March 28th
2008
1:59 PM
I have been crying for almost 24 hours now. I cannot believe what I am reading and hearing about Singulair. My son has been to hell and back again and again. I cannot say for sure the Singulair is the culprit. But after reading all of the other stories on this website, I am convinced it is a strong possibility.
My son is 11 years old. He has severe allergies and asthma. He takes many, many medications for this including Singulair. He as been on Singulair for about 8 years now (my best guess because he has been on it for sooooo long.)
My son was diagnosed with ADHD in pre-school. He has taken many medications for the ADHD, but none have ever done any good at all. We thought some of the medications even made things worse. Now, I'm not so sure.
After exhausting all the ADHD medications, our pediatrician sent my son to a psychiatrist and a counselor. The psychiatrist put him on 2 different antipsychotic medications. Again, neither one did any good and seemed to make matters worse. The psychiatrist sent my son to a psychologist to be tested for Asperger's. For those of you who don't know Asperger's is a high functioning form of autism. The psychologist ruled out Asperger's by diagnosed ADHD and Anxiety Disorder. He did not prescribe any medication.
For some unknown reason, I've only given my son the Singulair off and on for the last year. My son had the best year in school ever. However, his pediatrician was still not satisfied. He sent him to see another psychiatrist at Children's Hospital in Pittsburgh. We were told he is believed to have more than one disability. He is believed to have ADHD, Aspergers, Teurettes and a possible 4th medical problem that has not yet come to light.
We are scheduled to see a neurologist at Children's Hospital on the 15th of April to rule out any medical reasons for his tics. We see the psychiatrist again on the 18th of April.
I am so tormented by this recent news. Has all of these problems been caused from him taking the Singulair for so long? Although he has had his best year in school yet, he still has a lot of problems. Are the side effects of the Singulair permanent.
The other side of the coin is this: It is also very scary to watch my son not be able to breath. Asthma can also be life threatening. What is a parent supposed to do.
Also, I now don't know whether to keep these appointments that are coming up. I hate so much to put him through more. He has endured enough doctors and tests to last him a lifetime. However, what if it is not the Singulair and there is help out there for him that I am not aware of.
Please if anyone else has had a similar experiences e-mail me. I would love to hear from you.
God Bless everyone who has been through this kind of hell.
-- By foxhlam | Reply | (4) replies | Private Message me
December 5th
2007
5:51 PM
How long does it take for the side effects to get out of my body??? I have been on the NuvaRing for 5 months. At first I did not have bad side effects, besides I didn't stop bleeding. Once that got better, horrible side effects began. I have headaches, lower back pain, bad leg aches, some abdominal pains at times, anxiety, and moodiness. It would suit me fine to stay in my pjs in bed and sleep all day!! I have no motivation or energy. This is NOT like me!! I feel like I have been living someone else life...my poor kids and husband!! So, after months of my Dr. telling me my body would adjust, I took the ring out yesterday!! I am so ready to be back to myself!!!
-- By ncoke | Reply | (2) replies | Private Message me
April 16th
2007
1:21 PM
I put my 5 year old son of Singulair about 3 weeks ago. He does have Asperger's Syndrome (but is very high functioning) and Sensory Processing Disorder. My husband and I have been amazed by our son's progress and by his dramatically improved behavior patterns. However, about 2 weeks ago, we noticed a huge increase in our son's sensory seeking behavior (tapping, squeezing, repetative vocalizations) and an increase in hyperactivity and impulsiveness. Before a couple weeks ago these behaviors were very mild or nearly gone. I've been racking my brain trying to figure out what changed in his diet or environment to greatly increase his negative behavior patterns. The only change that I can think of is the addtion of Singulair. I'm not sure if there's a scientific relationship between Singulair and negative behavior patterns in children, but I would be interested in hearing from other parents who have has a similar experience.
-- By momof2boys | Reply | Private Message me
April 6th
2009
12:10 PM
I have been on Lamictal for Bipolar II for a little over two years now. The first side effect I really noticed was that I had zero desire to exercise anymore. I used to be pretty athletic, loved to go on hikes, now I could care less. Also, my brain is mush. I am a former honors/ Dean's list student; I had one professor in college tell me I was the only person in class who would ever be able to write professionally, and I have been trying to write the same novel for three years now. I forget how to spell words and how to formulate sentences. I can never find the right word. I forget what the plot is, what I wrote in the last chapter, so I am constantly re-reading what I wrote. I started to think that I had ADD because I couldn't focus on anything, and I couldn't remember if I had always been this way or not. Granted, I think I have always had a bit of a problem with executive functioning- organizing, prioritizing, completing tasks- but it has always been more of a problem with keeping my house clean, etc, NEVER with writing. Also, I have always been very good at remembering names, dates, events in history- the random sort of information that makes a person stellar at Trivial Pursuit- and all I can say now is, 'Uhhh... oh, man, I KNOW THIS.' Also, I am becoming incredibly antisocial, which I think probably has something to do with the fact that I no longer know how to talk. (A sidenote: I'd say chances are good that I have Asperger's; socializing has always been a challenge for me. My point here is that I'm wondering whether Lamictal is making the things I have problems with worse, ie, executive functioning, socialization..., etc. I used to be able to overcome these impairments intellectually; now that my brain doesn't function the way it used to, it's way harder to compensate.) I had a conversation with my husband the other day about all of it, whether he thought Lamictal was truly helping me. He told me that I no longer seem interested in doing anything anymore; that I am no longer sharp like I used to be; that I lack the vitality I used to have; that I no longer get excited about anything anymore. Now I know that Lamictal is a mood stabilizer, that I am on it to stabilize my moods, so obviously there are no longer going to be the highs that there once were. But now I feel so flat and dumb I just don't know. By the way, I have worked my way down to 75mg at night from 200mg. (Which is an improvement, I'll give you that- before I was scared to drive because I'd practically forget I was driving, that's how crappy my short term memory was.) Just so you know, I don't feel depressed, so it's not that my dose is too low and I'm experiencing depression. I just don't feel much of anything at all anymore.
-- By ida | Reply | Private Message me