October 10th
2008
12:58 AM
I have Autoimmune Hemolytic Anemia (AIHA), was diagnosed in Feb. 2008. Have been ill for several years and finally it came to a head in Feb. I had a blood transfusion and then in the hospital 6 days later with a hgb of 4.0. I was so toxic and my blood so screwed up I nearly died. I was given another transfusion then (total of 5 pints of packed red blood cells) and started on Prednisone. For 3 days given liquid Pred injections, starting at 1000mg, tapering down to 250mg., then on the pill form at 100mg. Sweat poured off of me dosing down. I was off work for 2 months. I am still tapering but am now at 1mg. DR. added another drug, Danazol, after getting to about 10mg because my blood started going crazy again. My side affects with Prednisone have been, Euphoria, no depression, LOTS of hyper brain activity, thoughts running a 100 miles an hour but body at slow speed.Visual problems and a feeling of being highly drugged. 2 to 3 hours of sleep each night, compulsive behaviors and a lot of pacing back and forth. Couldn't hold my concentration because my mind wandered so much. Extreme Tremors in my back, hands and head. Wanted to talk constantly, if no one was around I talked to my Chihuahua or the TV. My cheeks puffed up and became hard and had a fat pocket puffed up on left side of my neck. My dog thought I was crazy, she was tired of the lights being on at 3 or 4 in the morning. Legs looked skinny but didn't gain weight until I got to about 60mg. Gained 25 lbs total. Tapering caused bad spasms in my calves, feet and hands. Thigh muscles would get extremely weak each time I went down a dose. At 50mg I started getting sleepy and could hardly stay awake. Went back to work at 35mg and couldn't remember how to sign on to my computer. Some memory problems since I was in the hospital, couldn't remember how to spell words I knew as a young girl. Started having hip pain about 3 months into the Pred, that hasn't stopped. At 10mg feet, knees, shoulders hurt deep in the sockets, muscles below my neck knot up, may take a while to totally get off this. Read on a couple of blogs where people cut a 1mg tab into 4 pieces to taper off the Pred. because of side effects. Had thrush in the beginning and break outs of shingles. I hope to God I never have to get back on this drug again, it is so HARD on the body but it did do what it was given for, to repress my immune systems. My next step is Spleen surgery, hope this is a cure for me, am sick and tired of being sick and tired. Wouldn't advise anyone to take Pred unless it's a life or death situation. It's prescribed too liberally and people have multiple problems, worse than I have experienced. I've probably forgotten some things, but there's enough I've mentioned to give you an Idea it's not good, but if Pred is all you have then you do what you gotta do!! My puffy cheeks have went down though, now my hair has become curly but at least I have hair and my chihuahua stills loves me!!!
-- By linn | Reply | (4) replies | Private Message me
August 7th
2008
12:27 AM
Hi,
I am 50 years old. I was diagnosed with as hypo at age 39. My doctor prescribed Synthroid at 25mcg and I have (proudly-ha!) worked my way up to 125mcg. I was always one of the "lucky ones" who could eat any and everything and my weight stayed the same. I am a busy mom of two and a first grade teacher, so the 33 lbs. I have gained since age 39 has not been due to diet changes or sitting around with a bag of chips in front of a TV all day. I also questioned my doctor about this and he just brushed it off. Well, I am tired of not feeling good about myself. My life is in good order except for my weight. I want someone to take this seriously. Should I see a specialist rather than my regular internist?
Wow! I think I just lost a little weight telling you great people about this!
jf
July 16th
2008
4:38 PM
I have been on prednisone since November 2007 for minimal change disease, 65 mg, in May I started to decrease the dosage (per Drs. orders) and by the time I got to 15 mg all my symptoms came back and I swelled up again. I was again put on a higher dosage of prednisone and put on Cytoxan 75 mg. I am now decreasing prednisone, back to 15 mg every other day and will be off Cytoxan next month. Hopefully this will work. Right now my main complaint of side effects is chest pressure, anything I eat or drink makes my stomach swell and I feel like I can never take a full breath. I recently had chest and abdoman xrays and an ultrasound, all negative. Does anyone have this symptom? I also have moon face, weight gain, hump on back, insomnia, headaches, digestive problems ,shakes, night sweats, vision problems, extreme tiredness and hair loss. How long before all this goes away?
-- By looboo | Reply | (5) replies | Private Message me
June 30th
2008
12:50 PM
I'm very curious to read all these side effects! I have some strange symptoms going on and it only occurred to me after weeks of them that they may be caused by the Mirena IUD. Apart from constant annoying spotting and a bit of a dull ache in the pelvis now and then, I thought I had no other symptoms but I can see that my fuzziness in the head, low grade anxiety and stress that I've been feeling lately may be related. I've also been ravenous and am putting on weight but can't seem to stop eating junk. My energy levels are low and I have body aches and fatigue and find it hard to work out. But has anyone had achy joints in the hands and feet? .....tight tendons in the ankles & archilles and sore bones in the feet.......a feeling like swelling/tightness in the joints in the hands? I thought I was getting arthritis but maybe it's related to the IUD. I'd appreciate any feedback. Thanks
-- By angelamella | Reply | (5) replies | Private Message me
April 23th
2008
9:15 PM
Hi, thought I'd share my positive story about having Mirena removed. Having it removed was no doubt the best decision even though two doctors told me that it was not necessary and the loss of hair, graying and loss of libido could not be due to Mirena since it releases minute amounts of hormones locally. Not only have I seen a return to my libido but the hair loss has stopped. this cannot be placebo effect. Even my husband has noticed the difference (no more clogged drains). Thank God! I felt like I was aging at the rate of knots. I now feel so much happier, healthier and more attractive. For all out there who are wondering if it's the Mirena causing hair loss etc, I sincerely believe it is probably very much the case, despite what the medics will tell you. Best wishes.
-- By ihatemirena | Reply | (2) replies | Private Message me
January 20th
2008
5:57 PM
I have been on synthroid for about 6 months now. Some of the side effects I have been experiencing are numerous.I have hair loss, sometimes I get so ill that no one can stand to be around me, my weight has gone up about 30 pounds, my cholesterol levels went sky high so now I'm taking Crestor, I'm bloated most times, I have episodes where my face flushes and gets so red that it feels like its on fire, and now I've just started experiencing burning and aching of the legs, I'm tired a lot too! My doctor said I would lose the weight but every time I go for check ups and get on the scale it just keeps going up. I would like to know if anyone else out there is experiencing the burning and achy legs because I have been tested for everything and they can't find out what is going on. They of course say it's not the medication.It seems to never be. Does anyone feel me??
-- By sharone | Reply | (24) replies | Private Message me
January 4th
2008
7:46 PM
BE VERY VERY CAREFUL WHILE TAKING THIS MEDICINE. Get regular blood tests. I have Chron's disease. This is the drug I was supposed to have been taking to keep me in remission once I got there. (I took it while I was trying to get into remission as well- actually not into remission yet.) I landed in the hospital for what the "DR.s" say was "unrelated severe back/flank pain." Aside from it being the worst hospital experience I've ever had (they told me that nothing they could see was wrong and that the ER was only for life threatening conditions. ) After mixing up every conceivable test they possibly could, the ER dr came in with blood results and said well we have to keep you in the hospital because your KIDNEYS ARE SHUTTING DOWN. I was freaked because he made it sound like they were already almost gone. Luckily a nephrologist came to see me quickly and explained that it had lost 1/4 of its function but that she thought it could be fixed. After an exam and talking she determined it was the PENTASA that had done this. She said that I had to immediately stop taking it and that if that was the problem as she suspected my function would come back up to the reasonable range. It was the Pentasa and my function did come back. What was trying was that all the GI doctors and hospital doctors other than the nephrologist hadn't even thought about Pentasa as a possible problem because they say that "there is less than a 1% chance that Pentasa would shut down your kidney function." None of the doctors in their time had actually seen someone who it had happened to. If I hadn't landed in the hospital for back pain my kidneys would have shut down completely over time without me having a clue and the consequences of that are scary to think about. I'm just glad that I had at least one doctor that looked at the overall picture and examined the "less than 1% chances."
-- By tesa | Reply | (1) replies | Private Message me
January 24th
2007
7:22 AM
I have been having a lot of trouble with rapid heart beat. I was taking 112mcg. which my endocrinologist increased to 125 because of my blood results, and then the heart problems kicked in. Since then I have tried all sorts of dosages, even going off it for a couple of days (which did calm my heart down considerably). I'm working with 75 mcg now, but after 7 days of that, my heart start pounding away again. I had thyroid cancer so I have to take some kind of hormone replacement, but this is a challenge. I am wondering if Armour might work better.
-- By katherinemoyer | Reply | Private Message me
June 23th
2006
5:42 PM
I have been taking simvastatin for just over a year, started having muscular cramps 6 months ago - blood results were negative. I now regularly get pins and needles in my arms and find the muscles contract of their own acccord. Dr advises it's in my mind and nothing to worry about. I'm not so sure.
-- By lestombs | Reply | Private Message me
June 20th
2006
9:21 PM
Just at update-- day 9 without Yasmin I think and it started out HORRIBLE. I went to the doctor and I had a yeast infection and got lots of blood work done... I won' t find out the blood results till Thurday, I'll let you all know what they find!
I am feeling really good emotionally right now. I am not going to take it for granted though.
Has anyone else got a yeast infection while on or getting off Yasmin?
April 21th
2006
8:49 AM
About a month ago, I was put on Bactrim for a sinus infection. Could only handle four days as it made me short of breath and nervous. Told my doctor and she put me on azithromycin which I started taking about 5 days after the Bactrim (wanted to get it out of my system first). One of the side effects was tiredness. I finished that course of antibiotic but was still very fatigued. Went back to the doctor and she said the azithromycin must not have cleared the infection so she put me on a 5 day course (1 a day) of Levaquin. My tiredeness continued and have been off for 6 days and the fatigue is so bad I had to go back to the doctor a few days ago and she ran blood work. None of the extreme fatigue started until I started on these antibiotics. Can it still be the antibiotics in my system causing me to be so extremely tired? Any thoughts would be welcomed. I'm chopping at the bit worried waiting for blood results. Thanks.
-- By kaja36619 | Reply | Private Message me
July 19th
2005
6:51 AM
this is on behalf of my husband he was on zecor for about 2years and then his gp put him on 40mg of atorvastatin it was then he started to complain about pain in his legs but years ago he did suffer aspell with his legs so he just thought he was having abit of athritis he is 53 and as the weeks have gone by he can bearly walk because of pain in his calf thigh and lower back his cpk and liver blood results are raised he is waiting for an appointment with a rheumatologist on the 10 of august but he is due to take a hgv goods medical in september to renew his liscence but Ican not see that he will be well enough to do a tread mill test which is part of his medical he has stopped takeing the 40mg of atorvastatin after reading so many other people who are suffering with the same side affects he was defenately well before his dose was increased we are worried to death about his symtoms and he will proberly lose his job also he is irratable and his memory does seem to be affected no one seems to know how long the symtems go on for or is the damage permerment
-- By pauline342 | Reply | Private Message me
December 27th
2004
11:47 AM
15 yr old son has taken 5mg Singulair since 1998.
In 7th grade I asked the Dr. if it could possibly
cause him to be irritable and was told no.
He has severe rages over little things. Also has complained of dizziness, overtired and has reflux. We have taken him to
a Child Psychiatrist who is puzzled because his behavior
makes no sense. Thank God he hasn't been put on any psych. meds yet, maybe it is the Singulair !
We just found out his liver enzymes are 3 times
elevated, sgot/ast of 162. This was the first time he has ever been blood tested. We have taken him off the
Singulair for the past week and a half and his fuse
is much longer so far. I can't wait to see his blood results
at the end of one month to see if it was effecting his liver too.
March 20th
2004
8:30 AM
65 year old female highly energetic with super brain functions.
Taken 20 mg lipator for 1.5-2years and definately noticed short term memory loss.Also had severe leg muscle cramps
like charlie horse in upper thighs, totaly excruciating pain. Stopped lipator for six weeks and cholesteral shot up to 290
but I feel great and energetic. Doc wants me to go back on
and recheck blood in 7 weeks. Will try 20mg every other day
and not let him know until blood results, otherwise I'm off it for good. I would rather die at 80 with a good functioning brain, then 100 like a zombie.Doc also said memory loss atributed to getting older and I said bull crap. I'm fine now and workiing full time as I was before even though things were not as sharp to me as now without the lipator. Will advise.
Lipitor (3) Synthroid (2) Mirena (2) PredniSONE (2) Pentasa (1) Lisinopril (1) Levoxyl (1) Zocor (1) Singulair (1) Yasmin (1) Levaquin (1)
January 14th
2009
8:55 PM
At thirty-two, active, healthy and slender I developed unexplained Hypertension. I was put on Lopressor.
-- By closecall2033 | Reply | (1) replies | Private Message meI relocated to the Southwest. My new doctor changed my blood pressure medication to Lisinopril. I balked at changing what had been working well for me (14 years). I pointed out my history of allergies and drug sensitivities. I told her I had gone into Anaphylaxis from bee venom and another prescription drug. She told me that she was the doctor and I was not. She said that Lopressor, a Beta Blocker was a poor choice of medicine for me because I am an Asthmatic. I began the Lisinopril the following day. My second day on it I had a severe headache, the next day this was accompanied by tightness in my chest and a feeling of suffocation. By day three I also had edema in my face, hands, feet and was very short of breath and mildly dizzy. I was weak and could barely get out of bed. I called the doctor and she was unavailable but I spoke to the RN who listened carefully. She said she would speak with the doctor and call me back. Several hours later the RN called and told me that the doctor said these were not unusual symptoms when you first start Lisinopril. She said they would go away in a few days. I was to continue the medication. With trepidation I followed her instructions. Within an hour my face was numb, I had severe pain going down my arm, I felt like my chest was in a vice, I was gasping for breath and wheezing. The pain was excruciating. I was certain I was having a heart attack. I was taken to the ER. They immediately did an EKG and started an IV line. The EKG indicated I was apparently having a heart attack. They began all sorts of heart protocols, medication into the IV, blood work, etc. They tested me for Pulmonary Embolism. Still waiting for the blood results, they injected me with a radioactive isotope and began an MRI of my heart . By this time I broke out in hives all over my body, was itching like crazy and my eyes swelled shut and I felt my throat closing. I was immediately taken out of the MRI and given an injection. I began to get better. I was admitted to the hospital, a non- ER doctor came to see me the next day. After reviewing my entire chart and talking with me extensively he determined that I had had an anaphylactic reaction to the Lisinopril. He told me that Lisinopril is contraindicated in persons who are allergic to bees.