Auto immune disorder symptoms and conditions

I have been on Prednisone 40mg x 5 days and am now reducing to 30mg x 5 days followed by a 10mg reduction q 5 days until I am off the med. I have read your blogs and my heart goes out to you all.

Has anyone lost their sense of taste? I can only taste salty things, but just the salt only. I have the nausea, stomach pains, depression, mood swings, inability to focus and a tremendous amount of 'floaters' in my eyes. In general, I am extremely drug sensitive, but the Prednisone has brought me to a place I don't want to be.

I welcome your input on the sense of taste issue. Thanks in advance for your comments.

I will be on prednisone for the rest of my life so my Pulmonologist says. I have an auto-immune disorder called allergic broncho pulmonary aspergillosis. I thought I was alone until I read all your messages when it comes to leg, and joint pain. My doctor acts as if I am crazy, and that it is not a side effect of the medication I am taking. It has gotten worse the longer I have been on the drug. I rarely sleep, and I have an appointment with him tomorrow. If anyone can suggest something that helped them I would love to hear it. I have tried everything, and the only relief is when I take pain medicine which I do not want to be on forever.

I can't believe that after months of searching for an answer to my daughter's health problems I may have found it! My daughter was a healthy, active happy child until recently. She is 17 and started experiencing joint, bone and muscle pain and swelling, unexplained rashes, migraines, tingling in her hands and feet and was diagnosed with neurocardiogenic synchrony (heart rate and bp out of synch) shortly after her first shot (she was 14).

We have been to a rheumatologist for the joint pains, they did blood work and there is a marker for some sort of auto immune disorder, but nothing specific.

I never connected the dots to the shots. In January of this year she started having severe diarrhea, stomach and intestinal pains. She has no energy, the most basic activities wear her out. We ended up at a gastroenterologist looking for a diagnosis (they thought it was Crohn's or lupus). All the tests have come back negative, they said she had gastritis and blew us off. She is on medicine for the intestinal pain, a prescription for an antacid for gastritis and an anti-inflammatory for the joint and bone pain.

She was a straight "A" student up to January and has had to finish her junior year at home. It has been a very stressful experience for all of us.

Hi...Am 33 years and had been on prednisone for 4 months till about a month ago. It was in June last year that I was down with Viral hepatitis along with pyelonephritis. I was eventually diagnosed with Autoimmune hepatitis and therefore administered this drug with an high of 40mg for two and gradually tapered subsequently.
Two months of medicines and I had this pain in my thighs especially when I had to get up after lying sedentary. After 1.5 months subsequently the pain worsened to now include all my joints including the leg muscles. Things have really become more painful now. The gastroentorologist who put me on this drug has advised me to see a rheumatologist. Now I am torn between trying to understand whether this is a part of my treatment or my ailment (rheumatoid arthritis is also an auto immune disorder) and only praying that it is a part of the treatment.
The Doctor's have not been clear on how long this pain will persist. Regular walking, getting up, getting out of the car, turning the cap of a bottle is painful and getting worse with my ankles and knees swelling.
The moon face, the hump, the acne are all ebbing. However this pain is killing. Anybody has any idea how long the pain will last?
Thank you and best wishes to you.

Oh My Gosh - as I sit here with abdominal cramps typing my experience - I can see the light at the end of the tunnel. I started taking Lisinopril in late April 2008. On May 2 I had severe abdominal cramps and massive vomiting for 8 hours. Finally got myself to ER after I sent my family on to our vacation (I joined 2 days later). The ER attributed it to food poisoning. Lo and behold, I had another "attack" on May 9th. Back to ER I went (my husband witnessed my attack and insisted I go). They took X-rays and MRI - found intestinal inflammation but didn't know why. My internest send me to gastro dr. Third attack hit on June 5th and gastro doctor sent me to major hospital ER. They, too, did MRI & blood work. Looked at gall bladder, pancreas, stomach, intestines, etc. They found intestinal inflammation. Gastro Dr. took more blood and did more test (CT, MRI, Colonoscopy, Endoscopy). He couldn't find anything so he sent me to rheumatologist. She did add'l blood work and genetic testing. She though I had an auto-immune disorder - like Mediterranean Familial Fever! Please...! But all her tests came back negative. She too had no answers, only treatment for symptoms - Colchicine and Prednisone. Yuk. After having my 8th debilitating attack yesterday (since May), I've had enough. I went to the Web and found this wonderful site - along with some others with helpful info. I don't have confirmation that the lisinopril is causing this - but it sure sounds like it. I am a 49 yr old female and I've had no "life changing" events in my life (except for this nastiness) and have been on no other meds. I find it interesting that out of all the doctors I've seen - and all knew of the lisinopril - that none suspected this as a side effect.

Hello, I'm 30 yrs old and I had the mirena for about 5 yrs. The reason I had it for so long is that I have a auto immune disorder and I thought it was coming from that. But now that i'm listening to everyone else, It's starting to make even more sense. I remember before I got it put in; I didn't experience any problems and I had the immune disorder than but it didn't bother me physically. When my 5 yrs. was up I had it removed and I started to feel much better. What was really dumb is that I had it replaced not knowing that it may be the mirena. Now, I have it in for 3 months now and I feel worser than the first insert. I have high blood pressure now and I never had a problem with that before. My hot flashes has begun after the second insert and I'm having more and more panic attacks now and the only thing that I can do is cry feeling alone and that my family did not understand what i am feeling. I cried to my mom and told her what's wrong with me and I told her it's not the auto-immune disorder because those symptoms only give me dry eyes and nose and other salivary gland problems. I'm having hot flashes and not able to sweat and also feeling bloated even more in my waist line and what tops the cake is that I'm getting pre-cancerous cyst on my cervix now, It's has to be check every month. I told my doctor that maybe it is the mirena and he said no because the hormone only stays below my waist and I said well my cervix is below my waist. My mom said it's the mirena. I'm glad I found this website.

I have been on Singulair for about 2-3 years during which time I have lost a considerable amount of hair. It is quite noticeable. My hair hairdresser said "this is not good" the last time I got a haircut. I also have bad dreams, fatigue and irritability. I want to try something to replace the sinulair for asthma, but am trying to avoid steroids. Any suggestions? Would appreciate any information on a class action suit if the hair loss is not reversible when discontinuing product..

Lupron can give you a horrible auto immune disorder. It did to me. I'm not kidding. Get off of it as soon as possible. You can email me for more info. This stuff is toxic and the FDA dropped the ball on approving it for use on us. I got terribly sick using this and I was so active and healthy before. I tried to sue them. Got bullied by their defense attorneys. I'm still sick. All the sickness was drug related. Trust me. Get off this drug. You are better off taking pain meds for any endo or whatever hurts than to put this in your body. Sorry to scare you. Be smart get off the stuff.

Was on Prednisone 2 years ago for respiratory problems 30mg. Gained 25 pounds, fat face, felt tired, etc.

However 2 years later, after weaning off Prednisone my muscles ache, joints are most always stiff, esp. hands plus my feet feel numb and my short term memory has not returned to normal----does any one else out there have similar problems. What can be done?

I am so glad I found this site. I have been experiencing severe joint pain and constant edema. I never even thought it could possibly be the toprol xl 50 mg I have been on for over a year now. I have had extensive blood work to find out why I have such joint pain and everything has been coming out normal! I am in pain EVERY day...and it has been getting worse. I do have a thyroid condition (which was also recently checked and all the blood work was fine), because I got terrible joint pain as a symptom of Hashimoto's thyroiditis (an auto-immune disorder) way back in 1999 when I was first diagnosed. So, when this terrible joint pain returned, I was sure it was the thyroid and that my medication for THAT would have to be adjusted. Needless to say, I was shocked and concerned that my thyroid numbers are all normal.
I cried today over this pain...I am only 44 years old and I feel like I'm 90 years old. Maybe fate led me here tonight. It may or may not be the toprol causing all of this pain, but at least I have some hope now. I am scared because since I do have an "auto-immune" disease, I am apparantly at a much higher risk of developing other auto-immune diseases....so perhaps it is not the toprol. I HOPE IT IS THOUGH...

I have recently been perscribed Methylpred for an Auto-Immune Disorder, the doc said he just doesn't know which one, yet. This stuff is awful. I read all the side effects before I even started taking the stuff. I feel like someone is ripping my insides out most of the time. My whole entire body hurts, I keep moving because it is like if I slow down or sit for a few seconds the pain just hits me in a rush. I don't feel like I even sleep at night. It is horrible. I haven't had the mood swings yet, and I am on the Fourth day. This stuff is from Hell, let me just say!!!