July 16th
2009
3:06 AM
About 4 months ago I took 7 days worth of Levaquin after my sinus surgery. It was a preventative measure, I never had an infection. A few days into the prescription I started having tendon pain in my knees & ankles. I couldn't sleep, I was having nightmares, I was emotional, anxious and drained. My doctor told me to stop taking the Levaquin immediately. 4 months later and I am still suffering from entire body tendonapathy, neuropathic pain, joint pain, skin sensitivity, severe migraines, temperature sensitivity, twitching (muscles convulsing), basically my entire body hurts. Some days are a little better than others but not by much.
I have been to rhuemetologists, neurologists, pm & r doctors, physical therapists, acupunture, orthopedic surgeons, & allergists (in Chico Ca, & @ UC Davis in Sacramento Ca). NONE OF THE DOCTORS KNEW WHAT TO DO. My general physician actually told me to "go home and wait it out" because there was "no hope of finding help" (I'm not kidding). I've had tons of blood tests with fairly normal results. Thankfully I have a wonderful neurologist who has taken some interest in my situation. All of the other doctors told me that my case was very rare & that they had heard of such side effects but had never seen any patients with them! After some research on the internet I seriously doubt that my condition is as "rare" as they claim.
I am only 28 years old, I can't walk, I can't work, and my life has been turned upside down. I was very healthy before, I don't have a family history of health problems, nothing like that...it was the Levaquin.
Here is what I am currently taking: Lyrica for neuropathic pain, twitching, not being able to sleep etc., and oral morphine for the severe pain, Milk Thistle to promote glutathione (important because it helps your liver detox), Magnesium Malate (also helps detox), a multivitamin, vitamin c, and fish oil pills. I also attend acupuncture 2x per week (honestly feel some relief from it). Also, I heard that glutathione infusions are helpful but I haven't tried them yet. At this point I will try anything.
IF YOU HAVE HEARD OF ANYTHING OR ANYONE WHO CAN HELP WITH THESE DEVASTATING SIDE EFFECTS PLEASE LET ME KNOW.
~J.
-- By jen07 | Reply | (2) replies | Private Message me
May 15th
2009
5:32 PM
I'm so glad I'm not alone! I am 23 years old and have been thin my whole life (98 pounds). I have been on Singulair for chronic sinus infections for 3 months now and have gained almost 10 pounds (I have never gained weight or had to watch what I eat) and I have intense cravings! I am also experiencing the anxiousness and mood swings that I thought were just because I am a first year teacher. I have not taken it for a few days and my mood and nightmares have already improved.
-- By cboles | Reply | (1) replies | Private Message me
August 29th
2008
11:56 PM
Please add me to the list of people with an extremely adverse reaction to Singulair. I had been taking 10 mg Singulair since 2005 after sinus surgery In June 2008 after returning from vacation I didn't get my prescription refilled in a timely manner and went without it for ~one week. In July I got a new prescription filled for Singulair and also began taking Advair Diskus 250/50 and AllegraD after an increase in asthma symptoms. I first thought the anxiety attacks were from the AllegraD as the "D" is for decongestant and contains psuedo-epinipherine. But the anxiousness continued and got worse after stopping the AllegraD. I then stopped taking the Advair (and also a nasal spray that I use called Flonase also since 2005) but was still in a major depressive episode with daily thoughts of suicide. It wasn't until I stopped taking the Singulair on August 23 that I started to return to normal. My normal does include a history of depression for which I take 10mg Paxil daily. Like the post from the psychiatrists wife noted, I am not sure if there is a direct scientific connection between these events. I do know that I never want to go back to that place I was in. I am shocked at the speed with witch I started to feel good after stopping the Singulair. I still have low grade sad feelings but I have stopped planning my own death. I always took my dose of Singulair in the morning and ~one hour later would begin to feel anxious. My evenings were tolerable with emotions slightly better. I simply stopped taking the medication without tapering and I am beginning to deal with what happened to me. Thank you all for sharing. Thank you.
-- By megs153 | Reply | (1) replies | Private Message me
August 15th
2008
9:59 PM
Im only 16 years old and ive been on levaquin for about 3 days now. My doctor told me off the bat that the only thing wrong with the drug were some "theories" on cartilidge damage, how ever, now i see for myself, and for many other people that is not the only side effect. He told me that no one under 18 is supposed to have it but i caught a severe case of sinutitus, and a uti which ive had for 2 months and nothing was working, so he put me on levaquin, once a day for 7 days. Ive now been having the following symptoms and im extremely scared!!
1. Constant fatigue
2. Extreme Migraines
3. Nausea, vomiting
4. Rapid heart beat (and chest pain)
5. Stiffness in joints and horrible pain...
6. Constant anxiousness, to where i cant get to sleep
7. Dizziness
Is there anyone i can talk to who's had these same problems? please email me or something im scared and i don't know what to do my mother doesn't believe me and she says its just a head cold....
******
Please help me!!
-- By shana12345 | Reply | (7) replies | Private Message me
June 1th
2008
9:21 PM
Been a rough last few days for me. It's been 2 months since removal and I felt I was getting better but again once a day I've been feeling 'uneasy' almost to the point of anxiousness but it passes. Have continued to have daily headaches- that hasn't stopped since a week or two before I got it taken out. and the vertigo seems to have returned, just not as bad. Still trying to understand the link between sinusitis and mirena but it's still here. Been very emotional and easily angered. My first cycle did start May 1st so maybe it's about that time. Thoughts?
So frustrated with this whole experience. Just need some reassurance/encouragement. No one in my daily life understands.
-- By mrsnelson78 | Reply | (2) replies | Private Message me
April 23th
2008
9:25 AM
Here's a way out theory about my unique and to me mystifying medical situation....
I recently read where Singulair, an asthma medicine, is suspected of causing suicides, obviously an effect on the brain function. The FDA notes that over the past year, Merck has updated Singulair's prescribing information and patient information to include the following post marketing adverse events: TREMOR (March 2007), (April 2007), suicidally (October 2007), and anxiousness (February 2008). (the tremor highlight is mine since this is a major symptom of Parkinson's )
Well, I took Singulair from 1998 to 2004 and I wonder if maybe, just maybe Singulair could be a contributing factor to my strange Parkinson's but not Parkinson's problems that is
gait,
balance,
freezing of gait problems
Any thoughts or ideas on how I might follow up on my hypothesis?
-- By kph788 | Reply | (5) replies | Private Message me
February 29th
2008
12:35 PM
My daughter was put on Nasonex last year for mild fall allergies, which had just been diagnosed. She ended up with heart palpitations, shortness of breath, anxiousness and night terrors. Once I finally made the connection with Nasonex , after three weeks, we had her stop using it and she was fine. During that time she hardly slept was afraid to play soccer because of the heart palps and ended up having a heart ultrasound because our doctor was so concerned. We since use an over the counter med on bad allergy days and she uses an over the counter menthol inhaler during soccer games. For us these alternatives help enough to make up for the bad side effects of Nasonex. By the way, our doctor doesn't agree, we came up with alternatives by talking to other parents. My doctor still keeps asking if we need a refill even though I've insisted she will never take it again.
-- By lovethe20car | Reply | (2) replies | Private Message me
February 11th
2008
4:15 PM
I HAVE ALWAYS EXPERIENCED ITCHING WITH CODEINE, SO I SWITCHED TO DARVOCET, NOW I HAVE ITCHING, URINARY RETENTION, AND ANXIOUSNESS WHEN TAKEN.
-- By fatkitty14 | Reply | Private Message me
Singulair (3) Levaquin (2) Nasonex (1) Mirena (1) Darvocet-N 100 (1) Sulfamethoxazole (1)
October 18th
2009
12:14 PM
I started taking this on October 8 for a sinus infection. by the 13th I was suffering intense headaches, nausea, fever of 102 and anxiousness. I thought that on top of my original ailment I also had the flu. After 2 doctors and a trip to the hospital in which no one thought of the side effects of this drug, and with the discovery of a full body rash 2 days ago, I finally called my pharmacist yesterday who told me to drop the drug. I then looked up everything I could find myself and this is obviously the result that so many people describe. I am now on benadryl and prednisone and still quite miserable. I think they should take this off the market since so many people have a bad reaction!!!!!!!!!!!
-- By red786 | Reply | Private Message me