Autoimmune diseases symptoms and conditions

Let me start by giving you some history.

My sister is a 22 year old girl who worked full time and was never seriously ill until this summer.

During the last full week of June my sister started having headaches. She told me that these headaches were like none she had ever had before. Days later she started complaining that her legs and wrists hurt. She said that her legs were so tired and achy she could barely walk up the stairs. At that time I dismissed what she was saying. My sister constantly wears heels and I chalked up the complaint to a pair of shoes that were not yet broken in.

By July 4th, the headaches were so intense that she went to urgent care. The physician she saw in urgent care gave her an antibiotic and sent her on her way. By July 7th, she was having difficulty standing up and walking was almost impossible. My sister started complaining about severe joint pain. Her ankles began to swell and her stomach appeared distended.

On July 8th, my sister went to her primary care physician. I believe he sent her for an x-ray and said that she had a cyst on her sinus cavity which was causing her to have severe headaches. He then gave her another antibiotic and referred her to a rheumatologist never even thinking that these two symptoms may be related.

On July 10th, my sister saw the rheumatoid arthritis doctor her pcp referred her to. He dismissed her complaints saying that she probably has some form of arthritis, but that there are over 800 forms and it would takes months to pin point exactly which one she has. He then gave her a prescription for Celebrex and sent her on her way. She spent the entire week in bed because her joints were so swollen and achy that she could not move. She actually crawled to go to the bathroom.

By the middle of the following week, my sister's stomach began to burn. She contributed it to being a side effect of the Celebrex and stopped taking it on July 21st. We had no idea that the pain was so bad. My sister's last normal meal was on July 22. By the 23 she had no appetite and could not go to the bathroom. On July 24, the stomach pain was so bad that she could not work, or sit, or function. All she did was cry. She went back to her primary care physician who then prescribed her prevacid to help with the so called indigestion. He told her if the pain continues she could call him. On July 25th the pain became unbearable. My sister called her PCP as directed and he told her to go to the ER. Never once did he say he would meet her there! I brought my sister to the ER where they did an x-ray and cat scan of her stomach. They found nothing. At that time my sister had not gone to the bathroom or had anything to eat since the 22nd. The physician in the ER said that she was literally "full of shit" and needed to go home and take a liquid laxative. My sister is only 22 and my parents were away on vacation. We were stupid and didn't know any better and were so happy that they didn't find anything that we accepted his findings and got out of there.

My sister took the liquid laxative prescribed by the ER physician as soon as we got home. We waited anxiously for it to relieve her stomach pain. After many hours the laxative did not work and my sister ended up back in the ER. This time she was screaming in pain. One of the doctors there told her that if she couldn't calm down she needed to leave her ER. My sister did just that. At this point my parents (back from vacation) took my sister home and called Digestive Disease. A doctor there told my mom to give my sister 2 Enemas. He said that should relieve her pain. My mother followed the doctor's orders, but the pain did not stop. Sunday, July 27th my sister was right back in the ER - this time at another hospital. This time my sister was admitted to the hospital for severe stomach pain. After 5 days and numerous tests my sister was discharged. The doctors found nothing in her cat scans, x-rays or ultra sounds. The pain was more manageable (she was on morphine every 2 hours) and they said she was ok to go home.

August 1st my sister had a great day. She was sitting up in bed and seemed to be in good spirits. The following day she couldn't get out of bed. This time it was neck pain. My sister said the pain in the back of her neck was so severe that she could not lift her head up or move it side to side. By August 4th she was admitted to the hospital again. This time we brought her to University Hospital in Syracuse, NY. We were sure to get some answers there...or so we thought. As soon as my sister arrived in the ER they started treating her with antibiotics. They were certain she had an infection. They then told us they would have to do a lumbar puncture to check her spinal fluid for infection. We thought we would finally have an answer to what was wrong with my sister, so we agreed. The spinal fluid came back fine - no infection. At that time they admitted her to the hospital. While at University Hospital my sister was treated by a team of doctors. They tested my sister for lyme disease, west nile, lupus, leukemia etc. They performed a spinal tap, cat scans, x-rays, ultra sounds, blood smears, etc. All of these tests came back negative. The doctors could find nothing abnormal except for an elevated white blood count -22,000 (it was also very high during her last hospitalization), an elevated C reactor and a very high SED rate. After 4 days of numerous tests and pain killers (first morphine, then Dilaudid, then Dilaudid with a fentanol pain patch) they discharged my sister. The head doctor told her that he believed she had viral meningitis and that it would eventually work its way out of her system. By this point my mother and I were skeptical. We did the research and viral meningitis should only last approximately 10 days. Mig had been sick since the last week in June. No one was putting all these symptoms together. On the day of her discharge my sister started getting her stomach pain back. The pain was mostly on the left side of her lower stomach - under her belly button. Again she was told the pain was due to constipation and she should buy some Miralax when she got home.

My sister was home for a mere 2 days before she would be hospitalized again...for the 4th time. Her stomach pain was back and worse then before. My family could not believe this was happening. My sisters spirits were down and the excruciating pain was making her mentally unstable. This time the ER physician recommended a hematologist come in to see my sister. We just wanted answers so we agreed. This hematologist, Dr. R stated that she believed my sister had drug induced lupus. We were shocked as my sister was tested for lupus twice before and both times the test came back negative. Dr. R explained that she believed my sister got drug induced lupus from the Gardasil shot. My entire family was shocked. We had never heard of any severe side effects like this from the Gardasil shot. Dr. R asked my sister for her permission to test her again. My sister agreed and a week later my sister learned that she was positive for drug induced lupus. My entire family was so happy that my sister finally had a diagnosis and could begin treatment. We were told that after a 6 week steroid treatment (Prednisone) my sister would be back to her old self. We were ecstatic!

My sister was home from the hospital and on the steriod treatment for 10 days when things started to go wrong again. The doctors were very concerned with the dosage of Prednisone that my sister was taking (80mg. I'm not sure how many times a day). They cut the dosage down in half over the course of a few days to prevent kidney damage and other side effects. Once the Prednisone was decreased, my sister started getting sick immediately. Her forearms were very weak - she could not put any pressure on them. Her shoulders would tingle and she would get shooting pains down her right arm. One of her doctors believed she was developing fibromyalgia and prescribed her lyrica. Shortly after my sister began taking lyrica she started seeing stars. She had double vision and a migraine that would not go away. My mother called her doctor and told him about this. His answer was for my sister to stop taking the Lyrica. She did immediately.

On August 29th, my sister still had a migraine. This was day 3 without a break. She woke up early Saturday morning and began vomiting every 30 minutes. After a few hours of non stop vomiting my mother called her doctor. His nurse practitioner was on call and she told my mother to take my sister to the ER immediately. My mother went back into my sister's room to tell her they had to go back to the hospital and she found my sister having a seizure. My sister has no history of seizures. My mother called 911 and the ambulance came to bring my sister back to the ER...her 5th hospitalization.

Shortly after arriving at the ER, my sister had another seizure. Immediately after the seizure the ER doctor ordered my sister to have an MRI. My sister had one during her last hospitalization only 2 weeks before. That MRI was normal. This one was not. There are lesions all over my sister's brain. The neurologist told us that he cannot believe she does not have permanent damage. According to him there is no oxygen going to her brain.The neurologist also explained to us that her brain looks as though she has been poisoned. He said that her MRI is very similar to an MRI of a patient who has been poisoned with antifreeze. Later I learned that Gardasil has both aluminum and sodium borate (which is in both rat poison and cockroach killer). However, according to the doctor once your brain looks like my sister's all the poison is out of your body. My sister's team of doctors started debating as to whether this could all still be from the Gardasil shot...my sister's last shot was on 02/22/08. Some believe that the side effects started off as mild, but since they were left untreated for so long they've turned into a serious neurological problem. They told my family the only way to truly know what is going on is to do a brain biopsy.

Yesterday, my sister was transferred to Mass General in Boston. We were hoping for a bigger hospital, better technology, more seasoned doctors. So far my sister has been treated badly. When my mother told the doctors' about the Gardasil shot and the devastating effects it has had on my sister they dismissed it. When my mom asked the doctors to test my sister for heavy metal toxicity they completely ignored her. I fear that she will never get the proper care.

I have been reading all of these posts and have another question. I hope that someone can help. My daughter, 8 years old, has been on Singulair since she was 4. She is normally a very happy girl with a wonderful disposition. For the last year or so, she has been having trouble getting herself to sleep at night. She says that she hears things in her head such as ringing or "noises". A few hours before she knows it's bedtime, she cries and when we ask her why she's crying, she can't give us a reason. We initially thought that she was crying for no reason because she didn't want to go to sleep. I remember reading about the side effects of Singulair causing mood swings, etc., but her's are not violent mood swings. Just very emotional and has a hard time coming down from the "episode". I'm at a loss...I have not talked to her doctor yet about it, but have told her that we will make an appointment this week to discuss it with him. My husband suggested that maybe it sounded like she was having a panic attack or anxiety attack. I hate to label her as that at such a young age. My mind now goes back to the side effects of Singulair and maybe this is to blame. Any help or suggestions would be greatly appreciated. Thank you! Concerned Mom

I have been on Loestrin 24 for 2 years!! And I am finally getting off... and so happy to find this site! I have had to be put on Topamax because my migraines became so bad, which helped my weight gain (that I attributed to my own depression that I thought was my own fault!) I didn't even realize bc could cause depression but it all makes sense! I came on here to find out if Loestrin has been the cause of my SEVERE HAIR LOSS over the past year and a half! When I started taking it, I was also going through a stressful situation and thought that was the cause, but have now realized that my life is back to normal that something else must be causing it. I tried to get my Dr. to take me off of Loestrin about a year ago due to the EXTREME nausea, dizziness, headaches and fatigue that it was causing and he decided that I should just be put on Topamax because I was just a Migraine sufferer! What a nightmare. I can't wait to switch tomorrow!!

Such severe lower abdominal pain, was forced to go to ER overnite. Wondering about possibility of a free class action lawsuit, or other RETALIATION against the drug manufacturer. Also need company CEO's name, home phone#, and cell# if possible.

-Thanx.

I was diagnosed with strep throat about 1 week ago and at first the doctors tried to kill me! They had prescribed amoxicillin--I am allergic to anything with "cillin" in it, and before heading home, I caught the mistake. The doctor apologized profusely, and then prescribed me erythromycin. Upon taking this drug, my face became swollen, and my eyes were itchy and red and my throat stung and my ears burned like fire! I returned to the doctor's office, and he was like, "oh, well, you're allergic to this, too! I'll give you some Bactrim. It helps for UTI's". I don't have an UTI, but I was desperate for anything to stop the burning pain. After taking Bactrim(sulfamethoxazole trimethoprim) for two days, my throat felt much better and the ear pain was gone, but I had a horrible rash on my chest, arms, back, and face. My eyes became itchy and puffy, and after day six of the treatment, I stopped taking my medicine. I couldn't take the rash or the itchy eyes anymore. Something strange happened: I felt just great! My skin had cleared, and no more itchy, puffy eyes! Now, two days later, I wake up to another sore throat AND itchy, puffy eyes. I do not have insurance, and any treatment I receive comes straight from out my own pocket. Could this stuff be silently killing me? Please someone help me with this strange dilemma

Has anyone had a problem with mouth or tongue sores? My oral surgeon elimnated anything serious, but still can't for sure tell me why the left side of my tongue is sore and red. Leiton planus was mentioned, I found that on one site to be associated with certain blood pressure medications.

Hello EveryOne out there...OK OK....

Now Why have I been out of touch since Sept 14th.... 2007???

I have been VERY VERY ill.....

Y'See, I went to see this new Doctor (Quack) for continued pain in my chest (sternum) area....that I have been having trouble with all Summer. (Severe Costochondritis/Fibromyalgia) By Sept 14th, this Quack who claims to be a Doctor had given me this prescription for Prednisone pills (20 mg each)....with orders to take mega doses of this toxic poison in order to combat the pain I was suffering. I was so desperate to get out of pain that I went ahead and filled the prescription and started taking the pills that eventful Friday night. I made the fatal mistake of trusting this Doctor!!!

If I had any sense God gave green apples I would have researched this a little before taking this medicine!! I would have run like all heck in the opposite direction!

I had been taking these reccomended large doses for approx two weeks back then per Doctor 'Quack's' order.... I have been hooked after the first week....and now currently desperately trying to get off of it with only marginal success!!

I have been on this Prednisone crap for some 49 days, currently and desperately trying to get off of it....with terrible side effects!! I have experienced every side effect known to the Devil himself and even discovered some new ones that I never knew was possible!? Case in point! I can't sleep night after night without terrible withdrawals all night long!!! I am forced to contend with them every night here. Not to mention I fight the withdrawals all days long too. I have this inept doctor and I am sorry I even went to him in the first place...!

The withdrawals I am now getting are harder to deal with than the original chest pain itself!!! Not to mention even eating the so-called 'wrong' foods sets off even more withdrawals almost immediately. I am now extremely sensitive to light and the sun~ not to mention.....noise....and stress....

I am much sicker from this Quack Doctor's so-called "HELP" than I ever was before....

I don't mind saying his name and trying to steer everyone away from this jerk Doctor here in Las Vegas who takes advantage of people in pain when they are desperate by feeding them toxic poisons and passing the poison off as something harmless thats gonna help them??? Just ask me who he is and I will tell you. I have no qualms about it....

Bottom line is I have spent this last month trying to get off this crap and I just found out that the withdrawals may bother me up to a YEAR after I take my last dose of this crap poison!! I have been going thru H***!!! A nightmare I would LOVE to pass onto this Quack who pretends to be a doctor!

I am down to about 7.5 mg per day now from about 180 mg that he gave me originally Sept 14 2007. Believe me this was not easy thing for me to do. I went "Toxic" on this drug weeks ago and it has affected my ability to process, think and reason properly. I feel like part of my mind is now missing or went on permanent vacation!! Dizziness,feeling like I'm gonna pass out, Brain Fog and Mass Confusion is the order for the day~depending on the time of day???

"The side effects of prednisone include adrenal suppression, which can occur with periods of prednisone use to surpass seven days. Adrenal suppression refers to the body’s inability to synthesize natural corticosteroids, resulting in a dependency on the prednisone taken by the patient. This is why doctors do not recommend the cessation of prednisone when the patient has taken it for longer than seven days. They reduce the dose gradually over a few days in the case of short-term prednisone use, and over weeks or months in the case of long-term treatment. Stopping prednisone treatment abruptly can cause the life-threatening Addison’s disease, in which in the body no longer produces sufficient amounts of adrenal steroid hormones"

I want to SUE this Doctor for making me this sick!!!!!

SDR

GRRRRRRRRRrrrrr!!!!!!!

Hello,
My journey with Minera started in September 2005, two months after the birth of my second daughter.

Previous to the insertion of Minera and the birth of my daughter I was under the care of a rheumatologist for chronic knee and foot pain. I was never diagnosed with any specific disease or disorder. When I became pregnant with my daughter in May 2004 all of my pain vanished. I stopped seeing the doctor and had a normal pregnancy.

My pain symptoms started to return shortly after I gave birth and in September 2005 I decided to have Minera put in. I had no problems with the insertion and after bleeding for about 6 weeks my period stopped. I had some cramping here and there but no more period. I felt great!

My pain symptoms worsened over time and I developed more problems. none of which I related to Minera. My problems were:

Terrible joint pain and swelling in my knees
Pain that radiates from my lower back to my feet
Pain in my right ring finger
Stiffness
TMJ
Insomnia
Hair loss
Weight gain
Irritability
Mood swings
Scarring acne
Fatigue
Lack of interest in sex
Swelling in my feet

I started to believe I had something really wrong with me. I did research and found a lot of my symptoms were in sync with Fibromyalgia. I started seeing a new rheumatologist who did tons of blood work and x-rays on me. After all the results came back she said I did not test positive for anything. She diagnosed my with rheumatoid arthritis because I had all the clinical symptoms. She prescribed prednisone and placqunel (sp?) for the arthritis which seems to be helping.

I was on a parenting forum I frequent the other day and I saw a post form a woman complaining about all the side effects of Minera. I did some research and found this site and another
http://curezone.com/forums/f.asp?f=713
It's like a light bulb went off. All of these things that I have been suffering with seem to be related to the IUD.

So I would like to hear from some of you ladies that have had Minera removed already. Do you feel better? Are your side effects gone?
Also has anyone removed Minera themselves?

I took Levaquin in March of 2004, for a spider bite. I had a 5 day dose pack. After the 2nd pill, I started having nightmares (I usually never remember my dreams), but attributed them to the spider bite. By the time I finished the meds, I had swollen hands, almost fell over when I got out of bed one morning, as I have no sense of balance, was having nighttime chills, along with many other things. Three and 1/2 years later, I have had to make my rings bigger, and my muscle pain still exists. I believe it is getting worse. I have been tested for Lupus, RA, and other autoimmune diseases, all neg. I still have an abnormally low platelet count which stated shortly after the levaquin too. I am thinking of contacting a lawyer, as this drug needs to be taken off of the market.

I took Yasmin for 6 months. During this time I started feeling tired and achy and having joint pain. I also noticed an increase in headaches,forgetfulness, and weight gain. I had blood work done testing me for autoimmune diseases, thyroid problems, arthritis, etc. I have been off Yasmin for 1 month now and I am feeling much better.

Took Levaquin for UTI for 10 days. After about 2-3 days, began to have symptoms of sciatica; severe pain from lower back, down the buttocks, backs of the legs, into the knees, ankles, and feet. The bottoms of my feet, my heels, and my ankles ache constantly. Especially painful to stand, walk after sitting just a few minutes. Forget what it feels like to get out of bed in the morning. I was in such pain, that bt the end of the day, my legs, knees and feet hurt me so bad.
I also was very anxious, worried, angry, biting people's head's off, not very patient.
I felt as if I'd been doing rigorous exercise and was paying for it was muscle and joint pain. But I had not. Instead, I had been sick with the UTI. I also had halucinations at night, to the point where I sincerely thought something was in my room...saw flags waving in the air, streamers coming down from the ceiling. They were so real that I'd reach up to touch them, then they'd fade away. My husband says that I shouted in my sleep, and would begin frantically tossing and turning as if being shaken.
Also, I take other medications like Lipitor, Synthroid, Celexa, Ditropan, Vioxx, and thought (and still think) that Levaquin, combined with these other medications, caused this serious side effect. I have never in my life experienced this kind of ongong pain.
It has been at least 3 1/2 months since I took the Levaquin. I have had 2 blood tests to check for autoimmune diseases like Rheumatoid Arthritis and Lupis. One test came back positive, so another further test was done. It then came back negative for autoimmune diseases. I thought why did these symptoms all of a sudden appear out of nowhere? I know I couldn't have pulled any muscles to cause this much pain. It has been a constant 24-7 aching pain, from my lower back down. I have had no relief from any pain medication to date. I am now taking Feldene for inflammation. What next? Possible MRI to check for a bulging disk says my neurologist.
I feel that as patients we need to be our own advocates and learn all we can about any medication prescribed to us, BEFORE we begin to take it. Do not take your doctor's word and "WISDOM" for granted, do research first. Then decide to take the medication or not based on the listed side effects. DO NOT MESS AROUND WITH YOUR LIFE! I'm not even 40 years old yet, and I feel that I am an OLD WOMAN, and that I should'nt have THIS much discomfort. I'm 99% sure that this sudden onset of symptoms is not arthritis, etc. but merely a side effect of Levaquin. PATIENT BEWARE!!!!!!!!!!