Autoimmune disorder symptoms and conditions

cannot believe how many stories I have read about mirena and hair loss etc..etc.. etc.. I have experienced many of the side effects that everyone is mentioning.. I actually feel I could live with most of them if it weren't for the hair loss. I have had ( copying from other post.. ridiculous right?)Tired all the time ~ Depression ~ Hungry all the time ~ leg cramps ~ HAIR LOSS TO THE POINT OF BALDING IN SEVERAL AREAS ~ oily skin and bad breakouts ~ Mood swings (huge...yelling fits at my husband and the kids) ~ fluttering in uterus~Sore breasts.. I have medium thick hair that is about 10 inches. I noticed a bald spot in June and now have discovered 4-5 others starting. I just had the iud removed today and my OB pretty much tried to convince me that there is no way that the IUD is causing my issues. I have never had any of these issues before. I got the Mirena on 4/30 of 08 and noticed slowly but surely all of the side effects mentioned. My OB told me that the progesterone could not be causing my issues because it is such a small dosage that it would be comparable to spitting in the ocean as far as the amount that is in my blood stream. She said because I am black and 35 that I may have an autoimmune disorder and that I should stop reading blogs. I told her that all of my research wasn't from a blog and that ALOPECIA is a side effect just not mentioned in my pamphlet that I can find. I understand what she is saying and that she is the one that is the dr. but nobody knows my body better than I do.. I am in it!! I have !never had any problems and have been healthy my entire life. There is no history of autoimmune disease in my family. I am going to my primary care doctor.. to have some blood tests done. I think that the mirena has caused an autoimmune response in my body.. it may not necessarily be the progesterone..although I don't rule it out no matter what she says . the progesterone is synthetic and has an androgynous like activity that is similar to testosterone the main thing that causes male pattern baldness. also Mirena is made out of Silicone.. perhaps those of us that are having hair loss are having it due to our body trying to fight off the foreign invader of the IUD itself. I was going to go and have the Paragard inserted.. because i was thinking it may just be the progesterone.. nope... I read that many women are complaining of ACNE and HAIRLOSS even with that because its made out of copper. So with that being said.. not sure what to do.. may have to go back on Yasmin.. didn't seem to have any problems with that.. I really just don't want to risk putting another hormone in my body.. We all need to get together and look into a class action suit because I am tired of being made to feel crazy by doctors.. sometimes what seems to not be possible is .. especially when there are so many women having the same problem. Feel free to e-mail me re: a class action suit.. if they took depo off Mirena needs to come of too. It seems like it has really screwed a lot of peoples system up.. Hopefully I won't find out I know have a thyroid problem etc.. etc..

cannot believe how many stories I have read about mirena and hair loss etc..etc.. etc.. I have experienced many of the side effects that everyone is mentioning.. I actually feel I could live with most of them if it weren't for the hair loss. I have had ( copying from other post.. ridiculous right?)Tired all the time
~ Depression
~ Hungry all the time
~ leg cramps
~ HAIR LOSS TO THE POINT OF BALDING IN SEVERAL AREAS
~ oily skin and bad breakouts
~ Mood swings (huge...yelling fits at my husband and the kids)
~ fluttering in uterus
~Sore breasts..

I have medium thick hair that is about 10 inches. I noticed a bald spot in June and now have discovered 4-5 others starting. I just had the iud removed today and my OB pretty much tried to convince me that there is no way that the IUD is causing my issues. I have never had any of these issues before. I got the Mirena on 4/30 of 08 and noticed slowly but surely all of the side effects mentioned. My OB told me that the progesterone could not be causing my issues because it is such a small dosage that it would be comparable to spitting in the ocean as far as the amount that is in my blood stream. She said because I am black and 35 that I may have an autoimmune disorder and that I should stop reading blogs. I told her that all of my research wasn't from a blog and that ALOPECIA is a side effect just not mentioned in my pamphlet that I can find. I understand what she is saying and that she is the one that is the doctor, but nobody knows my body better than I do.. I am in it!! I have never had any problems and have been healthy my entire life. There is no history of autoimmune disease in my family. I am going to my primary care doctor.. to have some blood tests done. I think that the mirena has caused an autoimmune response in my body.. it may not necessarily be the progesterone..although I don't rule it out no matter what she says . the progesterone is synthetic and has an androgynous like activity that is similar to testosterone the main thing that causes male pattern baldness. also Mirena is made out of Silicone.. perhaps those of us that are having hair loss are having it due to our body trying to fight off the foreign invader of the IUD itself. I was going to go and have the Paragard inserted.. because i was thinking it may just be the progesterone.. nope... I read that many women are complaining of ACNE and HAIRLOSS even with that because its made out of copper. So with that being said.. not sure what to do.. may have to go back on Yasmin.. didn't seem to have any problems with that.. I really just don't want to risk putting another hormone in my body.. We all need to get together and look into a class action suit because I am tired of being made to feel crazy by doctors.. sometimes what seems to not be possible is .. especially when there are so many women having the same problem. Feel free to e-mail me re: a class action suit.. if they took depo off Mirena needs to come of too. It seems like it has really screwed a lot of peoples system up.. Hopefully I won't find out I know have a thyroid problem etc.. etc.. ******e-mail me with Mirena in the subject line!!

Hi I am 31, have been put on prednisone for a pinched nerve in my shoulder blade. Iv taken two pills of 10 mil. For two days. one pill a day for two days. I'm stopping now. I feel so tired weak and unable to exercise. My chest is so heavy and heart flutters. I'm a smoker so it seems worse after a cigarette. I also have a few glasses of wine a day. I'm so frightened at these feelings. My tummy is now bigger in just that short of time. I really wish I knew all this first. Can any one tell me how long before I'm normal from the short usage. Please this really sucks and very scary. Also the smoking and alcohol how does it effect this? Please

I'm 15 years old and i've been taking prednisone for a few months, and from what i've read i'm on a really high dose. i was diagnosed with rheumatoid arthritis and another autoimmune disorder concerning my muscles at the same time. my doctor told me prednisone was my only choice; it was either that or i would lose the ability to walk. he told me there'd be side effects, but i had no idea it'd turn out like this or i would have fought harder for another course of action. i started out on 30mg twice a day, and since then was weaned down to 20mg twice a day and now i'm down to 30mg once a day. i've been looking up a bunch of information trying to figure out if there's a way to lessen the side effects or any hope at all that they will get better. apparently there isn't much. after reading a bunch of these stories i gotta say i'm not feeling great about this. i totally understand everything everyone is going through. i'm sure you can imagine what it's like being smack in the middle of high school with a huge puffy face, acne so bad on my face, chest, back, neck, and shoulders that wearing a bra could put me in tears, and mood swings so bad i've lost friends over it. everyone knows how brutal high school can be, where appearance and attitude are everything. and i try to tell my doctor about it and he literally looks at me like i'm a whiny teenager and says "you're just going to have to deal with it." and people like my mom and my closest friends don't get it either. nobody understands how beyond frustrating it is. i'll get into the worst moods and not have a reason for it, but i'll stay angry for hours or burst into tears over someone looking at me the wrong way. it'll get to the point where i have to isolate myself from other people because the abrubt mood changes get so bad. as bad as i hate to admit it, the pain from the arthritis is gone now and supposedly my muscles are doing better too. developing arthritis caused me to have to quit cheerleading, something i've loved doing for 6 years, because the pain got to the point where i couldn't get my arms above my head or bend my knees. however, i'd almost rather deal with the horrible joint pain than deal with the side effects of prednisone. if your doctor gives you and alternative method, take it. i've always been confident in the way i look and really outgoing and happy and now i sometimes catch myself thinking about suicide. that's shocking to me because i've got so much going for me, but this medicine makes me miserable. and when i complain about it, anyone i'm talking to just looks at me like i'm being a cry baby. my mom does too, she'll say things like "you just have to do this. i know it's not what you want but to be honest i'm sick of hearing you bitch about it."
i feel a little better knowing other people feel the same way - like nobody gets whats going on with them. the prednisone does give me days of really great euphoria and days when i feel like i could run a marathon, but waking up in the morning to the acne and huge face puts me to tears every day. i have to pee all the time, usually getting up at 2 or 3 am. i don't sleep well anymore and i do sweat all the time. which also sucks being a teenage girl. i'm always hungry, and when i eat i never feel full so i don't know when to stop. my neck and face have put on so much weight that when people see me in the halls or out and about they ask me what happened. mind you these are people i don't talk to, just ones i know from classes or whatever. and it's pretty bad when teenage boys i've never really talked to ask what happened to your face. kind of a blow to the ego, or whatever is left of it at this point.
i'd like to know if, as my dosage gets lowered, the side effects will diminish and when i'm off the prednisone completely if they will disappear altogether. any help there?
or if there is any way to help the acne or puffy face

my doctor just put me on something called methotrexate or something like that to help wean me off the prednisone, and does anyone know what those side effects will do? or if they'll affect the prednisone side effects?
i'm constantly obsessing over gaining weight and what my skin looks like and what i eat and how heavy my face feels and the occasional pressure in my eyes to the point where i just want to be put out of my misery.
and after reading other people's stories i really don't understand why this drug is still given out as freely as it is. but maybe all doctors are like mine, they just don't get it.
best of luck to anyone who's on prednisone, my heart goes out to you; i'm right there with you
sorry this became like a book it wasn't meant to be this long

Hi, my name’s M. and I posted my story on here about a month ago. Unfortunately, I’ve made no progress. I was hospitalized again mid-October for numbness and tingling sensations in my legs, which is a symptom of guillian-barre syndrome and supposedly needs to be treated very carefully. I had an mri of my brain again, this time including my spine to check for possible tumors. I was sent home the next day, negative for guillian-barre, but having received no answers. I was crawling up the stairs by this time, and was too weak to walk without holding on to furniture to support myself. My legs felt like cement blocks, and the neurologist specifically said, “I don’t know why you can’t walk.”
Since then, I’ve developed acute mononucleosis, which increases my fatigue and muscle pain, and causes me to sleep about 15 hours a day. Recent blood work also showed I was positive for an autoimmune disorder called Myositis, which is a painful disorder that causes the body’s immune system to attack its muscles and connective tissue. I was referred to a rheumatologist, who was the least sympathetic person I’ve met in my life, and told me my physical exam was perfect, so she felt the Myositis must have been a false positive. She re-ran the blood work, and the Myositis was negative. This is of course a relief, but how we’ll ever know which test is correct, I don’t know. The rheumatologist did notice the weakness in my legs and my difficulty walking, and suggested physical therapy to help gain my strength back. She also prescribed an anti-inflammatory medication that took away almost all of my pain. Thank God, something finally worked for me. We then saw the physical therapist who said, “We can probably make you stronger, but I’ve never seen anything like this before.”
I’m seeing an osteopathic specialist who is convinced my illness is directly related to Gardasil. Through ancient medicine methods, she introduced a vile of Gardasil to my system and noticed an immediate weakness. I’m not sure if I totally believe in her practice, but the fact that she noticed a rejection to Gardasil the minute she introduced it is enough to convince me. She believes that my immune system was basically poisoned by the vaccine, which is causing it to fight off things I need. She also said it probably doesn’t recognize the mono as an infection, and decides not to fight it. For a normal, healthy person, mono can last up to 3 months. For someone like me, no one knows how long it could last. It was my immune system’s weakness that allowed me to develop mono, and it was the Gardasil that weakened it in the first place. So thank you Merck, for yet another thing I have to deal with.
And that brings us to today. I’ve missed about 30 days of my freshman year, so I’m assuming summer school will be necessary. My high school won’t provide a tutor, so I can only take my core curriculum classes, and am having difficulty keeping up with just those few. I’ve gained some strength in my legs, and it’s a little easier to walk with the anti-inflammatory, but I still can’t walk very far without resting. I’m also taking an anti-depressant to help me focus-hopefully it’ll lift my spirits. Since I received the vaccine, my periods have been painful and irregular. The constant nausea, headaches, and occasional stomach pain/joint pain continues, along with extreme fatigue.
The doctors make me feel like a crazy person who faked this to get out of school. How could I possibly fake nausea for thirteen weeks straight, and pain that kept me up crying almost every night? How could I fake my difficulty walking while it’s causing me to miss both of my volleyball seasons? Before this, I had hardly missed a day of school in my life, and refused to stay home whenever I got the flu because I hate falling behind. I’ve played volleyball tournaments with sprained ankles and chipped elbows, I can handle pain, and I’m not a baby. If the doctors would take five minutes out of their time to try to get to know me, maybe they would see that. And the few who actually take the time to be pleasant don’t listen. They tell you they know, that they understand, but they don’t. They won’t drag themselves out of bed in the morning feeling nauseous and half asleep; they’ll be able to walk into their office without feeling like they want to collapse, and they’ll go home to the people who care about them and will actually be awake long enough to enjoy their company. No one will tell them they’re insane, and the worst part is that most of them won’t take the time to realize how blessed they are just to have the ability to do those things. How can the doctors not have sympathy when they’re the ones who put this poison inside of me?!
I know I’m very lucky compared to girls who have experienced more serious side effects, and am thankful that we were able to make a connection between my illness and Gardasil after the first shot. But I’m living proof of what just one stupid shot can do to you-how can you put yourselves or your daughters at risk of what I’ve gone through? The benefits are not just worth the risk..
My 15th birthday is coming up in just a few weeks, and all I want is to be normal again.

I have been on 20 mg Lipitor for years, and as I also have Rheumatoid Arthritis, all my symptoms have been blamed on that. I have been diagnosed with Fibromyalgia and put on Lyrica because of the muscle aches and depression. My lower back, hurt in a car accident when I was 17 years old, had gotten so much worse that I had 12 steroid shots in my lower spine a couple of years ago. They didn't help my back at all, but my blood sugar went from normal to diabetic levels, and I am now on Byetta to try to lower it.
I am a 56 year old woman who was the math specialist in a school district until last December when I had to retire early. My back pain was so severe that I could no longer go from school to school carting materials. I could barely make it from the parking lot to my office. Mentally I was not ready to retire, but physically, I was (and am) a wreck. I have severe muscle pain in my shoulders, sometimes one or the other, but always present. I have tingling in my right hand, especially in my fingertips, and have trouble gripping and drop things easily. In the last few months the pain in my right thigh and calf has gotten unbearable. I thought at first it was sciatica, but I have had sciatica before, and this isn't the same, although there is tingling, burning , but the pins and needles is so deep in the muscles I have just sat and cried, or wanted to scream. I have wished I could just cut my leg off. And...I am on some pretty heavy duty pain killers for the RA: a small dose of prednisone plus Enbrel, Methotrexate, and Vicodin, and this pain is cutting right through all these meds. I get severe headaches, I went off Lipitor for 5 days and seemed a little better, but then went back on, and it came back.
Since I no longer work, I sleep longer, am exhausted ALL the time, have terrible mental fog, am clumsy, cannot stand for more than a minute or so without wanting to scream, cannot walk more than a few yards...just getting to the car is an ordeal. I tell people that I can only shop in shoe stores and furniture stores...the only stores with places to sit down.
I no longer cook or clean, cannot play with my granddaughter, even holding a book to read can be too much, and I love reading. I feel I am just dying bit by bit as I lose parts of myself.
My doctor is really into lowering cholesterol, and has put me on Zetia in the past few months...and it has been in this time that the pain in my leg has gotten unbearable. He wants my cholesterol to be between 50-60, and has said that the Zetia along with the Lipitor will do that. Is this normal or in any way reasonable??? I am having a full blood workup done tomorrow morning, and I want to go off the Lipitor starting the day after.
I came across this web site tonight while looking up Lipitor side effects, and I am shocked. I have so many of these symptoms, and there are so many I had no knowledge of at all. I knew about the muscle aches, but that's all. I hope someone can help me with what supplements and vitamins I should be taking. I started taking CoQ10 a month or so ago. What else should I be taking for my health? I know vitamin C and fish oil, but don't know how much or anything else. Right now I am just stunned with the thought that all of these problems that have left me unhappily retired, exhausted and in constant pain can all be caused from a drug I have been taking to help me be healthier.

READ THIS BEFORE YOU GET VACCINATED:

This is from Merck's website:

Serious Adverse Reactions in the Entire Study Population
A total of 237 subjects out of 25,274 total subjects (9- through 45-year-old girls and women; and 9-through 15-year-old boys) who received both GARDASIL (N = 13,686) and AAHS control (N = 11,004) or saline placebo (N = 584) reported a serious systemic adverse reaction following any vaccination visit during the clinical trials for GARDASIL.

Out of the entire study population (25,274 subjects), only 0.05% of the reported serious systemic adverse reactions were judged to be vaccine related by the study investigator. The most frequently reported serious systemic adverse reactions for GARDASIL compared to AAHS control or saline placebo and regardless of causality were:

Headache ,
Gastroenteritis ,
Appendicitis ,
Pelvic inflammatory disease ,
Urinary tract infection ,
Pneumonia ,
Pyelonephritis ,
Pulmonary embolism .
One case (0.007% GARDASIL: 0.0% AAHS Control or Saline Placebo) of bronchospasm; and
2 cases (0.02% GARDASIL: 0.0% AAHS Control or Saline Placebo) of asthma were reported as serious systemic adverse reactions that occurred following any vaccination visit.
In addition, there was 1 subject in the clinical trials, in the group that received GARDASIL, who reported two injection-site serious adverse reactions (injection-site pain and injection-site joint movement
impairment).

Systemic Autoimmune Disorders in Girls and Women 9 Through 26 Years of Age

In the clinical studies, 9- through 26-year-old girls and women were evaluated for new medical conditions that occurred over the course of follow-up. New medical conditions potentially indicative of a systemic autoimmune disorder seen in the group that received GARDASIL...includes all subjects who received at least one dose of GARDASIL.

Of the 10,706 who received Gardasil:

120 developed Arthralgia/Arthritis/Arthropathy
4 developed Autoimmune Thyroiditis
10 Coeliac Disease
2 Diabetes Mellitus Insulin-dependent
2 Erythema Nodosum
27 Hyperthyroidism***
35 Hypothyroidism†
7 Inflammatory Bowel Disease‡
2 Multiple Sclerosis
2 Nephritis¶
2 Optic Neuritis
4 Pigmentation Disorder§
13 Psoriasis#
3 Raynaud's Phenomenon
6 Rheumatoid Arthritis††
2 Scleroderma/Morphea
1 Stevens-Johnson Syndrome
1 Systemic Lupus Erythematosus
3 Uveitis

6.2 Post-Marketing Experience
The following adverse events have been spontaneously reported during post-approval use of GARDASIL. Because these events were reported voluntarily from a population of uncertain size, it is not possible to reliably estimate their frequency or to establish a causal relationship to vaccine exposure.

Blood and lymphatic system disorders: Autoimmune hemolytic anemia, lymphadenopathy.
Gastrointestinal disorders: Nausea, pancreatitis, vomiting.
General disorders and administration site conditions: Asthenia, death, fatigue, malaise.
Immune system disorders: Autoimmune diseases, hypersensitivity reactions including anaphylactic/anaphylactoid reactions, bronchospasm, and urticaria.
Musculoskeletal and connective tissue disorders: Arthralgia, myalgia.
Nervous system disorders: Dizziness, Guillain-Barré syndrome, headache, motor neuron disease, paralysis, seizures, syncope sometimes resulting in falling with injury, transverse myelitis.
Vascular Disorders: Deep venous thrombosis, pulmonary embolus.

Pediatric Use
Safety and effectiveness have not been established in pediatric patients below 9 years of age nor in pediatric males of any age.

Hi All - I have been off prednisone for one week and I am not doing as well as I thought I would be at this stage. My symptoms are not flaring, which is a very good thing but I am so tired and feeling very depressed and low energy. I thought I'd feel great once I was off the evil prednisone but so far I am feeling almost as bad as when I was on it. My moon face has not started to go away, which sucks, but I guess I have to be patient. I am so tired of this situation as it feels never ending. Part of the problem is I have continued to work throughout my ordeal, and it's been very hard at times to carry on like a normal person who is not sick. I have been sick since last November (with an autoimmune disorder) and I had really hoped by this time that I'd be on my way to being better :( Prednisone saved my life but the side effects are horrendous, as are the after affects of it. Good luck to all who are taking it. I share your pain and frustration.

NuvaRing was great for me for years and then I began experiencing most of the symptoms noted by others. However, when my LYMPH NODES become ENLARGED AND PAINFUL I realized it was time for me to take out the ring and give my body a rest from the foreign substance. Once I removed the ring completely, within two-weeks my HAIR BEGAN TO FALL OUT each time I washed it. After weeks, my JOINTS became so INFLAMED I could not walk even though I had been working out four-days per week for many years prior. I also experienced HAIR AND SKIN TEXTURE CHANGES, and ONGOING FLU-LIKE SYMPTOMS which included: BODY ACHES, SEVERE FATIGUE, NIGHT SWEATS (DRENCHING), HEADACHES AND WEIGHT LOSS. I saw numerous doctors to try to figure out what was happening to my body. After over a year, I was diagnosed with an AUTOIMMUNE condition (SLE). It has been two-years now, since permanently removing NuvaRing, and my condition has improved with time but my IMMUNE SYSTEM is still out of whack and my LYMPH NODES ARE STILL ENLARGED throughout my body. If anyone else has these systems and has been diagnosed with an AUTOIMMUNE DISORDER after using NuvaRing, please respond. CAUTION: please be careful young women as added hormones are not good for our bodies and really should not be pushed so readily by the health care profession. Also, keep in mind that your doctor will not back you when you are experiencing problems from medications that he/she prescribed. You will ultimately be told that the medication did not cause the problem in order for him/her to avoid becoming a party to a lawsuit.

I started full body internal itching after taking 10 days of Singulair. The physician that prescribed it said it couldn't cause itching. My new doctor tested for Lupus, I have an autoimmune disorder called Churg Strauss. After undergoing several steroid treatments and 3 days of IV Prednisone I got some relief. This has been going on for 6 months now. The itching becomes severe enough to make me want to commit suicide. Luckily it is pretty controlled by taking nightly doses of Atarax along with Periactin. Thank God I found a doctor who cared enough to search out the symptoms and help me get thru day by day.

Given Biaxin XL by an ENT for 3 weeks and my throat and tongue have not been the same for three months! I have an enlarged lymph node on my neck which at first only caused pressure with no other symptoms. A ENT explained that a antibiotic for three weeks is protocol and if the lymph node did not become smaller I would be sebt for a CAT scan and biopsey. So I followed the doctors orders ... by the 18th day of BIAXIN my heart was racing so fast at night , it was very frightening. My heart would skip beats and race at other times following the first episode. Finally I finished the medication and haad no change in size to this lymph node. Finally had a CAT scan and biopsey... biopsey only showed that the lymph node was " reacitve" not benign and thta CAT scan confirmed it's size. Within a few days of stopping the medication my throat felt funny, swollen, dry and sore and my saliva would not go down easily it felt stuck in different places. MY tongue eventually had ulcers on it and would be swollen when I would wake in the morning. My mouth would feel pasty and the back of my throat was bright red. When I went back to the ENT she tried to tell me I was fine and these symproms are probably from av virus... and if they didnt go away... she handed me another script for Biaxin. I ofcourse got a second opinion and was told I probably had reflux desease and was sent to a stomach doctor . I had an EGD and ofcourse they threw in a colonoscopy because " you might as well have it done at once while your put out ". Afterward I was told I had gastritis but that it was mild and probably from the Biaxin . All in all this doctor had no idea why my throat and tongue felt the way they did. He told me my esophagus was fine.. so maybe I should see a rheumatologist because I could have an autoimmune disorder. At this point Im going on almost two months of this balogna and the run around. My internist decides to draw my blood for HIV, all kinds of Hepatitis, lupus, rheumatoid arthritis, sed rate for inflammation , CBC to see if my white cells are O.K. , folate B12 , thiamine. All come back negative and show thta I am HEALTHY. I have lost 10 pounds and have lost all of my faith in doctors. A third ENT does alargoscopy and says my throat is irritated but he doesny know why... I decide to go to a larger facility that specializes in the throat. This becoming costly my family is begining to look at me as if I am nerotic. For a few weeks previous I only eat bland food and drink lotes of water.The doctor at this facility after examining my mouth and throat says my throat looks well and my tongue is swollen "glossitis" with geographic tongue... which is something modern medicine cant figure the cause of. He tells me I probably had a very bad yeast infection in my throat from all the Biaxin and Iahve managed to fight most if not all of it off. He asks that I swish ans spit NIASTAIN for two weeks. My tongue isnt swollen any longer but Is till get patches that come and go. The back of my throat still is inflamed especially if I have anything with ketchup or mayo. Something I never had a problem with. And I still wake up with the feeling that there is a film on the back of my throat or mucus on the back of my tongue near my throat. As if something is draining, and it isnt my sinuses. This is annoying and has been a horrible experience.I hope this crap goes away completely. I will nver take BAIXIN again. I think I had a horrible adverse reaction and my good bacteria was demolished from this crap. My body is trying so hard to recover and it will but its taking a long time because of this horrible medication!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Been on Prednisone about 6 weeks. I've had muscle fatigue, especially when its hot out (walking through a parking lot on a 100 degree day takes a little longer than I'd like). One thing I haven't seen mentioned here is that I have lost lean body mass. I had been having my body fat tested by a personal trainer (pinch calipers) before and after I started (30 mg/day for lung restriction (62%)/inflamation/collagen vascular disease/immune mediated lung disease/likely Mixed Connective Tissue Disease/autoimmune disorder). After 1 month on prednisone, despite the fact that I have continued to work out (cardio and resistance), I lost 3 lbs of Lean Body Mass. 3 weeks later I had lost another 3 LBM, and gained 1 lb fat mass. I'm glad to have kept my overall weight down, and my circumference measurements haven't gone up, but there is definately a redistribution of fat.

Other side effects moon face, acne, depression, energy swings (up/down). Heart burn, went from 8 hours sleep to 5 1/2 - 6 average, and facial hair growth. The overwhelming hunger (not just being hungary, but eating a full meal and not feeling satiated at all) has subsided for the most part. The drug is not fun. My doctor is now having me start imuran with the hope of lowering/eliminating the prednisone, but imuran has its own side effects.

The hardest part is that the doctors don't know what will work, its guess and check...When the side effects overshaddow the initial symptoms, is it worth it?