Asthma specialist symptoms and conditions

My 13 year old daughter has been taking singulair for 8 months, and started suffering from severe depression 6 months ago. We intervened and prevented her from committing suicide, but barely. We never correlated it with the Singulair until a visit with her pediatrician today. I am so sad I want to cry. I am the one that suggested to her asthma specialist that she be put on Singulair. I am so fortunate her pediatrician caught this. We couldn't figure out why her personality suddenly changed.

I am a 57 year old male, who is in very good shape and active playing sports. I had a bad cold and had just finished a 3 day "burst" of prednisone per my asthma specialist. I am supposed to keep it on hand and take it if my usual meds and "rescue" inhaler are not working, and I feel that I am going into an infection (asthmatic bronchitis). The steroid treatment did not work, so I saw a doctor who prescribed Levaquin (with a coupon for $15 off) - for 10 days. The pharmacist remarked that they had seen a LOT of these coupons and that the drug reps must be doing their jobs. I read the warnings which noted that "in rare instances, ...". after I got home. Since I was leaving town immediately and did not have time to change meds, I took the Levaquin. I have suffered leg cramps for over three weeks now and don't know when or if they will disappear. The cramps appear in my hamstrings, groin, thighs, and calf muscles. They are debilitating. Sometimes I can barely walk. I am no longer able to play racquetball. I try to stretch out and warm up thoroughly before physical activity, but the cramps still appear in one muscle group or more - then I stop immediately.

My 5 1/2 year old son began taking 4mg Singulair in the p.m. and an inhaler (asmanex) in the a.m. We were still having trouble controlling the asthma and his Sing dose was raised to 5mg. & within 1 week of the increase he began having terrible facial tics and aggravated behavior (defiant, poor listening, easily frustrated and angered) The tics were in the form of opening and closing his mouth, as if you were trying to clear your clogged ears after a plane flight. This caused him much pain in his jaws and facial muscles, so he would tic and then cry as he was in pain. This ramped up his anxiety and it made the ticking worse. He has been off of all asthma medication (cold turkey) for 5 full days. He has episodes where the tics happen for 10 min -1/2 hr, other times during the day it is one here and one there. He does not want to leave the house to do anything, even his favorite activities. Thank god I found this site (and others like it), as I got some answers and some hope. We went to see my cousin this week who is a neurologist and he never heard of the correlation of Singulair and neurologic side effects like these. He said that (hopefully) the medication side effects will cycle through and resolve the ticking and behavioral changes. If not we are probably looking at a Tic Disorder which is in the Tourettes Family.He put my son on a very low dose of Klonopin to mellow out his anxiety and help reduce the tics, but has only been on it for 1 1/2 days and it usually takes a wk or 2 for full absorption and results.I have since sent him and my pediatrician and allergist links to this site and others. I think that I see some improvement in my son, yesterday I thought he did better and my husband thought it was a worse day, I think we have totally lost our perspective and objectivity on this. If anyone out there has a time frame on when they saw significant recovery and positive changes I would love to hear from you. This is a total nightmare and if it is this drug, someone is going to pay. My prayers go out to all who are going thru this.

My wife and I recently took my daughter to an asthma specialist and she was prescribed Flovent and Singulair as everyday suppressive treatment. Our daughter is only 4 and the first evening of taking SIngulair she was exhibiting exaggerated emotional behaviors such as sadness and excessive crying (sad/moping). The following day the same emotional state was there without anger, but with abnormal crying (for my daughter). She went to preschool and her teacher said she was saying things such as, "I don't care", "I don't need anyone", "I hate this", etc. These are not normal behaviors for our typically happy child. Her doctor said suicidal thoughts and depression were possible side effects in adults, but I am beginning to think they apply to children as well. After only 4 days of Singulair we have decided to stop the treatment. I hope these comments help some of you other parents experiencing the same thing. -Rob

I have been reading all of these posts and have another question. I hope that someone can help. My daughter, 8 years old, has been on Singulair since she was 4. She is normally a very happy girl with a wonderful disposition. For the last year or so, she has been having trouble getting herself to sleep at night. She says that she hears things in her head such as ringing or "noises". A few hours before she knows it's bedtime, she cries and when we ask her why she's crying, she can't give us a reason. We initially thought that she was crying for no reason because she didn't want to go to sleep. I remember reading about the side effects of Singulair causing mood swings, etc., but her's are not violent mood swings. Just very emotional and has a hard time coming down from the "episode". I'm at a loss...I have not talked to her doctor yet about it, but have told her that we will make an appointment this week to discuss it with him. My husband suggested that maybe it sounded like she was having a panic attack or anxiety attack. I hate to label her as that at such a young age. My mind now goes back to the side effects of Singulair and maybe this is to blame. Any help or suggestions would be greatly appreciated. Thank you! Concerned Mom

My son is off singulair for two weeks now and is showing improvements. He was on it for 7 years and at the beginning we blamed it on steriods, even though his dose was low. When he went off the steroids, the behavior didn't stop. I questioned the allerist if the singulair could be doing it, but was told no, it doesn't have those side effects. I don't blame the doctors because they weren't given the info. He was extremely emotional, cried for no reason, had no confidence, didn't like himself. We on more than one occasion have told his older sister that when he hits his teenage years we would have to watch him for suicide, as his reaction to problems was sooo out of whack! He was on motrin for headaches 4-5 days a week(blamed it on sinusses). Unexplained stomachaches. These symptoms came on over years, not right away. I have always thought that the steroids had done damage because he took them when he was so young. Until the news reports hit, and I started reading other people's stories and doing the "OMG, that's my kid!", I never put the problems on singulair. I was still skeptical, but took him off. His symptoms immediately got 100x's worse for a week. But funny thing is, his headaches are gone, his stomachaches are gone and he seems much less emotional. The strangest thing is, EVERY night, he comes in to kiss us good night 7 or 8 times, and sometimes by the 7th time he is crying and can't explain why. This has been going on for YEARS, EVERYNIGHT, never a break. It stopped! Just stopped cold 7 days ago. Comes in once, says goodnight, leaves and falls asleep. I know this isn't a coincidence. After years of wondering what's wrong with my kid, now I feel like I've been poisoning my him for 7 years. I'm not skeptical anymore.

My daughter will be 2 in June and she suffers with asthma she has been taken diff meds such as xopenex, pulmicort, orapred, and now singulair. i researched all the other meds and took her off but the asthma specialist said she needed the pulmicort and i asked her pediatrician what he thought and he prescribed singulair he said it was completely safe and i had nothing to worry about but now i am very much worried because my daughter is only 21 months old and can not tell me exactly what wrong if anything. she has only been taking this singulair since last night so it has been twice she has taken it and last night she had a nightmare. she was fussy going to bed, it took a long while to wind her down she normally falls asleep between 9 and 10 pm last night she went out around 12. her lungs r very sensitive and i want her to get better but a lot of these meds have really bad side affects and who's to say what will be the long term affects and thats what i worry about the most. i just don't know what to do and I'm very worried. i came across this site by accident but I'm glad i did cuz now i know that this is not safe to give my 21 month old daughter.

I have a 8 year old daughter that has been on Singulair since she was 2 years old. When she first started Singulair, she was also put on Flovent (an inhaled steroid), along with Albuterol for what the doctors call reactive airway disease (similar to asthma). Her triggers were allergies and having a cold. Her first flare up of mood swings alerted me to take my daughter off the Flovent. She seemed to improve a little, but still had behavior/moody issues. I had chalked them up to the "terrible twos", and not really thought much of it. As time went on, I became accustomed to the behavior that my daughter was showing. When the few complaints of stomach pains, headaches, and leg pain came along, I managed to explain them away with reasonable explanations (example: growing pains, eating too much, not enough sleep, etc.). As my daughter went off to school, I heard numerous complaints from her teachers that she lacks focus, cannot complete a task in a timely manner, easily gets distracted, and at times (more than not) is a disruption to the class. At home, I noticed a strange "tick" going on with her blinking, the constant need to repeat herself, and the battles with bursts of crying to get her to do ANYTHING. SOMETHING IS REALLY WRONG!!! I was on the edge of having a full work-up of mental tests. I have her see the school social worker weekly and I keep a constant communication with her teacher regarding her behavior. I decided to look up side effects regarding this medication. I first looked at the website for the manufacturer and saw nothing alarming, nothing about behavior affected side effects. I looked into mental disabilities (autism, aspergers, ADD, ADHD, etc.) and saw no common link to her behavior. Then I came to this site and MY JAW DROPPED!! Everything that my daughter has experienced, TO THE LETTER, has been experienced by other children. The weight gain, the occasional pains, the strange behavior. I decided that NOW is the time to act. I have seen my daughter's doctor and discussed my concerns. We are going to wean her off this stuff starting TODAY! Fear of a serious relapse of breathing problems is making us very cautious. I am kicking myself for not making the connection sooner. Wish us luck that this drug has not destroyed her chances of getting better and that this "asthma" can be controlled another way without such serious side effects.

My son came down with pneumonia about two years ago. After being hospitalized for his pneumonia for five days(his oxygen was at 83 percent), he was put on Albuterol and Pulmicort for about a year which was working ok till his wheezing started to get worse .His doctor said it was time to see a asthma specialist in Forth Worth, Texas named Dr. Rogers. Well, Dr. Rogers evaluated my son and took an xray of his nose, diagnosed him with sinusitis and with severe asthma . MY son was put on Advair 115/21 immediately and told to get off all other medicine including his Pulmicort. He was to use the Advair two puffs twice daily every day . HE was to use the Albuterol when he was coughing or needed it for rescue. I got the Advair and as a cautious parent , I always read all of the medication guide that comes with the medication I give my son . I read all the side effects and became at that very night I was to give the medication to him very scared but I was told by Dr. Adams that it would control his asthma. The next day I tried to get in touch with my doctor but was talked to by his nurse and assured the medication was safe. My son at the time also had an upper sinus infection and was put on Prednisone and Zyrtec for his allergies, Nasonex, and also Omnicef which is an antibiotic for 20 days.
Even one day after taking the medicine, my son was sleeping and started sweating really bad that night and he had tremors in his legs and his arms and his heart was racing . As I watched my son sleep even on that second night of taking Advair, I put my head to his chest and would listen to his heartbeat cause now I was worried . His heartbeat was regular at first then when I listened more his heartbeat actually would skip a beat every now and then and his body would shake when it started to beat normal again .
I called the doctor two days after he was on the medicine and he assured me it was the Prednisone my son was on and not the Advair and I told the doctor about the tremors and he also said it was the other medicine . Then I asked the doctor about all the information in the medicine guide that came with the medicine that was conducted in 2006 a few years ago and all the side affects and all he said was that Advair was the safest on the market at this time and that the study in the report was a horribly conducted study and that usually people were dying not cause of the Advair but the Salmeterol being used alone and not a bronchioldialator used to treat both symptoms . It has been four weeks, one month since my son has been using Advair and he is off the other medications he was taking for his sinus infection. These are his symptoms after he takes the medication. About one hour after he take his medication he is very hyper, nervous, his heart is racing a mile a minute without even running around, he is sweating, he can not sit still for one minute and he has muscle spasms. At night when he goes to sleep his whole body shakes as though in a convulsion and I have even had to be there with him to calm him down. He has bad leg shakes and his arms shake and every single night since he has taken this medication he has sweated so badly that it soaks the pillow through and the pillowcase down to the mattress. He had been running fevers at night for five nights now . I was told this medication was safe but when I look at my son his eyes are glassy all the time and he is just not the same and he does not seem happy with all these tremors he has with this medicine . If anyone is reading this please print these pages out and take to a lawyer so we can all get money from the makers of Advair because I'm sure like me we were all told this medication was safe and not harmful . I am calling my sons asthma specialist and telling him to take him off this medication immediately as I had requested before and he told me it wasn't wise because it was controlling his asthma . How can a medication control asthma symptoms that will cause a person to die from taking it and cause them worse symptoms when they try to get off of it?

Hi. My eight year old daughter has been on singular for 6 months. She has had chronic stomach pains that she says feel like pressure. Her appetite is terrible. She always says she isn't hungry. I have to search for anything I think she will eat. She is very tall and very thin for her age. She grew an inch in the last year but gained no weight. First time her growth just stopped. No surprise as she doesn't want to eat. I took her to the doc several times and they think she has acid reflux and have given her 2 different acid eliminators ( which freak me out as well) Said she should see a gastroenterologist. We have appointment in March . I started reading this site and thought well maybe it's the singular. So I called her allergist and told them I was taking her off to see if that's why she has the stomach problems. They said I could since it wasn't a big trigger time(seasonal) and she wasn't sick with any cold or flu) She gets mild asthma when sick. Her allergist asthma doc thinks her stomach aches are related to the mucus dripping into her stomach. I have taken her off all meds to try to see if it could be the Singular. She also has been very tired and can't keep up in her dance classes. Her school teacher had to put her in the front of the class because she said she wasn't paying attention. She seems to lose it over anything that requires focus or attention.She also seems kind of depressed. She is worried that something is really wrong with her. This child used to eat normally and is gifted academically .Her tests results(taken while on the Singulair) went way down from last year. She was put in gifted pull out program from last year results but would have barley made it in this year based on her much lower scores. That does not make sense to me. Never has had attention or focus problems before. I will keep everyone posted. Does anyone know how long it might take to get this drug out of her system? Has anyone else had this kind of reaction to this drug? I also wonder whether she had reflux before but this made it worse? I had her blood tested for Celiac and general stuff and nothing showed up.I wanted to get the Singular out of her system before we see the G.I. doctor. anyway thanks, Elizabeth

I've had asthma since I was a teenager, and about 9 years ago I went to an allergy and asthma specialist and had the whole gamet of tests run to find out why my allergies and asthma were worsening. I was prescribed Advair, Albuterol, Prednisone, & Servient. At the time, these were the only medications I was taking and never experienced any severe side effects. My asthma was much better and by my one year check up, I had almost completely stopped using the Albuterol for sudden attacks. Due to my graduation from college, I was no longer covered under my parents insurance and due to the cost of the medications, discontinued my treatments. I felt fine, hadn't had any attacks or breathing episodes, so I felt I could do this without any problems.

Fast forward to this summer. My asthma symptoms had returned and my PCP put me back on the Albuterol. It helped the sudden attacks, but I was blowing through an inhaler in a month. Last week I found myself in my local urgent care center, barely able to breathe, gasping for breath. I'm 31 years old with an almost one year old. They gave my 3 breathing treatments and prescribed Prednisone (only 5 days worth), Albuterol, and the Advair. After a week on the Advair, I feel so strange. I haven't had to use my fast acting inhaler since last week, but I feel like my heart is going to jump right out of my chest. I have a constant headache, a weird ache in my right arm, can't sleep even though I am exhausted, and my mind is constantly racing. It's like I can't slow down. After reading all these crazy side effects and comparing them with my own, I'm stopping the Advair. I have an apt. with my asthma specialist in 2 weeks and I will be sure that he doesn't put me back on this med. It's awful...can't imagine taking any drug with a side effect of death.

Thank you for this site and all who posted! My daughter at 6 years was put on 4 mg of singulair for the later half of the winter last year for preventative measures after repeated visits to the doctors for bad colds and coughs resulting in wheezing. They told me she had "cold induced asthma." My daughter has had no previous asthma or history of, any history of trouble breathing etc. I can honestly say looking back that I didn't notice any glaring difference in her personality last year. I didn't like the idea of putting her on a daily med but I trusted the doc and asthma specialist and was told I could take her off in the spring 07 when the "cold season was over and most threats had passed. This year, at age 7, I was told to start Singulair again a week before school started in August 07 as a prevention med for the upcoming germ/cold school year. The dosage was increased to 5 mg due to her age. Note, she is a tiny, petite girl with not a huge amount of weight gain from prev. year. Let me tell you, September and the begining of October while on this med, my daughter was extremely irritable, down right nasty at times, crying very easily, tantrums, lacked a desire to do her homework and not very focused. In short, this was NOT my daughter. I didn't recognize her and it scared me. I like others who've posted, would try to blame her behavior on outside events or troubles. Anything to try to understand what was going on and explain her behavior. Sadly at first, Singulair didn't occur to me so I just kept battling with her to the point of almost asking for psych. help. Thank goodness I didn't! It was like a light bulb went off in my head as I was about to hand her her singulair one night. I went to the internet, read these posts and saw some of the exact same things being quoted. Coincidence? I think not! I stopped giving her the Singulair it's been 2 weeks now and the results are so dramatic and obvious to me. I had my daughter back! I, like a lot of you was told it was safe! My pharmacist told me that while there were studies on adults with a small % reporting agitation, there have been no studies in children. I find that amazing considering so may children are prescribed it. Last note - report your symptoms to your doctor, even if they don't agree with your findings. It may eventually help others in the future if enough of us report. Thanks to all of you and good luck.

Just found this site and am so relieved to know that I'm not going crazy! I took Advair for only two weeks after a poor spirometry reading at my doctor's office and had such horrible anxiousness and panic attacks that I thought I was losing my mind. Needless to say I stopped taking it. I later was told by an Allergy/Asthma specialist that there's some kind of stimulant in Advair (much like caffeine) that most likely caused the adverse reaction. I'm highly sensitive to caffeine and other stimulants. I warn anyone with this same sensitivity to discuss it with their doctor before taking Advair. I will never take it again.

My 7 year old, active and happy, son began taking this drug in January 2007 and hasn't been the same since. He had the following side effects: fever(nonstop unless on Motrin), diarreah, depression, rashes, nightmares, hallucinations and uncountable days missed at school. We thought it was a virus or flu and even had bloodwork done to see if it was something much more serious. When asked by our family doctor about why he was so sad he didn't know why, and when asked if he ever wished he was dead he responded with "yes sometimes". We were devestated and had not researched this drug until today. We took him off the Singulair on our asthma "specialist" advice to see if this would stop the fever and instead it stopped all the symptoms. Two days ago we started it again to be sure this was what was wrong and almost immediatly we had the same symptoms as described above. I will NEVER give this drug to my son and tell every parent I can not to either. This could have taken our childs life due to poor research on our part and doctors not making us aware, even when we were crying out for help, when they prescribe these lethal drugs. Any parent who reads this please monitor your childs behavior if you choose to give them this or any drug that you are not familiar with. I'm grateful for websites like this that help us understand and see what some modern medicine is capable of. Thank you to everyone who sent their side effects in it may have saved my childs life.

I was on Advair for almost three weeks. Within the first few days, I thought it was helping. Then I started having really bad problems with acid reflux, throat irritation/hoarseness, a dry cough, need for nearly constant throat clearing, and tightness in the throat. It also seemed like the Advair was getting less effective in helping my breathing. I ended up going to a asthma specialist. In addition to asthma, I found out I may also have this other condition called Vocal Cord Dysfunction (VCD). VCD is commonly mistaken for asthma as the symptoms and triggers are very similar. Also, there is a fairly high rate of co-occurance with asthma and some literature even suggests having asthma predisposes one for developing VCD (having GERD and allergic rhinitis also appear to be triggers). In one study, 56% of individuals with "severe" asthma were found to also have this condition. Another 10% were found to not even have asthma. The point in talking about all this is that I think in my case taking Advair significantly exacerbated my symptoms of VCD. M y doctor's response was to put me on prednisone when the Advair didn't work. It seems like lots of people posted concerns about similar side effects to mine and some even noted they were having more trouble breathing. They might want to look into this condition. Here's a link: www.cantbreathesuspectvcd.com

I have suffered with aAsthma all my life. My brothers we all were premature and have bronchial issues. I have had allergies and shot along with acute asthma attacks that sent me to the hospital. One of my siblings almost died from his bronchial spasms. My mother was a smoker and she continued smoking while she was pregnant. We are living proof that smoking is devastating to your unborn child. Well, moving on foward I have taken Advair for about approxiamately three years. I was reluctant at first but my constant bronchial infections and asthma led my doctor to send me to an asthma specialist. I had taken steroid injections and steriod pills in the past when needed. Now this time it was different I had to follow the "program" according to my physcian.Now every day I would inhale into the purple disk my dosage was 500mg. and so started the drug induced trip of a lifetime ! The side effects for me were small at first but gradually they grew and even gained momentum! There was the hoarseness, weight gain, nervouseness, heart palpitations, depression, extreme bruising, asthma attacks, growths, complex endometrial cysts on my ovaries ( I attribute to the steriods my periods became irregular and light when I was taking the disk) . I also, developed sebacious cysts on my back and face. Three yars and it took a trip to Vegas over the summer to make me realize the connection!! I was leaving through photographs from the trip. I did not recognize my self. My face was round, my legs swollen and bruised. I am a health nut and even with the astma continued a regular routine to this day of runniong and weight training. I was irritable all the time, I had boughts of insomnia and woke up sometimes in a cold sweats. The steriod inhanced the hormonal changes. I am in my forties and expected some degree of flucuations but not to this degree. NONE of the woman in my family had ever experinced this before. I truley beleive the steriods interuppted my monthly cycle which effected the hormonal balance to a far higher degree than what should of happened to me. I stopped taking Advair approxiamtely 3 1/2 months ago. Since then my periods are back to normal ( I have not missed one yet ). Since, I stopped in August by October no more bruising, normal menstural flow, my face has go down, no more nervouseness..ect. I am currently taking Spivera with very few side affects..sometimes I develop a rash on face... big deal ( I will be closely watching side effects from now on) It still beats the harmful side effects of Advair. I will never take the purple disk again !!!

I have been on Advair for 18 days and I have experienced weight gain of 6 lbs.; muscle soreness;vision problems.
I have seen both an internist and asthma specialist within the last two weeks and they both recommend only Advair. My advice: Trust yourself and listen to your body.