December 7th
2008
11:27 PM
I am a 49 year old male. I had my aortic valve and a part of my aorta replaced 5-1/2 weeks ago. The valve had a congenital defect and it was replaced with an artificial valve. I was able to do aerobic exercise and jog right up until my surgery.
The main problem that I have been experiencing has been numbness and pain in my arms and upper back. This has been present for the last 4 weeks. My right arm has been the worst. Most of my right arm is numb. Muscle strength has dropped in my right arm. Also for the last two weeks, part of my tricep muscle in my right arm does not "fire". I cannot move my arm in some directions. I was referred to a neurologist and he indicated that there is nerve damage. I will be having an EMG this coming week.
I am not taking a lot of medications. I take 100 mg/day of Metoprolo which I have been taking for the last two years. I am taking 5 mg of Coumadin, and I take some fish oil. I also took Amiodarone for ten days after surgery and then discontinued it.
Most of my muscle pain symptoms started 1-1/2 to 2 weeks after surgery (after starting Warfarin), and they have progressively gotten worse. Some symptoms can come and go. Symptoms include:
-Sharp pains in my arms, back, and legs
-Left and right arm aches, sharp pains in forearms when reaching
-Numbness in my right upper arm, left and right forearms, inside of my left leg, fingertips of the right hand, left thumb
-Loss of strength in my right arm. Tricep muscle does not fire (3-1/2 weeks after surgery)
-Skin is sensitive and feels uncomfortable on my arms, back, chest, and stomach
I realize that unexplained aches and pains are probably the norm after a major surgery. The numbness and pain in my arms seems to be out of the ordinary and chronic. The surgical doctors have not been able to offer any explanation, they referred me to the neurologist. Since the surgery went well, I feel that they are pretty much done with me. I feel that I am on my own.
I did try switching from Warfarin to Coumadin to see if that would make any difference. That was about 3 weeks ago and it did not seem to make any difference.
The surgical doctors do not think that the Coumadin could be causing my issues. I have read about rare, but serious Coumadin side effects that include muscle and joint pain, numbness. At this point, I am very concerned that I could lose more use of my right arm. I will be contacting my family doctor this week for advice also.
September 28th
2008
6:10 PM
Hello! After a 3 1/2 day stay in the hospital for atrial Fibb. which has since gone away and was likely cuased by extreme low blood potassium and sodium which has since been brought to all but normal levels.. I was taken off of Plavix a blood thinner which I had been taking since a heart attack in 2003, and put on the Warfarin, that was on June 22nd that I began taking Warfarin/Coumadin!. About 2 weeks ago I began having neck and shoulder pain, then slowly side and back pains deep down in the muscles. It is much worse in laying down position, have a hard time to sleep well, and if I trun or move while lying down the pain is very intense. I am going to assk the Dr. to take me off of the Warfarin and put me back on Plavix so I can see it it is the reason for the pains. I am quite sure it is! Please reply if you have the same symptoms as I do! Thanks, B.E.
-- By myself | Reply | (3) replies | Private Message me
August 13th
2008
1:16 PM
I stumbled onto this site while trying to find a reason for these headaches I get sometimes for no" apparent" reason. Imagine my surprise to find your testimonies about your lives on warfarin sodium.At 38, I had surgery to repair a congenital defect of the aortic valve and had to have a hema-shield graph to repair an aneurysm of the aorta. That was in Oct.2002. Warfarin has been a part of my life since then. I was also put on anti-depressants because my family Dr. thought I was depressed since I repeatedly complained of not feeling well.(I took myself off the anti-depressants a couple of years ago.) Extreme fatigue , serious memory issues, thinning hair,dizzy spells and numerous other ailments continue to plague me.Add to that a large weight gain ...and, well, you get the picture. If anyone knows of an alternative to taking this "poison", PLEASE, PLEASE let me know. I just WANT MY LIFE BACK!!! I actually cried after reading this blog. As I explained to my husband, I suppose it was from the sheer relief of knowing I was not going insane!!!
-- By ndg | Reply | (6) replies | Private Message me
August 8th
2007
11:06 AM
I've been on TOPROL-XL( 50 mg) for about 18 months now. Gained 25 lbs. Lack of interest (consistently) in getting much done. I had an aortic valve replacement 12 years ago and they were recently concerned about an enlargement of the aorta-so they wanted the Toprol to reduce the blood pressure further. Its keeping the pressure steady but not a huge decrease. When I discuss the side effects- they smile beningly. I'm having difficulty with digestive tract issues, also, which seem to be connected with weight gain. Other than fluuid retention- anybody know WHY this cuases weight gain? Anybody had any luck switching to other medications??
-- By hilltool | Reply | (1) replies | Private Message me
September 26th
2006
4:29 PM
experienced ischemic bowel after on 25mg for 4 days reguired hospital stay of 6 days and IV. symptoms of abd cramping bloody stools and severe pain. Believe bp became too low to perfuse intestines. med was ordered to reduce load on aorta due to enlargement.
-- By nsrlf | Reply | Private Message me
April 17th
2009
5:03 PM
Hi I was given a shot of Kenalog-40 in the center of my hand for a nodule from Dupreytron Contracture two days later my hand swelled to the size of a large boxing glove my fingers were so misformed and pulled apart and I had red streaks running up my arm. It wasn't until they did a echocardiogram of my heart and seen that I had a vegetation mobile mass on the right cusp of the aorta to my heart from this shot. I got my shot at the VA Hampton Medical Center in Hampton Virginia on August 27, 2008
and in the hospital the 29th of August 2008.
There were 11 other people who also had trouble with the Kenalog-40 injection but we don't know who the other eleven are so we could get together and do something jointly about this my husband's hand and his heart are damaged for life this is unforgettable.
-- By cherokeelass2 | Reply | Private Message me