June 12th
2009
3:56 PM
I'm fed up. About 4 years ago I had a complete thyroidectomy and OMG my life has been a mess ever since, Yes, I needed the gland removed (it was a goiter pressing on my air way and esophagus), it needed to come out but OMG what a nightmare. Synthroid is a drug I can't figure out. I am convinced that this has ruined my life. I have developed chronic/non-stop head pain and pressure. My B.P. has gone up and now I'm on B.P. medicine. (still have severe head pain). It just never leaves me. E.R. visits/hospital stays and on and on. They treat me like I'm a complete lunatic because they can't seem to find anything organically wrong with me. Ummm-it hurts(my head). I am starting with a new Doctor who is a D.O. rather than an M.D. and I am praying that he finds what the **** is causing my pain. I feel like crap. The T.S.H. is in normal range but I have learned that the T.S.H. is not everything (even though my thyroid is gone). The isiots for lack od better description, are just too lazy to go the extra minute to find out what is wrong here. I just want to be able to function and this head pain will not let me do that. It is a nightmare and I have nothing but sympathy and empathy for anyone who suffers with pain on a daily basis.
The only constant is the Synthroid. Maybe I can't take this stuff. It has to be that my body just can't tolerate it and need something else or T3 added (I don't know). I just pray that this new doc can figure it out because I feel so helpless with this. My pain is always there squeezing and pressing. It is horrible. Maybe Synthroid is the culprit. Good luck to everyone.
-- By levels | Reply | (3) replies | Private Message me
April 29th
2009
4:07 PM
ALERT!!!
If you have been having any one of these side effects, then AcipHex may be causing nerve damage.
-- tingling or numb hands or feet
-- confusion / "fuzzy head"
-- ringing in the ears
-- vision changes
-- anxiety
-- depression
-- apathy
-- fatigue
It may be serious. In my case it certainly is. I can barely use my hands. Why it happens:
AcipHex cuts down on stomach acid. Sometimes it cuts down too MUCH acid. In that case, you are unable to break down animal products enough to absorb vitamin B12 from it. Without vitamin B12, your nerve sheathing erodes. My advice would be to stop AcipHex and get a good vitamin B12 supplement (sublingual -- the type that dissolves underneath your tongue, and at least 1000 mcg). I would also advise to get the book -- Could It Be B12? By RN Sally Pacholock. Before starting supplements, insist on a urinary MMA test. It is the only B-12 test that does not give false positives or negatives often.
This book has literally saved my life.
-- By wowokagoo | Reply | (2) replies | Private Message me
March 15th
2009
12:14 AM
i have been on vytorin 10/10 for 2 yrs.Last year i started having multiple symptoms.Nausea,loss of appetite,virtigo,and now anxiety issues.i have been to cardiologist,ear doctor, neurologist,eye doctor, and had many tests and they all come back normal. I have concluded it is the vytorin maybe?i stopped 3 weeks ago and haven't felt this good in months.my energy is up and im starting to feel like my old self again.my doctor wants me to go 3 months on no meds to see what happens.at that time id like to try omega 3 and red yeast ice? anybody had good results with any of these? im 51 and in great health other than cholesterol of 250.
-- By parsons957 | Reply | (3) replies | Private Message me
January 8th
2009
11:23 AM
I have hypothyroid. Have been taking Synthroid for about a year, 0.075MG a day. Had my levels checked 3 times since on the meds and still have never gotten to normal, but a lot closer. I have gained 20 pounds that I can't get rid of, which for me, is crazy. I have never had a problem dropping weight, and for the past month or so, I have started losing my hair. Not just losing it, but the texture and everything has changed. No matter what I do it looks dry and flat, and even when I condition it and also use a leave in conditioner, it still knots up and tangles. I have NEVER had a problem with tangles. It's coming out in handfuls. Im not taking any other meds, so I imagine it has to be the Synthroid. My problem is..What else can I take? I mean, I have Hypothyroid, so I can,t just leave it untreated, But I have no wish to be fat and bald either. Please...anyone know of others meds without these side effects?
-- By ksheila | Reply | (6) replies | Private Message me
November 13th
2008
1:30 PM
Bobby you are so right "BIG Pharama" and thank you for your well researched comments that you post.
BUT let's not forget big pharma whom I do hate over this issue does state a lot of the adverse side effects on the labels.
SO MR and MRS DOCTOR why don't you read the instructions and advise us of what to watch out for. I told my doctor over a 3 year period of leg cramps that made me squeal and physically dropped me, I also told him over 3 years that my swimming speed overnight dropped by 25% which I now know is a dangerous condition called loss of muscle power. In the end I went to him knowing I was dying, I could only shuffle not walk straight and my whole body was hunched like an ape, people in the street were looking at me. My speech was slurry. This clown who was previously highly respected and revered by myself and wife asked me if I had a low pain threshold, he stood up behind his desk imitated my ape like shuffle then told me to stand up and walk straight. So in my mind there are 2 very clear issues.
1) The big pharma criminal scam.
2) The doctors failing to be safe, read instructions and think for themselves.
I'm in New Zealand a couple of months ago a 69 yr old fellow in Australia with an axe chopped up his wife and grandchildren killing them. A neighbor said they were an ordinary family and the man had become deeply withdrawn.
I stopped a car in the middle of the street and attacked it with my walking stick, I heard "voices" and stalked my house at night with an axe in my hand.
Go to space doctor DOT net and type in Allen Woodley suicide. There are 3 examples here where people lost their minds and took their own lives through statins.
We the "small" people have to originally put the pressure and file the complaints against the doctors then they can resist the pharmas.
No I am getting my faculties back make no mistake I will be filing a police complaint of criminal negligence.
Get the instructions and front the doctor after all he/she is the "retailer" and they can take it up with their "wholesaler"
These b#$%^&&ds are not only wrecking us but they are demonstrably negligently and criminally wrecking the lives of society's grandparents whose golden years we must protect.
Incidentally when I asked my doctor in January for an apology he rammed his bunched fist in my face in his surgery and said how dare you doubt my ability as a doctor. Not bad some of these clowns.
Then of course as we who have been forced to research ourselves we all now know that cholesterol and elevated cholesterol as we get older is absolutely essential for longevity.
These practitioners are totally unbelievable.
-- By oldcarpetcleaner | Reply | (4) replies | Private Message me
November 4th
2008
10:41 PM
PLEASE HELP! My father, age 74, was on lipitor for a year or so and then was switched to zocor a few weeks ago to help control his cholestorol. In the past week, the tightening he experienced in his leg, while on lipitor, has become debilitating leg pain now while he is on Zocor. Ultrasounds have ruled out a blood clot. He has no pain when he sits, but he describes the pain has his calf wanting to explode when he stands and he cannot walk with out the help of a cain. The pain radiates from his leg up to his hip.
His cardiologist has taken him off the zocor for a few weeks to see if there is an improvement. It has been 3 days and he feels a bit of relief. SO here is the million dollar question: His labs indicate his cholestorol is normal now, most likely thanks to the statins.....can anyone suggest another form of meds that will help regulate his cholestorol....say COeq10 and fish oil? Any help is SO appreciated!!! Thanks to each of you for your posts. It is so comforting for my dad to know he isn't developing a new issue and that it can be resolved with the removal of zocor!
-- By reneedejager | Reply | (7) replies | Private Message me
June 3th
2008
3:22 PM
My son has been on Singulair since the age of 6. He is now 13 years old. He developed seizures 3 weeks ago - temporal lobe aura epilepsy during which he was hearing voices. EEG abnormal, MRI normal. He hasn't started medication for the seizures but I have stopped his Singulair immediately! This was just a hunch - searching the net to see if there is any correlation. I have been to the Pediatrician AND the GP the past 3 weeks and no one said anything. I think a great number of children are on Singulair in SA. Does anyone know about the possibility of this danger?
-- By katryna | Reply | (4) replies | Private Message me
March 14th
2008
2:02 AM
One Jan. 2 of 2008 I had a stroke where the whole left side of my body was completely paralized. My speech was slurred and my son called the ambulance to take me to the hospital. I am 52 years old and am a Pastor. When the ambulance arrived and the paramedics began working on me to take me to the hospital I began to pray. I asked the Lord to heal my body. I asked him to take all my symptoms away and clear out my arteries if there was any blockage. By the time I arrived at the hospital I was completely back to normal. I give God all the glory. After the MRI the doctor acknowledged that I indeed did have a stroke and there shows damage on the right side of my brain but they just couldn't get over the fact that I had no residual disability. Now to the statin. Even though after all the tests they found out all my arteries were indeed clear with no blockages anywhere and all the tests on my heart were good I do have high cholesterol of about 260 of the bad stuff (this runs in my family). Before I left the hospital the doctor prescribed me to take 1 baby asprin a day and the generic version of Lipitor.
I know this sounds weird but that night I took only one capsule of that statin drug and by the next afternoon I began having pain in my legs and they got all wobbly and hard to walk. I had asked the doctor if there were any side effects of these statins and she told me that they were safer than asprin and that they should be sold over the counter without having to even obtain a prescription. She did mention that there were some very rare side effects (that only happen to 1 in 10,000 people) of it attacking peoples muscles but told me that if that happened I could just stop taking the medicine and the muscle pain would go away.
I never took another one of those pills but for about 3 or 4 weeks having muscle pains and cramps in different parts of my body. It was like something was moving around and attacking different muscle groups. I noticed one day that the muscle in my left arm was sore and very weak and it was like I didn't have as much muscle as before. Then the next day it was doing the same thing in my other arm.
Fortunately after those weeks all the symptoms have went away and I feel fine. The funny thing is I had felt great before taking that statin pill and only took that one. It was like poison.
Now since that happened to me I have been talking to many family and friends that are either currently taking or were taking statin drugs and every single one of them have had terrible muscle, memory, emotional problems since beginning the drug.
My uncle had surgery (not heart or artery related) about 8 months ago. I noticed that he was in very bad shape not being able to get around because of severe muscle pain and weakness. He was crippled. I was driving him one day and he was talking about all his pain and weakness in back and legs and shortness of breath then it hit me, statins? So I asked him if he was taking statins. He set and thought for a few seconds and said he had started taking them right after his surgery 8 months before and his muscle pains and weakness started right about that time.
I encouraged him to stop taking them for a few weeks and see what happens. Within 2 weeks he was much better and not about 8 weeks he is pretty much totally back to normal. He thanks me all the time. He said it must have been the Lord that prompted me to warn him about the statins.
I still have a cousin my age that has severe back pain and muscle spasms in his back that started about the same time he started taking statin drugs. He is no longer able to golf like he used to. I'm trying to get him to stop but the doctor has him convinced that the statins aren't causing the problems and that he must keep taking them.
I'm on a quest now to warn as many people as I can about these dangerous drugs. The truth is we are ultimately responsible for what we put in our mouth and if it hurts us we need to not swollow it whether it is the wrong kinds of food or bad drugs.
-- By mmings | Reply | (2) replies | Private Message me
August 7th
2007
6:45 PM
I was having terrible heartburn and would start vomiting this acid stuff from my stomach in my sleep. It was awful...actually coming up my nose as well. My doc gave me prilosec and after about 10 days my face was so swollen I couldn't even open my eyes. Now my doc gave me about 30 days samples of aciphex and I am having severe prickly feelings in my legs and arms. I still don't have a diagnosis for my problem....guess it's GERD or something. This has been six months for me and I am just at a loss what to do. For now I think the prickly feeling is better than choking half to death in my sleep.
-- By mishmaria | Reply | (1) replies | Private Message me
June 22th
2007
4:47 AM
I too have been taking Aciphex for acid reflux for about three weeks and although it seems to have helped with the burning and nausea, I have just recently (four days ago) been experiencing a slew of symptoms. They include headache, blurred vision in my left eye, facial numbness, both forearms numbness, leg (knee down) numbness, and tingling sensation in head. I went to the ER yesterday due to the left arm and left side facial numbness. They ruled out heart attack, blod clot, stroke, bleeding in brain, and brain tumor via a CT scan and a host of other neurological examinations. Doctors have suggested an MRI to rule out something else neurological (MS, neurofibromatosis, etc.) that a CT scan might not pick up. Also, will do a neck MRI to rule out a bulging disc or pinched nerve. I am hoping that it is just the Aciphex.
-- By dgarabedian | Reply | (3) replies | Private Message me
May 2th
2007
7:25 PM
Been on Aciphex about 3 months I have daily tingling feeling throughout my spine.
-- By tandmkelly | Reply | (1) replies | Private Message me
April 21th
2007
11:56 PM
I have only been on Aciphex for 1 day, and I have tingling/burning in my arms and hands! My stomach feels great, I can actually eat without curling up into a ball on the floor in pain, but I don't like this tinging, almost funny bone, feeling.
-- By schorno | Reply | (1) replies | Private Message me
March 29th
2007
2:31 AM
About three or four weeks into the aciphex, i started getting strange tingly almost numbness sensations in my arms, elbows, face, around the mouth/jaw, back of the head/scalp, sometimes it feels very "whole body"ish. It feels like i'm being pricked with something with electrical current and getting a shock. It's very strange and quite worrisome! Searching the net it sounds like this is a possible side effect of the aciphex. I hope that's all it is, but I will ask my doctor if there are any other possible causes we should rule out. At this point if it turns out to be a side effect and it doesn't go away (it's been 4 days now), I'm not sure if i'd decide to stay on the aciphex or try something different. It helps the reflux but doesn't solve it.
-- By jessica262 | Reply | (1) replies | Private Message me
February 5th
2007
10:26 AM
About 2 years ago, I stopped Aciphex because I was getting muscle pains and ocasional pins and needles. I went Pepcid AC. About 6 months ago I decided to give Aciphex another try, feeling that maybe it wasn't causing those symptoms. Now, I've started getting ocasional pins and needles again, only worse than last time--so now I'm back on Pepcid. I hope the pins and needles go away.
-- By robertwpsu | Reply | (1) replies | Private Message me
December 4th
2006
6:25 AM
tingling and prickly feeling - have been taking it for years..this is new development.. have had neuorological tests..negative.
Any input?
September 27th
2006
1:26 PM
Hi - I have been taking Aciphex for just over a week and have noticed that I have muscle aches in my arms and legs with ocassional pins and needles and that my face tingles. I was begining to think I had some other major illness but it just sounds like the medicine. Do many of you have the same?
-- By viks | Reply | (1) replies | Private Message me
July 8th
2006
5:25 AM
I had headaches with prilosec and nexium so I switched to aciphex which is great for my headaches but I still get frequent heartburn which I guess could be a result of my esoph. ulcer which is not yet healed. I have chapped lips, sometimes anal pruritis, pins and needles in my legs and I was having very large b.m.s in the beginning but now am contstipated.
-- By dasingeresq | Reply | (1) replies | Private Message me
June 3th
2006
5:57 PM
I've been taking Aciphex for a couple of years now. It has taken care of my heartburn very well. However, for some time now I've experienced difficulty breathing when I lie down along with a cold tingling sensation in my feet that at times is almost unbearable. My Doctor can't tell me why. A friend mentioned that she has just received a prescription for aciphex and read that these are some of the soide effects. Can anyone expound on this?
-- By heykid | Reply | (1) replies | Private Message me
February 28th
2006
4:21 PM
Constipated, headache, weak, extremely tired, fuzziness in head/ears as if too strong, felt like lungs/chest was tight/pressured/beginning of congestion.
-- By regner | Reply | (1) replies | Private Message me
Aciphex (12) Lipitor (3) Synthroid (2) Singulair (1) Zocor (1) PredniSONE (1) Natafort (1) Vagifem (1) Vytorin (1) Materna (1)
September 19th
2009
3:32 PM
ive been on prednisone and cortisone..2 doses i woke up and couldn't move my legs at all. the more i walked the more it hurt..the more i sat the worse it was to stand up and walk..idk what to do..i have to take this for the rest of my life..its just terrible to move.and my doctor wont be around for 3 days.
-- By scarlette | Reply | (2) replies | Private Message me