January 22th
2010
7:14 PM
My brother is 12 years old he's been taking singular since he was 7 it has been a nightmare!! First he had all this mood swings,depression, weight gain,he was diagnosed with tourett's syndrome(twitching and tics) lately they got worst he started having bad dreams, an ulcer, and even thoughts of suicide, he tells my mom that he thinks we would be better if he was dead my mom took him to the doctor and doctor said he could have Bipolar disorder. Three months ago my 4 year old started taking it too for allergies and started having mood swings, behavior problems at school, bitting and hitting people which he didn't do before After that me and my mom started wondering if it was cause of the medication and started doing some research onlene and came upon this site and found out they are not the only one's having this side effects. I hope my story helps others because we have been through a nightmare with this medicine and i hope they could take it of the market. it has been a week since they got off and changes are noticable i just hope they are no permanent damages to my little brother that we love with all of our hearts
-- By paokami | Reply | (1) replies | Private Message me
August 18th
2009
9:06 PM
Our 2 yr old son was prescribed Singulair for allergies by his ENT. He did great for a month. then started waking up more often at night, talking in his sleep. Never a fussy child unless he was sick- suddenly whining, protesting, acting out of character. Screaming when he didn't get his way. I threw away the pills the night he woke with a blood-curdling scream climbing the walls in his room- hallucinating that there were bugs crawling in his room. His pupils were dilated, heart was pounding and he was scared to death. A friend warned me early on, told me of her daughters behavior problems from the drug and told me of this website. She is doing great on Allegra. My son was to go off the Singulair in a couple weeks of our stopping the drug anyway, hoping he wont need any further treatment.
-- By cgwaltney | Reply | (1) replies | Private Message me
June 5th
2009
11:15 PM
TO ALL
MY SON LOGAN IS SIX NOW AND JUST FINISHED KINDERGARTEN TODAY.
WHEN HE STARTED KINDERGARTEN HE WAS ON SINGULAIR FOR 4 YEARS. HE HAD ALL TH ADVERSE SIDE EFFECTS. TUMMY ACHES, CONSTIPATED, DIARRHEA, LEG CRAMPS TO POINT OF NOT WANTING TO WALK, BEHAVIOR PROBLEMS, HATED EVERYONE, NIGHTMARES, SEES GHOSTS, CRIED OFTEN.
ANYTHING SOUND FAMILIAR. HIS MOTHER THOUGHT HE HAD ADHD OR ASPERGERS AND PEDIATRICIAN AGREED WITH HER.
SOMEBODY THAT I THINK IS SPECIAL FOR ONE WAY OR ANOTHER KICKED ME IN THE RIGHT DIRECTION TO INVESTIGATE SINGULAIR IN EVERY ASPECT.
FIRST WEEK OF GARTEN I HAD TO HAVE A CONFERENCE WITH COUNSELOR AND THREE TEACHERS AND HIS MOTHER.
I LET THEM TALK AND EXPLAIN THEIR THOUGHTS ABOUT LOGANS PROBLEMS. I THEN DROPPED A BIG PACKET OF PAPERS ON TABLE ABOUT SINGULAIR AND ZYRTEC. THEY WERE VERY VERY SURPRISED THAT I PRODUCED THIS INFO.
THAT DAY HIS MOTHER AGREED TO TAKE HIM OFF SINGULAIR. IT TOOK ABOUT 6 MONTHS FOR LOGANS ADVERSE SIDE EFFECTS TO SUBSIDE. HE NOW ONLY TAKES ZYRTEC AND IS GROWING SO FAST.
SO PROUD OF THE LITTLE TURD!!!!!!!!!!!!!!!!!!!
IM NO DOC BUT HOW DID KIDS AND ADULTS SURVIVE ALLERGIES IN THE OLD DAYS?
GIVE IT TIME LET THEIR IMMUNE SYSTEMS CATCH UP. KIDS DO GET SICK. DO YOUR KIDS A FAVOR AND INVESTIGATE THE DRUGS DOCTORS PRESCRIBE THEM. SOME HELP BUT SOME HURT!!!!!!!!!!!!!!
TAKE CARE AND GOD BLESS ALL!!
-- By bvann | Reply | (2) replies | Private Message me
May 3th
2009
2:37 PM
To All...
I am an anchor and the Medical Specialist for the CBS station in Louisville, KY. I have read these compelling and shocking accounts of the side affects with Singular. I have also been in contact with some pediatricians here in our area. I am doing a special report on this subject, the many accounts of side effects, and whats being done about it. I need your help. Are there any families who would be willing to tell their stories on camera? This is not to embarrass anyone, but to inform and raise important question for the public at large and the medical community. I am looking for families in the Greater Louisville,southern Indiana, central Indiana or even central Kentucky area. If you're nearby those areas, we are willing to travel to get your story. If you are interested, please contact me. My original post was deleted because I had my personal information on it. However, I will send more information in my reply to my own post. So again, if you are interested in telling your story, please look for that reply. I look forward to hearing from you.
-- By abowdan | Reply | (7) replies | Private Message me
April 12th
2009
1:14 AM
My seven year old son has been on singular for over four years. He talks a lot about death. He constantly cries about his dead grandmother which he never knew. He is a very smart child and lately I have realized that something bothers him. He is starting to cry often and feels very depressed. This is what he says when he cries: “My brain thinks bad thoughts about you, (mom and dad). Mom, I really love you and daddy, but my brain does not listen to me. My brain tells me bad things about you like to get a knife and stub you to death, or get a gun and kill you. Please mom make my brain squish the bad juice away and live only the good thinking on it. I know that you love me but my brain tells me different.”
My son is begging for help and every day he tries so hard not to have bad thoughts. He tries to hug us and kiss us a lot, but I see on his little eyes that something is wrong. The first time this thing happened I thought maybe a TV show or something made him think so. I am becoming very worried about him and started research on the computer. I don't know what causes his depression, but I know for a fact that he is depressed. He is our only son and gets all the love and attention.
Although he has been on singular for a long time, I have given it to him regularly only the last five months, since his doctor urged me to do so. Before I gave him the singular only when his allergies acted up. When he got better I would completely stop it. I didn't know anything about singular, but I don't like using medicine, and that is the reason I did not use it regularly.
My son has other similar behaviors that are out of his character like no desire to raise, get angry, worry that I would die, behavior problems at school, he thinks he is stupid although he is a straight A student, has nightmares, is scared that he would die, can't concentrate, is scared to be by himself etc.
It brakes my hart to see my baby being depressed. I will stop the singular to see if he will get better. I pray to God he will.
English is my second Language. Sorry for any inconvenience.
-- By alteo | Reply | (3) replies | Private Message me
January 15th
2009
3:11 PM
My 6 1/2 year old daughter has been on Singulair for 3 1/2 to 4 years now and we have had horrible experiences! She was having night terrors, mood swings, angry issues, self control issues, crying over small things, etc. We have been to psychiatrists and psychologists who have diagnosed her with mood disorder, sensory processing disorder and anxiety disorder! Well she has recently been having stomach problems so we have been going to a GI to figure that out. I got online to research and found numerous sites that told how Singulair causes all these things in children. We took my daughter off the meds and within 3 or 4 days seen a tremendous difference! She is a totally different child! It just really frustrates me and saddens me that all these children and their families are going through all this and the doctors do not seem to care. The allergist or psychiatrist didn't believe me. They say no study has ever proven such things. I don't care what they say we as parents know our children and we are the experts when it comes to seeing how they change when on this medicine, we are the ones that live with them and are with them everyday not the doctors! I think they just don't want to lose out on their money from prescribing this drug 90% of children with allergies and asthma!
-- By abuckler | Reply | (4) replies | Private Message me
December 13th
2008
9:24 PM
My 4 year old son started taking singulair when he was two. I don't think I picked up on his behavior change right away b/c I thought that he was just entering the "terrible two's". But over time, his allergist added on Nasonex (I know the docs say that it doesn't cause side-effects b/c it's a nasal spray, but I don't buy that...it's a steroid, plain and simple) and more recently zyrtec was added on for his hives. Well, the zyrtec was the straw that broke the camel's back. I mean, he has been a real "handful" since the singulair, but after zyrtec was added 5 months ago - let's just say he was completely out of my control. His meltdowns were so bad that I couldn't go ANYWHERE with him. I either got a sitter or just didn't go anywhere. He became aggressive, defiant, emotional, unhappy. And to top it off he started to have serious "autistic-like" self-stimulatory behaviors (grinding teeth, squinting eyes shut, flapping his hands, punching himself...). At this point my life had become a complete nightmare, and my poor 10 month old son was getting NO attention b/c my 4 year old was so out of control and aggressive. I was afraid for the baby's safety...oh, I could go on all night. This medication has impacted my marriage, my finances, my sanity. Shortly after he started Singulair I had to go on an antidepressant b/c it too so much out of me just to be his mommy. Anyway, a week ago I had him scheduled for a psych evaluation (thought for sure we were going to walk away with either autism or bipolar diagnosis), but two days before I decided to look up the meds he is on and BINGO! All of these posts sound like what we have been going through. I stopped all of his meds that night, cold-turkey, and he has been the most pleasant little boy I have ever met!! My husband and I have fallen in love with him over the past week - we had no idea he was such a sweet child.
Now, while I'm ecstatic that we have found the answer to our nightmare, I also feel SO STINKIN' ANGRY! We lost out on 2 years with our sweet boy, there were times when we raised our voices at him when he just couldn't help himself - he was suffering inside!! When I went to talk to the allergist about my findings this past week, he said, "well, maybe he just had a good day. I'd like to see what happens if he goes off all his meds for a week". Well, there you have it, he has been off for one week and he's an absolute angel. He has an amazing heart and is so caring!!!
Singulair is awful (and so is zyrtec). Please don't give this drug to your children. Research other alternatives (I am giving my son Nordic Naturals Fish Oil, Culturelle probiotics, vitamin c, and am changing his diet - increased magnesium and decreased dairy. I came up with this after hours of research...).
There is a woman on this site whose daughter committed suicide after 3 years on Singulair. This is no joke and the FDA needs to get with it.
BTW, I used to date a Singulair rep (I knew there was something I didn't like about that guy:)
-- By nomeds2 | Reply | (5) replies | Private Message me
December 9th
2008
10:57 PM
My three year old son has been on Flovent since he was two, he has been showing signs of restlessness, aggression, sleeplessness and other behavior problems, I did not think anything was wrong until I looked up the effects and saw they were listed as a reason to stop taking the medication. I have been doing my own trial and error research with him. He has been off Flovent for two weeks and I have not seen a difference in his behavior, luckily his asthma was ok, which leaves me to believe that it is the Singular pill that is the problem. I will post an update in two more weeks under the Singular side effects.
-- By 05angel | Reply | (1) replies | Private Message me
December 9th
2008
11:28 AM
I posted serveral weeks ago about taking my 5 1/2 yr old off singulair. He has done great as far as the asthma, no problems what so ever. The main reason I took him off was due to his behavior. Very moody, hyper, aggitates easily and so on. Well, after the 2nd week, he was like a NEW child...very calm and behaving in school. Well, he has pretty much regressed back to the behavior before taking him off this med. He has now been off of it for 5 weeks. His teacher asked me last week, if I had to put him back on this med, because he was getting back to his old ways.
He is currently going the an evaluation for ADHD. I have stuggled with the fact that my son may suffer from this and have tried almost everything to avoid medicating him...I was really hoping this was the culprit to his behavior..He had been on singulair for over 4yrs...Is it just going to take longer to see the full effect of NO SINGULAIR???
October 23th
2008
3:11 PM
My daughter is 7 and was just put on Singular as a preventive medication for croup which she gets when she has an infection. She is not on a daily inhaler nor does she have asthma attacks at school. I asked the doctor for an alternative to the pulmicort breathing treatments b/c the prolonged use of this caused her to have dental issues (8 cavities) and he gave her singular. I am concerned of the side effects in the reviews of this medication but I need some relief for my child. She has been on the medication only 1 day is frequent urination a side effect and can it come on that quick? If there is another medication that doesn't have the side effects apparently singular has please let me know.
-- By jennifer1784 | Reply | (5) replies | Private Message me
September 20th
2008
11:48 AM
My daughter is 8 and was prescribed Singular AND Zyrtec for asthma/allergy maintenance. She's been on both meds for 7 months. I have seen a steady decline in her ability to learn. Prior to these meds, she knew her addition math facts. Now, she forgets simple equations (3 + 4). Her mind wanders, she is unable to focus, and homework that should take minutes takes hours.
In addition, her emotions are all over the place. My little girl who once loved nature and held wiggly earth worms in her hand now runs in terror from any bug. She is frightened of everything.A tiny scratch makes her emotionally distraught for hours. She obsesses over slights from friends and withdraws to her plush toys.
She's also created imaginary monster friends: werewolves, vampires, and other ghoulish creates. She tells me of the living dead who cut off part of your skull and eat your brain and so you become part of the living dead. This is from a child who has never seen, watched or been allowed to view a horror film of any kind, who still watches Noggin and PBS on TV, and who, 10 months ago, wanted to be a marine biologist when she grew up.
Like others, the first symptoms were nightmares and night terrors. She also experienced itching, which I thought was due to her ballet leotard and tights (why do we look at everything but the meds?--because we trust the doctors!!!). Then, toward the end of school, came the stomach and headaches, so frequent, in fact, her teacher emailed me that my daughter was going to the school nurse too much and wanted to know if something was wrong. Her teacher also said my daughter seemed very spacey in class. No behavior problems. Just drifting. Very inattentive.
Like others, my daughter had her tonsils removed prior to going on these meds. Like others, my daughter was seeing a specialist--a pediatric allergist--for treatment. I discussed adverse effects for all medications with the allergist.
Like others, Dr. Allergist said there were none for either Singulair OR Zyrtec. My daughter had been prescribed childrens' Claratin (Rx for liquid form) by a pediatrician when she was 5 and exhibited the same behavioral and learning problems she now has for Singulair and Zyrtec. Again, Dr. Allergist said there were no side effects, that Claratin had a different active ingredient (I don't recall the name, something like lurderine) and to keep away from online Web sites, as they will only scare me. Ha! She also said ignoring my daughter's asthma posed greater harm than treating it. This is for a child whose asthma was non-existant until she began Claratin.
From my research, I'm wondering if the meds used to treat allergies and asthma actually contribute to lung ailments. Since starting these "meds," my daughter has had pneumonia and bronchitis. She did not have any lung ailments prior to Claratin. In fact, she was perfectly healthy.
Has your child experienced the same? Have you?
As another alternative for action, I am contacting my PTA and am pushing from that direction. These meds affect our children's abilities to learn. Teachers care. I urge all parents to discuss your situation with your child's teacher and push an agenda with your PTA. Collectively, the PTA can be an influence (it already has a nationally recognized presence with solid reputation). Forget the medical community (for now--drug reps "buy" doctors). I am telling friends whose kids have asthma about Web sites. I am writing to my Senators and the FDA as well.
Thank you to everyone who has taken the time to post. We can collectively push forward to get action soon for our children. Please, do not just sit and read. Take action. Your kids need you to.
-- By agregorygirl | Reply | (4) replies | Private Message me
September 12th
2008
12:35 AM
To anyone new to this site whose child is on Singulair and having problems consistent with the adverse reactions to Singulair documented on this site: take your child to the doctor as soon as possible and tell them you believe that your child is having an adverse reaction to the drug. Do not let yourself be talked into believing that Singulair does not have these side effects. Too many of us right here can confirm that it does. Even though the prescribing information for this drug has been updated to include a warning about these adverse effects, and the FDA is conducting an investigation into the safety of this drug, not all doctors are aware and some are simply unwilling to believe. If you hear "anecdotal evidence", "highly unlikely," or "I've never seen it happen" uttered during your visit, know that your doctor is making excuses for not knowing accurate information about this drug.
Doctors may attribute your child's behavior to their personality or developmental stages. But any child on Singulair should be removed from the drug if a consistent pattern of different or abnormal behavior is present. Most children do not fly off the handle for no reason, have night terrors, prolonged, violent temper tantrums, and act anxious, angry, sad, hateful, disconnected, or withdrawn most of the time. Most children do not have behavior problems that consistently leave you feeling like the worst parent in the world and completely mentally exhausted at the end of each and every day.
Tell your doctor that you want them to prescribe another asthma maintanence medication with a documented low risk of side effects. If your doctor trivializes your concerns or refuses to honor your request, FIND A NEW DOCTOR! YOU are the expert on your child, not someone who sees them a few times a year for a few minutes at a time.
After Singulair has been stopped, watch for a positive change in behavior over the course of several weeks. Make sure you have rescue medications on hand in case needed.
Most importantly, GO WITH YOUR GUT. "If something doesn't feel right, then something ain't right!"
-- By zsmom | Reply | (4) replies | Private Message me
May 13th
2008
10:08 AM
In response to dtrzaski post Im am sending out this question to everyone. We know there have been stool/stomach/weight issues. Are there any other children that it has been discovered to have high cholesterol. My son was discovered to have high cholesterol at around 3yrs old, apprx 6 months after starting Singulair (regardless of a very healthy diet lots of fruit and veggies!) Any thoughts out there?
-- By sp2008 | Reply | (2) replies | Private Message me
May 8th
2008
3:45 PM
I have two sons on Singulair, my three old was suspended today from pre-school for bad behavior. Screaming, biting, scratching, and hitting have been going on for the last few months. But worse the past two weeks. He has always been active and played like a boy, but he has been getting violent. We have tried positive reinforcement, praising good behavior both verbally and with rewards, I have tried time-out, being grounded, not being able to participate in activities, no t.v. and old fashioned butt spanking. All of this with no positive results. I am not looking for an excuse for my child's behavior, but could Singulair really be the cause of his aggression?
-- By stressedoutmom | Reply | (11) replies | Private Message me
April 24th
2008
3:10 PM
Our son started taking Singulair when he was 2 for severe allergic rhinitis and cough variant asthma (in addition to Zyrtec, which didn’t control all of his symptoms). He is 5 now. For the last three years, he has been an increasingly violent, difficult, defiant, argumentative, volatile child who has intense mood swings--one minute he’s laughing uncontrollably, the next he’s weeping over nothing. His doctor and therapist recommended that we see a psychiatrist to have him evaluated for bipolar disorder, which used to be unknown in children. Because he has such chronic sleep problems, the doctor also suggested we take him off Singulair (and increase his Zyrtec dose) to see if it improved his sleep issues. Within a week, he was sleeping much better and was a calmer, happier, gentler boy. He suddenly could take “no” for an answer without flipping out and trying to hurt me. We thought that we were just in an unusual, calm window that would shift either to mania or intense sadness or both, any minute. We also thought that his behavior change might be due to sleeping better. We were enjoying the rare reprieve. Over the last weekend, his springtime allergies really flared up. We gave him Singulair on Monday and by noon, he was completely out of control. I had to strap him into his car seat at one point to keep him from hurting either me or himself. It finally occurred to me that Singulair might be causing his “bipolar” disorder. Of course, we stopped the Singulair. After two days he was a new boy. Yesterday, I Googled “Singulair bipolar children” and got a few hits. I am stunned to read how similar other families’ experiences have been to ours and I feel sick that we gave this drug to our child for three years.
-- By isobel1228 | Reply | (7) replies | Private Message me
April 14th
2008
8:03 PM
My son is 10 ½, and had been on Singulair for almost 6years to treat his well controlled asthma and allergies. We have had behavior problems with him for years, but it seems to have gotten worse this school year, when his grades (he is in the gifted program at school) went down the tubes. Our family has been to counseling, where it was suggested we put him on ADHD meds. We resisted, but things had reached the point that I was ready to give the NEW meds a try. ARGH!!!!! Then my sister sent me a link for a story about the teenage boy who committed suicide. This was several weeks before the Singulair/suicide stories were in the news. I did some research, and I started reading these posts. It was like I was reading descriptions of my son!! I talked to several pharmacists and none of them knew of any behavior problems attributed to taking Singulair. Talked to his pediatric pulmonary doc, he knew of no connection, but said to try taking him off. He thought the allergy/asthma would be OK since he also uses an inhaled steroid every day. Well........... I thought I could see a difference in 4 or 5 days, my husband thought I was wishful thinking! But, since then everyone in his life agrees, he is a different kid! No moodiness, no unexplained anger, more on task, sleeping better. I could go on and on. There is no doubt in my mind, the differences started when he stopped taking the Singulair.
-- By tallmom2two | Reply | (4) replies | Private Message me
April 13th
2008
6:11 PM
Oh my gosh, I am just shocked after reading these posts. I am taking my son off of Singulair immediatedly!!!! I knew I wasn't crazy!! My son was on Singulair for over 2 years and it was awful. He was so hyper and uncontrollable. He couldn't control his temper. He had headaches everyday. He was put on it due to severe allergies and asthma. He is on other medications as well as allergy shots. I kept telling the doctor that I think the singulair was causing his bad behavior problems. He was just so hard to handle. He couldn't sit still for anything. The teacher couldn't get him to sit still in his chair. It just wasn't normal behavior for him. The teacher even thought he had ADD!! I didn't accept that however. The doctor just thought I was crazy and told me that Singulair wouldn't cause those symptoms. She said it actually would work opposit that and cause him to be sleepy. Well I took him off of it anyways and he did get pretty sick. His asthma acted up ect. But he eventually felt better and his behavior improved drastically. He wasn't so hyper and he could actually sleep at night and wasn't so scared at night. Just within the last week he has been pretty sick due to allergy season, his asthma has been bad and the doctor told me to put him back on the Singulair. So I did he has been on it for four days now and he is HORRIBLE.. It was an instant change. My husband and I can't control him and he can't sleep at night and has headaches every day. I am so glad I found this sight. I am taking him off immediately.
Thank you all so much for your comments. This medicine should be outlawed. I don't care what the doctors say. By the way my son is 9 years old. I certainly had no idea that it has caused suicide. I am so sorry to you all that have experienced such horrible things. Come to think of it my son used to say he hated himself all of the time when he was on this medicine.
God Bless You All
April 11th
2008
12:42 AM
My 6 year old son has been on Singulair for 2 years and I have noticed a big change in his behavior but it all started with leg cramps and falling down alot..I told my dr about what was going on but she told me that it was nothing to worry about that it is growing pains..Before he started the on the singulair he was always a happy go lucky kid never had problems with him back talking or ever really getting angry. Now that I read all these reports these are the problems I have with him now:
My child has never offered to hit, kick or slap me but in the past year he has gotten more aggressive not only toward me but others as well..
He is fearful of people now thinking that they are being mean to him or picking him out to pick on or make fun of.
He has problems of headaches on a regular basis but just thought it was due to his sinus infections...
I have also noticed that my child has started hurting himself like punching even slapping himself in the face when he gets really angery or fustrated about things..
Sometimes he has problems with nightmares but not that much..
He also has problems with stomach pain as well...
My concern is taking my son off Singulair with his asthma being under control right now and he just recently had sinus surgery but I think it will be the best thing for him just because I want my sweet child back not the aggressive and abusive child he is now.... That is why first thing in the morning he will be taking him to his dr to find another medication to put him on and take him off the Singulair....
April 10th
2008
10:29 AM
My four year old son was put on Singulair about a month and a half ago for allergies/very light asthma. I was told that it would help him to possibly outgrow those conditions, and that we would re-evaluate in six months. At first I wasn't very consistent with giving it to him, but for the last two weeks or so he has had it every night before bed. For the last week he has not been himself. Whining a lot, upset about very little things, much more aggressive towards his sister, hitting, kicking, throwing fits. Twice this week his day care center staff pulled me aside and said he has been acting horribly. Upset about little things, angry, kicking, not listening, being very defiant...in short not acting like himself. Same as what we are seeing at home. It's like his behavior has regressed back to a two year old or worse.
I made an appointment for him today because of these behavior problems, plus he seems to be suffering a possible ear infection and bronchitis again anyway, which is what we started on the meds for in the first place. A co-worker remembered that we had recently started medication, and inquired about whether or not I thought that could be causing the behavioral issues. I did a search on google and came to this site. Reading these stories is like a light bulb switched on in my head! I feel horrible, why didn't I think to ask about side effects, why didn't I think about the meds being a possible cause of his behavior? No matter what the doctor says today, I am taking him off the Singular immediately. I will be in search of natural remedies to treat his allergies.
-- By adschimek | Reply | (1) replies | Private Message me
April 8th
2008
12:49 PM
Thank you so much for all the information! My son was prescribed Singulair pills this fall. He has been taking them for seasonal allergies and we had no problems. These were the sample chewable kind. Then came the pills... Unfortunately I did not see the news or read the article about the side affects of Singulair. Within 4 days my happy well adjusted 10 year old had serious sleeping problems along with stomach aches. He will wake up screaming and crying and cannot tell me what is wrong. He said he had a nightmare but doesn't remember what it was about.
My husband was away on a business trip when I started him on the medicine. He came back to a very unhappy and sleepy child. I asked my son what he was scared of and he asked me to tell daddy that he does not feel safe while he is out of town. He can't sleep unless he is by one of us. He's not safe. His bedroom is 15' from our bedroom! He loves his doctor and begged that I call Dr. Becky so he can talk to her.
I could not take this anymore and started thinking about what was wrong. I went through all his activities, friends he's played with, school problems, anything! Then it hit me, effects of Singulair!
Wow, what an eye opener. Fortunately my husband did not have him take it this morning. He will not be going back to this medication. Ever!
Thank you for the information once again. I hope everyone's child gets better. Everyone wants a happy well child. No child should have to go through this. They have enough pressure as it is without the meds making things worse.
Maeri
-- By mar7 | Reply | (7) replies | Private Message me
April 6th
2008
6:40 PM
This is in answer to concernedcitizen. My son, when he began to have behavior issues, was placed on Tegretol, Wellbutrin, and Abilify. He could not tolerate the Tegretol. So he stopped that. His "depression" seemed better so they took him off the Wellbutrin, he continues to be on the Abilify. We tried to take him off of that once, it wasn't pretty. His anger, frustration, rage, crying, depression, etc all came back....of course he was still taking the Singulair. (little did we know then....) We see his neurologist very soon. I am going to ask about trying again to remove the Abilify. My son is 7. He was started on these meds 4 months after having surgery to remove a cyst in his brain....we thought all the problems were just who he had become after having brain surgery. It was very depressing. I read all of your research with great interest. I had thought it had to be a something in the brain being triggered. My son had a tendency toward these things due to the location of his cyst....we had the "luxury" of knowing he would have behavior problems. So did his doctors.... Now with all the research it would seem someone like my son, who has a cyst in the left temporal lobe (a region that controls behavior) should not have EVER been placed on a medicine like Singulair. At the very least, he should have been taken off that medicine, before being placed on anti-psychotics. Good Grief. Thanks again for all your work. I will be taking some of the literature with me to the Dr. As I am sure others on this board will.
By the way - My son has been off Singulair for 10 days now. He is a very happy boy. Downright giddy. He is annoying his sister to no end. Dad and I are enjoying every blissful minute.
April 4th
2008
1:23 PM
chris555 should be listed as a side effect. I'm one of the ones whose son committed suicide while on singulair and had the mood swings and such before hand. chris555is causing headaches and making people sick because chris555 is an ass!
-- By kate60 | Reply | (5) replies | Private Message me
April 3th
2008
6:31 PM
Wow. I can't even express how blown away I am by all of this.My son is 7 and has been on singulair since he was 2. He was moved to the 5 mg last year in March. The only difference between my son and all of your stories is that when he was in kindergarten we discovered a rather large arachnoid cyst in his brain that had to be drained. It was easy to blame some if not all of his behavioral problems on the location of the cyst. It is in the left temperol lobe. Having something in that region of the brain can cause behavior problems. His cyst was also big enough to push on his pituitary gland making him think he needed to use the bathroom all the time. He had a slight case of diabetes insipidus. During all of this he was complaining of headaches, fatigue, leg pain, the boy could not walk from one end of the mall to the other, he would melt down at the slightest provocation and turn into an angry little monster at around diner time. We attributed it to low sodium levels messing with his head, but his blood work never reflected someone who was THAT bad. After his surgery he had some normal depression, but in March, four months after, he became a different person. He was full of rage and anger and almost got kicked out of school. He broke things at home and lashed out at people, he said awful things. He was put on Tegretol, (that made him very sick) and Wellbutrin. Since he couldn't tolerate the tegretol they switched him to abilify. He still takes this. The one time we tried to take him off he went completely nuts again. Same kind of aggressive behavior, lashing out, no self control, crying all the time, very moody, saying things like "nobody loves me." My son is the sweetest person you will ever know. Before all of this, he would melt your heart with his kind words. Now he has been diagnosed with ADD, Aspergers, and has all of one friend at school. I go every day to eat lunch with him so he doesn't have to sit alone. I completely understand that my son will continue to have problems once this medicine is out of his system, because he does have other issues, but this morning the first thing he said to me was, "Mom it's weird, I don't know why but I feel so happy."
He has been off the Singulair for 6 days now. I called his allergist and he was VERY interested in all of this and wants to meet with me. He has always been so heartbroken by how my son has struggled. Don't think all doctors are bad. This one isn't. He is going to help me report all of this. He is really upset too. Of course he is older, been around for ever. I don't know. He cares about his patients. His receptionist said she thought they would be getting a ton of calls about this and I was the only one. Hang in there everyone. Alone we are quite together we are LOUD.
Singulair (50) Bromaxefed DM RF Syrup (1) Depakote (1) Lithium Carbonate (1) Zyprexa (1) Flovent (1) Advair Diskus (1) Claritin (1)
January 31th
2010
4:01 AM
My 7 year old son has been on Singulair for almost 4 years. We always thought he was just a more challenging kid. Over the past few months, his behavior turned into giant mood swings, multiple acts of aggression each day, verbal outbursts, crying hysterically, some obsessive behaviors--would not throw anything away and if we did, he became inconsolable, severe mood swings--would go from zero to sixty in the blink of an eye--terrible leg pain (ongoing since he started the drug), sleep disruptions(ongoing since he started the drug, bad dreams(ongoing since he started the drug. He has progressively become a more negative and sad child. He has always been active--but has gained weight since going on the meds (going from 75th percentile for weight to over 100th percentile). I HAVE ALWAYS SHARED OUR CONCERN WITH HIS BEING MORE CHALLENGING AND OUR DOCTORS (PLURAL!) SAID IT WOULD NOT HAVE BEEN THE MEDS! Parents: go with your gut. Ask more questions. Do not trust the drug company side effects--Singulair lists IRRITABILITY as the side effect for what I described above!
We were ready to see a child psychologist when I found this blog--it literally has changed his life and the life of our family! He received his last dose 3 nights ago--and is already a happier, easier little boy! He has not had one melt down in 2 days! This is huge for him! He can even verbalize that he feels better. Shame on our doctors who did not look into our concerns more. This has been 4 years coming!!!
Note: We did meet with a doctor in the practice who we do not normally see. She is the one who seemed to acknowledge that this is absolutely the reason for his behavior problems--he was also pulled off of Flovent, which can have similar side effects.
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