July 3th
2009
2:46 PM
I got my first Kenalog shot a few days ago for allergy symptoms, and I gotta tell you, I definitely regret it! I had asked about side effects before the dr. gave it to me, and she said there weren't any. I feel like I should start a lawsuit!! Anyway, the side effects I'm having are no picnic and have already been changing my life: sleeplessness, anxiety, not breathing correctly, heart pounding like crazy! I'm wondering how long I have to ride this out, as the dr. said this shot is given for allergies 2x a year. I will NEVER get the shot again!!
-- By nfcatlady | Reply | (1) replies | Private Message me
June 27th
2009
9:02 PM
My daughter is a 4 year old child started on Singulair after she was unable to tolerate Zyrtec. For the first few days her allergies seemed better and we were encouraged by her improved allergy symptoms (allergies to poplar trees, grass, and lambs weed manifest as headaches, itching (usually of the extremities), and stomach aches). However, after 2 days her behavior became increasingly erratic. She was emotional, tantrum prone, irritable, anxious, and had difficulty sleeping although she appeared and said she was exhausted/tired. After several weeks on Singulair, we stopped the medication to determine if it was causing the behavioral and sleep problems. The symptoms stopped after discontinuing Singulair and she went back to her usual happy, well behaved self. After being off of it for several weeks we decided to try it again due to her allergies flaring up and wanting to be sure it was the Singulair causing the behavioral problems (because for all of its negatives, the greatest positive about Singulair is that it definitely helps her allergy symptoms). Unfortunately, the irritability, anxiousness, tiredness, tantrums and insomnia returned. We tried giving it to her at different times during the day but the symptoms were still present (although she slept a little better when we gave it to her in the morning). We also tried cutting the dose in half and giving it to her around noon. Decreasing the dose did help with the symptoms to some degree, but they were still bad enough to outweigh the benefits of taking the drug. As a nurse, I love Singulair for the relief it provides allergy sufferers...unfortunately for my daughter, the side effects outweigh the benefits. Given the rates of ADD, ADHD, and other behavioral problems diagnosed in children nowadays, I thought it pertinent to report these symptoms present in my daughter that are solely caused taking this medication.
-- By wittynursentn | Reply | (5) replies | Private Message me
June 24th
2009
2:41 AM
My name is Eric, I am 16 years old, I have been taking singulair for about 8 years I think, I was never one for having bad dreams, but that all changed. (right now) I searched on google "Singuliar bad medicine" and I found this forum. I am very happy to know that Singulair could be the reason why I frequently have dreams of myself being killed or people I am close to dying.
When I grew older, I realized that the dreams I had did not match up with any thoughts I had the previous days, this is when I began experimenting with Singulair. I would take it as prescribed, then not take it for X amount of days and would see what happened. After not taking it for 2 days in a row, I slept soundly through the nights and had no dreams at all.
I tell you this now, in hopes that it's not too late.. If you or someone you know takes Singulair, GET RID OF IT. The bad dreams I had were so terrible that often times I would lay in bed and not fall asleep for many hours because I was so petrified of what I might dream about. The dreams I had would seem never ending, and anyone who knows what I am talking about understands that having a long dream can be very painful (I have felt the greatest of physical pain, this mental agony is far beyond anything I could have ever imagined). These dreams still haunt me today and not only that, but they have changed me as a person. I would wake up sometimes from a spaz attack, (arm thrust, kicking motion, because the dreams were so real). If you think mentally you are able to handle this, then continue taking singulair it works miracles, but I promise you the pain will only get worse and worse, thank you for your time, and please talk to me if you have questions, I would love to help.
I stopped taking singular, I never fall asleep in school anymore, my grades skyrocketed. I only have irritated eyes from not taking it, and sadly they hurt ALL THE TIME.
-- By soccerkid1 | Reply | (2) replies | Private Message me
June 4th
2009
12:03 PM
My son was on singular about 4 years ago and i thought i noticed irratability, lack of interest and depression, but he was only 4 1/2 at that time and i couldn't tell. It did relieve his allergy symptoms. We took him off at that time. Now, again put him back on it this past year (he is now 9 years old) and i see again a lack of interest, depression, mood swings, irritability and his teacher just told us that as this year has increased he has changed in his school work as well. As of last night we will be taking him off of this medication for good and will continue to manage his seasonal allergies with an emergency inhaler and zyrtec/claritin type meds. He is sluggish on the baseball field and not as alert (he unusually a natural athlete!) and he seems depressed and withdrawn - which is not his personality. I thought maybe because he was getting older he was changing but now I realize it is again the medication. It is okay for a week or two to get through a cold or high allergy week, but long term I will not have him on this any longer and wish that Merck would make the long term effects clearer to the doctors, patients and public in general. We are fortunate that his allergy symptoms are not as severe as other children and we can go lightly on medications.
-- By family23 | Reply | (1) replies | Private Message me
May 23th
2009
5:50 PM
I have been using Allegra for over 2 years. It worked for my allergy symptoms. There are side effects I experienced but didn't really make the connection until I started reading everybody else's experiences. I had headaches, ear aches and ear infections that wouldn't go away, leg cramps at night a foot cramps while driving. I was on several antibiotics for the ear infections. Severe headaches/brain fog at doses of 180. I tried an experiment by stopping the Allegra. Sure enough my ears have cleared up and no more leg & foot cramps. The down side is that my allergies are worse and I have been taking the old antihistamines Chlor-Trimeton & Benadryl.
-- By kittyjoy | Reply | Private Message me
May 13th
2009
10:23 AM
Wow. I am surprised to see how many children are being put on this medication! I am surprised because the label on my bottle says specifically for adults 15 YEARS of age and older... As for my experience with Singulair, I have been taking this medication off and on for about a year now. I was put on it for severe allergies as everything else I tried did not work for me. (Claritin, Allegra, Flonase, Veramyst, etc) The first month or so on Singular I noticed that I would get severe headaches in the afternoon about the same time everyday. I would have to take aspirin just to make it through the every workday. These headaches eventually tapered off even though I will occasionally get a headache. The Singulair definitely helped me with my allergy symptoms and when I would go off, I would usually end up with a cold or sinusitis.
-- By bobsuruncle | Reply | Private Message me
April 27th
2009
12:43 AM
i am really glad i found this site, and got to really understand what may be my problem. its the SINGULAIR, i really believe. i will share my story so no one has to go through what i have been going through. (i just stopped my medicine a day or two ago, so i will repost and see if i start seeing changes in my behavior) well first off i am 19, and i started taking singulair when i was a senior in high school, so about 2 years ago. i didn't see any noticeable changes for awhile, except for probably a year now, a little more or a little less. for this whole time, i have not been sleeping, i wake up 3-4 times a night, fully awake and can never fall back asleep for hours. its almost like my body tries shutting down, but my brain never does, i have the craziest dreams, most of them are me suffocating or not getting enough air, which are really scary. I have been having really bad anxiety, panic attacks, basically i have been just feeling like i am going to die every second of the day. the feeling of being trapt inside my own body. it seems like every month it just gets worse and worse. i cant focus, i don't go to school, i don't work, and i believe its from the side effects of this medicine. i also always feel so tired, and so weak, i cant even look through a clothes rack without my arm aching. i have been having a hard time breathing, which is odd seeing its supposed to help me breathe, i have been sick at least once a month, through this whole time i have been going to my Dr. at least twice a month or more, telling her my symptoms, i even went in their one day crying i was so scared. and she just kept telling me, its probably all in your head, this, that and the other. she even put me on probably 10 different medicines trying to see which one would help. and of course none of them helped anything. I started thinking, and feeling like i was going crazy, what was wrong with me? i wondered constantly. For a couple months now, i figured i had to take it into my own hands to figure out what was wrong, seeing this Dr. doesn't seem to understand me. I looked up every disease or problem imaginable, and had blood tests done, but every thing came back normal. i didn't understand what was going on, every month i just feel worse and worse, lately i have been telling my mom i just want to die, that i cant keep living my life this way, of course i would not do this for the fact that i couldn't do that to my mom or my little sister, or anyone, but it feels like it would be easier then dealing with everything i have been. along with everything else i was/am feeling, i also feel a lot of hate toward myself, i feel like i am not good at anything, and i feel very ugly, sometime i don't even want to leave my house, because i just feel disgusting. Finally, a couple days ago, my little sister which is 10 and really smart i may add, was watching TV and they happened to have a commercial for SINGULAIR. she told me that everything i have been saying that was wrong with me (she hears me complaining a lot about all my problems to my mom) were all the side effects from SINGULAIR. of course i wanted to know more about this even though i have taken this medicine for awhile without any of these problems, i started researching and realized that all of my symptoms happened to be the side effects from singulair. and then i started reading other peoples stories about it, and about linking it to suicides and everything. i told my mom and i told her i wanted to stop the medicine right away, at least just to see if this is what it was all along. i haven't taken it for 3 days now i believe, and i already see a difference, i actually get tired now instead of staying up reading till 5 in the morning, and i haven't been waking up at all during the night. i am pretty angry that my dr. couldn't figure this out, or at least maybe even think about it. for awhile i thought i was honestly going crazy, i lived in fear for so long that something was extremely wrong with me, that i haven't lived my life the way i should of, or wanted to. i never thought that it was just the EXTREME side effects of this medicine. i am so thankful for my little sister listening to all my complaints and all my anger toward myself, and actually putting it together that it would be my medicine that was supposed to make my asthma better. as i said its only been a couple days and i already feel better, i will repost to tell you if im back to my "normal" self after being off this medicine for a longer period of time. i feel so grateful for my little sister, who would have guessed she would tell me what a Dr. couldn't even think about. i really feel that if i get back to my normal self, i really have her to thank for saving my life. <3
-- By jaclyntaylor89 | Reply | (4) replies | Private Message me
April 22th
2009
1:54 PM
I began taking Zyrtec 2 months ago. It controlled my allergy symptoms very well, but I noticed increasing fatigue and depression. I became a "couch potato" barely able to get through my day. I began having suicidal thoughts and gained weight...probably due to the lack of activity. In the last 2 days, I have gone back to my old allergy medicine (Allegra) and am feeling like myself again.
-- By mrst | Reply | Private Message me
April 21th
2009
9:37 PM
I have been getting Kenalog injections on and off since I was a teenager. I am now 38 years old. I get these injections about once a year and depending on how bad my allergies get, sometimes twice a year. It is the ONLY MEDICATION that I have ever been able to take that has completely relieved my allergy symptoms. I to have got the "dents" into my skin at the injection sites, which over time have resolved on their own. My hips ache as well but fortunately only just sometimes. Exercise relieves the pain. I am a nurse and know full well the "adverse" side effects from this medication and am reminded by my physician every time I go for the injection. The misery of dealing with my seasonal allergies when nothing either prescription or over the counter helps makes me incredibly grateful for this medication. Everyone will react differently to every medication. People need to realize that it will not work for everyone and there are serious side effects. That is when YOU need to decide if the risks are worth the potential benefits. For me they are, every year I dread spring and summer and will dread it even more if the FDA pulls this drug.
-- By americannurse | Reply | (1) replies | Private Message me
March 25th
2009
12:56 AM
While Singulair does work, it comes at a horrible price! We started our 6 year old daughter on it for extreme allergies. Within 5-6 days of starting it, she started becoming angry, moody, aggressive, irritable, throwing horrendous fits and she started crying a lot. She also stopped eating and complained of nausea often. I started to wonder if the Singulair was to blame, so we stopped it. Within a few days, she started improving, and is now almost back to normal. It did help with her allergy symptoms, but I will NEVER give this medication to my children again. Our doctor never once mentioned that side effects like these are possible, but apparently they are.
-- By stayhomemommy | Reply | Private Message me
March 4th
2009
11:51 AM
I am 49 yrs old and was prescribed Singulair for allergy and asthma symptoms. I began taking it 2 weeks ago. I find it extremely effective for both asthma and allergy symptoms. Last week I experienced nausea - this has stopped, so it may or may not have been a 24 hr bug. However, I often have a headache and am generally lethargic and starting to feel depressed. After reading the posts here, I realize these symptoms are most likely associated with Singulair so I am planning to discontinue this drug today.
-- By daisy6227 | Reply | (1) replies | Private Message me
December 31th
2008
10:31 AM
I have been taking Nasacort for only a week. I developed a rash on my forearm 2 night ago and decided to stop taking the Nasacort and Amoxicillin. I noticed last night that I couldn't taste my food. I could only sense the saltiness. PLEASE LET ME KNOW IF ANYONE HAS REGAINED THEIR SENSE OF SMELL/TASTE. I'm in the restaurant business. My sense of smell and taste is my livelihood.
-- By jkinney | Reply | (2) replies | Private Message me
December 26th
2008
12:24 PM
My husband has been taking Singulair for the last two years. It has made a tremendous difference in his frequency of sinusitis in the winter and allergy symptoms during the summer and fall seasons. For at least the last year, he's been having trouble with insomnia, so he is taking Melatonin. This helps but last night something very new happened. We went to bed around 11:15 p.m., then at 12:45 he woke me up and said he was having trouble breathing. He was very agitated and paced around the room, would sit for a few minutes, then get up again, pace and act very agitated. We've been married for 26 years and this is not normal. We almost went to the emergency room but decided to wait. This morning he's tired and very quiet. From reading the other postings, I think that Singulair could be causing the insomnia and now the agitation and depression.
-- By wyogirl | Reply | (1) replies | Private Message me
November 28th
2008
9:52 PM
Have been using Nasacort for a couple of weeks, and am loosing my sense of smell and my sense of taste. Have not experienced any other side effects.
Has helped my sinuses.
November 4th
2008
8:55 PM
my 6 year old has what doctor's have called cough-induced asthma or reactive airway disorder. He doesn't wheeze but gets these severe coughing spells which get worse at night. Usually comes on during the colder months. He is on Flovent, and Singulair to maintain When he gets the coughing spells, he gets the Albuterol inhaler 2 puffs every 4 hours. It makes him NUTS. Literally climbs the walls, Can't sit still. I'd rather have him cough than to see him like this. Now with the most recent coughing episode, I've noticed an extreme personality change. To the point where his 1st grade teacher called me to ask if it could be the medicine. He's normally a shy kid, sweet now all of a sudden he's a social butterfly in school and interrupting the teacher. AT home, he's just not right .Doctor changed him to Xopenex inhaler but he's still not right.
-- By njm182002 | Reply | (2) replies | Private Message me
September 26th
2008
9:55 PM
POLL: If you or your child have been adversely affected by Singulair could you please reply to this and let me know what ethnicity you are and skin tone. (fair, med., dark, etc.) I'm interested in the demographics of this drugs effects.
Thank you!
August 11th
2008
9:10 PM
After our Singulair nightmare experience with my 4 year old daughter, I looked towards a more natural alternative. I put her back on children's echinacea drops by Herb Pharm - this has always helped in the past with her ear infections. You do need to be sure to give them a 10 day break after about 2 weeks. I also started giving her Primal Defense for Kids by Garden of Life. This is a Probiotic Formula. This product has really been a godsend. Her allergy symptoms are now minimal. No more runny nose, sneezing, itchy eyes, etc. If you are at your wits end, you may want to try these items. They are working for our family!
-- By lindsaysmom | Reply | Private Message me
August 2th
2008
12:17 PM
Has anyone gotten the injection in the arm?? I did for allergy symptoms on April 1, 2008, from an ENT doctor. It seemed to help for a while but I have since noticed I have become depressed and worried about dying. I also had really bad muscle spasms/cramping in both upper arms, which have finally gone away, but I still have a fullness feeling in my armpit area. I have had my regular doc check it a couple of times now and he can feel no lumps. I wish I never would have gotten this shot!!
-- By johnsonjj | Reply | (1) replies | Private Message me
July 29th
2008
10:56 PM
Took first pill (5mg) on 7/8. Second on 7/9. After lunch on 7/9, food stayed in stomach and would not digest. Felt like a huge lump. Digestion continues to be a problem. No appetite. Food does not look good. On 7/11, developed two hives with large red areas surrounding them, however, they were not itchy. Became quite tired also. Allergy symptoms of itching eyes, watering eyes, itching throat, stuffiness developed. Headaches to the point of taking a pain reliever. Developed muscle cramping in calves on 7/15. Still great difficulty eating with no appetite. Existing hiatal hernia became a problem at night with nausea. Terrible flatulence also. Exhaustion is now the description, not just tired. Feeling depressed, but perhaps that is a result of the exhaustion. Blood in urine on 7/18, the final straw. Discontinued med on 7/18. Hives have still not cleared up totally (7/28) and the tiredness has still not gone away. I have been told that when you have hives on the outside, you have hives on the inside too. I would never take this med again. Going to look into biofeedback.
-- By seashell2 | Reply | Private Message me
July 28th
2008
4:36 PM
Took first pill (5mg) on 7/8. Second on 7/9. After lunch on 7/9, food stayed in stomach and would not digest. Felt like a huge lump. Digestion continues to be a problem. On 7/11, developed two hives with large red areas surrounding them, however, they were not itchy. Became quite tired also. Allergy symptoms of itching eyes, watering eyes, itching throat, stuffiness developed. Developed muscle cramping in calves on 7/15. Still great difficulty eating with no appetite. Existing hiatal hernia became a problem at night. Terrible flatulence also. Exhaustion is now the description, not tired. Feeling depressed, but perhaps that is a result of the exhaustion. Discontinued med on 7/18. Hives have still not cleared up totally (7/28) and the tiredness has still not gone away. I have been told that when you have hives on the outside, you have hives on the inside too. I would never take this med.
-- By seashell2 | Reply | Private Message me
July 1th
2008
1:17 PM
I do understand that this medication can be helpful for some people and for them, the benefits out-weigh the side effects. For this reason, I don't think that this med should be taken off the market, but I DO think that we, as patients, deserve to be explained these side effects before we are just injected with such a powerful drug!!
I went in to a walk-in clinic with allergy symptoms that were not relieved by OTC drugs. Nothing super- severe that I couldn't stand, but I was looking for something to make me feel better and the Dr. prescribed Kenalog. No side effects were mentioned/discussed. A nurse came in and gave me the shot. A few months later, I noticed the dent on my left buttocks area. I was very worried because it looked SO bad! The dent has increased in size and depth over the months. My PCP told me that it was most likely from the Kenalog injection but I have an ultrasound scheduled to find out how extensive the atrophy is! She says that it only destroys the tissue and fat but I know for a fact by feeling the area that the muscle underneath is completely gone!! How can this shot be given to patients without a verbal description of possible side effects and a written consent!!
I've read that some people have been lucky enough to have the "dent" go away! How long did that take?? I am only hoping that I am as lucky!!! It is such an UGLY site!! Luckily it is covered by a swimsuit and my fiance doesn't find it as ugly as I do!!
June 16th
2008
10:02 PM
I'm now 43, and I've had bad allergy symptoms since about age 17. Perennial symptoms and nearly daily headaches and facial pressure and bad throat drainage. Also, every time I got a cold, I'd get a cough that would not go away for months.
Finally, a few years ago, a new family doctor suggested I try Advair for that cough. Wow. Cough gone in days. Wow. That seemed invaluable to me.
But, I do notice thick mucus in my throat now, and I can't seem to clear it, at times. My voice is affected and diminished, it seems.
I'm not sure that any other side effects are occurring for me. However, after my wife saw a commercial about death risks associated with Advair(naturally the commercial was from a law firm), I decided to do some internet reading. I am curious about the possible heart effects. I had a mitro-valve prolapse in my teens, and am not sure I should be taking medications that can alter your heart rhythms.
I think I'll call my doctor and see what other options I have. I am intrigued by the idea I read below, from April of 2008, about reducing dosage to once a day, or every other day, or once a week, or down from 250 to 100, or all of the above. If it still controls my cough, that's may be all I need.
I've never had bad asthma. Just bad allergies, that have led me to this.
So, I just might try a reduction plan.
June 1th
2008
10:47 PM
My 5 years old son has been on Singulair for 9 months. His allergy symptoms have completely gone away. He’s no longer has his night time cough, bloody nose, and frequent croup due to allergies.
My life has been a living HELL from the moment I started this medicine. Before he was on this medicine he was always a pleasant, smart, well-behaved child. Right after he started singulair he began having temper tantrums, becoming increasingly argumentative, not listening. He gets mood swings like you would not believe cry and/or yell at us over the silliest things, kicking, screaming, nightmares, and became very physically aggressive. We were unable to take him places because we never knew how he would behave in public .He was extremely unhappy little 5 year old boy. He also complained of upset stomach and fatigue. Even his school complained about his behavior and they said that he might have PDD. After consulting with doctors we got the assurance that he does not have PDD, but we end up changing his school anyway.
Being a first time mom I never thought it was the medication, I thought it was just a normal behavior. I thought as a parent I must be doing something wrong! I couldn't believe that other parents have gone through the same nightmare.
Two weeks ago the doctor handed me a report about singulair and its suicidal side effect and ask me to stop using this medicine for a while. Since then I started to notice a dramatic change in our son's behavior. He woke up singing, laughing. He wants to help with chores. He is doing great with his school lessons, and very patient with everyone. He is now a more stable and friendly 5 years old.
Wow, I have a completely different child, and thank God I took him off singulair.
As parents, please let’s do something to stop poisoning our children.
May 30th
2008
11:42 PM
My 22 month old daughter has been diagnosed with asthma. She was prescribed albuterol to inhale with a machine and mask every 4 hrs as needed beginning on Monday. This medicine is dangerous as she has been more than hyper. She has been falling and injuring herself. She fell last night and gashed her forehead on the radiator. We were in the E.R. until midnight. Thank God she's better, now. I gave her one treatment this morning at 7am and have refused to give her any more. It is too dangerous for her. I've rubbed eucalyptus cream on her chest and she seems to be wheezing less. Any other moms go through this? Any homeopathic suggestions for asthma? Do you find that all doctors diagnose children for asthma if they are coughing and wheezing a little?
-- By bouvier12 | Reply | (2) replies | Private Message me
Singulair (52) Kenalog (10) Advair HFA (4) Lisinopril (4) Albuterol (3) PredniSONE (2) Nasacort (2) Bactrim (1) Concerta (1) Mirena (1) Hydrochlorothiazide-Lisinopril (1) Allegra (1) Zyrtec (1) Flonase (1) Yasmin (1) CP Dec DM (1) Advair Diskus (1)
September 26th
2009
6:35 PM
I am 44 years old and have been taking singulair for about 4 years. 3 months ago I started experiencing crushing chest pain, tingling in my lower limbs, and felt very stressed out. I went to the ER last Thursday and was checked out for angina - the ER doctor told me I was suffering from chronic severe anxiety. I took Ativan for 4 days and felt better, but now the drigs are gone and I again having constant chest pain. In doing some research I found that anxiety can be caused by imbalance in adrenaline, and so started looking online to see if any of the allergy/asthma meds I am taking (adviar, singulair, allegra) can affect adrenaline. That';s when I found this website. Although i find the testimony compelling, I wish more folks would have poted about how their symptoms improved (or didn't) AFTER discontinuing singulair. Also I've noticed many of the stories are about children not adults; many people are taking more than one med for asthma, and most people's symptoms seem to come on right away whereas I have been taking sinulair for years and only recently have anxiety. I will stop singulair tonight and see what happens, but am wondering if anyone has come across further research that correlates singiulair with anxiety? My job life is really peaceful, I am otherwise happy, work can get hectic but that's true of any job, and I am out of ideas as to why suddenly at age 44, when I eat right and exercise - why get anxiety? Thanks for the posts, I'll try to remember to follow up after I am off Singulair for a few weeks.
-- By icanhike | Reply | (5) replies | Private Message me