February 4th
2009
3:10 AM
I am 58, and attention deficit has always been a part of my life. I am the space cadet type, ADD but not ADHD. I discovered it had a name when I was 45. Adderall is something I take to keep myself on track and actually get things done. Before Adderall I self medicated with lots of sugar, caffeine and occasionally pseudofed when I needed to focus. What I wanted to add to this discussion is this: those with ADD have a different response to stimulants than those without it. When I was in college, some of us scored some funny white powder ( yes, the Real Thing (grin)) to try out. I found everyone else running around talking nonstop, eating like crazy and prancing around the room. I was filled with an immense inner calm, and finally went outside for some peace and quiet. It was the first time I felt clear headed and connected to the flow of time around me. The good news was I was a student, without a job or money, and with ADD, so I never got around to repeating the experiment or I could easily have become addicted to the stuff. The moral here is to remember different folks have different responses to the same drugs. My personal opinion is that if stimulants make you feel agitated, you probably don't have ADD. If you drink 6 cups of coffee and four colas then sleep like a baby, you might consider getting checked out.
-- By justpassingthru | Reply | (1) replies | Private Message me
January 31th
2009
1:37 PM
Have been on Cymbalta 30mg daily for a year. Started on Wellbutrin 50mg daily about 6 weeks ago to help with attention deficit. About 4 weeks or so ago I started having occasional muscle cramping in hands and feet. Yesterday I started with twitching of left eye. Last time I had the eye twitching it was the beginning of an allergic reaction to Prozac. I'm thinking even the low dose Wellbutrin may be too much. anyone else had this experience? I'm also starting to notice an increase in anxiety. Not sure if it's due to worrying about the cramping and twitching or the Wellbutrin itself. Any thoughts?
-- By gotconcerns | Reply | (2) replies | Private Message me
September 23th
2008
12:59 AM
My 9 1/2 yr old son started Singulair in July 2004 when he was 5 yrs old.Looking back now we realize that he started showing signs immediately. We only gave him Singulair in the fall when he had the most trouble with his asthma. His asthma was under control immediately but was not worth the damage that was done. He complained of pains in his legs that I just thought was growing pains. He would sometimes run a fever with no other symptoms of being sick and then the fever would go away. He would also feel like he always had to go to the bathroom, especially after he went to bed. I gave him Singulair at 7pm before he went to bed. The biggest change we noticed in him was the signs of attention deficit. We first noticed that he kept getting out of his seat at dinner time. No matter how many times we told him to sit down he would sit down and then a little while later he would get right back up. We realized after a while that he wasn't doing it to be defient he just couldn't help himself. I asked his Kindergarten teacher if he had trouble sitting in his seat or with attention but she didn't think he was any worse than any of the other Kindergarten kids. In 1st grade, at the beginning of the year, his teacher said he had trouble keeping his attention but then by January she said he was a different kid. We usually stopped giving him Singulair in December. The same thing happened with his 2nd grade teacher. I question his allergist in the fall of 2nd grade but his allergist said Singulair wasn't the cause for his ADHD symptoms. When his 3rd grade teacher contacted us in Oct 07 with the same complaints I realized that it must be the Singulair. I looked online for Singulair side effects and came across this website. I couldn't believe it. I was so disappointed in myself for not doing it sooner but we took him off Singulair immediately. I called his allergist the next morning and questioned him for a second time and he told me that sometimes parents of kids with ADHD just look for something to blame for their childs behavior. I couldn't believe he said it to me. We made an appointment at Children's Hospital Boston to have him evaluated for ADHD just in case but couldn't get an appointment until Feb 08. When we had him evaluated he had been off Singulair for over 3 months. The neurologist said he did not have ADHD. When I asked him if he thought Singulair could have been to blame for the symptoms he was showing and he said there was "compelling evidence" that showed Singulair does cause ADHD symptoms in some children. We were happy that he did not have ADHD but were so sad that we gave him this medicine for 3 years without realizing what damage it was doing. My biggest fear now is that there may be long term damage. All his symptoms have gone away but sometimes he still seems a little out of it and I don't know if it is just his age or his personality or if it might still be some long term effect from the Singulair. He is such a sweet, loving, caring boy and I hope that I didn't do any long term damage by giving his this horrible medicine. I hope that something will be done soon to get this medicine off the market. My prayers go out to all the families who lost children on this medicine. I can't even imagine the pain you are feeling but I thank you for getting your story out and saving other children! I am thankful that I was able to get informed by this website because God knows my allergist wasn't looking out for my son! His asthma has been under control since being off Singulair and just seems like a happier child over all!
Thank you!
May 16th
2008
9:23 PM
This is a follow-up. I have posted about our experience before, but to summarize: 6 year old boy on Singulair for over three years for Asthma. Drug worked wonders, but side effects developed so slowly that we thought those were "phases" that would go away. Side effects were just as everyone else reported: nightmares, fears, depression/sadness (we even went to a child psychologist since we thought this behavior was all due to father's deployment), aggressiveness, crying at the drop off a hat (like a 2 year old, not age appropriate), attention deficit, school performance dropped, and also, at the very end, obsessive compulsive behavior.
We stopped Singulair as soon as we heard about the FDA investigation (on NPR, about 6 to 7 weeks ago). Asthma has not worsened, thank goodness, so we make due with the Flovent for now. Most of the side effects were less prominent after some time, however the obsessive compulsive behavior stopped only a few days ago. We have better days, we have worse days, but slowly the better days outnumber the bad, aggressive, and negative ways.
What I read again and again in the postings is that we all assumed our children entered a bad "phase." A phase that just got worse and never ended!
Reading about the very same side effects in our children, over and over again, alarmed me. Taking my son off the Singulair and seeing the improvements, some faster some slower, totally convinced me. I will never ever have Singulair in my house again.
April 26th
2008
3:32 PM
My symptoms are the same as all (anxiety, mood swings, low sex drive) and I plan to have this thing taken out ASAP. It has been so bad lately that I cannot function. I've had more panic attacks than I can count in the last couple of weeks. What I want to know is how people fare on the other side of things. I would imagine it takes a while for your body to regulate after removal, but how long. And to echo- no more artificial things in my body.
Side note- has anyone tried cold shower therapy, apple cider vinegar or lemon balm for the anxiety? (******)
March 21th
2008
10:43 PM
My daughter is three and a half. She has been a Singulair since she was 18 months old. She has also been on oral pred, xopenex, pulmicort for her asthma. Last fall, her pediatrician (the same doc who put her on Singulair) diagnosed her as hyperactive and probably attention deficit. She is often difficult to manage. Her pre-school teacher has complained that she is disruptive in class. She speaks at a shout, is demanding and interrupts people constantly. She has been gaining weight -- and I'm worried that even though she is 3 1/2 she is wearing a size 5. She has also developed the hard-blink tic. Her pediatrician has recommended she see a neurologist for the tic. Thanks heavens a neighbor saw a news story on the side effects of singulair and told me about them. I am taking her off the drug now.
-- By mfunk | Reply | (1) replies | Private Message me
March 6th
2008
9:34 AM
If you want to see the story about the SINGULAIR AND SUICIDE click on on this page and the news affiliates have the video and the story.
-- By kate2 | Reply | (1) replies | Private Message me
Singulair (4) Mirena (2) Wellbutrin (1) Adderall XR (1) Adderall (1)
April 20th
2009
10:57 PM
I cannot believe that all these symptoms come from the Mirena. Does any one know how this can come about? My doctor insists none of my has noting to do with the Mirena!! and my physician doctor don't state anything about it being negative!!! Since the day after I had it put it i had hip swelling and it finally went away, but then would come back. I have my Mirena put in a year ago and still had periods, and it seems like I had some symptoms and then when I had my period they would go away for awhile. The last 2 months I have not had a period and it seem like my body is all out of whack!!!! This swelling or fluid is on my hip, and goes to my groin area and with awful back pain. This is the longest I have had this. I have had an aura migraine last month, I've noticed that i get headaches, my eyes are sensitive to light, my eyes get blurry easy, i'm tired,depressed, anxious , weak. and I feel like I have vertigo all the time!!! it's really getting worse also. My conclusion is that this is an foreign object in our bodies and we are suppose to have menstrual periods and this is stopping that therefore the body is reacting to these side effects because we have stopped something that is suppose to be a natural thing. Our menstrual!!! Let me know what you think? I have been going crazy only feeling good maybe 7 hours out of a 7 day full week!!!!
-- By isabell320 | Reply | (2) replies | Private Message meI have been to the doctor about my problems and they just keep treating me for a pinch nerve and fluid in my ears!!!