Asthmatic symptoms and conditions

My eldest son was diagnosed as a Severe Asthmatic at the age of 3. He was put on Flovent 110, 5mg of Zyrtec and Singulair. I cried thinking about my little guy having to be on daily meds for who knows how long. I decided that I would just try the Zyrtec and Flovent 110, it worked wonderfully. When my eldest was 4, my other son, 2, was put on Flovent 44. Never gave them to my youngest because I knew it was not asthma. I ended up lowering my eldest's dose to the 44 and giving him 1 puff a day with the Zyrtec, he is now 7 and is still under control. As for my younger son, he was not asthmatic, he had sleep apnea, had his tonsils and adenoids removed and is now perfect. Just be careful with these doctors, they seem to diagnose these little ones too quickly......most of the time they are not even right. My eldest went through many many doctors before he was finally diagnosed in the ER and sent to peds for 2 weeks. My youngest went through many doctors too, none would do anything, I had so many excuses as to why my son was such a heavy breather and why he had difficulty swallowing and sleeping. Sorry guys, I ran off here, just want you guys to know that all that are diagnosed with asthma do not necessarily have asthma and I believe way too many drugs are prescribed for these little ones.

Hi everyone, i am 30 years old and have been a severe asthmatic since i was an infant. I started taking advair about 3 years ago, and let me tell you , I had never felt that good, ever!!! BUT, I have developed quite a number of side effects including:
- Severe dry eye's
- terrible Problems with my teeth(pain)
- problems with my voice
- had pneumonia 3 times in about five months
- swelling in feet and hands after sitting for a while
- my body seems to go into "withdrawal" if i stop using the medication, even for a day, my breathing gets terrible!

I have been on Prednisone, off and on, for many years as I'm a severe asthmatic. Lately though, I've been dizzy - I mean the sometimes can't stand up, room spinning when your eyes are closed, dizzy - tomorrow will start the 5th week of being "off kilter." I have been anxious, don't sleep well, bruise like crazy, my stomach hurts all the time, and a dozen other symptoms. But, I have to say, I'm used to "not" breathing well, but being dizzy - that is starting to take its toll. This occurred, I believe, because of 60mg a day for over 3 weeks, and then I started tapering. Every time I have a terrible reaction to this drug, I think I will "never take it again." But, whenever I'm at death's door, I change my mind because with all its horror, Prednisone can be a lifesaver for people like me. I just don't remember ever feeling like this before. I feel as though I'm about to come out of my own skin, and fly off into space.

I became extremely ill after beginning Topamax. A trip to Urgent Care started me on Z pack for URI and gave me cough medicine. Cough along with incontinence and exhaustion became more severe over 3 weeks. Wheezing worsened but chest xrays done by my PCP showed no pneumonia. I have asthma and allergies which were treated by my PCP with Singulair, Advair and a rescue inhaler with no success. It wasn't until I started thinking about possibility of Topamax playing a part and doing research myself that the puzzle was solved. 3 doctors and a pharmacist knew nothing about the affect this drug has on asthmatics. I was miserable for an entire month due to this drug which could have been completely avoided if doctors were better informed. I had to convince my physicians by taking myself off Topamax in order to alleviate my symptoms. I hate to think where I would be today if I had continued taking the drug and had not found this web page!

My entire life I've been very sickly many doctors thought thyroid but I guess my numbers always came back normal and test never lie right... My levels were finally abnormal at age 21 and I was diagnoised with Hashimoto's Thyroiditis last week. Just started Synthroid right away and my breathing is better then it has been in a few years. Doctors had no idea why my breathing was so horrible in the first place since I only have mild asthma. They just heard the wheezing in my throat and in my chest and knew something was wrong. They knew I needed an amount of breathing medication that was pretty much killing me and the E.R gave me even more then I'd take at home. Only a week of being on synthroid I'm now only taking what a severe asthmatic would take daily. Thats going to be like 100 vials less then what I was on by the end of the month!!! I don't know if I will stay on Synthroid because of the side effects I'm having that maybe I won't have on another type of medicine. We'll see I guess. But I Thank god for Synthroid without it I wouldn't be here right now. We had no idea it would even do anything for my breathing...I wasn't even prescribed it for that. I've learned now though to do my own research because doctors don't know it all especially General Doctors. Sometimes it's correct to raise the dose to get past the hyper swings of hypo sometimes it's an overdoes causing it....it's crazy. Anyway I wish all others with thyroid problems good luck your not alone.

They think that I have either crohns or ulcerative colitis. I have tried antibiotics, lialda, mesalamine enemas, with no improvement. After another colonoscopy they put me on prednisone at 40mgs, 30, 20, 10, then 5 decreasing weekly. Well the first week was okay. I had some of the side affects, insomnia, extreme hunger, and crazy. I could deal with that. But then when I decreased down to 30mg, my body flipped. I awoke from the middle of the night with burning pain in the knees. So bad I took 4 ibuprofen and threw myself in the tub with epsom salt. I thought okay that was weird because I have never had a joint pain in my life. I saw the gastroenterologist that day bc I was still having abdominal pain. He totally blew off the knee pain and said he had no idea what that was. I thought okay maybe it will go away. A few days went by and nothing. 3 days later and I awoke one morning crying in pain because of my legs. I called the on call doctor who also said he had no idea and go to the er. So I went crying hysterically for 4 hours. Even after 3 rounds of dilaudid I was still in pain. They suggested a Rheumatologist. So I went to one a week later who said I was going through steroid withdrawals. And there is nothing we can do but treat the symptoms of pain. I am now down to 10mgs have been out of work for 2 weeks and am absolutely miserable with severe leg pain, muscle weakness and fatigue. He also adjusted the drop down increments to 5 instead of 10. Anyway I will never take this drug again and I think they rushed to this one. Just wanted to share. I am glad I found this website because I went from a fully functioning physically fit 28 year old to a crippled crying crazy person. I think I was scaring my husband, honestly, until we both read some of your postings which were similar.

I have been on lisiniprol with hctz on 10mg dose since October 2008. My BP averaged around 144/95 before taking the med, now averages about 122/78. The problem i am having is this constant "tickle" in my throat which has been giving me coughing fits. When i breathe in deep i can feel a sensation to cough, sometimes my throat feels tight and sore, the first time i felt this was December 2008 and the doctor said it was a touch of post nasal drip and this was before i have read stuff on this board. Has anyone else experienced this kind of sensation in the throat? sometimes when i talk i even have to cough, i experimented once and did not take my dose and it seemed my throat felt better but then noticed my bp went right back up, i guess i better tell the doctor to get me off of this drug. She did tell me that the cough was part of the side effect. thanks and hope someone answers this.

My wife (66) was using salbutamol inhaler for the last 10 years being a bronchial asthmatic. Even prior to that, she was being treated with a combination of theophylline, cortisones . In 2001 she was diagnosed to be suffering from OCD and citalopram 20 mg was prescribed. With significant improvement, the dosage was reduced to citalopram 10 mg, though we lowered the dosage only in December 2007. However, during the last month, when she had to be admitted in the hospital for a stomach virus the doctors prescribed MONTELUKAST SODIUM 10 MG combined with lEVOCETIRIZINE 5 MG. .
Dramatically,montelukast had a dramatic effect in that my wife never used the salbutalmol inhaler for well over 2 months, about which we were very happy.
But the worst was yet to come.
During the last few days, she again showed symptoms of the dreaded OCD once again, and she suffered like anything. On contacting a well known doctor, we were advised to stop MONTELUKAST and asked to continue citalopram (though escitalopram instead of citalopram ) along with clonozepam 5 mg to be tapered down every week for about a month.
I would like to be advised from a doctor whether (a) discontinuance of Montelukast will be able to bring back normalcy from OCD of course with citalopram or escitalopram. and (b) whether montelukast can be abruptly stopped. For the time being, we have reduced the dosage of montelukast from 10 mg to 5 mg.
PLEASE ADVISE US.

This drug has not been properly examined in clinical trials. I will gladly suffer with allergies rather than suffer from anxiety and panic attacks caused by Singulair. It may be beneficial to some people, but not to me. Never again, Singulair.

At thirty-two, active, healthy and slender I developed unexplained Hypertension. I was put on Lopressor.
I relocated to the Southwest. My new doctor changed my blood pressure medication to Lisinopril. I balked at changing what had been working well for me (14 years). I pointed out my history of allergies and drug sensitivities. I told her I had gone into Anaphylaxis from bee venom and another prescription drug. She told me that she was the doctor and I was not. She said that Lopressor, a Beta Blocker was a poor choice of medicine for me because I am an Asthmatic. I began the Lisinopril the following day. My second day on it I had a severe headache, the next day this was accompanied by tightness in my chest and a feeling of suffocation. By day three I also had edema in my face, hands, feet and was very short of breath and mildly dizzy. I was weak and could barely get out of bed. I called the doctor and she was unavailable but I spoke to the RN who listened carefully. She said she would speak with the doctor and call me back. Several hours later the RN called and told me that the doctor said these were not unusual symptoms when you first start Lisinopril. She said they would go away in a few days. I was to continue the medication. With trepidation I followed her instructions. Within an hour my face was numb, I had severe pain going down my arm, I felt like my chest was in a vice, I was gasping for breath and wheezing. The pain was excruciating. I was certain I was having a heart attack. I was taken to the ER. They immediately did an EKG and started an IV line. The EKG indicated I was apparently having a heart attack. They began all sorts of heart protocols, medication into the IV, blood work, etc. They tested me for Pulmonary Embolism. Still waiting for the blood results, they injected me with a radioactive isotope and began an MRI of my heart . By this time I broke out in hives all over my body, was itching like crazy and my eyes swelled shut and I felt my throat closing. I was immediately taken out of the MRI and given an injection. I began to get better. I was admitted to the hospital, a non- ER doctor came to see me the next day. After reviewing my entire chart and talking with me extensively he determined that I had had an anaphylactic reaction to the Lisinopril. He told me that Lisinopril is contraindicated in persons who are allergic to bees.

My 3 year old daughter was put on Singulair for her asthma and supposed allergies. I did not notice any behavior issues, but when I read the very very fine print saying that it could cause stunted growth AND had had no clinical trials in children, I took her off. I have cured her asthma with herbal supplements (a combo that fights bronchial inflammation ans desensitizes the liver to minimize/eliminate allergic reactions - from GAIA labs, look up asthma/bronchitis / allergy). She is now 11 and has not needed any treatment of any kind for at least 6 years now.

I first read notes on this site in February 08 when our Doctor prescribed Singulair. My 7 year old daughter is a silent asthmatic which prompted me to push past the side effect warnings written here and give it a go. Rach had strong side effects for the first two weeks & then seemed to settle, so I persevered with it. The drug didn't seem to have no effect on her asthma flare ups but the doctors didn't believe me and encouraged me to keep going. After 6mths I called it quits and took her off it. She's now back to her normal self. No longer emotional, her school work picked up immensely, no more nightmares or unexplained body aches. She does still have tummy aches but they are subsiding. She's been off singulair for 3 months now. Every doctor and pharmacy I spoke to denied the side effects and promoted the product. To anyone researching this drug, do your little one a favour and don't use Singulair unless it is a last resort. There are so many other alternatives out there.

i have been an asthmatic since the age of 2 years old i am now 24 years old. preds as i call it has been a part of my life since then. i have a number of reactions to it from gaining 30 lbs in les than 6 months to almost definitely hallucinating. i urinate frequently,my hubby says that i'm a leaking tap. i cry and grumble at times for no reason: yes mood swings like rain in spring time. i even threw away my wallet after a dose of preds three months ago. i laugh uncontrollably. i get depressed. sleep for long hours one time and then become insomniac for days. i am super hyper. i am creative and expressive and get even better for a few hours after taking preds. also i appear to have an attention disorder at times. i have acute hearing i.e i hear like a fox really well and then some day si behave like an 89 year old with a hearing aid. i get rashes on allergic reactions to things i've been using all my life like band-aid.i don't like it in fact when the doctor gives me 8 to be taken 3 times daily for a week, i take two and feel better without all the side effects. i am so fat its a shame. i was tall and lean and sexy now i am tall heavy and my hubby still says sexy. we all hate it don't we?!

HI, I am a 56 year old woman with elevated BP. I was put on Lisinopril/Hctz about a year ago. I am not exactly sure when the cough started, since I am an asthmatic and have trouble with coughing already, but this cough is different and much worse than my asthma coughing. I like many others on here cough in the night and mornings until I vomit, cough up fluids, gag and can't breath. The cough was so bad on Friday I broke the blood vessels in my face, the coughing spell lasted for 30 minutes. It was just yesterday that I looked at the Warning for this medication as I picked up my refill on Friday. There on the warning was dry cough. So I looked on this site and there was my answer...most of you described exactly my symptoms....I feel so much better now that I think I know what has caused it, since my doctor was chalking it up to the asthma. I have emailed him with my new info, and hope that he will change my medication ASAP. I also have researched cronic fatigue sys....because I am always tired and unable to get anything done.....I was never like this before. Good luck to the rest of you, thanks for sharing or I would never know that this medication could cause all my problems.
DL

I'm 50, a lifelong asthmatic (since age of 4). I started taking singular in 1999, Time Magazine's cover story back then. In the spring on 2001 I had stopped taking it. I got sick and my doctor had me taking it again. I told him subseqently that I had noticed changes in my moods. He dismissed the notion. I worked on wall street. 911 came and I was put on antidepressants (zoloft 200mg/day and gabatril 8mg a day). I lost seven years of my life. Yesterday I spoke to my pharmacist. I'm now on disability (respiratory, depression and anxiety). Medicare Prescription plan would not pay for Advair. The pharmacist to my surprise pointed out that depression was written up as a potential side effect of singular. I have read that head meds may leave 70% of those taking them left them still depress and with sleep disorders etc. I have been off the head meds for 9 months now. The mental fog has cleared, (from not being sedated).). An my depression continues unabaited as it has for the past ten years.

I also found out that MAXAIR is back after being discontinued. I used it for at least ten years (in the 80 & 90's). It has nt steroids, long lasting compared to albuteral as an emergency inhalher and precluded the need for multiple asthma meds. My life changed when Maxair was not being bottled which was just about the time Singular came out. I doubt it will undo 10 years of environmental injury and damage caused by singular and steroids. I also believe the best advice for keeping me breathing freely was drinking lots of water, (distilled, I bought a machine rather than carry a gallon a day from the store.). was truely life improving. It allows your body to flush out the impurities our modern day life threatens us with. I read the posts on this site and was compelled to share my personal experience(s), for you to consider....

I have been on advair for about 6 years. and im 18 years old. I am now just experiencing signs and symptoms of major ANXIETY!.... RESTLESSNESS, and MOOD SWINGS and im wondering what its from.. it just now started kicking in? I am a severe asthmatic and this is the best thing for me.. but now im starting to wonder???

I don't know if my dry skin is from the Levoxyl or not. I'm on 25 mcg's and have been for about four years now and am seeking to be off of it as it is the only medication I'm now taking with regularity. As an asthmatic with a slight hypothyroid condition, I've just done "what the doctors ordered." Now at the age of forty-four I'm starting to do some of my own research and be my own advocate. I don't have answers for anyone but I strongly suggest you do some reading at the ****. Just plug Dr. Mercola in a search engine and you should find it. What a wealth of wonderful and informative reading. Watch the "Allopath" video. Food for thought. Physicians treat symptoms and while I'm glad that many meds are there, I'm thinking that the first line of defense AND offense ought to be a look at one's daily nutrition and exercise as well as hydration levels.
Blessings

I have some more questions for you guys. I am looking for connections to the killer t-cells that appeared in asthma cases. I would like to know if your child was vaccinated for hepatitis B, at what ages, and if you child has asthma. Also if your child was one of the ones vaccinated for rotavirus.

Thanks in advance.

(A divorced father)
My son has been on Singulair now 5 years and I am in the middle of fighting to get him off. My son is now 7 years old and has been diagnosed with allergies (no test have been done which I find very odd), which leads to a case of mild asthma. This past weekend his mother forgot his Singular on Friday so I could not give him any till the next day, where we met at his soccer game. Saturday night I gave him his usual pill and thankfully due to his exhaustion from playing out side all day he went to sleep in 10 min. vs 3 hrs later which is the norm since Singulair seems to jack him up.
He also has red puffiness under his eyes - most likely allergies.
Seems depressed - just driving down the road and I look at him in the rear view mirror and he just sits and stares into space. When I ask what's wrong he either says nothing or I am tired.
He will try to tell a story or think for himself and just stops mid sentence and says " never mind I am just confused"
He will be having fun one moment and just starts crying or gets depressed.
He was throwing a ball in the house (yes I know) and accidentally knocked a glass over breaking it - he went running to his room, crawled under his bed and sobbed profusely for over 30 min.
He has a hard time doing / focusing on homework - becomes bored very easily.
Does not want to go outside. I will take him to allot of cultural events/ hands on or participation events - he will not try anything. He is unsure and will not come out of his box so to speak.
I spoke with his doctor who was reluctant to take him off, but then agreed that if it was OK with the ex, to take him off for a week to see what happens.
The fun part: My ex is convinced that since he has been on Singulair for 5 years he is fine and does not need to come off it.

1.) Son is diagnosed with mild asthma or allergy induced asthma.
He has never had an allergy test done and has not had a lung function test in over a year.

2.) It is documented that our son has four outbreaks a year. (sounds like the changing of the seasons) but is given Singulair all year round and the dosage has also been increased.

3.) Since the court order, ordered my ex to enroll our son in sports (she would not let him play anything) he does not wheeze or cough uncontrollably.

4.) Since I had to battle to get our son on my insurance I have cut her control issues off a little, but she is refusing to take him off Singular just for a week to see how he reacts. Although I do agree that he should have some form of allergies medicine.

5.) When I found out about the side effects of Singulair, I also found that his doctor was getting ready to add two other allergy medicines to his portfolio - totaling 3 different meds.

I see our sons behavior getting worse and I watch him turn into something he is not and with a controlling individual not believing anything about the side effects it looks like I will have to rely on the medical system to prove my point. I do believe he needs to be accurately tested for allergies and given a regularly lung function test but most of all since he is now on my insurance, a second opinion and a 3rd to narrow down what the situation is and an alternative medical procedure that is fit for the symptoms.

I have communicated directly with Leslie Hendeles, a leading professor of pharmacology and pediatrics at the University of Florida who's direct quote to me was:
"In response to your last comment, I thing Singulair has modest efficacy, and if we take all of our patients off this drug, THEY WON'T SUFFER. This is NOT an important drug for pediatric asthma, as are inhaled corticosteroids."

Ironically, this is the same individual who was quoted in an ABC news article as saying:
"We have hundreds of children on Singulair and have never heard parents make complaints about psychiatric side effects. Moreover, there is no mechanism for this reaction … We will be telling our patients not to worry about this."

WAKE UP EVERYONE...THIS IS AN ADMITTEDLY OVERPRESECRIBED DRUG THAT HAS WORKED WELL FOR MANY, BUT HAS ALSO RUINED MANY LIVES.

The manner in which this drug is casually overprescribed by so many doctors is freakish. I firmly believe that this drug has caused countless misdiagnoses such as ADHD, Bipolar disorder and others. IT FUELS A GOOD PART OF THE ECONOMY TO PUT SO MANY PEOPLE ON THESE DRUGS. I BELIEVE THE PHARM INDUSTRY IS VERY CALCULATED IN THIS MANNER.

Question what your doctors tell you.
See my other posts under matthewct1. I dealt with a situation where my 5 yr. old son was on the road to being diagnosed with ADHD which couldn't have been further from the truth. Singulair changed him. Since he's been off Singulair everyone (teachers, pediatrician, family, etc.) unanimously agree that he does not show the ADHD symptoms like he did on Singulair.

My son 10, has been on Singulair since he was 4 yrs old for Asthma and allergies. His last dose was 3/26/08. He has always been my emotional child, he is 2yrs older than this younger brother. Some of his side effects included headaches, stomaches, leg cramps, emotional breakdowns, major mood swings, crying outbursts over small situations, night sweats, lack of motivation, weight gain, ADHD, wishing he were dead and the list goes on. His younger brother has always been involved in sports but he was always too afraid he would get hurt. This medication has robbed my 10 yr old son from 6 yrs of his childhood. Since he has been off Singulair he feels motivated and looks forward to joining the football team his younger brother plays for. I look forward to meeting this new young man who for so long has been hiding behind this so called allergy medicine. I am so thankful to know that my son can look forward to a bright future without these side effects. God Bless you all who are going through this as well.

My daughter is 20 years old and a chronic asthmatic with severe allergies. She has been on Singulair for 8 years. She has been complaining and in some instances begging her asthma doctor for a reason for her insomnia and restless sleep over the last several years. She takes other asthma and allergy medications. He told her to not take her Xopenex inhaler before bed, as that may be causing the problem, that didn't help at all (sometimes a Xopenex nebulizer treatment is needed for her at bedtime and during the night, during asthma flair-ups). Her doctor just switched her from Allegra (which she has been on since she was 10) to Zyrtec, which is helping with allergies, but not with the sleeplessness. She was taken off of Advair and put on Symbicort in September 2007, this made her asthma worse requiring Prednisone off -and -on since January. She is back on Advair and doing better, but the sleepless nights continue...

We are seriously contemplating taking her off of the Singulair. We aren't 100% certain this medication is causing her insomnia/sleeplessness. However, as she explains it..."If I could get one really good nights sleep, I would go off of the Singulair in a heartbeat". Our fear is that by going off of the Singulair that her asthma will worsen.

I had been on singular for 10 months and have gained 40 lbs. and retention of water in my calves and ankles. I spoke to my doctor but that fell on deaf ears. He told me that they are not side effects of singular. My eating habits are the same, if anything I have never eat better due to the weight. I had been thin all my life - maybe too skinny. I am 49 years old. Also, due to the weight and water retention I have started a health club with no weight loss. I went off the singular 3 weeks ago, my calves are back to normal, but still have the 40 lbs. Anyone have any advised. MK

My daughter was put on singulair before she was 2 years old due to being diagnosed with asthma. Being an asthmatic myself and also being on singulair I didn't think much about it. She was on it for 2 years (chewable) with consistent complaints of not wanting to eat in the morning because her stomach hurt. As she got older (around 4) she complained about headaches (I took her to get her eyes checked and they were fine). She then began developing increased behaviors with hitting, getting angry and not being able to stay focused. I discussed with her Dr. about taking her off singulair and WOW my 4 year old changed drastically and I wasn't getting hit anymore in fits of anger.

Almost 3 years later my daughters asthma began to get worse and her Dr. and I decided on Singulair again. I did tell her Dr. I did not want her on the chewables that she was on before because of the aspartame thinking maybe that is what caused her headaches and stomach pains. After several months the behaviors increased again with agitation, anger and odd sleep patterns. It was after an altercation at school with another child (she became very angry) then telling kids at school she wanted to kill herself (at age 7) when I decided it was singulair and took her off of it. Once again her whole mood and behavior changed drastically (for the better) after a few days of being off singulair.

I know this medication works I myself have been on it for 8 years but now I am starting to question some of my own mood changes even though fairly mild. Could this medication make them worse? Now with all the news stories I am wondering.

Okay...I'm really freaked out!!! Just got back from the pharmacy with Singulair only to find my tv bombarded with news on the suicide risks. I'm an adult asthmatic with severe allergies and have always been on Allegra and various inhalers, nebulizer etc.... For the first time, even after requesting allegra, the doctor (specialist) told me to try this new plan instead it consists of daily dosages of atarax, asmanex, xyzol, singulair, and maxair...I feel over prescribed and don't know what to do. All day today I felt groggy and irritated...and at this point want to thor everything in the garbage because I'm scared.