August 5th
2006
5:08 AM
hiya silke!!!!
i am so happy for you! CONGRATULATIONS!!
I wish i was there to give you a big hu.
YOU HAVE BEEN SUCH A BIG HELP TO ME. YOUR POSTS HAVE HELPED ME SO MUCH, YOUR ENCOURAGEMENT AND KIND WORDS HAVE KEPT ME GOING.
THANKYOU SO MUCH AND CONGRATULATIONS AGAIN
BIG HUGS GOING OUT TO YOU SILKE
SOPHIE
-- By sophie | Reply | Private Message me
June 23th
2006
1:31 AM
Dear Sophie,
I totally understand that you don't like to talk every day about that nightmare... And it's absolutely ok!! Just take and do anything you need, all that matters in the moment is you and your health!!
<>
Well, what should I say: This sentence could have been written by me around January to June 2005!!! I felt totally old and tired and ill, without any hope to get better again some day and look at me now: I finally start feeling like an 40 to 50 years old happy woman and hopefully in a few months I will be feeling like the 33 years old, healthy and happy Silke again, which I always was before taking that nightmare pill!! :)
I feel so happy that I'm finally able to sing again (I've been a singer in a band since I was 17 years old and had to stop it 2 years ago because of my Yasmin illnes...). That was one of the worst things that was caused by this agony, that I even was no longer able to sing in my band..... I missed that so much!!! So I think this is the best proof for the fact, that there really IS a life AFTER Yasmin!! It might last a long time, but your old self and fitness will come back!!!
So keep looking forward, Sophie and everyone who's within the same situation right now. Better times are ahead!! The first and most important step was to get off Yasmin immediately. The rest will be done by your body himself, all it needs is time and patience!!
Big hugs and love out to everyone out there and god bless you, too, Sophie!!
Silke
-- By voicesi | Reply | Private Message me
June 22th
2006
5:43 PM
hiya all, silke!
thankyou so much for posting back silke!!
i am sorry i didnt post earlier i just havnt been feeling myself, really withdrawn, needed to be myself and did not want to talk or be around anybody.
i feel a little better now but still not myself, i suppose i have to be patient and take each day as it comes.
one minute i am fine and the next the anxiety kicks in and i feel like crap, i just want to feel normal again.
oh silke, why is this happening i feel like a 80 year old, always so tired and ill all the time.
one good thing this pill has done for me is, its taught me to do my homework before taking any kind of medication ever again and also how hormones can affect the body, if there not in balance they can make you go mad.
sorry again, thankyou and god bless you silke
big hugs
sophie
June 22th
2006
2:07 PM
Hey abs,
I KNOW it's not just you!!! Believe me!!! Your last post could have been written by me about 10 to 11 months ago!! I felt the same weird things without knowing how to go on any longer... There were days, where I really thought I'd go crazy with all that strange thoughts and fears and I also had doubts every day, if it's really all caused by Yasmin or if it's just me. And a few days I really thought it was just me. But now I know IT WASN'T just me!!!
And one thing I also remember is, that the only thing, which helped me through those hard days was reading the posts on this site or post here by myself. Without the help of those ladies here I wouldn't have gotten where I'm now, I swear!! They always kept telling me, that it WILL get better and all I need is TIME and PATIENCE. And they were so right!!!
So please, don't loose your faith (I know that might seem very hard in the situation you are now in!!!) and chin up!! I know you have the strength to get through this and become the person you have been before that Yasmin nightmare!!
Big hugs and god's bless!!
Silke
-- By voicesi | Reply | Private Message me
June 8th
2006
12:32 AM
Hi Hill!!
So good to hear, that you're also doing better week by week.
I just wanted to let you know, that I had gained about 40 pounds (20 kg) AFTER I went off Yasmin within 3 months without eating more or doing anything else different than before!! I was totally shocked, because before this Yasmin nightmare I always was a healthy fit and very slim person (I'm 31 years old now).
And my weight is decreasing finally since around february 2006!! It goes down kg by kg (around 1 kg, about 2 pounds, a month) and AGAIN WITHOUT changing anything in my life!!
For me another sign for the case, that Yasmin had messed up my whole metabolism and it's only now, one year later, (got off Yasmin in February 2005!!) finally getting better. I'm still not able to excercise very much, because my body was completely broken down after 5 years on Yasmin. From December 2004 to May 2005 I went through a total hell with 100s of symptoms like muscle weakness, dizzyness, fainting spells and much much more... Well, my muscles are still not back to completely normal. But the weight is decreasing nevertheless, just because everything is slightly going back to normal. So I think you should give your body more time to get its metabolism back in order. As I see now in my case, the weight finally even goes back "by itself", because everything gets back in balance again!!
Best wishes to all of you out there, and all of the Yasmin starters: PLEASE be so careful with this medicine!!! I was totally fine on it for about 2 years, when the first symptoms hit my at once (without realizing, that it was the Yasmin!!). After about 5 years on it I broke down completely and thought my life was about to end!! Listen to your body and stop this pill immediately if something unusual is happening to you!!!
Big hugs to everyone!!
Silke
-- By voicesi | Reply | Private Message me
May 18th
2006
11:57 AM
hiya silke
thankyou for your comforting advice.
i still feel panicky today but not as bad as last night.
my periods have nearly finished so i guess i should be feeling better soon. " i hope so".
i seem to feel more panicky in the evenings and also i have really bad upper back pain which goes towards the back of my neck and head, also shooting pain in my head. i really hate it. it scares me so much which provokes the panicky feeling i have.
right now i am feeling so heavy in the upper part of my body. i just hope i make it through the night without having a panick attack. my ears and nose go all cold and i can feel myself going out of control. sso so horrible.
i wiil try to be strong and take a day as it comes.
i just hope the day comes when i wake up and i feel normal again.
i feel so weak like my body is drained and tired and i just want to sleep. i used to go to the gym but i feel to weak to do that now.
the other day i went shopping and as i got into the shopping centre i was walking towards the shop i needed to go to when i suddenly felt my head feel really funny, i thought to myself should i run back to the car so i could quickly get home or should i or would i be able to make it to the shop without collapsing.
i took deep breaths and eventually made it to the shop and back home. this really scared me though.
i will try not to let what happened above take me over though as i am a very outgoing person but it is really scary especially when your on your own.
thanks again silke and i hope that one day i too will be helping and comforting people on this forum just like you have done so for me.
BIG HUGS BACK TO TOU!!!!!!!!!!!!!!!!!!!
THANKYOU
SOPHIExxxx
February 25th
2006
12:26 PM
Hi guest 18063!!!
Thank you so much for your post!! You spread the words that I'm feeling and you describe the same thing I experienced ("NO, the pill can't cause SUCH heavy symptoms, YOU JUST have a panic disorder", etc..... And deep in my heart I always knew, that it wasn't at all JUST me, because that's no way the person I am normally!! And I was right!!!).
Just ONE female doctor (endocrinologist) admitted, that the pill CAN really cause such symptoms and that the only thing I could do to find out, is try to get off Yasmin and see what happens!!! (And SHE was so right!!!)
You are absolutely right and it's so delighting to read your words and see, that we are really not alone and there is someone who understands what the docs are doing to us by NOT LISTENING and just looking at their lists or such....
You also wrote about that spironolactone in Yasmin; do you think that this perhaps could have caused the sometimes very heavy muscle aches and muscle weakness in my case (which was one of the worst symptoms besides the panic attacks and fainting spells during december 2004 to may 2005)?? Well, I know now, that Yasmin is definitely causing a lack of vitamines and minerals (especially b-vitamines and magnesium, etc.) and that this could cause such symptoms (and not to forget, that I had been taking that sh.... for 5 long years....). But I don't know how that spironolactone can affect your body....
Would be very helpful to hear from you again!!
Best wishes and big hugs to everyone out there!!
Silke
-- By voicesi | Reply | Private Message me
February 19th
2006
1:11 PM
@twogirlsmum:
I'm very relieved to hear that you're not goin to take Mirena, because I really read of so many women suffering in a very similar way as we all do here from Yasmin...
<<<>>
Well, I had that feelings, too. Not in the tops of my arms, but in my feet and fingertips. Most of the time just ONE finger or one little point at my feet or such. Felt just like someone had dropped a little bit of warm water on it for a second... VEry strange feeling which always made me look at my finger or foot to reassure myself, that there isn't anything on it, that could have caused that warm feelings... Seems to be another nice Yasmin symptom...
Girls, better times are ahead. I'm so glad to see, that every day more and more women come around here and are finally able to put 2 and 2 together and get off that Yasmin poison as fast as possible!! well, not glad to hear, that most of you are going through the same or similar torture as many of us... But glad to see, that they all finally have a solution for their health problems and see a light at the end of the tunnel!!
I really thank god for this and other sites in the www helping us that way where doctors don't seem to be able to do anything for us, but tell us, that it's all just us!!! Here they could find so much evidence of their mistakes...
Greetings to all of you out there, especially chrissy, lisa,
and every other woman here, that is finally guiding others here on their way after being very anxious about the future and not believing that there will be better times after Yasmin!! :) I think of you all every day and pray for you!!
Big hugs go out to everyone!!
Silke
-- By voicesi | Reply | Private Message me
February 14th
2006
3:43 PM
Dear SILKE AND CHRISSY,
have you had any blood tests done since being off yasmin eg cholestrol etc , after a extended time especially you Silke as its been a year ( congrats on that).
Silke also you said you blood perssure is st8ill up a little do you measure that yoursef or by doctor and do you need to take any meds for that.
TWO GIRLS MOM, how are you, you can guess know that the pals and anxiety are period related and it will ease as your cycle goes on. My first two months were really realy hard but its getting better coming into my 4th month could never have made it without the girls here, also how did you go with the bp monitor ???
Big Hugs
Lisa
February 12th
2006
7:18 PM
Dear girls,
are we still at risk of things like blood clots after we have ceased taking the pill and in my case its 4 months,
chrissy i am die for my period this week and the palps are back is that normal? and how long do yours normally last ( if you have them) and how is everything else going chrissy is it getting better and better....
big hugs
Lisa
January 30th
2006
2:32 AM
SILKE,
THANK YOU, i thought i was losing it its so hard and i guess it helps me so much to know u have been there before me and its reassuring to know its gonna get better. Did you lose your hair, this has just happened this month and i am scared im going to go bald.Also hows you weight going?? Did you blood pressure rise also.
big hugs
Lisa
January 27th
2006
7:11 PM
Dear two girls mom,
ur welcome.
have you thought about relaxation tapes also chamomile tea helps a lot. u are detoxing and it will get better. Which country do you live in??? I am in australia and mirena is free ...a joke really when you think of the side effects although yasmin is really expensive here.
\
big hugs
lisa
January 23th
2006
1:47 AM
Hi Kath!!
Another story of Yasmin that brings me to tears while reading it... Could have been written by me!!
I went really through the same sh... as you described and none of the 100s of doctors I had to visit did make any connection to a medicine I had been taking... And everyone of them knew, that I was taking Yasmin, because you're always and everywhere (especially in the hospital, etc.) asked about that. But noone of them did anyhow think about a "simple bcp"......
The only thing I want to warn you about now is not to be despaired if your gyn doesn't see ANY connection of Yasmin and your symptoms. Because that's what happened to me with nearly every doctor I visited (I had been going through hell for about 1 1/2 years!!!). Only a female endocrinologist at last believed me and told me to just TRY and get off Yasmin, because she really admitted, that it was possibly Yasmin causing me this heavy problems!!
Getting off this drug immediately was the ONLY right decision I did and you can make right now!! And be aware of the case, that it can take a long time to recover and get totally off this drug in your body, but better times are ahead!!!
I wasn't able to work for about a year because of my Yasmin-illness. And since September 2005 I'm back again) I got off Yasmin in February 2005)!!! Today I'm still feeling not 100% healthy and fine again, but SO MUCH better than a few months ago!!!
Remember, you're not alone and everytime you are about to despair, please post here and someone will be there to help you to carry on, I promise!! I'm coming over this site nearly every day (like many others of women in Yasmin-recovery!), just to perhaps be able to help some women, like I was helped by the members here many months ago!!
Hang in there!! Big hugs and god's bless to you!!
Silke
-- By voicesi | Reply | Private Message me
January 14th
2006
9:35 PM
Dear Chrissy,
heart palpitations have subsideddramatically and even though at ovulatoin time this month i had some they were SO MUCH BETTER than last month, have noticed that pulse has slowed at times so its not racing every minute of everyday as it wsa on yasmin and the past two months, is that how it went for you.... Took my pulse few times this week at its slowed a lot so thats encouraging and the blood pressure thing not too sure as i am going to be rechecked in a month as i was just stressing so much about that i thought give it another month and pay it by ear, another sign i guess that the anxiety is easing as a month ago i would have gone to hospital with worry, so when i think im not doing better i look at all the little steps like you said and then you realise its no where near as bad as the past month so heres to hoping its all on ths up for now.
I will be away from the 17th thill the 25th off to perth for a holiday wit my husband and children so i hope you stay well and i look forward to catching up on all the reading on the site when i get home.
big hugs
lisa
January 14th
2006
9:19 AM
Hey Sherry!!!
Congratulations!! Great news!! I feel so happy for you! :)
I wish you all the best during your pregnancy and please keep us updated. I think there's no better way to start a new life and show, that there IS a new life after Yasmin than with a little baby in your arms!! This should give so much hope to every woman here, feeling very bad today. Your story is the proof for that!!
Big hugs and god bless you!
Silke
-- By voicesi | Reply | Private Message me
November 16th
2005
10:35 AM
Hi Sherry,
well, I found this woman by searching over www.google.de. That's where I go, when I'm totally down again (and believe me, it's NOT only a FEW days a month but much more often!!!) and don't know how to go on with all that sh....
There I type in my problems and see, what results I get. And that's how I found this woman (I typed in something like "weight gain" and "getting off bcp", well, just in german words). She wrote her story in a German forum about bcps, just similar to medications.com.
Perhaps this could be a way to help you, too, just to search google or another search engine to find much more women who perhaps have gone through the same as we do, and hopefully are back to normal weight and mental feelings again....
Well, Agnus Castus didn't help that good as I would have wished. Didn't get my period, yet, even after taking Agnus Castus over 4 months now... Perhaps it has eased up the mental problems a little bit, but I can't say if time would have eased up this problems by itself even without Agnus Castus as well...
I think within the next 2 months I will have to go again to my gyn and see, what we can do next... There is a new therapy here in Germany, don't know if in USA too, but I think so. They give you a medicine called "metformin", which is usually given to help for diabetes and such. It shall bring your hormones back in balance and help for pcos. My doctor already in July mentioned this as another chance for me, if Agnus Castus won't help getting my period. I don't know what to do, because I'm really afraid of any kind of chemical medicine after this horror trip with Yasmin...
Perhaps this metformin maybe another chance either for you Sherry; eventually you should ask your doctor about that, too or search the internet for more information about that.
All the best and big hugs to everybody!!
Silke
-- By voicesi | Reply | Private Message me
August 30th
2005
4:10 PM
To the last post:
Anxiety is a major withdrawal side effect once off Yasmin. It has now been close to 7 months for me and I am now feeling ALOT better, but I admit it has been a very slow road to recovery. Be sure to explain how you're feeling to those close around you, as they need to be able to support you through this. You feel like you're 'losing it' sometimes when in fact you are the same old you, but just effected by the low level hormones.
The anxiety is due to your low progesterone level now you are off Yasmin. I'd recommend you have your levels checked out. I am now on Agnus Castus to help re-balance my hormones. I wished I hadnt waited until now to do this, as I may have speeded up this whole process.
You will find you will have good and bad days with this, according to your cycle. The important thing to remember is that you will get better, and the anxiety will go.
Like I said, see a doctor (preferably one that specialises in womens health, and therefore will not ignore your symptoms or disregard them).
A message for voicei...Hi, I've read your posts alot, and we have been leading very similiar lives for a long time it seems with all this (I too have posted alot). I just wanted to ask you how you have been once on the Agnus Castus...did any of your symptoms get worse before they got better? I have only been on it 10 days and on the whole have felt ok, but just wanted your thoughts about it so far...thanks.
Big hugs to all.
-- By syd | Reply | Private Message me
August 24th
2005
1:05 AM
Hello All,
To the recent posts about losing hair. I can imagine this would be very alarming for you. The loss of hair after Yasmin appears to be very common and is most likely due to your bodies attempt to re-balance your hormones. Yasmin decreases your testosterone/oestragen and increases your progesterone. When you come off it, your body automatically tries to re-balance these levels causing your testosterone and oestrogen levels to sky rocket, and your progesterone levels to plummet. These hormones are the reason that so many of us have an increase in libido, increase in water retention, increase in anxiety and last but not least, hair loss.
I would recommend that anyone off Yasmin have a blood test (specific to check your hormone levels...usuallly conducted on day 21 of your cycle). Any 'average' blood test will not show these important indicators.
I had the above test last week (almost 7 months after getting off Yasmin as I was still not feeling 100%) and it showed exactly the above....my testosterone was high, my progesterone was low. I have now started the herbal 'Agnus Castus' to re-balance these levels, and assist in my 'recovery'. I just wished I had done this test months ago.
Any doctor that is not able to link your symptoms to your hormone levels is not looking properly. See a doctor that specialises in womens health. A typical GP is unlikely to look deep enough.
Good luck and big hugs to all.
-- By michelehalpin | Reply | Private Message me
February 18th
2009
10:16 PM
Hi there, I also thought I was going crazy...I've always been in touch with my emotions and have dealt with them in healthy ways, for example doing a lot of yoga and getting outside and being active. I got the Mirena inserted in July of 2008 when my son was almost a year old. I got one period, then nothing. At first it was just fine, I noticed the decrease in sex drive but I thought it was because of disagreements with my husband. Then the motion sickness and panicky feelings kicked in around Christmas. I haven't slept well since the summer- to the point of seeing a doctor for insomnia. The motion sickness has been the hardest part- I started getting motion sick on a ski chairlift for crying out loud!!!! After I found this website I feel "saved"! I had the thing taken out last Friday, and still not feeling myself. I just hope that I can flush this toxic energy from my body. Has anyone considered some type of cleanse? Best wishes to all of you, and big hugs.
-- By rockymtngirl | Reply | (2) replies | Private Message me