Best wishes symptoms and conditions

Ladies -
I just had my Mirena removed today - after only 4 months. I gained 10lbs and couldn't budge it off - even with healthy eating and DAILY exercise. I bled every day up until a month ago. I lost my libido almost immediately and don't get me started on the weird cramping that sometime had shooting pains down my left leg. This is the first time that I visited this Website and I'm amazed at how all these symptoms/side effects have affected so many women. I wish I would have known all this before!
Best Wishes

I have been taking a low dose for only 5 days and I am ready to quit. I am either in a rage of anger or crying non-stop. I am severely tired and more moody than I have ever been. I was doing SO much better before on Effexor. The doctor switched my meds due to the insomnia and anxiety that I still had on Effexor, but it was nothing compared to this.

This is further to what I has posted here below on the 16th of October.(you may look at it for symptoms). My dad passed away last night. The doctors had administered steroids to him saying it is the only solution to healing him out of this in order to save his eyesight.I am crying to myself now remembering how he suffered those last 10 days of his life due to this drug. He had never experienced anything more horrible in suffering like this during his life. His death report says, cause of death: Steven Johnson's Syndrome.

I recently back in April of this year received Cyberknife radiation for Adenocarcinoma with metastasis to my brain. After surgery to remove my brain tumor in March of 2009. I went though whole brain radiation and the Cyberknife to my lung. The doctor was very adamant that as the lung heals from radiation you will develop what they call wet lung or neumonesis sp? This will have to be treated separately, or severe coughing would continue. My primary care doctor in the mean time put me on Lisinopril 20 mg for hypertension. I have not gotten a good nights sleep in 2.5 months since, then came the pneumonosis. This cough persist to this day waking me from what little sleep I do get, and amazingly am now suffering from joint pain especial in my hips. It's to the point I can't even cross my legs anymore it hurts. When discussing this with my primary she says its in my head as of today and reading this site and side effects I am taking myself off of Lisinopril and will seek a second opinion, even a third if need be thank you all so much for posting your side effects from this drug.

I took levaquin for 10 days and then cipro for 10 days after being misdiagnosed with bacterial pneumonia when I really had cocci mycidioidosus (valley fever) a creepy lung infection from a fungus that lives in the dirt here in Ca . Within a few days of stoping the antibiotics I experienced severe joint pain,dizziness,swollen neck ,hives,pain and tingling in my legs and feet,taste perversion,neck pain,hallucinations,nightmares,suicidal thoughts,dead skin,head ache,conjunctivitis. All of which I thought were valley fever related . A few weeks later I started noticing loss of vision and an inability to focus or concentrate on anything. I have ruptured 5 tendons and sometimes can't lift my right arm off the table.
I'ts been a year and 3 months and I still suffer from these side effects and about 3 months ago I started to notice some hearing loss and then ringing in my ears so load that it wakes me up!

This drug has ruined my life.I have lost 2 profitable businesses,a house a car .a commercial building, my credit score is 309 from 760 a year ago.All from a stupid antibiotic that should not be sold in the first place unless you are going to die if you don't take it.....personally I would rather be dead I think.

I think that we (the 1000's of people effected by this drug) should protest,march at ORTHO McNEIL's doorstep and perhaps the FDA....write a letter ,call or write to OPRA...do something ...It's not right that they get away with selling this crap.

Please email me ...I see 1000's of you on these sites...lets get busy!

******

Thanks for reading

I am a 21 year old female and just started taking paxil for anxiety & depression. My mother is on the same thing (heart problems run in the family), and I have only been on it for 2 weeks so far, but have experienced many side effects. They have included: Dry mouth, headaches (only a couple slight ones and this wasn't bad since I do get migraines now and then), urinating more frequently--especially the first few days but this has already gotten better-- strange, vivid, night-marish dreams, flu-like symptoms (I missed 2 days of work last week due to this, and it is hard to know if it was the meds or not since the flu is actually going around!), a very itchy rash on my left inner wrist that came and went the same day, mood swings--which I also had before-hand, however-- More hungry but also get full fast, so I eat more often but have smaller portions.

The plus-side so far is that my boyfriend and I both notice I am happier. I feel more like I use to and it's nice. I just don't know yet if it is worth the side effects now and when I need to get off of it.. I am concerned also about getting pregnant and what will happen then if I am still on the paxil. I have read about a lot of health problems with pregnancies and birth with women who are on paxil even during the first trimester, yet you are not suppose to abruptly stop taking it. Has anyone else gone through this I can talk to or who can post about it?? I'm nervous that I am just too young still to be on it and I do want a family.. also has anyone heard of paxil causing infertility? I have been looking for more info but not found what I'd like...

Thank you, C.

after 6 days of taking levaquin I developed severe shoulder and arm pain on both sides. Some days I can hardly use my arms. Lawyers don't want to take my case because I didn't suffer a rupture. What kind of crap is that? It's okay to have severe pain the rest of your life? My Dr. says it will go away. It's not. It's getting worse. Don't take this stuff unless you enjoy pain

I am pissed that this drug is given out, my son is in a hospital because of this Biaxin, he has temmors, sweats on hands and feet , blood pressure elevated , cannot talk, nightmares, intense stomach pain, headace, rubbing hands , rubbing face , rubbing head , itching, chest hurts, feet sweats, cannot focus, fear of death, cannot sleep, we do not know if he is going to come out of this, we discontinued the Biaxin 9-22-09 he in lock down and being watched 24hrs. He was on this Biaxin for 6 days. Please do not take this product. The Doctors will defend this product since they get money from the drug companies to push there product. I will be looking for a lawyer!

Within 12 hours of my first dose, I started experiencing irritability, racing of thoughts, rapid heart beat, shortness of breath, nausea, sweating, and then ultimately, a panic attack. I have history of successfully treated depression from several years ago, yet this med brought forth all those painful old feelings of angst. I am discontinuing doxy immediately. I wish that one of the warning labels on the Rx bottle read, "Do not take if there is a history of depression." It sounds like that would have save a lot of people a lot of grief. Best wishes to all for good health.

I am a 40 year old female. I found out 3 years ago that I have factor V. I've been hospitalized for 17 PE's. I was being treated with coumadin, plavix, lovenox. My INR will not stabilize. The doctor has now put me on 30mg. of warfarin a day. and my INR still sets at 1.2. My side effects are awful. I feel tired, week, cold, weight gain, but most of all the terrible headaches. The doctor says it has nothing to do with the warfarin. I stay depressed and now losing hair. I've taken my doctors advice and I'm going back to the cancer center where they are more experienced. I feel like I'm dying everyday and its not in my head. I do believe its side effects. And if its not moving my INR than to me it seems useless to take such a high dosage. Its a catch 22.

CRIMINAL NEGLIGENCE COMPLAINT FILED. I copped the worse of everything and almost croaked with statins. 20 months since stopping the poison, I'm still not right but vastly improved. Medsafe in New Zealand twice posted to prescribes ".. . . warn the patient of muscle pain and if muscle pain or weakness occurs cease the medicine immediately ... "they also warned prescribes "20% of adverse reactions being reported included mental disorder including violence and anger .... "Apart from all my pain, I suffered severe mental disorder and violence to others. I repeatedly presented painful muscle cramps to the doctor, who repeatedly told me age, arthritis, salt in diet etc. I went to my doctor frightened at the nasty way I was treating my wife of 30+ years, telling him it was so bad one of us was going to have to move out until the problem was sorted. he was sympathetic and told me none of his patients had said this to him before, probably true, but Medsafe had. Today in writing I hand delivered a written complaint of criminal negligence to our police and the New Zealand medical council, the doctor ignored clear written instructions putting my life at risk and those around me with my violence and dangerous driving, heres hoping others may be saved. There is a new report out from JACC journal of American cardiology stating the wonderful strengthing and healing power of fish oil, google it. We personally know of about 20 customers, friends and family who have been poisoned, a couple have indicated they will consider following and laying criminal negligence charges.Saturday afternoons are visiting days for prisons in New Zealand if the after hours doctors are closed. I'll post when I hear from the police. This very dangerous practice has to be stopped for the sake of humanity.

I know this is long, but I could really use your help, so I would appreciate you taking the time to read through to the end. (thanks :-) )

First, I want to thank everyone posting. I needed to read this stuff because I'm absolutely terrified of what's happening to me. I'm on the second week of my very first pack of Loestrin- my very first birth control pill EVER. I didn't want to start, but my OBGYN encouraged me to, once I told her I had 8 day long episodes of clots, cramping, vomiting and just sheer misery once a month. She said this would help if I'm sure to take it as recommended.

So I took the first one the Sunday after my period started, at 8:45am and have taken it religiously since. I have not changed my diet or routine. I exercise and eat fairly well. And there are no particularly stressful factors in my life. I am also quitting smoking- just down to 2-3 a day instead of 10 or 15.

Now that I've been doing this for 2 weeks, I think I would rather suffer what I had before. At least it was predictable! I have been bleeding for 5 days now. And this is NOT my time to be on my period. I'm sad and tired. I have back pain and on-and-off cramps. I have nearly no sex-drive. My boyfriend and I had sex at least 4 times a week and I masturbated on the nights we didn't. And although he is INCREDIBLY supportive, I can tell he feels lost and helpless around me. I don't want him to touch me, hold me, or even breathe on me! Normally, we are very affectionate and I am active and fun. Now, I just want to be left alone. I feel fat, unwanted, dirty, depressed...the list goes on.

I feel as though there is something seriously wrong with my body, because I shouldn't look or the feel the way I do or bleed like I am. I called the doctor and she said that I should give it till the end of the month. But 1 month is a long time to live with a depressed quality of life. 1 month is a long time to cry yourself to sleep with alcohol and Motrin.

I feel angry that the best the medical society can do is give us something that is trial and error, fully aware that it may hurt us, though temporarily, and make the lives of the people around us miserable. I am concerned the even my doc is in the pocket of some pharmaceutical company to give me a drug that she said would help and has only hurt.

Or maybe I'm just paranoid...

Anyone have any encouraging reasons why I should continue this? My sister, who was on Ortho for a while and DIDN'T like it, suggests that I stick out a little longer and I trust her opinion, but would like more. I'm open to suggestions or comments. (Especially if you know a way to stop my period so I spend less days of the month on it than I am on...)
Thanks :-)

Hi,

I'm fit, tough and extremely healthy. Tried Mirena. Ok for one year then within six months I experienced increasing upper abdominal pain and ultimately the sensation of something bursting central chest and the first of three Emergency Hospital admissions. Bloods clear. Xrays clear. ECG's clear. Endoscope clear (had experienced severe and sudden onset gastroenteritus/IBS acid reflux, extreme food intolerance.) Also had a large cyst needed draining (and multiple smaller) appeared in left breast. Lymph glands in neck up. High histamine, raised albumin, white blood cells relating to allergy/parasite. Allergic reaction/systemic rejection of coil?
No uterus pain at all.(Not had period for over a year)
So very ill after sixteen weeks being consistently told it wouldn't be the coil I took it out. Hard to describe but an extreme sense of relief, reduction in pain from entire GI tract swelling/sensitivity.
QUESTION.
One week on huge improvement but I still have continual upper body/chest pain (diaphragm?), and additional pain sharp pain through left ribs to shoulder blade, worse with sudden movement. Anyone had residual/slow to improve nerve damage? Need to be fit for my job.

Thank you for reading.

PS. Its not a 'coil'. Its a nasty sharp edged piece of plastic.

I was given Singulair about three months ago. The first few months I hadn't noticed anything extreme as far as side affects. However gradually my moods began to change. I became sullen and agitated at first. I thought perhaps I was coming down with something. Then as time went on I began to hate life. Everything was irritating me. I had unusual outbursts. I began to feel as if I just didn't want to live anymore, but really didn't have any type of justified reason. I even had begun planning things, what I'd leave to my family, how I should go about it, etcetera. My husband even commented a few times that I just didn't seem like myself. I know he had no clue as to just how bad it had become. After an extreme outburst targeted toward my 6 year old grandson I knew something was NOT right. I took myself off the Singulair and am beginning to feel like my old self again. It may work fine for some, but for me, I'm afraid much longer and I may have truly ended my own life.


Good luck with your story.
Keep us posted!

I have endometriosis and chronic migraines (not related to the pill). I am taking a preventative migraine medication daily now, so we figured we would try again to help my pain from the edo with the pill. At this point, all of my doctors have suggested taking lupron, which will put me into temporary menopause, instead of the pill. I am just not ready for that option. Because I have tried so many different pills, Femcon FE is one of my last options before taking the lupron. I was concerned after reading many of the posts on this site, but figured I would give it a try and see. I started it on Sunday April 25th and so far this is what I have experienced:
Increased onset of migraine pain- (but the pharmacy didn't have my migraine medication and I had to wait two days until they ordered it, so that could be the cause of that)
Slight breakout- (but I started a new foundation, so that could be the cause of that)
Increased moodiness
I have not had any cravings like I did on Seasonale (all I could think about was chocolate)
I don't know if I have had any weight gain yet, my scale is out of batteries and I haven't had a chance to replace them! But my cloths do not feel tighter, so that is a good sign!!
I will continue to post periodically while taking Femcon FE. Hopefully it works for me and I will have nothing but great things to say! I am going to stay positive and will away the negative side effects!!!

I have been on Prednisone for 3 months for PMR (polymyalgia rheumatica)and so far the pros have far outweighed the cons. PMR is an extremely painful condition that affects the shoulders and hips especially at night and early morning, I spent all of December and January sitting upright in a chair trying to sleep, untill I was diagnosed and prescribed Prednisone and oxycodone. I started at 25 mg and I'm now down to 15mg. The side effects that I do have are weight gain (about 10 pounds), mild mood swings and insomnia.I am an avid bicycle rider (25-35 training miles per day on week days a lot more over the weekend),I am 60 years old and now back on the bike. The strange thing is after about one month back in training I am much stronger this year than last even with the added weight. Last year, a solo, 30 mile hard ride I would average about 17 mph this week I went out on my same training ride at 19.4 mph, over 2 mph faster. Everything I read about Prednisone says that it wastes muscles,but I have become stronger. Is it possible that it's the Prednisone?

I am a 42 year old woman. I started taking Topamax in March of 2008 for severe migraines. The migraines often caused vomiting and for my body to jerk similar to having seizure. I have had migraines for the last 15 years, but prior to starting Topamax I was having migraines almost every day (for about 6 months). My life had come to a stop. I had been through all of the neurological tests, and CT scans, etc. with no results. Topamax has nearly halted my migraines. I have a severe "head-ache" about every 6 weeks now that last 3 days. A huge improvement! However, my doctor had said that I should not be on Topamax long term so I have tried going off of it twice in the last year, each time on the 5th day to be hit with an all consuming migraine. I had come to this website to find out why I should not be on Topamax long-term to discover that many of the other health problems that I have been complaining about in the last year are probably a result of Topamax and the doctor did not ever suggest that was the case. I have TINGLING IN MY HANDS AND LIPS...the doctor thought this might be my thyroid, but that test was normal. I have had REDUCED VISION, the doctor said it is due to age and working on a computer all day. I have had JOINT PAIN which they are treating with an anti-inflammatory and suggested it’s probably the onset of arthritis. I have had WEIGHT LOSS, SHORTNESS OF BREATH, and the PAIN IN THE BACK OF THE HEAD. These are all things that I see others describe as symptoms of Topamax! Wow! I wish my doctor would have told me this so I didn't think there was something else wrong. I WILL NOT STOP TAKING TOPAMAX. Even if taking Topamax meant that my life would be 2 years shorter or something like that, there is no living in that kind of daily pain. But I am grateful to know that the symptoms are normal. Topamax has giving me back my life.

I am 62 years old and I was taking Lipitor 10 mg for the last 5 years in New York. When I moved to California the new doctor switched to Lipitor 20mg and I started to have strange side effects. After a pause of two days, I restarted and the symptoms were worse: my muscle in the upper arms, and my calves were hurting and week, my back ached, my head was empty nad I felt dizzy all the time.
I stopped two days ago and today I had blood in my urine. What's happening? should I go on any medication at all to lower my cholesterol? My new test was: 179 Cholesterol
HDL 71
LDL 95
I am too scared to start any other drugs like Crstor or Niaspan as I was recommended.
Please advise,

I am 23 years old and I had Mirena inserted November 18, 2007, about 5 months after the birth of my second daughter. I have had it in a little over a year now, and I hate it. It's actually funny cause as I sit and type this message, I am having overwhelming cramps, that like someone else stated in this article, are comparable to labor pains. Right around November of 2008 I started having severe back pain from out of nowhere. After numerous visits to the E.R. I finally got my doctor to send me to a specialist, and I am now taking a muscle relaxer, along with an anti-inflammatory. I also have diarrhea, along with vaginal discharge that has been non-stop since I got this thing. Along with the numerous bacterial infections that I have had, I went to see my doctor about 2 months ago, and I had a pap-smear done. The doctor informed me that my pap was abnormal, and then proceeded to send me to yet another specialist. I go to that appointment next week and I fully plan on having Mirena removed. Last but not least of my problems, I also have no sex drive. Best wishes to any one who has it, and experiences no side effects, but for me I have never had so many health issues until I had this thing put in. I would not recommend Mirena to anyone!!!

February 22nd
2009
My side effects (Charles Clark)
3:00pm

It started with diarrhea after a couple days treatment. Then my hand muscles starting to contract on there own. Then I started having high blood pressure up to 212/118 and high heart rate and anxiety beginning to set in. My wife wanted to take me to the hospital but I refused to go (I wish I had. They might have taken me off Doxy then, but no, I was still taking it). I then started having problems breathing (like something was stopping me. Not like hyperventilating). My wife called the doctor and she said to stop the Doxy and come in. At the visit, she gave me meds for high blood pressure and ordered a heart monitor and stress test as she believed my problem was more likely with my heart. I didn't start the blood pressure medications as I needed to have the tests done in a week and a half. I had a panic attack before the stress test. There was a patient there who stated her granddaughter had developed panic attacks after she had taken Doxy for Lymes disease. What a coincidence. That weekend my blood pressure and anxiety increased and my wife called the doctor. They convinced me to start the blood pressure medicine as all of this might be caused by High Blood Pressure. I returned to the doctor 4 days later and she took more blood work as well as tested for Lymes disease again. Everything was normal and NO lymes disease. So what was causing all of these problems. That night when I came home from the Doctors I started feeling like someone just sprayed me like you spray a wasp/bee. I started to shake and twitch inside like I was dying I could feel my stomach convulsing and getting cold. Now at this point I had been off Doxycycline for a few days. My wife called the doctors emergency line and they called in a prescription for Xanex. I took it and it put be out. I woke up the next day feeling like I was on a bad rollercoaster ride going over the edge and trying to climbing out of my skin. I was unable to even take care of myself at this point. I started getting muscle twitches all over my body. I could not control my thoughts and had a hard time talking; my skin was so hypersensitive to the touch or movement. The only way I could deal with it was just lay down and not move. I felt like was going to die. More symptoms came: my middle finger on my left hand went numb; I was so nauseated I had a hard time eating; depression set in with sever panic attacks/anxiety, ears ringing, slight pain in my chest like I was having a heart attack and was becoming bed ridden and afraid of everything at this point. That next week I returned to the doctor and she noted how it seemed a struggle for me to walk into the office. She felt that I should begin meds to decrease the anxiety that was paralyzing me. She suggested seeing a psychiatrist and stated that if I got worse my wife should take me to the emergency and be admitted to the mental health program. So I began to take Paxil as well (I hate medications, but I was desperate). I was terrified that I might have side affects from these meds and I couldn't be alone and I was afraid to go anywhere, afraid I would have an attack or worse, stop breathing all together. I was terrified and my family was getting very worried about me and unsure what to do. Thanks to my best friend, my wife, and my family for taking care of me. If it were not for them, I would not know what to do. My dear mom even came in from Virginia to help take care of me. I can not express my thanks enough to my family! I have been off the drug now for almost seven weeks now and all my side effects are slowly, very slowly, dissipating. How come the Doctors don't know about this? Thank GOD for this site and the ones that took the time to post there experience with this drug! THANKS EVERYONE GOD BLESS YOU!

P.S. please reply on what you did to get rid of the side effects, how long did it take for them to go away and did your Doctor believe that the Doxycycline caused them. because I can't find a Doctor that thinks the Doxycycline can have these side effects.

I had open heart surgery August 23rd 2006 for a conginital heart defeat (Aortic Valve replaced with mechanical St Jude valve). I wanted a bio valve but Drs insisted I should have the mechanical valve because of my age (45 at the time).

Prior to my heart surgery I was a performer, singer/songwriter/actress/comedianne and I loved what I did. It was my life. Now, after 2+ years post-op and on Warfarin (7.5 mg daily for life) I feel like life has ended and I'm just a walking dead person. The effects I feel daily are as follows...

Dizziness
Severe Headaches
Blurred vision
Memory Loss
Fatigue
Weight Gain
Trouble concentating
Fluttering effect in my head/ears- Hard to explain
Hair loss
Unexplained pains in chest & left side of my body
Unable to sleep well
Tiredness- even when I've done nothing to be tired for
Nausea
Gas & Diarrhea off and on
teeth pain- Like I've drank something very cold
feeling in my head similar to a brain freeze- like you ate ice cream too fast
Night bleeds in my month- wake up with a mouth full of blood daily
What do think, is that enough??

I'm going in tomorrow for a cat scan because the headaches have been so bad they feel I need to be checked for brain tumor and/or internal bleeding. When I tell the Drs I think this is due to Wafarin they pratically laugh in my face as if to say, "Silly silly woman, don't be foolish! We know whats best for you. Remember, we saved your life!" Really? Did you?!

I want nothing more than to get off this rat poison and regain my life, but to do so could mean a stroke or heart attack. I would go under the knife again to have the mechanical valve removed and replaced with a biological valve, but do you think my insurance company (Kieser) would pay for a "silly" thing like that? Right!

Welcome to the greatest country in the world!

I'm going to start a website to help people like us. I want your stories, please send me your info, together we might make a change, what can it hurt to try? Email me ******

B.

Can anyone tell me if I'm going mad or if it's my Mirena?
I had a Mirena for 5 years (inserted in 2003), then had another one put in in October 2008. I have no periods - great. BUT I feel absolutely dire. I have depression and anxiety (I feel like I'm seriously going CRAZY sometimes, to the point where I'm worried about getting sectioned cos I can't handle the overwhelming feelings), I feel like my head is full of fog, I have dizziness, when i stand up I feel faint, I am crying (I usually never cry), I don't feel like i can cope with anything except the barest minimum to get myself and my family through the day. My 12-year-old son asked me if i have early-onset Alzheimers because I can't remember anything. If I was feeling ok I'd find that funny, but it broke my heart.
My previous Mirena was fine, I felt ok. Please can anyone help me?

Ladies,
It has been 76 days since I had Mirena removed. I feel incredible. The last week, I want to sing, play, laugh, love. It's GREAT!
Don't get me wrong, I had two crashes since having it removed and they were bad--right around ovulation/PMS time, but each cycle keeps getting BETTER and with each I feel more like the old me. I know what normal is like, because I was normal before Mirena and am starting to feel that way now. THESE ARE THE DAYS I YEARNED FOR WHILE I HAD THE MIRENA when I felt bipolar.
I expect I could crash again. I did have two of those suckers for 5 1/2 years, but I can handle it, because it's not everyday like the Mirena days.
Be well and HAPPY

RE: Anastasia01 who posted below....

Sounds to me like the Mirena may be affecting YOU. We know how you feel hon. Its hard to be pleasant and positive while on the Mirena. We too said ugly things while on the "beast". If this is the way you have always been even prior to insertion, then perhaps it is you who is "pre-mental" or "bi-polar". Best wishes to you and yours and have a GREAT day!! :)

Well, first off, I haven't had all those symptoms and my sex drive is normal. I have six kids and I had the insertion on 1-09-09, & I feel totally normal.& I sympathize with all the women & families who had to go through these changes.However, I'm concerned that maybe that this wasn't the best option for me. My OBGYN ensured me that this would be a supportive method of birth-control. I need answers, I would like comments, & supportive advice. I'd like to reiterate that I feel fine, just confused on decision of MIRENA. This is my first time on this website and I didn't realize how serious the consequences were for this implant and how many people were affected. I am 34 y.o. and I don't want to have anymore children...right now.My daughter had told me that this was fatal and could have horrid side-effects.But, I do have headaches and joint pains(although I had the headaches and joint pains before, there just more intensified.) It' s been 1 month and 10 days since insertion,and my baby is 20 months(today)