September 25th
2008
2:07 PM
I just received a kenalog injection a week ago when I went to the doctor for sinus problems. My regular doctor was not in,so I saw a different doctor who is an allergy specialist.He spent a whole 60 seconds with me and stated that I needed an injection of kenalog.I didn't question him,as I knew that kenalog was a steroid and I had taken oral steroids before with few side effects. The injection itself was not painful,but the next day,I felt terrible and have ever since.I ache,I feel very nervous and have been crying for no reason. My blood pressure is up.I have weakness in my muscles and heart palpitations,and a constantly upset stomach.I also have had a flare -up of irritable bowel syndrome and yet even with the stomach and intestinal pain,I cannot stop eating.I am also constantly thirsty and have excessive urination.I have a pins and needles sensation in my hands and feet and I have blurry vision and confusion and forget things easily.I have trouble typing,as I have to spell-check everything.I am going crazy wondering how long these side effects will last.I am the primary caretaker of my mother,and I now cannot take care of myself.Why do they not tell a person of the possible side effects? I would never have let that nurse give me the shot had I known that it could cause such horrid side effects. And my sinuses are no better.I have an infection and now need antibiotics,which is what I told the doctor in the first place.I don't know what to do,I feel like I am going to die.
-- By rk2this | Reply | Private Message me
May 7th
2008
1:56 PM
After an allergic episode about a year ago, I was diagnosed with asthma. The doc put me on advair (2 puffs - twice a day) . After 4 months, I started having an anxiety issues. I couldn't turn my mind off, felt restless and was stressed out and full of worry about dying from the asthma. At this time I got a job 80 miles from where I was living and had to move. My family and friends attributed my mental state to my life change. Up until now, I had never had any issues with anxiety or depression. Over the course of about another 4 months things got worse and I went to see a asthma/allergy specialist. He put me on Allegra for my allergies and prednisone for the asthma. Needless to say, things got exponentially worse. i could not sleep, was restless and found that I would just get up and run around my backyard. The anxiety had gotten so bad with the lack of sleep that I almost couldn't take life. The doc never let me know about the side effects of the prednizone. A month later (now almost nine months from my original diagnosis) I went back to the doc to see what was wrong because of the depression and anxiety. He sent me to the pysc unit to arrange counseling. That never happened due to the business of the clinic I was at. 2 weeks later I stopped taking the Allegra and Advair. Within a day to day and a half I felt like a huge weight had lifted and it took a couple months to get back to what I would call fairly normal life. I share this just in case someone else is having similar effects or life events. It has taken almost 6 months to shake the mental patterns from the few months of exposure that I experienced. Know your body, listen to it and don't blindly accept what a doctor tells you without research. Doctors are a great asset, but science only goes so far and then God.
-- By lowbar | Reply | Private Message me
April 4th
2008
9:00 AM
My 15 y.o. daughter has has first hand experience with weight gain on Advair. About 6 years ago at about 9 y.o., she gained 20 lbs in 6 months - and it started happening exactly when she started the drug. She was very active (swim team, gymnastics, etc) and did not overeat. It is very frustrating that both her pediatrician and her asthma/allergy specialist deny that her small dose of Advair is to blame.
For some reason, and I have talked to others that this has happened to, switching to Singulair did not help her with the weight problem. Seems the people who are hypersensitive to inhaled steroids are also sensitive to Singulair. Concerned about her rapid weight gain, and because she was always so thin, I took her to an endocrinologist to rule out any other problems. After a lot of bloodwork, he concluded that he could not rule out that it was a side effect of the Advair and/or Singulair, and that they may have elevated her blood sugar. I have read tons and tons of postings on the internet about children & adults rapidly gaining weight from inhaled corticosteroids (i.e. Flovent, Advair), along with the round face, bloated stomach, stretch marks, thin skin, easy bruising, etc. but nobody ever says what happens after stopping any of these drugs. Do people ever go back to normal? Do kids look like themselves again? Do any of the side effects disappear?
She is now 15 y.o. and cannot reverse her weight gain no matter what (30 lbs overweight). The last 2 years, she has only been on a small dose of Pulmicort (a different class of corticosteroid even safe to take when pregnant) since she has mild persistent asthma, and allergy shots have helped trememdously. My husband and I have been looking for 6 years now on how to avoid our daughter's weight gain with asthma drugs. If you run into any info., please let us know. Any experiences or info would be greatly appreciated. Thanks!
-- By hrtprice | Reply | (3) replies | Private Message me
March 28th
2008
4:50 PM
My fifteen year old son—all star athlete, good student, always following the rules has been through hell and back with this too, and is still feeling the stigma. After being on Singulair about 6 months, he started hearing and seeing things. He woke the whole house up one night with a blood-curdling scream. We immediately sought help and i started investigating the side-effects of Singulair. Every doctor we spoke too, Primary care, Allergy specialist, and 2 psychiatrists, discounted my theory that the Singulair might be causing all this. He did express having depressed emotions and thoughts of suicide. This kid had no previous pre-existing conditions that would account for these symptoms. Thank god the Psychs ruled out schizophrenia, which was what we were all afraid of, including my very intuitive son. I NOW FEEL LIKE I HAVE TO DO SOMETHING. This is so wrong. I tried to speak up about it and was swept under the rug many times. Please tell me if there are lucrative organizations i can report this too. My kids has been emotionally injured from this drug and it seems there are many more that have actually years from their childhood.
-- By christylou | Reply | (1) replies | Private Message me
March 27th
2008
12:39 PM
I have an 8 year old son who has been on singulair for about 2 years now. We have a very busy schedule with school, scouts, and football. So we often times would forget to take the pill as the Dr. recommended to take it before bed. Well around November we began taking the medication on a daily basis as prescribed. And since November the number of side effects from this medication has been alarming. I never made the connection to the medication until I came across the information on this website and on other forums. Since November my son has been on his medication consistently and over the past 5 months I have seen so many changes in him. Many that alarm me and have caused me concern but many others that through this website have come to light.
My son has always been a shy but outgoing child. He is very caring and loving and recently he has turned into this selfish, depressed, paranoid, and emotional child. His teachers have made comments saying they don't know what it is with him but they see a change and they were not sure what the cause. I was not sure either. Recently we went for a walk at the park and he said, "I feel like everyone is looking at me". I just shrugged off his comment and said, everyone is looking at you. You are a handsome boy and we are at the park. People enjoy watching other people. Then he would often times tell me he was sad and he did not know why. Said I have a whole in my heart and I don't know what to do to make it better. My heart would just break for him. I felt helpless for him. He has also been aggressive. He has been in 3 fights in the past 3 months. My son also experienced rashes on his body. He has a batch of rough dry irritated skin on his belly and it has now cleared up. He had 3 patches of dry skin on his back and that also has began to clear. His legs also were achy and he has not since complained about leg pains.
This past week we were on vacation for spring break. Well being vacation and not being at home threw our normal schedule for a loop. So we took the regular AM medications (Flonase, Pulmacourt inhaler) but forgot all about the Singulair evening pill. He has not had a pill for 9 days now. Last night we had football practice and I noticed how eager he was to do well and I noticed how much more excited he was about it. I thought it was because he was enjoying it and learning something new. Now I feel like I have a clearer vision into what was REALLY going on. I will NOT give my son Singulair EVER again! I feel misguided that my doctor did not tell me that these were possible side effects. I trusted him and was at my whits end in finding a reslution to my sons asthma issues.
-- By ali78 | Reply | (1) replies | Private Message me
February 28th
2008
10:46 AM
I have a 9yr that was placed on Singulair about 3 or 4 years ago with Concerta for ADD. He was always coughing at night and the doctor said it was allergies and told me to give him 5mg every night before bed. And the school said he had ADD. Well needless to say, my son weights 48 lbs and has had headaches. But he also doesn't act like a normal 9 yr old should. He does things destructively (breaks toys and destroys things in the house) and states that he doesn't know why he does things. He doesn't want to clean his room, shower, brush his teeth like he used too, and he acts depressed all the time. I ask he whats wrong and he says he doesn't know. He doesn't want to play outside or do anything remotely fun. After reading all these post I'm wondering if I should take him off the medication he's on and see what happens but I'm afraid of more side effects. The doctor says he needs to be on this medication. He has problems going to sleep at night is this a side effect? Any advice would greatly be appreciated.
-- By samantha48091 | Reply | (6) replies | Private Message me
January 26th
2008
7:32 PM
I have been on Singulair for just over a year now and I never thought I had any side effects from it until my fiance told me I shouldn't stay on a tablet for too long and to check on the net for the dangers, so I found this site. I said I have not had any side effects but having read a number of side effects experience from other people I can now recall within the last year telling my fiance:
1) Lately I feel like I am nearly going to have a panic attack, only sometimes and I don't know what brings on this thought.
2) Sometimes I stop eating something because I get this sudden thought in my head that I am allergic to it and my throat will swell up, and I start convincing myself my throat is swelling a little bit, and then I feel like I am going to have a panic attack
3) I experience the itchy hands every few months, and itchy eyes
4) Two weeks ago I took two days off work because I was so lethargic and so unmotivated, went to the doctor and he could not explain why I felt like that. The same week I was feeling very depressed.
5) I had a huge row a few months back with my fiance and for the first time in my life the thought came into my head about what it would be like to commit suicide, I wouldn't do it, but the fact I was curious is scary
6) I have strange dreams all the time, and now I recall that when I started singularity I knew this was a side effect and accepted it
7) Here is a new one, not sure if anyone else has noticed this, but in the last year I have suddenly become allergic to things I was never allergic to before. Or perhaps I always was with no symptoms but suddenly I have symptoms which involve swelling of the eyelids and red patches on my face, caused by cherries, or a rice I bought in marks and spenders. Never had allergies like this before and these two arose in the last two years. Also every time I take a shower I have a temporary red rash on my legs afterwards, doesn't matter what shower gel I use, its like I have an allergy to hot water.
8) And finally, has anyone else suddenly developed psoriasis, I developed it just 6 months ago, couldnt link it to anything but now I am writing all this down it comes to mind maybe its the Singulair two.
I cannot believe 10 minutes ago I just told my fiance I can take this tablet forever, its completely natural.
-- By sussi | Reply | (3) replies | Private Message me
April 18th
2007
3:47 PM
I was prescribed Levaquin the end of 2/07 for a sinus infection after six days I began to feel body ache in my knees, small back, shoulders and hips. In addition to the aforementioned, I have severe burning in my feet and mild burning in my hands. The burning sensations are mostly at night which affects sleep. It is now mid April, some of the affects are diminishing but flair ups continue. I also noticed that the burring sensation is accelerated by heat (sun, hot water etc.) My Doctor has me on the circuit, sinus specialist, nerve specialist and soon allergy specialist no one is admitting that Levaquin is the cause.
-- By rmpaxson | Reply | Private Message me
April 5th
2007
3:44 PM
My son has been taking Singulair for the last three years. He was only 2 when his doctor said he needed it for asthma. I wondered why he never got out of his "terrible twos". He was so horrible to even live with I would be in tears by noon. Very rude , hurt people, And had atistic behavier to appeir
-- By momofboys | Reply | (1) replies | Private Message me
January 11th
2007
11:17 AM
I started taking Lisinopril 5/31/2006. I started coughing in June. At first I did not think anything of it, since every summer at the height of allergy season, I always have a coughing spell for 4-6 weeks. But this time, it did not go away and seemed a lot worse. I did take a cough medicine (codiclear DH syrup). This is the only cough syrup that I have found that has ever helped any cough I have ever had. It did help slightly, but usually only to help me get over my coughing a little easier. When I coughed, I had what you would call coughing spells. When I coughed, it would only last for about 2-3 minutes. I would cough until I could get a little bit of phlem up and then only after that, would it start to subside. I would have these spells about every hour or so. I coughed to the point of throwing up and like others, it got worse at night where I would wake up every 1 - 1 1/2 hours coughing, sometime waking up in the middle of the night and not being able to go back to sleep at all. The one thing that seemed to help a little was water. I always had to keep water with me 24/7. I would drink about 16 oz. every hour. It sound like a lot, but it was necessary just to survive the coughing. This continued for about 4 months when my doctor thought I had Reflux and prescribed a reflux medication. This really did not help at all. She then prescribed another reflux med and said if this did not help, I would have to have a micro-oscopy (sp?), where they put a microscope down your throat. I still at this point thought it was still allergies, so I went to my allergy specialist that said it was not allergies and he thought it was a sinus infection even though I had no symptoms. He prescribed an expensive antibiotic, which did not help, then ordered a CAT scan which showed my sinuses crystal clear. After 6 months of coughing, throwing up and not sleeping, I decided to go online to see if one of my meds was keeping me up at night. To my surprise I came across information that Lisinopril causes persistant dry cough. I immediately went off after consulting my pharmacist, since it was a holiday weekend and on Tuesday called my dr. to let her know what I found out. She prescribed another bp med. It has been 2 weeks since I have been off Lisinopril and I am just now starting to see an improvement. My coughing is about 50% better. About 2 weeks ago I also asked my doctor to prescribe a coughing pill that I had been prescribed before. It is Tessalon, or the generic Bensonatate. For the first time in 6 1/2 months, I finally slept most of the night without coughing and only woke up once or twice to go to the bathroom. I also took my cough syrup to at night. I just saw my doctor today and she also precribed a steroid inhaler to help calm things down. Even though the lisinopril is out of your system after 48 hours, depending on how long you have been coughing, it may take a while for things to calm down because everything is irritated from coughing for so long. I hope this has helped, because I know how hard it is to find information that might help when things seem hopeless. Feel free to e-mail me if you have any questions or need some advice or support.
-- By gaylmi | Reply | Private Message me
April 9th
2006
3:27 PM
My son is 3yrs old and has been on singulair since he has been 12mnths old. Around the age of 2 we started noticing tremors in his arms or what we call constant shaking. We have seen different pediatricians and also an asthma/allergy specialist and a neorologist--all of them have told us this is not part of the singulair side effects. My husband and I have taken him off of it just to see---the shaking in his arms are diminishing and he is now sleeping all night long. Has anyone else experienced these tremors or shaking of body or arms. Or would you know of websites for us to visit to show his current doctor. email ozzie43@netzero.com
-- By ozzie43 | Reply | Private Message me
October 24th
2005
10:13 AM
My 12 y.o. daughter has has first hand experience with weight gain on Advair. About 3 years ago, she gained 20 lbs in 6 months - and it started happening exactly when she started the drug. She was very active (swim team, gymnastics, etc) and did not overeat. It is very frustrating that both her pediatrician and her asthma/allergy specialist deny that her small dose of advair is to blame. For some reason, and I have talked to others that this has happened to, switching to Singulair did not help her with the weight problem. Seems the people who are hypersensitive to inhaled steroids are also sensitive to Singulair.
Concerned about her weight, and because she was always so thin, I took her to an endocrinologist to rule out any other problems. After a lot of bloodwork, he concluded that he could not rule out that it was a side effect of the Advair, and that it may have elevated her blood sugar.
I have read tons and tons of postings on the internet about children & adults rapidly gaining weight from inhaled corticosteroids (i.e. Flovent, Advair), along with the round face, bloated stomach, stretch marks, thin skin, easy bruising, etc. but nobody ever says what happens after stopping any of these drugs. Do people ever go back to normal? Do kids look like themselves again? Do any of the side effects disappear? She's been off the Advair for about 6 months now (uses albuterol as needed) but cannot reverse her weight gain no matter what!
My husband and I have been looking for 3 years now on how to avoid our daughter's weight gain with asthma drugs. If you run into any info., please let us know. Any experiences or info would be greatly appreciated. Thanks!
-- By hrtpricehope | Reply | Private Message me
Singulair (9) Advair HFA (2) Kenalog (1) Lisinopril (1) Levaquin (1) Advair Diskus (1)
November 18th
2008
10:34 PM
So happy to find this site. I never noticed My son never had an eye tick until last month, ironically we started giving him Singular on a daily basis about the same time. My son just turned two and is has also been waking up screaming 3 times every night. Have others reported this same problem...also he is on Pulmicort too, have you read that it is linked to Glaucoma and Cataracts? Do you think that this could be causing the tick? Please HELP! I want a parent's opinion before bringing this up to the doctor...they are so quick to jump to more drugs it makes me sick! Thank you! Any other children with eye "ticks" like really quick consecutive blinks?
-- By nhplaydates | Reply | (4) replies | Private Message me