August 6th
2009
2:05 PM
I'm 28 years old woman...
I was prescribed Ulcerative Colitis 5 years ago. I have been on prednisone 4 or 5 times since then for periods of three to four months experiencing the typical symptoms and side effects. I had a new flare up and 2 weeks ago my doctor prescribe prednisone again, but this time he told me to take 40 mg a day for 7 days and then stop it, TOTALLY.
He said that it was safe and even better than the old strategy of reducing the dosage slowly over a 2-3 months period, so I accepted.
I've never felt so bad in my life, not even when I was a moody teenager.
These days I have felt so miserable, so depressed...I am an optimistic person, really positive and easygoing but these last three days I have changed completely: anguish, anxiety, panic, alienation, it's like living in someonelse's body,...
Yesterday morning I couldn't go to work, I just sat for breakfast and start crying in front of my boyfriend in a desperate way...I spent two hours crying because I couldn't establish a connection between my body and me, I felt that I was trapped in a strange body...
The funny thing is that my doctor doesn't really acknowledge these sensations, he thinks that the emotional distress is due to sth else and not prednisone!
Apart from that, my bones, muscles and joints hurt terribly...
If you feel depressed, prepare herbal tea. It cleans your body and your sprit. Good options are mint and lemon zest, orange zest and chamomile
-- By katiuskin | Reply | Private Message me
March 24th
2009
7:11 AM
I URGE YOU TO PLEASE SUBMIT ANY ADVERSE EVENTS OF THIS TERRIBLE KENALOG DRUG TO THE FDA--JUST CLICK THIS LINK AND COMPLETE THE FORM: http://www.fda.gov/medwatch/. The FDA is responsible for assuring safety of medications. Therefore, it is imperative that the FDA recognize the adverse effects to provide any credibility to a class action suit. Please consider forwarding your case to the FDA to force them into action and begin addressing these atrocities. Here's my case: I am also a victim of having the Kenalog injection administered over a year ago to alleviate poison ivy itching symptoms. Prior to having the injection, I was not informed of any side effects. Not only did the injection not alleviate the symptoms, but has resulted in a discolored and uncomfortable indentation in my left buttock area and psychological anguish because of disfigurement of my body. It is over a year later and the indent remains and continues to cause discomfort. The dermatologist who administered the injection stated that there was nothing I could do to reverse such effects. I reported my case to the FDA (Food and Drug Administration) Med Watch and strongly urge others to report their adverse event to the FDA (see link above).
-- By slmgator | Reply | Private Message me
February 5th
2009
11:11 AM
i had the mirena put in approximately three months ago (nov. 08). i have been thrilled with it! (so far.) i have been on antidepressants (zoloft, depakote er) for years, and although i have never really had any physical side effects from my menstrual cycle, the mental ones were total anguish. basically 2 weeks (or more) of the month i was in misery, severe depression (pre-pms, pms, post pms). since i have been using this iud, my moods have been great! none of the outbursts, depression, etc...that goes along with hormonal changes of a cycle. HOWEVER, i am only three months into using this, and unfortunately have not been keeping up with my "cycles" (since i have had little or no bleeding). this month i am a little more aware and am noticing feeling bloated, ab. pain, a little difficulty sleeping, some cravings, etc...i do notice a vaginal itching that seems to happen mostly around a particular time each month (which i am assuming is my "period".) so far as sex, it seems like it may have improved, probably just because i "feel" good. basically, what it seems like is that i am happy (maybe too much so, perhaps from the antidepressants?), when i am not having my "period" and during my period, i'm just pretty much level. unfortunately, i am enjoying the "highs" very much, and am thinking i may put up with my side effects (as long as they don't get too bad) in order to continue having them. (i have had the paragard in for the past 10 years, 2 children before that). it feels good to feel good, and not have to "dread" and schedule my life around my periods, pms, post-pms. i am soon to be entering into menopause (i'm assuming) which is something i have really been dreading, thinking i will not be in the bed (but under it) for years. i am hoping that mirena will make menopause a little more manageable. another HOWEVER, i have gained weight, probably 10 lbs. that again is almost a trade off. although i have never really suffered much physically, i have suffered mentally for years, and though it's hard for me to judge with no experience, i certainly think i would rather have the physical! (at least when i'm in the throes of it!)
-- By mlilly2009 | Reply | Private Message me
November 8th
2008
7:43 PM
I URGE YOU TO PLEASE SUBMIT ANY ADVERSE EVENTS OF THIS TERRIBLE KENALOG DRUG TO THE FDA--JUST CLICK THIS LINK AND COMPLETE THE FORM: http://www.fda.gov/medwatch/. The FDA is responsible for assuring safety of medications. Therefore, it is imperative that the FDA recognize the adverse effects to provide any credibility to a class action suit. Please consider forwarding your case to the FDA to force them into action and begin addressing these atrocities.
Here's my case: I am also a victim of having the Kenalog injection administered over a year ago to alleviate poison ivy itching symptoms. Prior to having the injection, I was not informed of any side effects. Not only did the injection not alleviate the symptoms, but has resulted in a discolored and uncomfortable indentation in my left buttock area and psychological anguish because of disfigurement of my body. It is over a year later and the indent remains and continues to cause discomfort. The dermatologist who administered the injection stated that there was nothing I could do to reverse such effects. I reported my case to the FDA (Food and Drug Administration) Med Watch and strongly urge others to report their adverse event to the FDA (see link above).
-- By slmgator | Reply | (6) replies | Private Message me
September 16th
2008
9:04 PM
I am also a victim of having the Kenalog injection administered over a year ago to alleviate poison ivy itching symptoms. Prior to having the injection, I was not informed of any side effects. Not only did the injection not alleviate the symptoms, but has resulted in a discolored and uncomfortable indentation in my left buttock area and psychological anguish because of disfigurement of my body. The dermatologist who administered the injection stated that there was nothing I could do to reverse such effects. I reported my case to the FDA (Food and Drug Administration) Med Watch. I urge others to report their adverse event to the FDA--just click on this link and complete the form: http://www.fda.gov/medwatch/. The FDA is responsible for assuring safety of medications. Therefore, it is imperative that the FDA recognize the adverse effects to provide any credibility to a class action suit. Please consider forwarding your case to the FDA to force them into action and begin addressing these atrocities. Such documented cases and recognition by the FDA will provide leverage for attorneys in pursuit of a class action suit.
-- By slmgator | Reply | Private Message me
August 7th
2008
3:25 PM
Hi to all,
I wanted to take a minute to say Thanks to all who post and search for answers to this drugs confusing and serious side effects.To all who have taken the time to contact the FDA and file a report to help others.Dr.Sarah Sellers is no longer the person to contact at the FDA,she has moved on after concluding her end of the investigation on Singulair.If you have a serious side effect please still take the time to file on the official FDA site for adverse event reporting.In NY. state we are still searching for legislation to help with the notification process for these serious side effects.There are to many Doctors that still do not have a clear idea of the updated side effects,and are not reporting as they should.
Letting your doctor know that good medicine is all about follow up on complaints,such as researching the singulair website to rule out that it may be the drug or it may not.Just dismissing the patient and prescribing another drug is how these drugs go undetected for so long.We want this to stop and only the unfortunate recipients of the horrors of this drug can make this happen.Again thank you for your efforts to change the system with follow through and perserverance.Our horror story is one of many and we want to help those who have survived the ravages of this drug, OUR CHILD DID NOT. Kate and Dave M.
May 17th
2008
10:09 PM
I am also a victim of having the Kenalog injection administered over 8 months ago to alleviate poison ivy itching symptoms. Prior to having the injection, I was not informed of any side effects. Not only did the injection not alleviate the symptoms, but has resulted in a discolored and uncomfortable indentation in my left buttock area and psychological anguish because of disfigurement of my body. It is 8 months later and the indent appears to continue to deepen and lengthen. The dermatologist who administered the injection stated that there was nothing I could do to reverse such effects. I reported my case to the FDA (Food and Drug Administration) Med Watch. I urge others to report their adverse event to the FDA--just click on this link and complete the form: http://www.fda.gov/medwatch/. The FDA is responsible for assuring safety of medications. Therefore, it is imperative that the FDA recognize the adverse effects to provide any credibility to a class action suit. Please consider forwarding your case to the FDA to force them into action and begin addressing these atrocities. Such documented cases and recognition by the FDA will provide leverage for attorneys in pursuit of a class action suit.
-- By slmgator | Reply | (4) replies | Private Message me
May 3th
2008
9:31 PM
Chris555, our stories ARE proof. 99% of us have medical records to prove the problems our children have gone through. Not just one doctor, many doctors. Nothing that these doctors suggested worked. All of the tests, added medications, etc. But when Singulair was discontinued almost EVERYTHING went away within days. How can you ask where is the proof???? Sure, no one wants to have open up medical records etc. but I would be more than willing to do what it takes if it will save others the anguish our family has gone through. Imagine losing a child to a drug that you had no idea could even cause such things?? If parents were only warned.....
-- By rams0509 | Reply | Private Message me
April 2th
2008
6:46 PM
I kind of think CNN and the FDA are intellegent enough to figure out that they should NOT get information off this website. What makes everyone think all these posts are real? First you have to weed out the pranksters who post here for fun, then you have to weed out the competitors to Merck who post here to bust chops, and then you have to weed out the ones who really have a psychiatric condition and get their jollies by posting made up stories.....shall I go on? This is the INTERNET people!!! Anyone with one, two or ten verifyable emails can sign up (I have 11 email addresses myself). I have been intrigued to see the same people posting under multiple user names. Then you go to the other boards and see them there. If you really study these messages you can figure them out. So my point is, NOT ALL THESES STORIES ARE REAL. I think I would be generous in saying 25% of these posts are legit. I would hope that no government agency or news agency is going to risk their reputation on a public forum message board.
-- By chris555 | Reply | (14) replies | Private Message me
March 30th
2008
2:50 PM
I like to live my life with facts, not speculation and drama. My child is on Singulair and doing fantastic. I remember the trips to the ER when I did not know if my child would live or die. Of course when I saw this report, it caused me some concern so I did some research on my own. Did you know that suicide is the leading cause of violent death in New York State, the United States and the world? In 2002 in New York State there were 1,292 suicides which exceeded homicides by 32%. The statistics show that 1 in 10 teenagers plans to commit suicide. The National Center for Health reports a 10% suicide rate in kids 15-24 years of age and 4 male suicides for every female suicide. Suicide is the third leading cause of death among those 15-24 years old.
So now we have 1 child in New York that has committed suicide that just happened to be on Singulair, and it is Singulairs fault? Show me the proof. All I see is one distraught mom who is trying to find blame for her son’s tragic death. Is there only half the story being told, a trend I have noticed in journalism these days. Let’s face it, life happens. I am NOT on Singulair and I have had melt downs, thrown things across the room, been depressed over things, cried, and even for the past week have been having some crazy dreams. I remember as a child putting notes on my room door telling my parents how much I hated them. I remember as a teenager thinking my life would be better if I were dead. I remember my child being cranky and fussy before she was on Singulair, gee maybe she was teething. The term “terrible twos” has been around a lot longer that Singulair. Let’s face it, we have turned into a society of people who always want something to blame. I think it is time people start taking responsibility for themselves and accept the fact that sometimes life just happens. Take accountability for your own lives, and stop trying to blame everything and anything.
I also live my life by reading internet blogs with a grain of salt. These blogs are public forums and places where anyone and everyone can post. How do you know that all these posts are real? Remember the day when kids made prank phone calls for fun? Now they have the internet and can post pranks on these blogs. How do you know that a competitor to Singulair is not posting in order to fuel the feeding frenzy? How about a registered sex offender or a felon in prison? There are a lot of “sick” people in the world and yes, they have access to the internet too. If you are hanging on every single one of these posts as being true and real then I feel sorry for you. The internet provides anonymity and it is easy to create a fictitious identity and a fictitious story. That is probably why if you do a search for “internet safety” you get 15,700,000 hits.
Until I see proof, I am not going to take my child off Singulair. The CDC reports that in 2002 there were 1.9 million visits to the ER for asthma and 4,261 asthma deaths. If I did stop my child’s Singulair, and she died in the ER from as asthma attack, whose head does that fall on? The media?
-- By chris555 | Reply | (15) replies | Private Message me
March 12th
2008
11:35 PM
I love it. I've had it for a week now. Very little spotting, minimal cramps, and no discharge. I was told of the side effects, and knew all of this before I got it. Hormones act differently to some people. I did not react well with the patch or pill. So far, so good with Mirena. I don't think a lawsuit or complaint is exactly the way to go. You should start with talking to your doctor more and seeing if they give out pamphlets or just did not tell you everything you were supposed to know. I also believe not everyone's symptoms should be blamed on Mirean. People usually "feel" things they don't really have, esp. after coming on here and reading things. You can make your body feel that stuff. The insertion was not comfortable by any means, but it also wasn't a pain that I would ever cry or scream over. I'm 21, relatively healthy, and never had children. I work in healthcare and see people react like this all the time-no tolerance to pain, and just wanting an excuse as to where some of their "pains" come from.
-- By brandnewb4u | Reply | (9) replies | Private Message me
June 27th
2005
9:22 AM
This is an interesting and informative forum. I'm sorry to hear of all the anguish many people have expressed here while on Yasmin. Here's my story:
I have been on b/c pills for about 8 years - and I am just about to STOP them to get my body back to normal and give it break. But - that aside.....
My OBgyn prescribed me on Yasmin in mid-2003 - citing it as a new b/c pill and therefore she seemed to figure it would be the best thing for me. They didn't tell me it was $36 a month - niiiiice.
When I began Yasmin in summer of 2003 - I noticed a strange pattern in my scalp hair. The right-front quadrant of my hair thinned to where one could see the skin beneath if my hair was tightly tied back, and a small area of hair on my right temple began sticking out - like it would not grow past 2" long (my hair is longish - down to the middle of my back). This made me look a bit weird, to say the least - but I didn't attribute it to Yasmin- yet. Only when I began doing research on lists like this did I find out that hair thinning and shedding appears to be an all-too-common side effect of YASMIN. Lovely. Hindsight is 20/20 - but if I had known that before going on it - I wouldn't have bothered.
I cannot tell which complaints of mine are due to Yasmin and which are just woman-stuff - but I have several very dabillitating side effects which I am hoping are caused by YASMIN. Alll through the month - at all times of my cycle - I have a CONSTANT vaginal discharge ALL THE TIME. Every time I go to the bathroom I dread it because I know I'm going to have to spend half an hour (OK time overestimated but you get my drift) sitting there wiping and wiping and wiping and wiping - frequently having to flush more than once and/or get more bathroom tissue. WHAT A HASSLE!!!!! The discharge varies from green to yellow to brown to clear.
My face complexion is a DISASTER. My pores on my nose are enlarged so much that when I put foundation on I look like a golfball, and I have to use facewipes every 3 or 4 hours to scrape the grease off my forehead, nose and chin. I literally SHINE with the stuff. It's really horrid. When I go and look in the mirror, if I look close enough - I can see my pores dischrging immense amounts of sebum that sits in their small indentations like water. I have begun using toner in hopes that it would help. It doesn't appear to.
Also - YASMIN does NOT alter or alleviate my PMS. I still get cramps (although I never have had TERRIBLE ones) - but by far the worst is the mood swings and anger-management issues I have in the run-up week to my period. I snap at the slightest thing (husband puts a dish in the wrong place) and I am overly-emotional.
HOWEVER - by far the most DEGRADING, EXASPERATING, DEPRESSING AND WORRYING problem I have right now which seems to be attributable to being on the Yasmin birth control pill - is the COMPLETE lack of LIBIDO. Now, after doing research, I find out that Yasmin contains antiandrogen and antitestosterone agents in it. That means that it lowers or suppresses the male hormones inside of you like testosterone - which is what gives you sexual excitement and desire. YASMIN appears to be the single worst pill to take if you do not want libido problems.
The only time I have any sexual desire is DIRECTLY AFTER my period after I have been taking the inactive (or placebo) pills for 7 days. Does that ring alarm bells??
I'll stop now unless somebody writes back wanting to know any more specific advice on what I have been going through - but I can tell you that for $36 a month and considering we're usually too tired to "do it" at nights anyhow - I'd be as well stopping YASMIN and buying our family Life Insurance.
KEL
-- By kel981 | Reply | Private Message me
August 8th
2003
3:49 AM
Extreme lethargy, exhaustion, difficulty concentrating, occasional dizziness, anguish, headaches after taking Warfarin for 4 months, average dose 7.5 to 8.0mg daily.
Doctor and nurse said problems might be due to Tramadol I was taking at same time (for arthritic pain), but when I stopped the Tramadol for two weeks, there was no change. Doctor and nurse said NOT a side effect of Warfarin, but when I stopped taking Warfarin for a week, the symtoms went away and my family saw right away that I was "back to normal".
I am very upset that these very distressing side effects of Warfarin are not stated on packaging or by medical profession. I know of two other cases similar to mine in the UK.
-- By cosmo.wellington644 | Reply | (1) replies | Private Message me
Kenalog (5) Singulair (4) Mirena (2) PredniSONE (1) Yasmin (1) Warfarin Sodium (1)
September 7th
2009
1:54 PM
My daughter had a kenalog shot for itching on May 2009. The doctor never mentioned any side effects to her. Now she has a huge indentation in her left buttock. She is only 18 yrs old and she is scare and afflicted because the dent is getting larger and disfiguring that part of her body. I read enough complains. There must be an action lawsuit against the company distributing, selling and benefiting from this drug. Some doctors also should be liable for neglecting to release the accurate potential damage (as it is known) cause by this drug. It is causing mental pain and anguish due to the disfigurement that it leaves and also constant concern about the growing destruction of the muscle cells.Enough damage have been done. Who will pay to correct the damage? ******
-- By gravaly | Reply | (4) replies | Private Message me