August 9th
2009
3:22 PM
wow- glad I found you guys! I'm female, 54, thin, healthy, have always exercised and watched my diet. cholesterol went up to 280 a couple of yrs ago- tried more diet/exercise but it only came down to 250, so since then have tried 4 low-dose (40 mg) statins (crestor, lipitor, zocor, and now pravastatin), all of which after 2-6 months made me feel like I was jumping out of my skin and caused chest pain and palpitations that stopped almost immediately when I discontinued them. Also, I've always fallen asleep quickly and now take an hour or more, and recently my fingers have started falling asleep/tingling. I'm stopping the pravastatin today! Maybe 250 isn't so bad, if this is the alternative. Does anyone have any remedies to suggest besides low fat/low sugar diet? I just read that we should avoid reduced-fat milks (I drink 1%) because they contain oxydized cholesterol, which irritates the artery wall.
-- By fish58 | Reply | (7) replies | Private Message me
June 27th
2009
3:42 AM
June 27/09
I am 65 yrs , very active. Play hockey, baseball, slopitch, and jog.
Started on Lipitor 10gm about 5 years ago. About 6 months later increased to 20gm. about 1 years later increased to 40 gm. Did not really notice any side effects. During that time cholesterol dropped from approx in Aug2005 to 8.01: ; Jan06 to 6.37:; Apr06 to 5.3 ; May09 @ 4.2. No problems noticed while on 40s for about 2 years.
June09 doctor increased to 80 gm !? Started to notice muscle cramps and pain . Also started to notice some stomach upsets.Thought I had strained a hamstring muscle from hard running acceleration but not sure now after reading some of the comments. Three days ago , although I always stretch for 1/2 to 3/4 an hour before every baseball which I play 4 times a week, I had very severe muscle cramps suddenly above my calf muscle just below the knee as I started to run to 1st base. I played the rest of the game but in pain and could not run hard . Could not sprint on my toes as I always did , so had to run about half speed but flat footed on the bases but painful,as we had only 9 players. Had hot shower Thursday night after game, massaged calf area with Wintercrest ointment. Got up this morning Friday , muscle sore but can walk on my toes. Tonight @ midnight slight soreness but most of the pain gone. I was thinking that I might have strained a calf muscle playing baseball but noway! I think it has to do with the doubling of the Lipitor from 40 to 80!!!! Will cut back back to 40 gm on my own till I see the doctor.
Will go to see my Doctor ASAP!!!
June 6th
2009
9:34 AM
After reading all of this - I take Simvastatin 40mg - then had to go off of it, cause I got layed off & couldn't afford to get my med's filled. Went off the med - felt better (unknowingly). Then, I got a new job, got it refilled & started taking it again - my knees are killing me & fatigue is overwhelming me. I am emailing my doctor today - this is not right after all of what we are going through. M. J.
-- By joharely19 | Reply | (2) replies | Private Message me
May 28th
2009
12:41 PM
I am in shock and so glad that I came to this website. I have been taking simvastatin for about 5 months now and this morning I decided to do a web search with the words simvastatin and headaches. Everyday I for the last two months I have been asking myself why am I having these terrible headache. My Doctor did a CT scan, I had my eyes tested, I had my hearing tested, my blood tested and everything comes back good. I realized that I have to do something about this problem myself because my doctor prescribed another pill for the headache and that's that. Today I did not take the medication and I will not be taking it again. The symptoms that everyone described are so real to me but the headaches were the worst. I have to thank you all for posting this information. I now feel that I will get my life back.
Thanks verdul1
May 27th
2009
11:02 PM
Except for having high cholesterol (310), I'm a 29 yr old healthy active female, very petite and weigh 98lbs. My mother has had a quadruple bypass and 4 stents at the age of 54, high cholesterol is just hereditary in my family. My doctor put me on 40 mg of zocor. The first week taking zocor I started feeling strange, a little soar here and there and very tired at times, also I have become very forgetful. It's been almost 2 months now and I have severe pain in my legs. First it was the right leg and now both legs, the pain starts at my lower back all the way down to my cav. I have a burning painful feeling sometimes numbing feeling, its driving me crazy!!!! I can't stand for too long cause I feel tons of pressure on my lower back pushing down my legs, It feels like my sciatic nerve. I went to my doctor and he said he is 95% sure that this is from the zocor medication, he told me to stop it right away. This is my first day without it, I know I need to do something to prevent what happen to my mother, I'm on a strict healthy diet, staying away from all fatty cholesterol filled foods, but there has to be a better way then taking statin drugs! If anyone has some ideas of what kind of alternative meds I can take, please help.
-- By felicia79 | Reply | (9) replies | Private Message me
April 14th
2009
9:33 PM
I get these painful cramps in both legs the back of my legs above my
calf muscles. They always come after midnight when I am asleep. i
get up and I have to walk 30 minutes or more until they stop,and for
two days my legs are sore.
April 10th
2009
1:42 AM
I've been on Simvastatin 40 mg for about eight months now. Cholesterol levels dropped significantly. But man have I been hating life! Joint pain mainly in the legs. Beginning to walk like an old man and I'm only 62. Also more pain in my back than ever before! I talked to my doctor, who suggested I get off them for 6 weeks. I did, and I feel like a million bucks. I've got to get back hold of him to find out what he recommends? Probably some other pill!!! Just today I was talking with my pharmacist, and I told him my symptoms. He said the muscle deterioration could actually lead to death. I don't think I'll ever go back on them. I'm going to try and watch the old diet and get more exercise. Hope this helped someone? Good Luck!!
-- By mobo4 | Reply | (1) replies | Private Message me
March 22th
2009
7:05 PM
I am only 42 years old and have been on zocor for the past 30 months. I've had mild tingling in my feet and achy joints along with slightly elevated liver enzymes and fatigue since then. Ever since my doctor increased the zocor to 80 mg per day ( because although my cholesterol level is normal, my triglycerides are still very high) , I feel like I am 100 years old! All my joints ache so bad and my feet and hands alternately tingle or feel very cold! I am also having trouble focusing when I look from something close up to something far away! I am also clumsier and more forgetful. Could these symptoms be caused by coenzyme-Q deficiency?
-- By rjohngm | Reply | (3) replies | Private Message me
March 22th
2009
12:12 PM
I was on 40 mg of simvastatin for 4 months with seemingly no side effects when my doctor said my cholesterol wasn't coming down quickly enough to suit him, so he added lovaza - had me taking both at the same time. Within 2 months I was noticing sore muscles but didn't relate it to the meds. After about another 2 months I was so bad I could hardly walk - extreme muscle and joint pain over my entire body, severe weakness, shortness of breath. Then I found out that both of those drugs can cause these side effects. I wish I had tied it together sooner. I have been completely off of them both for about 3 months and still have some pain in my feet, shoulders and elbows, along with severe pain in my hands, and I am still weak and short of breath. I don't know how long this is going to hang on, but I certainly hope it isn't permanent. I can't stand to think that I might have to live with this pain for the rest of my life. My hands are so close to useless, and I am so weak, that it's about all I can do to take care of my job and make a living. I haven't been able to work around the house for months. I want to work on my cars (my hobby). I have 2 antique cars that I enjoy working on and driving, but I don't think I'm going to be able to do very much with them this summer. My hands just won't let me. And the beauty of it all? My cholesterol numbers did not come down any great amount. Since I stopped taking the meds I have brought the numbers down by changing my diet - eggbeaters instead of whole eggs, less beef (venison is very low in cholesterol) more chicken & fish, oatmeal, plus I'm taking vitamin C, D3, garlic and cinammon for cholesterol and B complex for muscles, msm and glucosamine for joints. I also bought a hot tub, which helps with the pain and stiffness. This has definitely not been a fun thing. I just hope it goes away some time soon.
-- By hoosier_daddy | Reply | (3) replies | Private Message me
February 17th
2009
2:07 PM
omg, im 32 years old been on zocor for 3 months now and am experiencing dizziness and disassociation with myself. I know now that it is from the drug. It seems like i want to sleep all the time. I was pretty convinced it was from stress but i have been in war in Iraq and under stress-post war depression and its nothing like statin side effects!! I went on statins because of a genetic disorder that runs in my family, the cause, well high cholesterol. Now my levels are fine but i feel like im a zombie most days? i know in the long run its healthier for my heart and veins to have low levels but at what extent? i think im going to go off for a few weeks and then back on it.
-- By mike61704 | Reply | (1) replies | Private Message me
February 10th
2009
12:07 PM
Wow! I must be the latest in a long line of Lipitor users and apparently pain sufferers. I have been on Lipitor for over a year. I am 56 years old, active and healthy (thank God). Around November 2008, I noticed a "twinge" in my left hip while sleeping. This has gotten progressively worse over the months and I thought it was due to arthritis (which runs in my family). But after reading these blogs, I am not so sure. If anyone has anything definitive regarding this, ie: tests, studies, etc., I would really appreciate a point in the right direction for more information. I was thinking (until today) that I was headed for hip surgery or something equally drastic. Now that I have a clue that it may be the Lipitor, I want to investigate further and then, if necessary, change to another medication that won't break me down like this. My heart goes out to anyone that has suffered through hip pain. It is a miserable, painful condition that saps your energy and your desire to even move sometimes. I appreciate any help you can offer. God bless all of you. - L. B. ******
-- By rednael | Reply | (8) replies | Private Message me
January 30th
2009
3:56 PM
I am 38 years old and had my second child 7 months ago. My family history for heart disease is very poor and my cholesterol was 6.2 so my doctor prescribed 10 mgs of simvastatins in November. Before taking them I felt fine in myself, since taking them I have felt exhausted, not just tired, I have insomnia, very bad nightmares when I do manage to sleep. On top of this I have started to feel depressed and anxious, short of breath and my hair is falling out! I had myself convinced that i had post natal depression but decided to stop taking statins a few days ago, feeling slightly better. My doctor prescribed me an anti depressant today, should I take them? Does anyone know how long statins stay in our system?
-- By smartie80 | Reply | (2) replies | Private Message me
January 20th
2009
10:03 AM
Hi-I am a 59 year old female have been taking 20mg Simvastatin for 3 months for a cholesterol level of 238 and have noticed significant symptoms that cannot be from any other origin than this medication-dry skin, change of hair texture, psoriasis and bulging in thumb joints, stomach flu, shoulder pain and tingling in hands, vision problems. I am a healthy flight attendant except for all these things that have happened in the last 3 MONTHS!!! I am seeing my doctor tomorrow to discuss a change. I want to take a natural medication to lower my cholesterol.
-- By 1dmm | Reply | (1) replies | Private Message me
January 2th
2009
1:46 PM
I was put on Lipitor 10 mg. last Spring about 8 mos. ago. I have never taken medications/drugs other than aspirin or Motrin or antihistamines. Since that time I have had a strange combination of unexplained symptoms arise throughout the months. These sx's included: Headaches, stiff neck and severe neck pain, acute shoulder pain, hip pains, joint pains, severe knee pain (tendon or Ligament problems?) and loss of movement, hair loss, jaw pain and some memory confusion. Initially, I had severe HA's for several months, but attributed them to stress, however, I had never experienced HA's as a common occurrence. Then we went away to our Maui house to get away from stress, HA's continued, along with leg and shoulder pains. At the same time, I started noticing several strands of hair falling out if lightly touched my hair to move it out of my face. The pains seemed to move around my body at different times, for no apparent reason. I am used to daily exercise, living in CO in the mountains @ high altitude, not usually having muscle soreness. Now, given my leg and knee pains have gotten so bad, I cannot hike and have difficulty climbing my stairs. Skiing is out. Snorkeling caused leg cramps. No explained reason for having muscle tenderness or soreness without my usual exercise at present time. When the pain leaves one area it tends to arise in a different part of my body. At the present time, my hair loss has subsided, as also my jaw pain and headaches. However, my leg pains and knee pains are so acute (for no apparent reason) it is impossible to exercise and difficult to walk that I looked up adverse reactions to Lipitor, finding all my sx's most probably might be attributed to this drug. Partially my fault for not looking up RX information prior, especially being a medical professional for many years. My husband kept throwing away the info when purchasing the RX. Too many unexplained symptoms, I decided to obtain the drug info. myself. I tended to make excuses for months, such as: I am getting older, under stress, must be an old injury, not exercising properly, need PT therapy etc.... I am dc/ing the drug immediately and have an appt. with my MD on 1/5/09 to discuss.
-- By forestseaski | Reply | (11) replies | Private Message me
November 15th
2008
9:41 PM
About eight years ago I felt heaviness in my chest along with some pain/discomfort when doing hard physical labor and occasionally in the hot-tub. Following my doctor’s advice and an angiogram, a stint was placed and medication administered – Lipitor and plavix I also went through a 6-month program for cardiac recovery including dietary changes and a proper exercise program. About six month following that I gradually just stopped taking my Lipitor and plavix and returned to my old eating routine and other life-style. I don’t smoke (never did) and don’t drink or otherwise indulge in any recreational drugs. I’ve never been hypertensive with blood pressures typically at 115/68. I maintain a trim and healthy appearing body just naturally or genetically. I eat lots of red meat, not a lot of vegetables, drink gallons of orange juice, and eat much more junk-food than I should. About six years after that (near heart attack) event I was given a “stress test” by my physician… I was then 61 and tested at the level of a 38 year old! Two years after that I had a significant heart attack out in the middle of nowhere! It took almost 6 hours to get me to an emergency room in Spokane, Washington (that’s a story of its own). That was on a Thursday – I was back to work full-time the following Monday (four days later). This time around with more drugs than I could swallow in one gulp! Lipitor, Plavix, Coumadin, aspirin, and carvedilol. The combination or amount was more than I could tolerate and I was weaned off all but the Lipitor and aspirin within a year. My heart has returned to nearly full-function and I have no physician imposed restrictions. All that said, I’ve been gradually developing muscle soreness (pain, actually) in my fore-arms and legs. I’ve been growing more lethargic and tired with each passing month. I’m now 65 and feel that the Lipitor is inhibiting my health… I want to get off it and be “normal” again. Or is it just being sixty five? Can I just quit taking the drug? Leaving only aspirin for blood thinning and the hope of a better diet for cholesterol control.
-- By fgwilder | Reply | (6) replies | Private Message me
November 9th
2008
10:49 PM
Get off the Lipitor, me and me husband, both had the severe joint pain. The pain moved from one joint to the next. It would be in the shoulder, then the next day or so, it would move to our feet, then to the hand and wrist. It would swell , so bad, that it felt like, that part of the body was going to burst !!! My husband was on LIPITOR for 1 1/2 years, before it hit him. Doctors thought it was gout, and my husband was walking on a walker ,at 49 years old, and never being unhealthy. I was on LIPITOR for only one month, after a stint was put in my heart. Believe me, it is not the stint , it is the LIPITOR. I knew what it was when it got in my joints, so I went off it right away. It still takes about 2 weeks to get it out of your system. I now know of other people, who are on LIPITOR, that have severe muscle cramps. If this is happening to you, then you can not take anything with STATINS , in it. If you are allergic to STATINS, it can cause another muscle disorder , that can destroy your muscle tissue.
-- By marshalynn1952 | Reply | (2) replies | Private Message me
November 4th
2008
10:41 PM
PLEASE HELP! My father, age 74, was on lipitor for a year or so and then was switched to zocor a few weeks ago to help control his cholestorol. In the past week, the tightening he experienced in his leg, while on lipitor, has become debilitating leg pain now while he is on Zocor. Ultrasounds have ruled out a blood clot. He has no pain when he sits, but he describes the pain has his calf wanting to explode when he stands and he cannot walk with out the help of a cain. The pain radiates from his leg up to his hip.
His cardiologist has taken him off the zocor for a few weeks to see if there is an improvement. It has been 3 days and he feels a bit of relief. SO here is the million dollar question: His labs indicate his cholestorol is normal now, most likely thanks to the statins.....can anyone suggest another form of meds that will help regulate his cholestorol....say COeq10 and fish oil? Any help is SO appreciated!!! Thanks to each of you for your posts. It is so comforting for my dad to know he isn't developing a new issue and that it can be resolved with the removal of zocor!
-- By reneedejager | Reply | (7) replies | Private Message me
November 2th
2008
7:59 AM
In people close to me I have seen the following side effects:
All statins have similar side effects. They can come at once or after many years.
Pain in neck, shoulders, elbows, hands, hips, legs, feet
Pains that keep moving to different parts of the body and could be unbearable -like nerve pains.
Head ache
Burning, tingling sensations in the different body parts mentiond above and numbness
Weakness in hands which caused the person to drop things
Hair loss, difficulties to swallow, ringing noise in the ears, loss of taste, memory problems - particularly with short term memory, difficulties to find words and to remember what just had been read, impotens, extreme sensitivity in the skin (abdomen).
Please "educate" yourself.
Read books and look for information in many different places. Remember to find out who is behind a certain webb-adress. Could it be a pharmaceutical company.
Unfortunately I am not allowed to write webb-adresses here - but Google the titles of the books/writers below and you will find some webb-adresses.
The Great Cholesterol Con (Anthony Colpo)
--------------------"--------------- (Malcolm McKendrick) - this is another book
The Cholesterol Myths (Uffe Ravnskov)
Malignant Medical Myths (Joel F. Kauffman)
Overdosed America (John Abramson)
Lipitor - thief of memory (Duane Graveline)
Duane G. has an interesting site
The Truth About The Drug Companies (Marcia Angell)
Google "Stopped our statins" and you will find this webb-site.
Under print articles to the left you will find an interesting article from Weston Price Foundation.
It takes time to look for information and then read it, but often it`s quite essential to do that and to make up your own mind.
It`s your body and you know best how you feel.
Remember it`s a lot of money involved and that`s why news about serious side effects quite often are delayed.
The cholesterol issue - that high cholesterol should cause heart attacks etc - is very controversial. But it`s only the pharmaceutical companies who have the money to "brainwash" by advertisements, ghostwriters etc.
I hope my suggestions can make you more interested in the medications that you are taking.
Finally - a very interesting book about a certain kind of antibiotics - Bitter Pills by Stephen Fried.
English is not my native language but I was forced to read a lot of English books because of the suffering of my relatives, but without the Internet I would not have found them.
Remember new drugs are not necessarily better than old, but always more unsafe. They are also more expensive and that`s why they are so highly promoted.
-- By swedish | Reply | (2) replies | Private Message me
September 6th
2008
9:21 PM
question that I have is that has there been any report for side effect sexual for either male or female? If so what was suggested?
-- By richshiela | Reply | (5) replies | Private Message me
August 29th
2008
2:21 AM
I am a 54 year old male who started taking Lipitor about 4 years ago. It seemed OK at first, but over the next several years I began to have increasing amounts of joint pain after exercise. Nor muscle pain, joint pain. And it seemed to be a result of exercise. By the time I stopped it, I was hurting after everything, not just exercise. I felt better within the first two weeks, but it took about 4 months for me to be able to exercise vigorously again. Over the years I seemed to have forgotten how much vitality I used to have. I am a physician, and because of the long lag time until I felt better, I wondered whether improvement might have related to other factors, so after about 5 months I decided to restart Lipitor. It surprised me that after just one dose, I got back all of the joint pain and fatigue when I was at my worst on Lipitor. I was really hurting. Needless to say, I didn't take any more.
Coincidentally, a physician friend of mine who had statin induced polyneuropathy had a similar experience. After his symptoms went away he found that after only one dose the entire polyneuropathy came back.
Stopping and restarting the drug is a way to test the correlation between the drug and the side effect. For such a large spectrum of side effects to recur after only a single dose, it argues that the problems that my friend and I had was due to some sort of immune memory response. I have not seen this in the medical literature.
I am off it now for about 8 months and am able to comfortably play singles tennis and jog - much more energy (and I took 200 mg of CoQ10 a day with the Lipitor).
-- By n8healer | Reply | (8) replies | Private Message me
August 22th
2008
7:44 AM
I am a 51 year old male. November 2007 jaw pain sent me to the hospital where they found a 99% block in my right coronary artery, yep 4 stent's. Three month late the same this time 2 stent's and two weeks later 2 more. I now have 8 stent's. My DR. put me on several meds including Zocor. The zocor made me very tired and headaches. He change it to Lipitor 10mg. I have been on it for 7 months and a few day's ago I have notice pain in both knee's and hip. I once again find it hard to concentrate, feel sluggish and have headache's. I NEVER have headache's. Stopped taken the Lipitor, hope the pain goes away. It a shame that the medical field is so quick to put us ALL on drug's, how about herb's instead. I'm going to look into a natural way to lower my cholesterol.
-- By tigerbillv | Reply | (8) replies | Private Message me
August 14th
2009
2:44 PM
42 and taking Lipitor 40mg for 6 months. No other issues. 20 lbs overweight but also work out 4 times per week and feel to be in good shape. Lower back pain in middle of night that last until I get up out of bed and it started about a month after taking the Lipitor. If I get up, it goes away. Was so bad that I went and bought a sleep number bed thinking it was my old spring bed. Did not get better. Tried not taking the Lipitor for one night and the pain stopped. Took it again the next and it was back. Going to doctor to ask what is up?
-- By joer | Reply | (2) replies | Private Message me