Autoimmune response symptoms and conditions

cannot believe how many stories I have read about mirena and hair loss etc..etc.. etc.. I have experienced many of the side effects that everyone is mentioning.. I actually feel I could live with most of them if it weren't for the hair loss. I have had ( copying from other post.. ridiculous right?)Tired all the time ~ Depression ~ Hungry all the time ~ leg cramps ~ HAIR LOSS TO THE POINT OF BALDING IN SEVERAL AREAS ~ oily skin and bad breakouts ~ Mood swings (huge...yelling fits at my husband and the kids) ~ fluttering in uterus~Sore breasts.. I have medium thick hair that is about 10 inches. I noticed a bald spot in June and now have discovered 4-5 others starting. I just had the iud removed today and my OB pretty much tried to convince me that there is no way that the IUD is causing my issues. I have never had any of these issues before. I got the Mirena on 4/30 of 08 and noticed slowly but surely all of the side effects mentioned. My OB told me that the progesterone could not be causing my issues because it is such a small dosage that it would be comparable to spitting in the ocean as far as the amount that is in my blood stream. She said because I am black and 35 that I may have an autoimmune disorder and that I should stop reading blogs. I told her that all of my research wasn't from a blog and that ALOPECIA is a side effect just not mentioned in my pamphlet that I can find. I understand what she is saying and that she is the one that is the dr. but nobody knows my body better than I do.. I am in it!! I have !never had any problems and have been healthy my entire life. There is no history of autoimmune disease in my family. I am going to my primary care doctor.. to have some blood tests done. I think that the mirena has caused an autoimmune response in my body.. it may not necessarily be the progesterone..although I don't rule it out no matter what she says . the progesterone is synthetic and has an androgynous like activity that is similar to testosterone the main thing that causes male pattern baldness. also Mirena is made out of Silicone.. perhaps those of us that are having hair loss are having it due to our body trying to fight off the foreign invader of the IUD itself. I was going to go and have the Paragard inserted.. because i was thinking it may just be the progesterone.. nope... I read that many women are complaining of ACNE and HAIRLOSS even with that because its made out of copper. So with that being said.. not sure what to do.. may have to go back on Yasmin.. didn't seem to have any problems with that.. I really just don't want to risk putting another hormone in my body.. We all need to get together and look into a class action suit because I am tired of being made to feel crazy by doctors.. sometimes what seems to not be possible is .. especially when there are so many women having the same problem. Feel free to e-mail me re: a class action suit.. if they took depo off Mirena needs to come of too. It seems like it has really screwed a lot of peoples system up.. Hopefully I won't find out I know have a thyroid problem etc.. etc..

cannot believe how many stories I have read about mirena and hair loss etc..etc.. etc.. I have experienced many of the side effects that everyone is mentioning.. I actually feel I could live with most of them if it weren't for the hair loss. I have had ( copying from other post.. ridiculous right?)Tired all the time
~ Depression
~ Hungry all the time
~ leg cramps
~ HAIR LOSS TO THE POINT OF BALDING IN SEVERAL AREAS
~ oily skin and bad breakouts
~ Mood swings (huge...yelling fits at my husband and the kids)
~ fluttering in uterus
~Sore breasts..

I have medium thick hair that is about 10 inches. I noticed a bald spot in June and now have discovered 4-5 others starting. I just had the iud removed today and my OB pretty much tried to convince me that there is no way that the IUD is causing my issues. I have never had any of these issues before. I got the Mirena on 4/30 of 08 and noticed slowly but surely all of the side effects mentioned. My OB told me that the progesterone could not be causing my issues because it is such a small dosage that it would be comparable to spitting in the ocean as far as the amount that is in my blood stream. She said because I am black and 35 that I may have an autoimmune disorder and that I should stop reading blogs. I told her that all of my research wasn't from a blog and that ALOPECIA is a side effect just not mentioned in my pamphlet that I can find. I understand what she is saying and that she is the one that is the doctor, but nobody knows my body better than I do.. I am in it!! I have never had any problems and have been healthy my entire life. There is no history of autoimmune disease in my family. I am going to my primary care doctor.. to have some blood tests done. I think that the mirena has caused an autoimmune response in my body.. it may not necessarily be the progesterone..although I don't rule it out no matter what she says . the progesterone is synthetic and has an androgynous like activity that is similar to testosterone the main thing that causes male pattern baldness. also Mirena is made out of Silicone.. perhaps those of us that are having hair loss are having it due to our body trying to fight off the foreign invader of the IUD itself. I was going to go and have the Paragard inserted.. because i was thinking it may just be the progesterone.. nope... I read that many women are complaining of ACNE and HAIRLOSS even with that because its made out of copper. So with that being said.. not sure what to do.. may have to go back on Yasmin.. didn't seem to have any problems with that.. I really just don't want to risk putting another hormone in my body.. We all need to get together and look into a class action suit because I am tired of being made to feel crazy by doctors.. sometimes what seems to not be possible is .. especially when there are so many women having the same problem. Feel free to e-mail me re: a class action suit.. if they took depo off Mirena needs to come of too. It seems like it has really screwed a lot of peoples system up.. Hopefully I won't find out I know have a thyroid problem etc.. etc.. ******e-mail me with Mirena in the subject line!!

I took 20 mgs a day for 5 days in September of 2006. I developed a terrible cough, but worse than that, severe chest pains & shortness of breath upon exertion. I still can't go up & down stairs; my pain is brutal and it's going on 3 years since it all began. Before I took the lisinopril, I hadn't been having any chest pains or trouble breathing.

Is there any hope of recovery? My doctors all say they've never heard of this kind of side effect; that lisinopril is a very common drug; it's clear that I have reduced lung function & definite pain & symptoms, but there is no way to isolate the exact thing causing it or to figure out how to make it go away; just to control the symptoms.

My theory: the lisinopril triggered an autoimmune response in which my body physically tries to reject my own lungs. Any thoughts on that one? I had been taking cozaar as an ACE inhibitor to slow the rate of my renal failure; I have type 1 diabetes and hypoparathyroidism, and while I needed meds before this episode, all I had to do then was manage my diabetes & I was able to live normally. Since this, it's been nearly impossible to do ANYthing. I am at the end of my rope & I want this to stop. But 3 years later, and while the shortness of breath is improved, the pain is actually worse now. I could sure use some advice & support. I'm on my way this week to get set up with a new dr. because we've moved, and I'm going to have to go through this whole thing again. Also - I'm trying to compile a list of other people who have had side effects with chest pain & shortness of breath. Also anxiety & panic attacks as collateral damage.

Hi, my name’s M. and I posted my story on here about a month ago. Unfortunately, I’ve made no progress. I was hospitalized again mid-October for numbness and tingling sensations in my legs, which is a symptom of guillian-barre syndrome and supposedly needs to be treated very carefully. I had an mri of my brain again, this time including my spine to check for possible tumors. I was sent home the next day, negative for guillian-barre, but having received no answers. I was crawling up the stairs by this time, and was too weak to walk without holding on to furniture to support myself. My legs felt like cement blocks, and the neurologist specifically said, “I don’t know why you can’t walk.”
Since then, I’ve developed acute mononucleosis, which increases my fatigue and muscle pain, and causes me to sleep about 15 hours a day. Recent blood work also showed I was positive for an autoimmune disorder called Myositis, which is a painful disorder that causes the body’s immune system to attack its muscles and connective tissue. I was referred to a rheumatologist, who was the least sympathetic person I’ve met in my life, and told me my physical exam was perfect, so she felt the Myositis must have been a false positive. She re-ran the blood work, and the Myositis was negative. This is of course a relief, but how we’ll ever know which test is correct, I don’t know. The rheumatologist did notice the weakness in my legs and my difficulty walking, and suggested physical therapy to help gain my strength back. She also prescribed an anti-inflammatory medication that took away almost all of my pain. Thank God, something finally worked for me. We then saw the physical therapist who said, “We can probably make you stronger, but I’ve never seen anything like this before.”
I’m seeing an osteopathic specialist who is convinced my illness is directly related to Gardasil. Through ancient medicine methods, she introduced a vile of Gardasil to my system and noticed an immediate weakness. I’m not sure if I totally believe in her practice, but the fact that she noticed a rejection to Gardasil the minute she introduced it is enough to convince me. She believes that my immune system was basically poisoned by the vaccine, which is causing it to fight off things I need. She also said it probably doesn’t recognize the mono as an infection, and decides not to fight it. For a normal, healthy person, mono can last up to 3 months. For someone like me, no one knows how long it could last. It was my immune system’s weakness that allowed me to develop mono, and it was the Gardasil that weakened it in the first place. So thank you Merck, for yet another thing I have to deal with.
And that brings us to today. I’ve missed about 30 days of my freshman year, so I’m assuming summer school will be necessary. My high school won’t provide a tutor, so I can only take my core curriculum classes, and am having difficulty keeping up with just those few. I’ve gained some strength in my legs, and it’s a little easier to walk with the anti-inflammatory, but I still can’t walk very far without resting. I’m also taking an anti-depressant to help me focus-hopefully it’ll lift my spirits. Since I received the vaccine, my periods have been painful and irregular. The constant nausea, headaches, and occasional stomach pain/joint pain continues, along with extreme fatigue.
The doctors make me feel like a crazy person who faked this to get out of school. How could I possibly fake nausea for thirteen weeks straight, and pain that kept me up crying almost every night? How could I fake my difficulty walking while it’s causing me to miss both of my volleyball seasons? Before this, I had hardly missed a day of school in my life, and refused to stay home whenever I got the flu because I hate falling behind. I’ve played volleyball tournaments with sprained ankles and chipped elbows, I can handle pain, and I’m not a baby. If the doctors would take five minutes out of their time to try to get to know me, maybe they would see that. And the few who actually take the time to be pleasant don’t listen. They tell you they know, that they understand, but they don’t. They won’t drag themselves out of bed in the morning feeling nauseous and half asleep; they’ll be able to walk into their office without feeling like they want to collapse, and they’ll go home to the people who care about them and will actually be awake long enough to enjoy their company. No one will tell them they’re insane, and the worst part is that most of them won’t take the time to realize how blessed they are just to have the ability to do those things. How can the doctors not have sympathy when they’re the ones who put this poison inside of me?!
I know I’m very lucky compared to girls who have experienced more serious side effects, and am thankful that we were able to make a connection between my illness and Gardasil after the first shot. But I’m living proof of what just one stupid shot can do to you-how can you put yourselves or your daughters at risk of what I’ve gone through? The benefits are not just worth the risk..
My 15th birthday is coming up in just a few weeks, and all I want is to be normal again.

I have major bad effects from strong perfumes, more of a chemical intolerance/autoimmune response (body aches, fatigue, irritability, difficulty concentrating) than nasal or sinus type reaction. This gets worse as the years go by. One of my former coworkers drowned herself in strong perfumes every day. I felt like I had the flu all the time and my other co-workers could barely smell the perfume. My doctor put me on Singulair. It was like a miracle, I was almost unaware of the perfume and my symptoms were gone. I left that job at the end of Feb. 07 and stopped the Singulair immediately. Within 4 or 5 days, I was completely crippled by lower back pain, right at the top of the pelvic bone, started in one side then moved to the other. Spent most of a week not being able to move, walk, etc. I started another job mid-May and started the Singulair again due to the entire place being landscaped with jasmine, another of my major triggers. I left that job after 4 weeks, stopping the Singulair immediately again. Now, several days later, the back problems are returning and worsening. I've never had lower back problems in my life. I am thinking that the crippling back pain may be due to the sudden cessation of Singulair. Any thoughts on that, anyone? I also wish I had read these comments earlier, because during my last 3+ weeks on Singulair, I was waking up after a couple hours of sleep and unable to go back to sleep due to mind racing, was uncharacteristically unable to cope with stress, etc. It was a nightmare that I blamed on the new job and now am wondering if it was not caused by Singulair.