February 4th
2008
8:35 PM
I have been taking Remicade for years. At first it was getting the job done. I started having severe pain that seemed to migrate to different places in my body. Sometimes the bottom of my feet would get so tender I could barely walk. My finger would bend while sleeping and I could not straighten it for days and it would hurt real bad. Knees and ankles would do the same things and then move onto other parts of my body. I thought it was more of a tendon problem, but the pain could also be in any random spots on my body, like shins or maybe a random place on my back. My wrists seem to be a favorite place too. The pain can set in fast and sometimes leave fast. Prednisone is the only thing that seems to help these symptoms. I have been taking 5mg a day for years and when I am having problems that is not enough. I went to a Rheumatologist and he says it is not the Remicade but another antimmune problem. My family doctor thinks it is a side affect of the Remicade and I tend to agree with him. I am going to have my damaged pouch removed in hopes of getting off all medications. I have been living with a colostomy bag for the past three years and it is the least of my problems. Before that I had all my large intestines removed and a pouch which worked well for approx 15 years. I am one of the early people to receive that kind of surgery. I can only pray for all of you that are suffering and lend hopeful advise to your journey.
-- By jbill | Reply | (4) replies | Private Message me
January 26th
2008
6:53 PM
I was given 20 mg of Prednisone for 10 days for a rash and joint pain.
The pain went away and I felt great the rash got a little better. Two days ago I took my last pill. I woke up that night and my knees gave out. By morning I was great! Next night I woke with knee problem again had to slide down the stairs to the living room. I got to wondering if the knee thing could be associated with the Prednisone. I got on line and read all this terrible stuff. I am so Horrified! Today I am in pain like my body is bruised and my face is swollen a little. I have acid reflux as well. Non of this is typical for me. My knee thing is ok again, but I am just appalled! I have no MED insurance. I hope this isn't the beginning of worse things I am not taking that drug now. The Dr. didn't say I needed to taper...
I hope I have not damaged myself by taking this drug! My heart goes out to all of you! My question is - Why are the Dr.'s prescribing this terrible drug?
-- By harvesterbornagain | Reply | (24) replies | Private Message me
April 30th
2009
7:30 PM
have been taking 20mg for about two weeks. a couple days after i started taking the stuff i started experiencing chest pains at night that would wake me up, coupled with leg pain. it's getting worse; now, after two weeks i am having severe lower back pain that radiates down both legs, similar to sciatica, happens at night but continues throughout the day. also leg spasms at night. i am stopping zocor today. can't face this pain anymore. i have bad knees, and recently had to have a cortisone injection, but this new pain is worse than the knees. owing to the chest pains, i had a stress test today at the heart group, and had such difficulty walking that i could barely make it down the hall with my cane. three of the nurses there said they hear this all the time about the statins, and that the doctors don't want to listen to the complaints but the nurses all agreed that the statins are the culprits. results on stress test were fine.
-- By jitjr | Reply | (1) replies | Private Message me