Blood clotting disorder symptoms and conditions

I am 22 years old and I got the Mirena April of 2008. I got it put in because I have a blood clotting disorder and this was the only option of birth control that was safe. I don't have any kids. When I first got it put in it was the most horrible pain I have EVER experienced in my life. I bled for a couple months on and off but it was just spotting. I still have my period but its way lighter! I LOVE THE MIRENA! Ive had some side effects but not to the extreme you ladies are saying. I was on the pill for 4 years and I have the same side effects as i did on the pill.. The only thing that I dislike about the mirena is the bad ODOR! I don't like it. I feel like I can always smell myself and Its embarrassing! I use summers eve and clean myself out probably more then I should, but I cant help it. Does anyone have any suggestions?

After reading these posts I am more confused than before, because my experience is so far very different. I was diagnosed with DVT about two weeks ago and now take Coumadin daily; the Lovenox injections have been discontinued. The reason I'm so confused is I now feel the best I have in 5 (five) years.

Before being placed on the anti-coagulants I had memory and concentration issues that were progressively getting worse and greatly affecting my job, and had daily headaches. I had joint pain that made it difficult to get up after sitting for awhile; they felt constantly inflamed. I felt fatigued all the time and my muscles hurt like I had really pushed them; I just didn't have any strength, and had muscle cramps. I was constantly yawning and found my jaws hurt from clinching my teeth, subconsciously trying not to yawn. I was extremely sensitive to physical touch, even hugs hurt. I also felt extremely depressed and cried almost daily. My lips and left cheek tingled, as well as other parts of my body. Plus I would get the feeling of sudden pressure in my head (different from a headache) like it was going to pop off, and I my eyes didn't seem to track what I looking at and had difficulty in remembering or comprehending what I just read.

About 6 (six) days after starting treatment it completely changed and these symptoms are essentially gone. I have talked with my doctor and pharmacist and they are baffled. I am concerned this change, while welcomed, may indicate an underlying condition that is not yet diagnosed. Has anyone ever heard of such an impact from starting Coumadin treatment?

I have been on Yasmin for two and a half months now. It was prescribed to me by my doctor as a means of treating 2 cyst that developed because of my endometriosis as a means of avoiding surgery. He put me on it for 3 months but because I forgot to start the second pack for 2 weeks I had to start the 3 month period all over. The first month I took Yasmin the side effects were minimal but since I started taking it in May I have gotten a constant vaginal itch and pain, my eye sight is blurry, stomach feels sick and I get stomach pains, neck pains, shoulder pains, leg pains and hip pains, pains in my face, little or no lubrication during intercourse, constantly have to urinate, stomach feels like its tightening and has gotten really big, gets short of breathe easily, bad headaches, I feel as though I would pass out any minute when I am standing or walking, I am disinterested in everything, I get nausea, I have lost all interest in sex, I feel bloated all the time, I have lost all taste in my mouth, feels very tired and fatigued all the time, I feel very sad for no reason. I keep feeling sick all the time and have lost interest in food. When I am sitting I feel the pains in my legs and hip even more. I am falling into a state of depression and it is beginning to show at work. I am also gaining a lot of weight, rapidly, and really don't know what to do about it because I am very careful with the things I eat, how they are cooked and the time I eat also and I do exercise. I really don't know if I should continue until I finish the 3 months to see if it works for me or if I should stop taking the Yasmin and ask my doctor to try something else. I just don't feel altogether right now.

For all of you that has had problems with Yasmin or Yaz, I'm sincerely sorry. I'm really curious though to all of you, has anyone that read the leaflet that comes with the birth control box, have any problems? If you read that it may increase potassium which may cause serious heart and health problems so it would be good to get your potassium level checked before taking it. Side effects usually go away after 2-3months, has anyone have problems longer than that and ended up finding out what was the problem? I just wanted to know because my girlfriend is about to take it...and I wanted to know if one knew about the effects of this pill, and what precautions they had taken. Okay, thank you.

I just had my mirena inserted like 2 weeks ago, i'm 18 and have never had a child though i did get pregnant and have a miscarriage. they told me it was going to hurt, and it did, but all these women saying they screamed and it hurt worse than childbirth are obviously exaggerating. it hurt like a really bad menstrual cramp DURING THE INSERTION, afterwards yes, there was cramping and bleeding but nothing nearly as bad as what these women claim. if childbirth hurts less then i am no longer worried at all about that. so far the only side effects have been my face has been much clearer, very much the same way it did when i was pregnant, and a couple days after insertion i had sex and found that when my boyfriend went as deep as he could there was a slight bit of pain.
the bleeding stopped one week after the insertion (making my period only 3 days longer than usual). when my obgyn suggested i try mirena the first thing i did was google it and i came up with this site which made me even more nervous but i've since realized that not everyone has these terrible experiences, i certainly didn't. there are relatively few people posting on this site and i'm sure many more women have had it inserted with no problems. every form of birth control is bound to have some issues. when i first read this site i wished that i was able to take regular bc instead however that is not an option for me due to a blood clotting disorder i have, but now i'm glad i opted for this. it is much easier, no remembering to take pills, no excessive hormones to cause me to have blood clots, no pregnancy. if it doesn't work for you fine but don't tell people who haven't even gotten it in yet not to get it, they can always take it out if it doesn't work

My daughter was 16 when her GYN started her on Yaz. She was 5 ft 3 and 100 lbs. Non smoker. No risks. She went on the pill because she was having heart palpitations and extreme fatigue that correlated with her menstrual cycle. The idea was to level her hormones and see if that would level off the physical problems. Within 6 weeks she suffered from a pulmonary embolism. Because she was young, everybody though it was just pneumonia or inflammation of the lining of the lungs (pleurisy). Then her leg swelled up and turned blue from a clot (DVT). I found it fascinating that everybody at the first hospital, during the helicopter ride and at the second hospital all had EXACTLY the same reaction . . . They all said, "you just started taking the pill, didn't you? Probably one of the new ones like Yaz." Apparently, these new 'third generation' pills are worse than the old ones when it comes to clots. It turns out that my hubby's history of blood clots should have been a clue that my daughter has a common clotting disorder and YAZ triggered it into action. The clotting disorder affects up to 10% of Swedes and that is where my hubby's family comes from. Up to 5% of all Caucasians in the United States have Factor V Leiden as well. I notified the FDA and highly encourage everybody else to do so as well. The doctor are not required to file a report unless a patient dies. My daughter is doing better now. If any reporters are reading this, please contact me. B. A. ***** If you have ANY family history of problems that might be due to clots, avoid the third generation pills.

I stumbled on this site while doing research on DVT's. I am a nurse and was on YAZ continuously (skipping the inactive pills and going straight to a new pack) to control my migraines for about a year. I developed 3 DVT's in my left calf and behind my left knee. I have been having charlie horse cramps as well. I am now on lovenox injections 2 times a day and 7.5 mg. of coumadin to deal with the clots.I have also had the issues with heart palpitations, chest tightness, and feeling like i can't catch my breath. I read in one of the posts where it was described as she "had to think to catch her breath". I totally agree! I thought this drug was great, until now. I stopped it last wed 1/7/09 when they found the clots in my calf/knee. Can anyone with experience tell me how long it took them to recover from the palpitations and breathing issues. I am a very health person, non smoker, with no prior or family history of any clotting issues. Thanks for all the info on here and God Bless everyone who has suffered!

I've been on Yasmin/Ocella for 2 years, and the other week I had two panic attacks, like my body suddenly felt achey, trembly, as if I couldn't breathe, my throat and chest were constricting. After a long time, both passed, but since then I constantly have felt a tightness under my jaw, lump in my throat, and chest tightness on and off. My doctor told me I was just experiencing anxiety but now I think it may be Yasmin, even though I never had problems until now. Sometimes the skin on my throat feels itchy/tingly in a subtle way. If anyone has had these experiences with the throat & chest on Yasmin, I'd like to know because I'm hoping the problem is this.

I had my IUD removed 2 days ago and so far, so good (had it for 5 years so it had to come out)... I've had no cramping, no spotting, and no headaches - I wonder how long it will take my body to get back to normal? For the first 6-9 months after insertion, I had spotting but since then - I've had no periods and no PMS... After reading all these comments though - I'm not sure if I can really blame my weight gain, lack of sex drive, and periods of depression on the IUD but am curious to see if any of that changes the longer it is out... I mean can something like that REALLY cause that many problems? Anyway, I have no other options of b/c because I have a blood-clotting disorder and cannot take anything with high amounts of estrogen (no pills, no shots, no patch, etc)... I refuse to use a diaphragm so it looks like condoms for now... I'm glad I found this site though... :)

My gyn wants me to get the mirena. I am 28 and have a blood clotting disorder for which I take blood thinners. I had an embolism while on Nuvaring in March. Anyway, because of the blood thinners I bleed 25 days out of a 28 day cycle and there is nothing they can do about it...so the gyn suggested MIRENA. I'm a bit scared because I have not had any babies yet and I DO want to get pregnant within the next 5 years and start a family. The gyn assured me that I would not have any fertility problems and that Mirena was a wonderful device. I am still skeptical. What if I become depressed? What if the cramping is too much? It seems like a lot to go through ...the insertion, the risks etc. and what if I hate it? I am leaning towards asking for the mini-pill instead (progestrin only). The idea of having something inserted into my uterus frightens me.

In taking Yaz and having it clot up my blood so badly, that I had stroke symptoms, I had some blood testing done. The doctor ordered a "Thrombophilia" test. The results came back with me being positive for MTHFR. A genetic blood clotting disorder. The type I have is very treatable with Folic Acid, Vitamin B and Baby Aspirin. But no birth control pills for me. Estrogen causes major clotting. And I could end up with a stroke or die. Considering many people have this disorder and don't even know it, I am surprised how birth control pills are handed out like candy, without these things being taken in to consideration.

I am a 26 yr old newly married woman and have been using Yasmin for 7 months.

I've experienced really sharp breast pain and sore calves occasionally whilst on the pill, but also have seen benefits of using this contraceptive - lighter, more regular periods, clearer skin and less greasy hair (these use to be big problems for me). I haven't had any severe mood swings either, as some have mentioned of having.

I think with all contraceptives there will be good and bad side effects - just depends which brands you can cope better with.

Just wondering if Yasmin can cause infertility if you take it for too long??

I am 20 and have been on Yasmin a year and a half now and to be honest I am still not 100% completely convinced that Yasmin is the root of all my evils. To all of you who are having horrible side effects after a few days, give it time. Your body is trying to adjust to all the hormones you are putting into it and it’s doing its best to get back to normal. My first month was semi-bad, some nausea here and there and a little tenderness, but not enough to stop my life over. My doctor recommended taking the pill right before I went to bed so I could hopefully sleep though the nausea, which I usually did. After the first month I was perfectly fine and back to my normal life. I then switched to taking my pill in the morning so it was easier for me to remember. After reading countless “horror stories” on this website even I started saying, “oh my gosh, I have that….i have that too….and that!...its all because of that horrible Yasmin!” But then I had to take a step back and realize Yasmin is not to blame. Sure, I have panic attacks sometimes, but I have had those way before I started taking birth control and sure I get depressed sometimes, but what woman hasn’t at least once in their life? I didn’t lose or gain weight, my acne perhaps got a little better, and my breasts didn’t change an inch. My only questioning factor is that I don’t really have that big of a sex drive, but then I realized I never have. Now, before you all start yelling at me, I am not calling you liars in the least, I believe you and I feel sorry for all of you who have experienced bad things because of this or other birth control pills. For those of you who are thinking of taking Yasmin and are scared after reading all of these articles, remember, every body reacts to pills and medication differently. Thousands of people die every year from taking Tylenol and aspirin, but does that mean we should take these medicines completely off the shelves? Of course not. All I am saying is for every one Yasmin horror story there are thousands of very satisfied customers. Give it a try, you only have three months of your life to lose and so much to gain.

I had Mirena put in in April 08, I did not have the bad cramping when inserted or any cramping after, how ever I did start bleeding 2 1/2 weeks later and it continued for almost 15 days, and then every 8 days after that I would start "spotting". Just recently the spotting has slowed, but I am bloated ALL the time I have had Looser stools I get nauseated easily IM VERY stressed and tired, and I had a great sex drive before, now I don't even thing about it and pretty well shun my husband who now sleeps in the living room. I have a blood clotting disorder where I cannot take certain forms of birth control and I was told that this was the best option now I wonder if the mini pill is better?!

I got the Mirena about 7 or 8 months ago. My Dr had a really hard time with insertion the point of having to dispose of the first Mirena. She asked me if anyone had ever told me my uterus was tilted back and to the left. Ummm no. Periods every two weeks, with major sharp, burning pain on my left side at waist level. When I feel the pain, the bleeding follows shortly. My husband says I am moodier than normal and has been telling me I should get it removed. Anyone got a ballpark figure on getting ones tubes tied? I took birth control pills for 20 years and then found out I have a blood clotting disorder and can't take them anymore. I do not want to be 40 and pregnant, but I feel like my choices are dwindling to nothing. I have always had headaches so I wouldn't notice that, but the moods are worse and I am snappy at people. I think I will call tomorrow and make an appt to have this taken out.......