September 16th
2008
12:51 AM
I am a 56 year old that had an aortic valve replacement 51/2 years ago, I have been on toprol only 12 mg a day for around 4 years I have had minor side effects, cold feet, cold hands, optical migraine headaches (once in a while). I was on the real toprol for years and then the folks at walgreens offered a generic and I excepted, things were fine and I was rolling along until they chaned generic brands from SANDOZ to ETHEX, I seemed fine on the SANDOZ it even looked the same as the real thing, but when walgreens gave me ETHEX (which is a round pill about twice as large as the other) I began to feel sensations in the middle of my chest and sometimes while taking my pulse it felt like my Heart stopped or skipped a beat, this scared the shit out of me! I took about 22 days worth of EHTEX and the symptoms kept getting worse, I finally called the Cardio folks and they suggested that I wear a Holter monitor for 24 hours, which I did and felt that I had a few Heart stopping moments along with a odd heart burn sensation in the middle of my chest. Two nights ago I found some of the SANDOZ that I had saved for vacations and began taking 12 mg of that instead of the ETHEX today for the first time in nearly 3 weeks I had NO Heartburn problems and NO Heart stopping experience, mind you this was only day one! Looking forward to day 2 and now that I have read all of the side effects from all the good folks on this site, that are not listed when you purchase the drugs, my opinion is that all GENERIC drugs that are suppose to be IDENTICAL to the real thing is a huge lie! What the hell is the FDA doing? Are they trying to let the GENERIC FOOLS poison all of the good folks that actually need these drugs without doing or maybe reading the test results? Or maybe the drug company's have so much clout that they can grease a few palms and get there GENERIC shit to market. To think that these drugs are suppose to be IDENTICAL and then to receive a pill that looks NOTHING like the real thing and when you bust it in half it's a different frickin color (ETHEX)!!!! What was I thinking taking this GENERIC piece of garbage! The GENERIC buttheads along with the real manufacturers should be required by LAW to list ALL ingredients on the label so all of the good folks can read and compare to see what there swallowing and putting into there bodes! I hope to get off of thos drug soon but if I don't rest asure that I will seek out the real thing. I was so freaked out by the side effects that the Cardio Doctor scheduled an ECHO for this Friday, I think the valve is fine but we will find out! Good luck all!
-- By nova63 | Reply | (2) replies | Private Message me
August 27th
2008
2:18 PM
I have been on warfarin for approximately 16 years for DVT and PE x 2. i have my labs done and dosage adjusted as required. Now, I have been diagnosed with ALS or Lou Gerhigs Disease. It is such a rare disease that I have tried to find out if Warfarin for so many years may have contributed to my contracting ALS. I have asked "how long can a patient take Warfarin and what can happen with long time use?" No real answers to that question except that I would probably have died of a clot without the Warfarin. I really would like to know about long time use (15-20years) of Warfarin and any side effects or other complaints. Ken
-- By 300brutes | Reply | (1) replies | Private Message me
October 3th
2007
9:22 AM
I was prescribed lisinopril after I underwent open heart surgery for aortic valve replacement last July. Initially I was on 40mg, and was successively reduced to 5mg, which is where I am now. Basically, my dosage would be lowered after I would start to complain about side effects (dizziness, fatigue...), which my cardiologist would attribute to my recovery -- i.e. my blood pressure would stabilize, hence the higher dosage would lower it too much). Well, now I'm down to 5mg, and I feel worse than ever. I'm dizzy all the time, I have severe aches in my joints -- particularly in my knees and elbows, stiffness in my hands, pain in my feet, extreme fatigue, weakness in my arms, shortness of breath, and mild chest pains. My cardiologist maintains that it's not the lisinopril, yet after running full bloods, my primary doctor can't find a single thing wrong with me. I tried getting off the lisinopril for a little over a week, but I didn't feel any better. So, my question is this: does anyone else feel as crappy as I do, and how long does it take to get this drug out of your system? I'm only 34 yrs old, I'm not overweight or otherwise out of shape, and this is really affecting my ability to work and to spend quality time with my wife and 10 month old son. Ugh.
-- By craniotes | Reply | (2) replies | Private Message me
August 29th
2007
8:31 PM
I am 27 year old female I lived a very active life went to the gym 5 times a week for 2hrs.I been on coumadin Since Feb. I gained so much weight. almost 50lbs.I had a disection of my right artery (one of the main veins in your head). I have no idea what caused it the doctors in Houston have no idea. I had 2 strokes.I take 15 Mg of coumadin my INR is never stable I range from 13-15 Mg of coumadin. If any one can help please let me know Im tired of being fat.
-- By deeram2007 | Reply | (1) replies | Private Message me
August 8th
2007
11:06 AM
I've been on TOPROL-XL( 50 mg) for about 18 months now. Gained 25 lbs. Lack of interest (consistently) in getting much done. I had an aortic valve replacement 12 years ago and they were recently concerned about an enlargement of the aorta-so they wanted the Toprol to reduce the blood pressure further. Its keeping the pressure steady but not a huge decrease. When I discuss the side effects- they smile beningly. I'm having difficulty with digestive tract issues, also, which seem to be connected with weight gain. Other than fluuid retention- anybody know WHY this cuases weight gain? Anybody had any luck switching to other medications??
-- By hilltool | Reply | (1) replies | Private Message me
May 1th
2009
3:06 AM
I'm 52 and I've been on Warfarin for a year and a half after having a mechanical aortic valve replacement performed in China, with an American titanium valve. I went through some serious episodes of blood thinness, then moved from northern China to SE Asia. 10 months after being here, I continue to work long days, but my energy is all over the place. When thunderstorms come in (daily) I have migraines, but this may be due to head injuries years ago. The main problems for me are up and down episodes of energy, and when the energy is low, I go pale. Pain in my knees and feet when I don't walk enough (maybe an hour sitting), or walk too much (maybe an hour walking) and very rarely what I think is something like aphasia -- the right words don't seem to come out on rare occasions -- maybe too many languages crawing in my head :). I used to walk an hour and a half per day -- not any more. Blood is on the thick side -- surprising because the diet her is very low fat. I want to get back into walking, get my strength back. I also have heard of socks that help in blood circulation. If I had a name or a brand, I could probably find the product in Thailand. Any idea, thoughts? I'm very frustrated.
-- By laowai | Reply | Private Message me