Bone loss symptoms and conditions

I was given lupron depot 5 years ago (2004) for endometriosis & adenomyosis . I researched the side effects and upon learning them I didn't want to take the shot. I suffer from multiple back problems, and the bone loss scared me. I voiced my concerns with my doctor at that time. He told me he knew better (he didn't want to perform a hysterectomy) and that he was giving me the shot. It has been a nightmare since. The side effects were terrible, the worst was the severe mood swings. Lupron depot changed who I was. I no longer was the happy carefree person I was. I was constantly angry and because of this drug I developed high blood pressure. This has not improved in 5 years. (I also gained weight from the shot and it took me 4 years after the last shot to finally lose all that weight.) I do not recommend any woman to take this shot. Do not let your doctor talk you or bully you into it. They only care about the money not you!!!!!!!

I obviously have a COPD situation...last 5 years of shortness of breath etc..there is no question of the relief I got from Adaviar but I have had the constant pain under my rib cage...feels like an elephant is sitting on my chest...but worst of all since I started three months ago I have had 3 teeth break off. I assume there is a bone loss issue involved with the ingredients.
I am on Medicare so I don't have any dental coverage so my dentist is having a great time with my extractions. If there are others with teeth issues please let me know. Adaviar has been around for about ten years but that does not mean a Class Action suit would be out of the question here. I have talked recently with my Primary MD about trying something else but I would not mind so help with my upcoming Dentures.

I had switched from Ortho Tri Cyclen Lo to Trinessa, and Trinessa was making my OCD and anxiety go through the roof. I was thinking that Yaz would be the best choice for me. I decided to talk to my doctor, and she gave me a month trial to see if I liked it or not. I messed up my pills a little bit, so I was late starting. I took my last placebo pill and finally started. It's been a lot of very light bleeding, and brownish discharge. This is my main annoyance with the pill. My periods are normally mildly heaving and last about five to six days. This period has been very light, almost non existent, and I am currently on day two. I have also experienced some mood swings, fatigue, and anxiety.
I will be switching back to Ortho this week.

I have been on prednisone since I was two years old (I am now sixteen) because I have Autoimmune Hepatitis IIa. I would like to point out that there is still a life worth living being on prednisone, maybe I say this because I do not know life without it, but at least we're alive! Last year I had a flare up of the AIH and had to 6x my dose of prednisone. It sent me into a spiraling depression of constant sleep, crying, hopelessness etc....but I made it through. Just PLEASE keep hope that things would get better, because I know what it's like being on the dreaded drug better than most.

I have only had the Mirena a week and already gained 10 pounds. I was on the depo shot for 11 years and NEVER had a problem. I did take periodic breaks from the shot but I am having the mirena removed and going back to the shot, I will deal with the bone loss issue when it happens. I refuse to get fat when I do not overeat. Thank goodness we are military and don't have to pay.

I only had the mirena a week and have already gained 10 pounds. I haven't had any other problems. Thank goodness we are military so I didn't have to pay. I will be having it removed and going back on the depo shot. I was on the shot 11 years (periodic breaks). I will deal with the bone loss issue when it happens, I refuse to get fat when I do not overeat at all.

After being on Fosamax for 6 years, my yearly bone scan didn't show much difference in my bone loss. I started wondering about the pain in my knees, right hip, hands and fingers. It wasn't until I started noticing my index and little fingers starting to grow in the opposite positions and hardening around the first joint, and shooting pains that I started looking up side effects of Fosamax. I have taken myself off this medication since reading that it can cause joint pain. I'm not sure this is the problem with my fingers, but time will tell. Who wants crooked fingers caused by Fosamax.

I have polymyalgia and the rheumatologist put me on 15 mg prednisone a day for one month then 12 1/2 mg 2 weeks then 10 for two weeks and now 7 1/2 for a month then down to 5 mg next month til next doctor visit. The only side effect I feel I am experiencing is not being able to loss weight. I have not gained any in the 3 month on the meds, but have been really watching my weight and can't seem to lose any. I do at times get a hot flash, not at night but in the daytime, but compared to the pain and stiffness from the polymyalgia.. I'm a happy camper. Before I couldn't get in or out of the tub or car the pain was so bad! Mornings were unbearable. I am 150 pound 54 year old female.
Does anyone else feel good about this drug and have had success with it. My doctor wants me off it in a year.

I was giving prednisone for only 5 days (not sure about dose, but it tapered to one pill on the last day) for a bronchitis induced severe asthma attack. I have only had asthma twice in my 50 years, both times associated with a bad case of bronchitis. The "doc in the box" reduced his original dosage due to the 3 corisone injections I recently had in my spine. After reading these posts I feel grateful I wasn't on a higher, longer term dose. I have some of the same side effects listed here including uncontrollable appetite, fat gain around the middle, water weight gain, constantly having to urinate, superhuman energy, heart palpitations, and approximately two weeks after finishing, I began to get a mustache (hairs that were previously white became brown over a two week period). I have read on the internet and been told by my pharmacist that this is temporary. I have also read and been told that the 2mg estradiol I take every day since my hysterectomy causes the body to retain and not rid itself of the steroids as it normally would (estrogen is actually listed as drug interaction with prednisone). The doctor in the box apparently just ignored this interaction and prescribed it anyway. However the main reason I am posting is a very strange possible side effect that occurred approximately 1 week after my final dose. I was awakened in the middle of the night with SEVERE pain (felt like bone pain, not muscle) in my right knee that lasted until morning. By mid morning it was gone. The next night I had the same experience but in both knees. It lasted about 5 more days, gradually tapering in intensity, and then just went away. I do have severe arthritis in my lumbar and cervical spine, having had surgeries to repair injuries from a snowmobiling accident. I have normal arthritis elsewhere for a 50 year old, but have NEVER had issues with my knees. Has anyone had this strange symptom? None of my doctors (internist, rheumatologist, physiatrist - who gave me the injections and prescribed physical therapy for my spine) had any explanation. The only explanation I have is the prednisone because I had taken the Z-pac (antibiotic) with no side effects several times in the past. Weird!

Incidentally, I am off the prednisone for about 5 weeks, am still hungry all the time, still fat, still bloated. Unfortunately the extra energy is gone. Best of luck to everyone on this strange drug. My heart sincerely goes out to all of you on long term therapy. God bless.

i took lupron only once and stopped because of all the side effects. immediate side effects were back pain, MAJOR DEPRESSION and mood swings, blurry vision with extra sleep in the eyes.

i have endo and had a laporoscopy for it but still had pain so doc said to use lupron. it is the worst drug i have had to take with the most side effects. I ONLY HAD ONE SHOT and i STILL HAVE BACK PAIN 6 months later!!!!! i am a drummer and now cannot play the drums. i have tried acupuncture but did not work for me just made pain worse. i also have gotten more acne, blurry vision, stomach issues. my life is not the same and now i have the side effects from LUPRON AND ENDO.

I went to docs for the back pain told them i took lupron they cannot find anything wrong. i went to a rhumatologist also. i am supposed to get a bone scan to see if they can find anything but they are doubtful. the only thing that helps with the side effects are back rubs, heating pads, tiger balm, taking walks, breaks from the computer and an occasional puff from mary jane seems to be the only things that help.

DO NOT TAKE LUPRON THIS DRUG IS BAD!!!!!!!!!!!!!!

I was diagnosed with seven fibroids, with some the size of a golf ball. My doctor was talking about a hysterectomy, I'm 52, but I opted instead for Lupron. Before I couldn't bend over and had a lot of pain in my stomach. I am going on my third shot, and yes, I have gained weight. And I am tired a lot, but these small side effects are nothing compared to the pain i was in before. I am also taking a give back hormone pill that helps with the bone loss and mood swings. I have not had any of the other problems that others seems to have. I am hoping this will shrink them so no surgery is necessary.

I am a 46 year old male. I have taken Nexium for 5+ years. I thought I had no side effects. I was diagnosed with osteoporosis this week. I have been breaking bones occasionally over the past 3 years. A bone density scan revealed a sever bone loss. Apparently the Nexium prevents the intake of vitamin D which is required for calcium intake and bone health. I need to get off of the Nexium.

I just completed my last Lupron shot. It really did wonders for the extreme pain. But the other side effects were extreme such as the anxiety, depression, sleepless night and have just been dealing with the high blood pressure. This decision to take this shouldn't be taken lightly, do what works for you. But always research for yourself!

I never thought about the side effects of mirena. I had mine in over 4 yrs. and now I've realized the maybe everything that I've been going through could be because of it. I've been depress, moody, in pain all over and I feel like no doctor knows what is going on with me. I have gain a lot of weight, I'm heavier now than I was at 9 months pregnant. I'm a 36 year old married mother of four, my youngest is five now. My main concern is that lately, I've been feeling this terrible pain on my upper back and neck. I feel my bones crack with every movement, they crack even when I breath. A few weeks ago I went to the doctor and she order an x-ray of my neck and it showed some deterioration of the bones. I've been so worried, even thinking that it could be cancer or something. Now after finding this website I am wondering if it could be the Mirena.

I am writing on behalf of my elderly parent, Carmela, who has been diagnosed with Lupus since 1991. She has been on a small dose of prednisone since her diagnosis in 1991. In the last several months she has developed very many odd hazey type grey spots all over her body. Dermatologists and doctors are not giving her any answers. They took her off predisone because they THINK this may be the cause. She is on an inhaler and does not like it. She wants to go back on the prednisone as she is feeling chest congestion and lethargy. I read an article on the internet that describes prednisone may cause unusual bruising. I'm not sure if this is what her spots are. They are only the color grey and appear to be beneath the skins surface. They are soft or hazy looking. They are small, about the size of a dime. Has anyone heard of this before in Lupus (prednisone) patience. Any info you have is sure appreciated. S. ******

I have been on fosamax for over two years.Then I was put on a generic brand. I have had bad jaw pain resulting from both brands. Also Had xray done found bone loss resulting from medicine. Something needs to be done. To much side effects.

I am a 58 year old women.I have been on advair for three years. I have gained a few pounds and have bone loss in my left jaw. Resulting from taking advair. Went to see my family doctor about the bone loss. He has taken me off of advair. A lot of pain due to taking advair. Possible surgery in future. I think advair should be taken off the market due to so many side affects.

1990 - 2003 synthroid
Major bone loss
Complete hair loss

Okay so I am 27 and I had my mirena put in Jan/Feb 07. It was the most painful procedure of my life. I mean tears and all. I have never had kids so i was a little worried about that because they advertise this for women who have had children but, my doctor said its fine for me. At the time, I was not married, highly sexual active and didn't want any unexpected pregnancies. I had been on Depo on and off since I was 17 and was worried about the Calcium bone loss and weight gain from that so I decided to switch. Any who, I normally had very bad cramps with my period but, with the Mirena they were 10 times worse for like 2 months. I was told that it was normal, of course (What would I know) Time goes on everything seemed normal. My cramping lessened, bleeding lessened, but, i still had my breast tenderness and moodiness and my sex drive seemed normal. However, at this time I wasn't as sexually active. From the beginning I had very sharp stabbing pains mainly in the left side of my pelvis.

I married my sexy wonderful husband in Dec 08 and since about May my sex drive has just died and I am irritable 90% of the time. Now, I am a newly wed, and moved to a new location so I thought all of this was completely due to all of that stress and it might be. However, if its not and it just took took 1yr or so for my body for adjust to the hormones and this is the outcome then I can't continue to get irritated at my husband every time he wants a hug. I just always feel so tense and I WANT TO HAVE SEX AGAIN and be sweet and happy without having to be on percocet. So, i am thinking that i am going to get it removed and maybe try the YAZ thing.

Hi, I am a 57 year old female who was just recently put on Fosamax to counteract the bone loss caused by Femera that I am taking to keep my breast cancer from coming back. The first two weeks I felt okay albeit I did have stomach ache for two days and loose bowels. Then the bone pain began and I mean pain, not light, not moderate as the labels say, and it was especially severe at night. I found myself also feeling dizzy, depressed, no energy, kinda weird. I couldn't have relations with my husband because my hips and pelvis were so painful, also my neck, lower back and legs. Not fun. I took myself off it....Bone pain subsiding..also gastric upsets were getting worse. I tend toward gastritis and have IBS so this drug did not agree with me. I hate it! Will not go on any of these again, as I have also had lots of jaw problems in the past, and dental problems and DO NOT WANT that horrible jaw thing to happen. Yike... Love Pam

Am 47 y/o male have been taking 10mg since June 30, 2008. Over last couple of weeks have had bouts of severe leg pain, not cramps but just achy. Also have lower back pain especially in morning when waking. Problem is i have chronic back pain so hard to distinguish between the two but it just feels different. Also bouts of fatigue. Called my doctor and was told that the aches in legs not a problem because the side effect is cramping not soreness. I don't buy that.

I just went to the Dr. for my second Lupron injection and to get some help with the side effects. Menopausal/emotional me, started crying!!! Gawd! I went in with my list of side effects from the last 3 months (and it was long!) and wondered what was worse, the pain of endometriosis or the life changing side effects of Lupron. My Dr. is wonderful and spent an hour with me; he decided to put me on Provera (progesterone or add-back therapy) for a week to see if the side effects improve. If they do, I get my second dose of Lupron in a week. If not, we stop it all and let my body slowly try to get back to normal (although I have never known what "normal" is since endometriosis) and see how the "therapy" worked. He is strongly encouraging me to follow through with the 6 month course as that is the recommended length of time for the best results. I'm 5'8" and have lost 10 lbs. in the last three months, I'm down to 107 lbs. He told me to try and eat more if I could (although my nausea is constant 24hrs. a day) and make sure to take a daily vitamin and calcium for bone loss. He said that he has never heard of blurred vision to be a side effect of Lupron, "But every woman is effected differently." I'm really hoping the Provera works - any kind of relief is better than this! I'm still having 3-4 hotflashes every hour with extreme exhaustion/fatigue, night sweats, daily migraine headaches, nausea 24hrs. a day, life changing mood swings, and shaky hands. He kept reminding me that this only 6 months out of my life - it's not forever ... forever feels like an awful long time when you can barely get out of bed!

I have been on Levoxyl for about 9 years and have felt awful. I have had weight loss, dry hair, thinning hair,dry skin, muscle aches, migraines and the list goes on. I just got out of the hospital Monday after 4 days of testing of my heart and lungs. I was admitted for racing heart. The doctor's conclusion was anxiety! They said that Levoxyl has nothing to do with my rapid heart rate. The endocrinologist prescribed taking levoxyl .050 on day and .075 the next also a beta blocker, Xanax and Zoloft. I can not take any of these meds b/c they make it almost worse. I KNOW it is not Anxiety and it from the Levoxyl but what do I do?? I am a mess right now can not be in this condition with four young kids and a husband. None of the doctors would say it was the Levoxyl and instead prescribed more and told me to check up with blood work in 6 weeks. I took the .050 yesterday around noon and by 7:30pm my heart rate picked up again and continued until 4:30 this morning. I can not sleep more then 2 hours at a time and wakeup feeling like I am crawling out of my skin. PLEASE let me know of any solutions.

I started using the ring exactly two weeks ago. I started taking naps almost every day. Sleep during the day has NEVER been an option for me let alone a necessity. I decided to research the ring today when I noticed that my belly was extremely bloated. After reading some of the side effects, I can recall a strange feeling of hopelessness and sadness that I've had these last couple of weeks. (I've never been depressed in the past). I've also had very strange dreams. I should have known that an easy BC fix was too good to be true. I was on Depo before I had my daughter 5 years ago and it caused serious bone loss. I loved it because of the convenience and never had an indication that it was causing bone loss (thankfully a new GYN decided to take a bone scan as a precaution since I had been getting shots for 5 years. Luckily I was young enough that my bones are now normal.) Needless to day, I pulled the ring today!

Thank goodness for this site!

I am 50 years old...nearly bled to death from fibroids and became anemic. I had extremely heavy periods and had to receive a transfusion of 2 units of blood when my blood count went down to 7. My options were 1) Do
nothing...2) Take 6 months of Lupron to hopefully bump me into menopause....3) Fibroid embellization...4) Hysterectomy. I am trying to avoid a hysterectomy....and needed time to get my blood count up before any other procedure. I have had some of the side affects...hot flashes, mood swings, night sweats,.....but I had them before because I was pre-menapausal anyway so there is really no difference. Have not noticed any weight gain and I get my 3rd shot today. Everyone's body is different...for now Lupron has been a life saver for me.