January 10th
2009
1:08 AM
I started Lupron in April of 2008. The year before this I worked HARD to lose 80 lbs. I finally got down to my goal weight because I was tld my endometriosis symptoms could be relieved if I wasn't overweight. I had a laparoscopy in March of 2008 confirming my diagnosis- Lupron was a last minute decision because of my age and status the doctor didn't want to do the hysterectomy right away. My endometriosis is spread throughout the body- including the lungs. While Lupron helped with the pain I was experiencing, it caused other pain. Pain that I can no longer even deal with. I became lethargic, depressed, and angry. My hair was falling out in large clumps. I didn't gain weight right away.. except a pound the first shot and three pounds hte second shot but I figured that was alright if it was only like 15 lbs total. I oculd deal with that. Here I am almost a year later. my last injection was in August. I gained a total of 47 pounds. I am a fat slob. I couldn't work out because my bones hurt so bad while taking the medication. No one around me knows what I went through physically. They al think that it was just some excuse to be a lazy fat cow but it truly HURT to move. Just simply walking from my bedroom door to my bed killed me. It hurt my ribs, my knees, my shins, my back. There were times when I couldn't even get out of my bed ebcause I just didn't have the energy. Then the depression started shortly after losing a large amount of hair. By now I am thinking about how ugly i've become on top of how fat I am. Nothing went right but my doctor pushed the shot. I figured hes the one with years of experience he couldn't possibly be this wrong. I trusted him. When I would go to him with complaints of my weight gain he would tell me to stop eating. The problem was... I wasn't eating. I was too sick to my stomach to bother. Then when I would get hungry i'd over eat. I bled a lot through the shots and I still had pain here and there but I was too afraid of what he'd put me on next if I complained. I started to forget simple things. My career was going down hill because they were sick of me not being 100% commited to my job any more. I cried all the time. I finally got sick of the weight gain while I was on my shots and I decided to work out regardless of how I felt and three times I passed out in the gym and was transported to the hospital where I had to listen to their advice on being overweight WHICH WASNT THE REASON I WAS PASSING OUT TO BEGIN WITH but no one wnats to hear what I have to say. Every one just assumed that I was this pig who never worked out in her life and over did it this time. What no one understood was that three months before the incident i was my average weight. I was tachycardic all the time- my normal resting heart rate while i was on my shots was 162. During a work out it would get up to 220!
Ive been off them since August and I haven't lost a single pound. I get up at 4am every day and work out. I park as far away as possible. I use the stairs instead of elevators. I eat healthy. I cut out extra sugars and stopped rewarding myself when I deserve it. I started these shots at 155lbs and today I am 215. Ive been on a strict monitored diet, diet pills and work out regimens and I am still 215. My knees kill me nad sound like velcro when I walk- ive even fallen a couple of times because they hurt that bad. My back still hurts and my neck still wont turn to the right completely because of a nerve that pinches or what have you in there that sends the sharp pain through my face when I move. I still have the depression but i think thats more because of my weight now than it is anything else.. and I finally ended up losing my job.
I recently saw my OB for a follow-up where he stuck me on yet another birth control. This one makes me vomit and gives me stomach cramps so Ive decided im done. I won't take another pill because its making me worse. Id rather have my uterus fall on the floor than pop another drug.
-- By jamielk | Reply | (5) replies | Private Message me
September 17th
2008
9:57 AM
I've been on 200 mg Lamictal for 2 months now, after 4 month titration up from 25mg; Going off Lithium 900mg titration to 450mg this week. Since 1st day of lower Lithium, all the common Lamictal symptoms went from mild to extreme. Whole body muscle aches (like 24 hours after a heavy weightlifting workout) worse in neck & back/shoulders/calves, bad headaches, swelling in hands & feet, extreme blurred vision, loss of memory, halted speech while trying to figure out what to say, fuzzy. I called the Clinic to simply ask which NSAID (aspirin? ibuprofen? Excedrin? naproxin?) to use to manage the pain. They all freaked and made me come in for a blood test to check Lithium levels. I explained I wasn't "overly" concerned about it at this point, but just looking for a recommendation, and that they may be over-reacting (even though I did appreciate their concern). I also reminded them that I had just **decreased** Lithium when it happened, so I wasn't having a Lithium Toxic attack (I'm well-versed in that, having been on Lithium for 7 years). It didn't do much good to tell them I thought their diagnosis was a little off. I'll find out the blood test results today, but I'm pretty sure I know what they'll be. They also wanted me to see my PCP since it could be something else. Again, the problem was a ramp-up of existing symptoms the next morning after I lowered Lithium (the only change), so I'm conviced everything centers around that. I think they're a little inexperienced with this med. (Lamictal/Lamotrigine) and if they'd just read this blog they'd probably learn a lot. They had never heard of the muscle ache side effect. Pretty hard to believe after reading all of your comments! My theory is that Lithium was somehow holding back the side-effects of Lamictal and now they're expressing themselves more fully. I haven't read anything like this on any internet discussion, so maybe my body is very different. But maybe my experience will give someone else some insight in a similar situation.
I might also mention something that happened to me I have only seen (kinda) in one other "blog" about follicle (sweat gland) cysts. Yeah, I definitely got the jawline acne starting at the Lamictal 50mg level & increasing at 100mg. But I also got my first ever "cyst" that concerned me and sent me to my dermatologist for the first time in 30 years (I'm 47 and saw the old guy when I had acne at 17!). It started as a blind pimple on my chest the week I increased Lamictal to 200mg (final dose), but didn't go away. It continued to grow (not diminish) over 4 weeks to 3/8 inch round/pink/solid/itchy/burn-when-rubbed. So off to the "Doctor" like my father used to do on a regular basis (I know I'm getting old now) and scalpel/pop/stitch it was out. But it was real, not my imagination or hypocondria, and the timing of its appearance was right when Lamictal changed to full steam. Since acne appears to be a common effect with so many, it seems it's not unreasonable that this occurs occasionally as well to others. Let me be the 2nd to mention it. No "official" verification, but....
I'm not bagging on Lamictal, and have been very hopeful that this would be better than Lithium. It has eliminated the GastroIntestinal problems I had on Lithium, but I am getting discouraged that it has all the brand new symptoms that are discussed in this blog. Your "stuff" is real. I wish the Docs/Nurses/Case Workers would spend 5 minutes checking your comments out. It might bring about a better informed conversation than the shiny Glaxo flyers provide. That is all.
August 28th
2008
12:40 AM
I have been taking Lamictal since October of 2007. I experienced some of the symptoms (muscle pain in the head and neck) before I started the medication. I have experienced panic attacks since July of 2005. I have had mild heart palpations since I was in my mid 20's (I'm 36 now). I have had what I would consider a below normal energy level since my mid 20's also. Ok so like everyone else I am thinking I'm a hypochondriac! However, I was diagnosed August 28th 2007 with having Lyme’s Disease and also Hyper-Thyroid (same time, same lab-work). Two weeks later I was diagnosed with Bi-Polar Disorder (this is one thing I knew I was battling but didn't know how to handle it). My physiatrist started me on Lamictal and I did the standard ramp up to 200mg. I also was started on a 90 day treatment of Dyoxicycline for the Lyme’s and Methimazole for the Hyper-Thyroid. I was very very weak and was only able to stay awake for short periods of time (4 to 5 hours max). Just an fyi, I am not overweight, lazy or unmotivated. I have the physical appearance of perfect health. This, I think works against me as the Dr's seem to think I'm just whining. Mater of fact; my Primary Care Physician never tested me for Lyme’s. I went to an Urgent Care Center which tested me for Lyme’s disease and I came back positive (they also tested my Thyroid levels and found the problem with my THS levels) I told my Dr the results and he insisted I have same test done again. Guess what, new tests, same results.
My symptoms today are very similar to what I have seen posted many times. Muscle pain (entire body, some areas worse than others), heart arrhythmia, racing heartbeat, intense palpitations, nausea, foggy “un-plugged” mind, fatigue, weak muscles, muscle cramping (especially after repetitive motion, such as strumming a guitar), panic attacks (much more severe) and the latest addition to the group, Insomnia. Muscles pain in my head, fore-head, jaw, temple, neck (front and back), shoulders, is terrible to say the least. The pressure in my fore-head (right under my brow) makes me feel like I need to close my eyes or rest (resting does not relieve anything). The front of my neck is so tight at times it feels like my jaw is being pried down. I could go on and on.
On my quest to find out what else is going on with my body I have had 2 Echocardiogram’s on my heart and abdomen, 2Nuclear Stress Tests, blood work out the wa-zoo, MRI of my brain, 2 CT’s of my Head and Neck, Chest X-rays, Endoscopy, Colonoscopy, and all revealing nothing.
Most doctor’s I have encountered seem to want to treat the symptoms, not the problem/disease. I believe I know why; we (the ones who are there for solutions) tell them what the symptoms are (how we feel). We of course are thinking “this will help with a diagnosis of the problem/disease”, when in fact (I feel); the doctor’s thought process stops there. They don't know what’s wrong with you but they do know what your symptoms are so....bingo, let's treat the symptoms. Don’t misunderstand what I am saying. I’m not saying, “Most doctor’s don’t know what they are doing” or “don’t take your meds”. I am saying you and I are one of the 20 to 30 patients most doctor’s see daily (100+ weekly). They may be caring and good people but they are just as human and fallible as you and I. My advice is this; (and I am taking my own advice) don’t always “pop” into your body what the doctor suggests/prescribes, without doing your own research. Heck most of us won’t buy a car or more importantly, send our kids off to a college with out doing your own research (we just don’t trust those shinny brochures). Your body and your health are worth you doing your own research. Just keep in mind, Pharmaceutical Reps are always at your Dr.’s office (sit in the waiting room for 10 minutes and I’m sure you will see one). Reps are paid to do one thing; encourage (push) the Dr.’s to promote use of the Pharmaceutical Companies drugs.
My wife and I have been doing our own research on Lamictal (after a year of taking this stuff) and the side effects associated with this drug. We have searched through many (many,many) web sites for information and we have talked with pharmacists and Dr’s for opinions. Although I’m am not thoroughly convinced that Lamictal is the cause of all of my symptoms, my wife and I have decided to lower my Lamictal slowly from 200mg to 100mg. I am now taking 150mg daily (three days now) and plan on staying at this level for a total of two weeks before lowering to 100mg. I do fear dropping the dosage to quickly (potential side effects) or lapsing into a mania. To help avoid a manic episode my wife and my immediate family are all “up-to-date” with my course of action. They are on “Red Alert” and have promised to keep a close eye on my behavior patterns and moods. (I don't want to put them through another hyper-mania episode, its much too devastating). I do want so badly to feel healthy and alive again and at this point I am rather frustrated with the Dr.'s ability to help me achieve this goal. Remember it is called “Practicing” Medicine. So now I’m going to practice a little, very carefully and cautiously.
As a foot note; I have recently (past two weeks) been re-tested for Lyme's with a negative response. I am keeping in mind Lyme's test are very inaccurate (still hoping this one is accurate). My thyroid is under control and normal, so.... let's see if dropping below 150mg of Lamictal will eliminate some of these other symptoms. I will keep you posted.
Erik
May 29th
2008
4:40 AM
Our daughter is 17. She started taking Singulair June of 2000, 8 yrs ago. Upon hearing the side effects I insisted she stop taking the drug due to the fact that she also showed extreme signs of agitation, irritation & was always angry & frustrated by everything & everyone around her. Her standard comment was " I know I'm mean & rude". As a parent you know your child & we knew something wasn't right but never suspecting this drug. She as a young child never exhibited any of these signs. She was evaluated by 2 psychiatrist in these past 8 yrs., ADD was one of the diagnosis & our concerns that there may be some bipolar symptoms. After taking her off the Singulair there has been an obvious improvement that is evident to all the family members. The Singulair did an outstanding job of helping with her allergies which are severe & also contributed to multiple sinus surgeries. But the trade off? We are absolutely convinced & she is too that the Singulair had a debilitating effect on her personality. She once again talks, laughs & is such a joy & pleasure to be around. I will add that she never felt any suicidal tendencies, but just severe agitation, irritation, impatience & her reactions to situations & people around her were completely out of balance. I will always be convinced given our experiences that Singulair was completely responsible for 8 yrs. of heartache for us as her parents & 8 yrs. of misery for her.
-- By debbiekt | Reply | (1) replies | Private Message me
April 7th
2008
3:16 AM
I was on Lamictal for 4 years and after the first year I suddenly started having all kinds of teeth and gum problems for no discernible reason. But since Lamictal has the possible side effect of "sores or blisters on the inside of the mouth" I wondered if it could be related.
I did a Google search and am coming up with no experts yet, but lots and lots of posts connecting anticonvulsant meds, particularly Lamictal, Topamax, Neurontin, and Depakote, with dental problems. Dilantin is well known for causing gum disease and breaking down tooth enamel, loosening of teeth, and even breaking down of jawbone tissue.
I don't think the experts have connected the dots yet, but is anyone else having this problem?
-- By absisback | Reply | (15) replies | Private Message me
January 4th
2008
11:00 PM
having giving this drug two chances I'm ready to give up on it. while it has been great for bipolar symptoms, I've struggled with the side effects. one that I'm attributing to Geodon I haven't really read about is back and chest pain(muscular). has anyone else experienced this or am I alone?
-- By chaz5848 | Reply | Private Message me
November 3th
2007
11:25 AM
I was diagnosed bipolar a year ago and worked my way up to 200 mg of Lamictal a day but recently desided to wean myself off of it as I have found some chinese herbs that will stabilize my moods without the side effects. Since being on Lamictal, I have had horrible pain in my left foot when I walk and it just kept getting worse. The pain got so bad I could not stay at work. I am a welder and have to be on my feet all day but after two hours I would be in so much pain and have to take tylenol 3 with codeine just to make it through an 8 hour shift. I am now down to 25mg of lamictal and soon to be totally off. My foot is now healing and I feel great personally. I am not irritable or moody but am taking Chinese herbs . I noticed when I got myself down to the 100 mg level then went to 75 mg of Lamictal, I got really sick like I had pnuemonia and I had severe chills, bad headache, swollen lymphnodes and very nauseated with no appetite for three days. I lost 5 pounds during this time. I got through it but felt like I was haveing a illegal drug withdrawal big time.
Lamictal was poison to my system. I feel great now. I can now start to run and exercise again. For anyone who has interest, go to Ron Teegaurdens Dragon Herbs web site and find a natural way. you will be much happier.
Lamictal is bad stuff.
anonymous
-- By dragonwitch | Reply | (1) replies | Private Message me
October 29th
2007
8:20 AM
I have started Lamictal and I have numbness on the right side of my face.
-- By creativewz | Reply | (1) replies | Private Message me
August 15th
2007
2:48 PM
I used to take Lamictal 150mg at night, no problems, but started feeling anxious in the afternoon/evening. My Dr. Rx'd 300mg lithium at night to see if it would help the anxiety, but I had very fitfil, unrestful sleep to the point where I was not sleeping much and very tired all day. So, the Dr. took me off lithium and substituted Tripletal 300mg in the evening. That worked, but I was still a little depressed & she increased my Lamictal to 200 mg at night. I started waking up after about 4 hours with horrible nightmares. I thought the nightmares were from Trileptal because that was a new med, but even after I discontinued it, I still get the nightmares/panic feeling that wakes me at night. I took 2mg Lunesta for a while to help me sleep, but then I slept too much 10-12 hrs. I take the Lamictal now in the morning & don't get those nightmares & I sleep fine now, but I feel anxious & dizzy and have trouble concentrating, again about 2-4 hours after I take it in the morning. Dr. says I can take ativan to help the anxiety, but I feel like I need to get off Lamictal and try something else. Maybe lithium will help if try to take it now witout the Lamictal.
-- By viola739 | Reply | (3) replies | Private Message me
October 1th
2009
9:59 PM
I have been taking Geodon for about 4 months now and it has relieved my bipolar symptoms remarkably well but in the last month and a half I have experienced a "Shocking" feeling to my heart that goes down my arms and legs. I was referred to a cardiologist and had a not so good EKG. I am scheduled for a ecocardiograma and to wear a heart monitor for a few days and then follow up with a nuclear stress test on Friday. The feeling is scary and recently I have not been sleeping. At first the medication was a miracle and I had for once in my life a normal sleep pattern. I guess I am worried about my heart. I take 180 mg every night along with a sleeping pill that was prescribed by my doctor. He was running out of medications that would help me. I have lost 27 pounds since being on the medication which is on the good side but is the cost going to be my heart? I will post what the doctor finds so that all of you can know what to look for or be on the watch out for. Many thanks for listening. B.
-- By percy44 | Reply | Private Message me