused suicide. I am so sorry to you all that have experienced such horrible things. Come to think of it my son used to say he hated himself all of the time when he was on this medicine.
God Bless You All
April 11th
2008
7:43 PM
has anyone took their child off of singular for more than 2 weeks and has the child had any breathing issues since being off?
-- By henrymel | Reply | (5) replies | Private Message me
April 11th
2008
10:47 AM
I just came back home from the dr. We made some tests and my 5 years old daughter is allergic to house dust mites and has beeing diagnosticated with athopic asthma. The dr. prescribed Singulair. Now, after reading all the posts, I freaked out and I have not idea what to do. I am really sorry I did't ask about side effect, but I considered, her beeing a dr, knows better than me. My thought now is: I'm not going to give my daughter Singulair.
-- By stephanie12 | Reply | (7) replies | Private Message me
April 11th
2008
12:42 AM
My 6 year old son has been on Singulair for 2 years and I have noticed a big change in his behavior but it all started with leg cramps and falling down alot..I told my dr about what was going on but she told me that it was nothing to worry about that it is growing pains..Before he started the on the singulair he was always a happy go lucky kid never had problems with him back talking or ever really getting angry. Now that I read all these reports these are the problems I have with him now:
My child has never offered to hit, kick or slap me but in the past year he has gotten more aggressive not only toward me but others as well..
He is fearful of people now thinking that they are being mean to him or picking him out to pick on or make fun of.
He has problems of headaches on a regular basis but just thought it was due to his sinus infections...
I have also noticed that my child has started hurting himself like punching even slapping himself in the face when he gets really angery or fustrated about things..
Sometimes he has problems with nightmares but not that much..
He also has problems with stomach pain as well...
My concern is taking my son off Singulair with his asthma being under control right now and he just recently had sinus surgery but I think it will be the best thing for him just because I want my sweet child back not the aggressive and abusive child he is now.... That is why first thing in the morning he will be taking him to his dr to find another medication to put him on and take him off the Singulair....
April 4th
2008
9:00 AM
My 15 y.o. daughter has has first hand experience with weight gain on Advair. About 6 years ago at about 9 y.o., she gained 20 lbs in 6 months - and it started happening exactly when she started the drug. She was very active (swim team, gymnastics, etc) and did not overeat. It is very frustrating that both her pediatrician and her asthma/allergy specialist deny that her small dose of Advair is to blame.
For some reason, and I have talked to others that this has happened to, switching to Singulair did not help her with the weight problem. Seems the people who are hypersensitive to inhaled steroids are also sensitive to Singulair. Concerned about her rapid weight gain, and because she was always so thin, I took her to an endocrinologist to rule out any other problems. After a lot of bloodwork, he concluded that he could not rule out that it was a side effect of the Advair and/or Singulair, and that they may have elevated her blood sugar. I have read tons and tons of postings on the internet about children & adults rapidly gaining weight from inhaled corticosteroids (i.e. Flovent, Advair), along with the round face, bloated stomach, stretch marks, thin skin, easy bruising, etc. but nobody ever says what happens after stopping any of these drugs. Do people ever go back to normal? Do kids look like themselves again? Do any of the side effects disappear?
She is now 15 y.o. and cannot reverse her weight gain no matter what (30 lbs overweight). The last 2 years, she has only been on a small dose of Pulmicort (a different class of corticosteroid even safe to take when pregnant) since she has mild persistent asthma, and allergy shots have helped trememdously. My husband and I have been looking for 6 years now on how to avoid our daughter's weight gain with asthma drugs. If you run into any info., please let us know. Any experiences or info would be greatly appreciated. Thanks!
-- By hrtprice | Reply | (3) replies | Private Message me
April 3th
2008
9:52 AM
Our son was put on several medications 9/07 due to bad asthma and allergies. Since then we saw his behavior begin to go down hill. He would complain of stomaches, not want to go to school, became increasingly more irritable and has mood swings. He was a good student and we have never had a problem with him attending school. Since 9/07 we have taken him to a total of 10 different doctors. Pediatricians, therapist, allergy doctor and three licensed psychiatrists. Everyone said that we were crazy when we suggested that this behavior was linked to the medication. The psychiatrist diagnosed him with anxiety disorder along with school phobia. This has been a nightmare. I finally took him to an acupuncture doctor as a last resort because the doctors wanted us to put him on Prozac for the anxiety. Our family doctor has even suggested he is Bipolar! The acupuncture doctor has recommended a diet change and some treatments with her so that we can remove him from all his medications. I am so glad that I listened to my instincts and did not put him on the Prozac. I was so upset when this story aired about the Singulair. We have been trying to get the doctors to listen to us since 9/07 about the possible link. They still deny the connection and advised us to not remove him from the medicine. But for once I am going to handle things my way and we have already seen a difference in his behavior. We will keep our fingers crossed and hope for the best. My heart goes out to everyone that has had similiar experiences. These doctors should listen to the parents instead of assuming we are all trying to blame behavior problems on medication.
-- By swaldron | Reply | (4) replies | Private Message me
March 31th
2008
8:19 PM
My son is 8 and has been on Singulair for 4+ years. When he was as young as 5 he said he should just throw himself off of our staircase and in first grade, age 7, he told a friend he wanted to kill himself with a knife or scissors. I have taken him to psychiatrists, psychologists, pediatricians and guidance counselors and none have linked it to Singulair. I spoke with our allergist and he said to take him off of it. He said their office was not notified when Merck changed the side effects last year. Obviously the fat cats at Merck are enjoying their big bucks with little regard for the people taking their drugs, look at the new evidence about Vytorin-it does not work yet they have made millions on it. They knew it did not work 2 years ago. I am so happy that I now know this drug is dangerous. We will stick with our Nasacort, Clarinex and allergy shots, which are helping tremendously. I am planning on getting off of Singulair for my asthma as well. It is not worth it. There are too many reliable drugs out there to waste my money on the suicide drug! I am on Asmanex and may add or change to symbicort. I am so sorry some have already committed suicide because of this drug.
-- By b2bmommy | Reply | Private Message me
March 31th
2008
1:16 AM
I am a 29 year old female. I have been taking Singulair for approximately 5 years. I have indoor/outdoor/food allergies with allergy induced asthma. In addition to Singulair I take Zyrtec, Advair, Diflucan, Albuterol, and allergy shots (all of these are for my allergies). Due to the nature of my job - I do a lot of research on various drugs. I would be the first to tell everyone that when they're prescribed a new drug - it is worth it to go to the website and look at the potential side effects. I also tell everyone that when they do see a side effect, to consider how many (or few in most cases) people actually experienced these side effects. That said - I do these things regularly - for myself and for my family. I am also well aware that much of the time - I/my family, will never experience these side effects. That said, there is a pediatrician on here who has commented that other drugs are worse and has quoted, "once a stone is thrown into a well, thousands of smart people won't find it" - this may be fact - but it is not very helpful to people who have truly experienced problems. While I might tend to agree with his/her view to some extent, there is also the side of me that knows my own body. What I have to say about my experience with Singulair is this: In 5 years, I have several times felt not only depressed but many times severely depressed and very anxious. These symptoms have increased over the years. The last 3-4 months of my life have been terrible. Happiness comes infrequently and sadness and anger have become my prevailing emotions. I have been a very happy and optimistic person the majority of my life. This has been a huge struggle for me - so much so that I actually have conversations with myself when it comes on strong - I have to remind myself during these times that I am a normal, happy person, and that nothing is as bad as it seems. After 28 years - I know my body - and THIS person, is NOT me. I am not a follower - nor am I a whiner/complainer. I can say though that until there are more clinical trials done - I can't know all of the science behind it and whether or not it is the Singulair is causing these side effects. My thought is that there may be a possibility that my side effects are caused by the combination of drugs that I take - not strictly from the Singulair. In my case - and because of the other drugs that I take - I can probably, safely stop taking Singulair and judge for myself. The good thing about Singulair? It works for my allergies; it works very well as a matter of fact. Other side-effects though - I had an ongoing sinus infection for about the fisr 5 months I was taking it - and I have amazingly vivid dreams - some very scary and some very real. Additionally - I would never want to discount a pediatrician's opinion - nor would I want you to distrust your/your child's physicians - however, the sad truth of the pharmaceutical industry is that in order to sell their pharmaceuticals - they must convince physicians that they are effective and/or more effective than other drugs that treat the same disease state. Many of these physicians are paid to give lectures on new drugs or new drug indications. And some of them (not all) will always prescribe a certain drug because that's what they've 'promised' to do. The main thing I want to say here is this: if you are taking Singulair, and you have truly been experiencing these side effects - do the research; be objective; consider other medications you may be taking; express your concerns to your physician; if you are an adult and you take other medications that control your asthma/allergy symptoms then stop taking it and see if you notice a difference. If you have children that are taking it or you have severe symptoms that would be detrimental without taking the Singulair - talk with your/your child's physician about the possibility of changing the drug to something else and explain your concern. If you physician is unresponsive - get a second opinion. Many people who are on Singulair have both an allergist and a family doctor - talk to both. I have read that many of you have taken your child off of Singulair - let me just stress the importance of talking to your physician before removing your child from a drug. Not to scare anyone but perhaps the suicide side effect was caused by someone taking it then stopping it - or some similar cycle. Personally - I believe that I have a large benefit from taking Singulair - but because of the depressive/anxious feelings I've had the last few months - I am going to stop taking it and see if I feel any better. I would like to say that the benefits of taking this drug out weigh the risks - but for me - if my quality of life has become miserable (which it has) - I will try this option of taking myself off the drug before talking to my physician about taking an antidepressant or something similar. The side effects of those can be much worse. Hope I was helpful.
-- By eward | Reply | Private Message me
March 31th
2008
1:13 AM
My six year old son has been taking Singulair for almost three years for asthma and allergies. We have had such a hard time with him and it all started around the time he was prescribed this drug. He became very irritable, angry, hard to satisfy and generally unhappy. Now that he is six, the last two years have been the absolute worst with him saying he hates himself and just wants to die. He has stomach pain all the time and has had alternating daily diarrhea for over a year. Our pediatrician has done all sorts of tests and has referred us to a specialist. He has bad dreams every night and also complains of leg pain. He has been so depressed lately that he does not even want to go out and play after school and on weekends (not like him at all) and the teacher calls me several times a week to pick him up early because of stomach pain. I am so upset to think all this has been caused by this drug and he has suffered because of it! He also takes Zyrtec, as do all three of my sons, but the older two do not have asthma, just allergies. I gave him his last dose night before last because I just found out about the Singulair investigation. If anyone has any advice it would be greatly appreciated.
-- By momof3jboys | Reply | (3) replies | Private Message me
Singulair (30) Advair HFA (9) Advair Diskus (5) Kenalog (5) Zyrtec (2) Lisinopril (1) Toprol-XL (1) PredniSONE (1) Topamax (1) Yasmin (1) Verapamil Hydrochloride (1) Gardasil (1)
September 26th
2009
6:35 PM
I am 44 years old and have been taking singulair for about 4 years. 3 months ago I started experiencing crushing chest pain, tingling in my lower limbs, and felt very stressed out. I went to the ER last Thursday and was checked out for angina - the ER doctor told me I was suffering from chronic severe anxiety. I took Ativan for 4 days and felt better, but now the drigs are gone and I again having constant chest pain. In doing some research I found that anxiety can be caused by imbalance in adrenaline, and so started looking online to see if any of the allergy/asthma meds I am taking (adviar, singulair, allegra) can affect adrenaline. That';s when I found this website. Although i find the testimony compelling, I wish more folks would have poted about how their symptoms improved (or didn't) AFTER discontinuing singulair. Also I've noticed many of the stories are about children not adults; many people are taking more than one med for asthma, and most people's symptoms seem to come on right away whereas I have been taking sinulair for years and only recently have anxiety. I will stop singulair tonight and see what happens, but am wondering if anyone has come across further research that correlates singiulair with anxiety? My job life is really peaceful, I am otherwise happy, work can get hectic but that's true of any job, and I am out of ideas as to why suddenly at age 44, when I eat right and exercise - why get anxiety? Thanks for the posts, I'll try to remember to follow up after I am off Singulair for a few weeks.
-- By icanhike | Reply | (5) replies | Private Message me