Barre syndrome symptoms and conditions

I am relaying the story of the granddaughter of my boss. She was 15 when she got the first shot of Gardisil in May of 2007. Within hours of the shot, she collapsed and an ambulance was called because she had distressed breathing. She was taken to a hospital and was in intensive care for 2 weeks in and out of consciousness. In the meantime, her mother tried to get the shot records from the doctor's office that gave the shot. They did everything in their power to:
A.Dismiss the correlation between the shot and the girl's collapse, despite the girl being in good health before the shot.
and
B.Keep the parents from getting hold of the vaccination records.
It was like pulling teeth to even get the vaccination batch numbers, and finally the office told the parents that somehow, the girl's health records went "missing". Luckily, the parents still had copies of most of the doctor visits, plus the "aftercare" paper following the shot with vital information on it.

When the girl finally began to be able to sit up again and eat on her own, she experienced mental fuzziness, memory problems, and speech problems. She had perpetual tingling and jolts of pain on the arm that had gotten the shot, in her side and abdomen and down both legs. Three weeks after the shot, she tried to get up out of bed and found she could not walk. She was diagnosed tentatively with Guillain-Barre Syndrome, also with nerve damage. It took her three full months to walk again without help, and even now, a year and a half later when she comes into the office she still has a bit of a limp. She lost over 25 pounds, which is pretty sad as she was not overweight or anything. She now looks very skinny and sickly. She had to quit school and started being home schooled because of the physical and memory problems and depression. I feel so sorry for her and her parents, who thought they were doing the right thing.

Hi, my name’s M. and I posted my story on here about a month ago. Unfortunately, I’ve made no progress. I was hospitalized again mid-October for numbness and tingling sensations in my legs, which is a symptom of guillian-barre syndrome and supposedly needs to be treated very carefully. I had an mri of my brain again, this time including my spine to check for possible tumors. I was sent home the next day, negative for guillian-barre, but having received no answers. I was crawling up the stairs by this time, and was too weak to walk without holding on to furniture to support myself. My legs felt like cement blocks, and the neurologist specifically said, “I don’t know why you can’t walk.”
Since then, I’ve developed acute mononucleosis, which increases my fatigue and muscle pain, and causes me to sleep about 15 hours a day. Recent blood work also showed I was positive for an autoimmune disorder called Myositis, which is a painful disorder that causes the body’s immune system to attack its muscles and connective tissue. I was referred to a rheumatologist, who was the least sympathetic person I’ve met in my life, and told me my physical exam was perfect, so she felt the Myositis must have been a false positive. She re-ran the blood work, and the Myositis was negative. This is of course a relief, but how we’ll ever know which test is correct, I don’t know. The rheumatologist did notice the weakness in my legs and my difficulty walking, and suggested physical therapy to help gain my strength back. She also prescribed an anti-inflammatory medication that took away almost all of my pain. Thank God, something finally worked for me. We then saw the physical therapist who said, “We can probably make you stronger, but I’ve never seen anything like this before.”
I’m seeing an osteopathic specialist who is convinced my illness is directly related to Gardasil. Through ancient medicine methods, she introduced a vile of Gardasil to my system and noticed an immediate weakness. I’m not sure if I totally believe in her practice, but the fact that she noticed a rejection to Gardasil the minute she introduced it is enough to convince me. She believes that my immune system was basically poisoned by the vaccine, which is causing it to fight off things I need. She also said it probably doesn’t recognize the mono as an infection, and decides not to fight it. For a normal, healthy person, mono can last up to 3 months. For someone like me, no one knows how long it could last. It was my immune system’s weakness that allowed me to develop mono, and it was the Gardasil that weakened it in the first place. So thank you Merck, for yet another thing I have to deal with.
And that brings us to today. I’ve missed about 30 days of my freshman year, so I’m assuming summer school will be necessary. My high school won’t provide a tutor, so I can only take my core curriculum classes, and am having difficulty keeping up with just those few. I’ve gained some strength in my legs, and it’s a little easier to walk with the anti-inflammatory, but I still can’t walk very far without resting. I’m also taking an anti-depressant to help me focus-hopefully it’ll lift my spirits. Since I received the vaccine, my periods have been painful and irregular. The constant nausea, headaches, and occasional stomach pain/joint pain continues, along with extreme fatigue.
The doctors make me feel like a crazy person who faked this to get out of school. How could I possibly fake nausea for thirteen weeks straight, and pain that kept me up crying almost every night? How could I fake my difficulty walking while it’s causing me to miss both of my volleyball seasons? Before this, I had hardly missed a day of school in my life, and refused to stay home whenever I got the flu because I hate falling behind. I’ve played volleyball tournaments with sprained ankles and chipped elbows, I can handle pain, and I’m not a baby. If the doctors would take five minutes out of their time to try to get to know me, maybe they would see that. And the few who actually take the time to be pleasant don’t listen. They tell you they know, that they understand, but they don’t. They won’t drag themselves out of bed in the morning feeling nauseous and half asleep; they’ll be able to walk into their office without feeling like they want to collapse, and they’ll go home to the people who care about them and will actually be awake long enough to enjoy their company. No one will tell them they’re insane, and the worst part is that most of them won’t take the time to realize how blessed they are just to have the ability to do those things. How can the doctors not have sympathy when they’re the ones who put this poison inside of me?!
I know I’m very lucky compared to girls who have experienced more serious side effects, and am thankful that we were able to make a connection between my illness and Gardasil after the first shot. But I’m living proof of what just one stupid shot can do to you-how can you put yourselves or your daughters at risk of what I’ve gone through? The benefits are not just worth the risk..
My 15th birthday is coming up in just a few weeks, and all I want is to be normal again.

As a Doctor myself I think drugs are NEVER the answer except in EMERGENT issues in Heroic life saving... YOU however and all individuals are and should be MORE accountable for your own health and STOP DEMANDING the Drugs and look to LIFESTYLE changes in DIET and EXERCISE to achieve the GOALS so necessary for quality and quantity of life.... The tools are at your fingertips ... The almighty internet ... And your OWN imaginative mentation is your TRUE limitation... So TAKE control of yourself and BE accountable .... Sorry so blunt but MORE tough love and Educating people is whats needed.... NOT more drugs....

MDG

I Started taking Lisinopril a week ago. I been a zombie every since. I just found out it is Brazilian snake venom. The first time I taken it my bottom lip swelled. I was given benadryl. I cannot hardly function. I have nausea, i been vomiting, diarrhea, dizziness and right now. I feel like I have something in my throat. Feel like my tongue is swollen in the back. I feel like i'm stuck between a rock and a hard place. Because If I quit taking it. My pressure will rise. So, what's a girl to do?