October 29th
2009
11:47 AM
I have had Mirena for over a year now. I have been battling hair loss thinking it was from stress. My Dr. put me on Prozac and recommended that I even use Rogaine. Never once did they lead me to believe it could be from the Mirena!! I felt like I was losing my mind. Bouts of rage, constant hair loss, acne, weight gain. I am meeting with my OBGYN on the 11th to discuss removal. I am hoping these side effects subside rather quickly. I just don't know if the hair will return
-- By jmkaufman | Reply | Private Message me
October 29th
2009
11:43 AM
I have had Mirena for a little over a year now. I thought the hair loss was just from stress in my life so I have been on Prozac and using Rogaine to help with the hair loss - with no luck. Now after reading all of these posts, it makes sense that it is from the Mirena. I have had to horrific mood swings and bouts of rage, hair loss, weight gain and acne. I am scheduled to see my OBGYN for removal on the 11th. I am hoping that the hair loss will at least stop. My stress is from worrying about my hair loss, so I might even be able to come off the prozac and live a normal life. Please post if you have had your removed and the side effects subsided. Thanks!
-- By jmkaufman | Reply | Private Message me
October 21th
2009
2:42 PM
I'm glad I have read this. My year appointment is next week and hopefully I can switch to something else and start feeling better! I have been on NuvaRing for about 3 years now. Yes it is convenient and I have never had any real issues. But here recently the noticeable lack of sex drive and tiredness is beginning to take it's toll. It's like I have NO desire for anything sexual and I feel completely exhausted all of the time. I am a very active person, have a three year old and I do not want to continue feeling like this any longer - I'm 31 - I still have a lot of things I want to do! I also notice I wake up most mornings with a nasty headache. I even have bouts of depression from time to time. Thanks everyone! I'm definitely ready for a change! Any suggestions for new b/c would be greatly appreciated!
-- By tdh504 | Reply | Private Message me
October 20th
2009
6:54 AM
I just turned 21 this month and went to the gyno for the first time just before my birthday. she gave me a trial pack (one month) of loestrin. a few of my friends are on yaz and told me about the horrible side effects, so i figured this one would be better since it's the lowest hormone dose and my body is super sensitive. i started them last week and since then i've been even more moody than usual, go into these random bouts of hysterical crying for no reason, and the worst part is that two days ago my "breakthrough" bleeding started- only it's not just spotting, it's basically like a full-blown period. i got blood work done (almost a month ago) at the gyno's, and i called last night because i hadn't gotten a call since. waiting to hear back this morning because there was a slight abnormality with the pap smear.. needless to say i'm pretty pissed with this doctor for not following up, and for leaving me in anxious suspense about what's wrong with me. is this normal to bleed like this? i went on birth control to regulate my severe, debilitating periods, and now i feel sick and have been bleeding for the past two days pretty heavily. :( really disappointed & upset.
-- By hotxteas2 | Reply | Private Message me
October 12th
2009
6:12 PM
Well, I was doing some research because my pain from my endometriosis is returning and I'm actually considering asking my doctor for another round of Lupron. I was on lupron over 2 years ago and experienced minimal side effects. I had the hot flashes, no hair loos just hair growth in unwanted places like my face, and just a few bouts of tearfulness. i actually lost weight on lupron and consider it to be the most sane time of my life. The women in my family over produce estrogen so i'm not sure if maybe my experience was different in that my estorgen level was not depleted to nothingness but to a more normal level. I am saddened to hear so many women suffering with what I considered my wonder drug!
-- By ans4thern | Reply | Private Message me
October 12th
2009
5:31 PM
its been 3 months now since i quit the drug and i still have ringing in the ears that comes and goes. bouts of depression are still there and i have loose stools occasionally. i have lost a lot of weight. 5-6 KGs in 3 months. my appetite is back to normal but i still feel like i am not fully recovered strength wise. just started taking probiotics and multi-vitamins. totally changed my diet to natural fruits and vegetables and meat occasionally.
The brain-Fog was horrible. thank god it cleared in a month's time.
every doctor i go to and when i tell them about the brain-fog lasting for a month. they don't believe me.
anyone would like to add tips on recovery process. it will be much appreciated.
thanks all.
October 11th
2009
11:10 PM
hey i'm really interested in hearing from people that are finished with their treatment.i wanna know if you make a full recovery, partial recovery, or no recovery.and if any side effects still remain?
-- By eric11 | Reply | (1) replies | Private Message me
October 11th
2009
9:23 PM
I've had several bouts of Diverticulitis over the past 6 years, and this drug has worked like magic , after I was diagnosed visually during a colonoscopy. The first two rounds of 10-day therapy for two separate bouts which occurred months apart, produced no side-affects whatsoever, and the drug starting working quite soon, a perfect response. The third round however caused some stomach ache and mild dizziness for all 10 days. I realized later that I took the medicine after dinner for the first two rounds, but in the morning for the 3rd bout of diverticulitis, which occurred about a year later. Yet another year later for my 4th bout, I found that taking before bed was right for me, and even helped with my sleeping.
-- By bobio | Reply | Private Message me
September 23th
2009
10:11 PM
I've had my Mirena for almost 3 years now, and I'm contemplating having it out. I didn't know that some of my symptoms could be linked to it, but after reading this, I have the same story as many of you.
It's been awesome having no periods, and it's nice not to worry about birth control, but I'm not sure if it's worth the side effects.
I've recently had such bad anxiety and depression that I've been seeing a therapist and have been prescribed antidepressants (I am not taking any right now because I did not like the side effects of Lexapro). There is really nothing in my life right now that should be depressing me (just got married, doing my "dream job"), so perhaps the Mirena is to blame.
I've also had a terrible time sleeping lately (for the past several months). I used to sleep like a baby. Now, I'm beginning to have to rely on sleeping drugs, and I hate that.
I've always suffered from lower back pain, but you'd think my new memory foam mattress would be helping. It's not.
I've also been super tired lately, and have had bouts of random nausea. Strangely, I also cannot handle my caffeine anymore. I used to drink tea all day, but now one cup is my limit before my head feels like it's going to explode.
Besides all that, probably the worst part is my dead sex drive. I KNOW there used to be a time when I wanted to have sex, but I can barely remember it. Being 26 and newly married is a shitty time to have no sex drive. Besides my not being thrilled about sex in the first place, it sometimes hurts! It's like the Mirena is stabbing me!
All of my symptoms have been around for approximately the past year. When I first had the Mirena put in, it hurt like HELL! I have never had a baby, so I'm sure it hurt extra for me to have it put in, but I swore right then and there that I'd never get another one put in, no matter how well it worked. A few weeks later, during one of my last periods, I passed a HUGE blood clot. Like, the size of a walnut. I mentioned this to my doctor several times, but it never seemed to concern her. The periods eventually went away (yes!!), and everything seemed to be good for several months before my current symptoms began showing up. I'm wondering why I would just be seeing the symptoms now (they started about a year after I had it put in), and not right after insertion.
Luckilly, I have not had any problems with weight gain. I've always lost a lot of hair around the house, so I'm not sure I can blame that on the Mirena. I did have some weird acne, though, in places I've never had it before (back, chest).
This thing hurt soooo much to have it put in; I'm wary of having it taken out now. I hear that it doesn't hurt nearly as much to have it taken out. Can anyone confirm this?
Also, a side note: my friend had one for a couple of years before it became lodged in her uterus and she had to have it surgically removed.
-- By aquakej | Reply | (2) replies | Private Message me
September 18th
2009
7:44 AM
I had my Mirena put in August of 2008. To start with I thought it was great. Now insertion was worse than giving birth to my two year old but I figured that was normal. The first few months were great. I have not had a period since having it. I LOVE this fact but I would rather have a monthly than have all my other symptoms. I am ALWAYS tired no matter how much I sleep; I have terrible headaches verging on migraine level. I have horrible mood swings. One minute I am fine and the next I feel like a mad woman. I feel horrible because my two year old see’s this and I know she does not understand. I have terrible bouts with depression. Sometimes they last for days. I have gained 25 lbs, now I have always been heavy but when I work out 5 days a week and eat VERY healthy and am still gaining weight there has got to be a problem. I am almost 30 and I now have acne like a teenager. And I think the WORST side affect of them all is NO SEX DRIVE. This has seriously hurt my marriage. For a long time I have just put much of this off as being the mother of a toddler but now I am not so sure. I cannot take it anymore and have an appointment scheduled for October 1st to have it removed. I will update as soon as it is out.
-- By angie08 | Reply | Private Message me
September 8th
2009
11:42 AM
I am 27 years old and have been on YAZ for about 1 year now. I never struggled with acne, long periods, cramps, etc and was simply trying a new form of BC. From my understanding YAZ was suppose to control mood swings but instead gave me horrible MOOD SWINGS. I would be good for a few days, then the next mad, and the next wanting to cry. I started thinking maybe I was depressed or maybe reacting to being stressed but this has gone on for far too long. I don't have the desire for sex as I did before I started taking YAZ and my boyfriend thinks I am crazy. It took me to see a commercial for a law firm in regards to yaz side effects to look up more information concerning the medication when I came across tons of responses from others that have experienced these same effects as I have if not worse. I done as of NOW. This has done nothing but made me a complete train wreck for the past year. I also read that the pill can cause upper respiratory infections/cough and I have had two bouts of Respiratory infections coming out of no where. No cold or allergies at all....Just hoarse and coughing. Please do your research on these pills
-- By imcknight | Reply | Private Message me
September 2th
2009
4:15 PM
I just had my first shot of Lupron yesterday. I have an oversize uterus and will need to have it removed. I am 40 and do not plan on having any more kids, so that is cool. I am taking the shot to shrink my fibroids down to have the less invasive surgery because they are extremely huge at the moment. The same day I took the shot, I felt extremely drowsy and had to lay down to take a nap. I woke up and felt full of energy. The next day, slight tension in the neck and headache but that is it so far. I have some Premarin Estrogen tablets to take just in case of the hot flashes and night sweats but I am not taking those things unless I have to. I already had severe hot flashes and night sweats before all of this, so I am use to it..so its not a big deal..I also already had severe mood swings, extremely lethargic, and bouts of depression before all of this, so I really want notice the difference. So, so far, so good. I am not experiencing any side effects from the shot as of yet that I was already going through, anyhow..Each person is different..
-- By denise3664 | Reply | Private Message me
August 31th
2009
11:04 PM
I've had my Mirena in for a year now, and slowly over the past 6 months or so I've developed the same symptoms as everyone else on this site, except that my hair hasn't started falling out yet. My strings vanished last week which is why I started researching to see if it could "fall inside" me, since I'm positive it hasn't fallen out. Now that I see the list of symptoms, I'm ***SO*** grateful to all of you for sharing your stories, like everyone else I just thought I was slowly going crazy and turning into a whiny, hypochondriac b**ch! My husband is so relieved as well, to think that he might possibly get his wife back some day.
So the question I have is: how long does it take for all this craziness to end and for your body to get back to normal after you have it removed?
I expect I'll probably have to have surgery because it'd likely floating around in my uterus (or worse, but hopefully not) -- I have quite a bit of discomfort when I bend over or pick up my kids so I'm pretty sure it's still in there somewhere! My appointment is tomorrow, so I'm confident it'll get taken care of pretty quickly. And I'm thrilled to know that it will be out of me soon and I can start getting my hormones back in balance. But I'd love it if some of you can share your stories about recovery, just so I'll know what to expect.
Thanks, and good luck to all of us!
-- By luluweezie | Reply | (1) replies | Private Message me
August 20th
2009
4:22 PM
I have been reading all of your Simvastatin experiences with high interest and would like to share my adventures with all of you as well. My story began seven years ago when I was relatively healthy and enjoying life. My doctor prescribed Lipitor for my elevated cholesterol and two months later I found myself in the emergency room after having a severe bout with vertigo for the first time in my life. I have since spent the last seven years fighting this debilitating illness which continues to haunt me after having seen every top neurologist in my area and having taken every neurological test available. It would be as difficult to convince me that I was not somehow "poisoned" by Lipitor as it was for me to convince my doctor.
I was eventually prescribed Simvastatin 40MG and seemed to stabilize for a few years even though my dizziness problems persisted. Suddenly I began experiencing bouts of upset stomach and severe lower abdominal pain. I allowed my doctor to order basically every nasty test known to man in an effort to discover the cause of this new problem, but all have come up negative so far. Eventually I began to experience total exhaustion in the middle of my work day, not to mention the back, neck, and muscle pain that has been described so vividly in this forum. Basically, I have become a 53 year old man who feels much older, has absolutely no energy, and rarely has a day when I can honestly say I feel alive and well.
I am not a doctor and I can't honestly prove that Simvastatin is the cause of all of my problems. However, I do have common sense and after reading all of your thoughtful comments on the subject I would be foolish to at least not suspect that the drug may possibly be making me less healthy and not more healthy. Thank you all for opening my mind to this possibility and I certainly plan on discussing this with my doctor very soon, who may no longer by my doctor should he continue to insist that I take this nasty drug.
-- By dizzyguy | Reply | (10) replies | Private Message me
August 17th
2009
3:30 PM
I'm 41, male, and have been taking Omeprazole for about a month now due to an H. Pylori infection that was also treated simultaneously with PrevPack and Sucralfate. A subsequent endoscopy found no ulcers, polyps or stomach problems; my entire GI tract down to my stomach is clear.
I was taking a single 20mg pill per day and had it upped by my doctor to twice a day, though it seems that twice a day is now worse for me. Foods that were fine with me on a single pill seem to give me problems with two pills.
Now that I am on Omeprazole alone (taking no other meds) I have had strange sensations, both mentally and physically. My legs and arms get tingly, I have sharp pains across my chest (as if I am doing a heavy bench press and my muscles are being pulled), my heart rate will speed up, especially if I am laying down, and occasionally I suffer bouts of all-over body aches which feel almost like growing pains.
Mentally I am feeling depressed, anxious and on one bad night I felt oblivious to the world, as if I could walk off a cliff and it would be no big deal; scared the crap out of me. Often I have trouble getting motivated to do anything and find that my only way to get around it is to try and absorb myself in a book. Any other chore or project I try, I start but just can't seem to finish; my mind wanders.
I thought this might be connected to angst about dealing with the pain and circumstance of the infection, but previous to my H. Pylori I had another physical trauma that caused me trouble and I had no mental side effects; I was dealing with it and understanding it as a result of getting older and my body doing what every body does as it ages.
Is it Omeprazole? I suppose I can't really say for sure but reading this and other forums I am under the impression that it is probably having side effects that are serious enough to cause concern. I could probably deal with most of the physical side effects but the mental ones are scary. I will stop using Omeprazole starting tomorrow and see how it goes, confining myself to foods which hopefully won't cause too much reaction and go from there.
-- By juangon | Reply | Private Message me
August 4th
2009
8:20 PM
I had Mirena put in on July 2nd. I had it removed today (August 4th). I gained 10lbs in 3 weeks, my hair is falling out like crazy, my face is breaking out, I was having kidney pain and the most recent was on Sunday when I couldn't get out of bed due to severe back pain and I couldn't lift my right leg. My husband had to pull me out of bed so I could use the bathroom. Any time I sat down, he had to pull me up. As the day went on, I could slowly start moving more. Yesterday and today my back was still very tender. I had it removed @ 3:30 this afternoon and my back pain and tenderness is completely gone (it's now 8:15 p.m.) My doctor told me that Progesterone is what causes all of those symptoms so he recommended I wait 2-3 months before trying any kind of birth control to get all of the hormones out of my body and make sure it's not a thyroid issue. Two people I know have Mirena and they have no symptoms and they love it. I on the other hand, can't say the same. I think people sensitive to progesterone need to find a different route.
-- By ruby72281 | Reply | (2) replies | Private Message me
July 30th
2009
6:57 PM
**I found something that helps the foggy head, forgetfulness, short term memory, and sleepiness that comes with taking Lamictal!!**
I want to pass this along , because it has helped me SO much. I was diagnosed bipolar II recently and was put on Lamictal. I'm a writer, so my biggest concern was being able to find the words I need and having the concentration for my work, but suddenly I lost my ability to string words together when speaking OR writing. The words weren't even close to coming to me. I felt like I was sleepwalking half the time, along with other symptoms, but the bouts of spacehead were hardest to take. I felt pretty desperate and kept researching until I came across a post on a message board that claimed to have the answer.
If you can manage, do not take Lamictal at night. The following is so simple that it might seem strange that it works (it did to me):
All you have to do is set your alarm for a half hour to an hour before you would normally get up. Then take your Lamictal and go back to sleep for a half hour to an hour (it takes a little practice to get used to this morning routine at first, but it's totally worth it). For some reason, it's ESSENTIAL that you do go back to sleep for that short period and do not just rest with your eyes closed until it's time to get up.
I tried this, not really expecting anything from it, but on the very first day it seemed that at least 85 percent of the foggy-head was gone. Just gone. It has continued to work every day that I have managed to do it, and when I don't do it, the foggyhead is back again with a vengeance. I finally feel great, as if the medicine is doing exactly what it's supposed to.
Taking Lamictal at night (like doctors often recommend) can make the fogginess worse than any other time. The person who posted about this originally said he told his psychiatrist about his experience, and the psychiatrist told his other patients on Lamictal to try it. It worked for them too.
I hope this is helpful to others as much as it is to me, though I know everyone's body and brain are different, so it's possible that it won't work for everyone. I do hope if it works for you that you'll spread the word, because this is such a debilitating side effect.
Best wishes to you all.
-- By christietoo | Reply | (2) replies | Private Message me
July 16th
2009
6:24 PM
Our 19 month old son was diagnosed with RAD (reactive airway disease) and our pediatrician is very hesitant to call what he has "asthma". His two bouts of wheezing were both associated with viral respiratory infections. However, after this infection and the seasonal allergies he seems to have, the dr. prescribed Singulair (4mg granules) to us to help control our son's wheezing and coughing. After being on it three days, he's not the normal laid bad but energetic boy that we know is ours. He's mean...he's aggressive...and he's biting so much at daycare that they have assigned one person to shadow him all day long. We took him off of it yesterday, so we're now 24 hours singulair free. I'll post any differences we see in a few days, but for now it's our firm belief that Singulair is what is making the difference.
-- By txcheme | Reply | (2) replies | Private Message me
July 15th
2009
8:15 AM
I'm grateful to see others have the same experience with the ring. I started it last month. I had told my doctor that oral BC made me sick. She recommended the ring since "it rarely has side effects". I had it in for 10 days and couldn't take it anymore. I was having hot flashes, headaches daily with nausea and bouts of dizziness. I was also moody and extremely fatigued. I call the office last week and doctor wasn't in, but the nurse said to take it out. Doctor called yesterday and said she felt it was just the flu going around and wanted me to try it again. So I put a new one in yesterday and 2 hours later started with headache. I've been tired and today I'm already having hot flashes. I had my period 6/25, and 7/9 (since I took the ring out). It sucks because I don't think I can handle the ring and when I take it out, I'll have another period. I feel awful on it and my friends say it's "in your head" but reading these validate my symptoms.
-- By nikki419 | Reply | Private Message me
July 13th
2009
11:35 PM
I just want to thank you all so much for posting your experiences to help others. I have a spider bite, and my arm is terribly swollen, but now I'm not going to risk this frightening medication, which I was prescribed. I'd rather risk the allergic response to the bug! Thank you all again for alerting the public. I pray that each and every one of you will feel better very soon. One thing that comes to mind is possibly talking to staff at a place like Whole Foods. Don't quote me on this, but I believe products like Milk Thistle are good for cleaning out poisons from medications.
-- By sec1 | Reply | (1) replies | Private Message me
July 10th
2009
4:02 AM
Hmm, after reading all of this ive decided that my decision after medicaid declined my ring for 3 more days to finally get off of it was right. Ive noticed that within the past 2 weeks ive had more energy, my headaches are not as bad, and ive not been having the crippling stomach pain i have after i eat some foods. Ive been on it for about a year and a half, i tried depo but i gained 40pds while on it, so i moved to the nuvaring, as i had it 3 years ago right after i had my daughter. While on it and it still hasn't went away, i have pain during sex, burning after sex, stomach cramps, lower stomach cramps, headaches, Ive had 2 bouts of chest pain that made me freak out because i about went to the hospital, I am overweight, i was only 215 when i had my daughter, and was healthy and played basket ball, and now im 265. The doctors complain at me, but i did remodel for 2 months and lost ONE pound. All while taking care of a two year old. I got two yeast infections within 6 months and id never had one ever before (im 22 this month)All these problems combined with my back pain from my accident, Ive decided, im going to use other methods like condoms and spermicide. i cant take the hormonal crap.
-- By akwacbmdw | Reply | Private Message me
July 9th
2009
6:43 PM
Can anybody tell me how long this lasts? I've been off it for a week and still no relief. The drug should be out of my system now. Any feedback would be appreciated.
-- By ratkos | Reply | (3) replies | Private Message me
July 6th
2009
12:05 PM
I just started taking Yaz about 3 weeks ago. The only major effect I've noticed is constant cramping. Before I began taking the pill, I would cramp the day before my period and the first day of my period. Now, I have constant cramps. They're not severe, but nonetheless, they're there. I've had a few bouts of nausea, but I can't really contribute it to Yaz since I occasionally get it during my period anyways. I'm going to continue to take it just because 3 weeks isn't long enough to determine any real changes.
-- By urma0418 | Reply | Private Message me
Mirena (42) Lisinopril (15) NuvaRing (14) Yaz (14) Yasmin (12) Singulair (12) Levaquin (11) Doxycycline Hyclate (8) Lupron (5) Simvastatin (5) Topamax (4) Loestrin 24 Fe (4) Omeprazole (4) Advair HFA (4) PredniSONE (4) Wellbutrin (3) Lipitor (3) Toprol-XL (3) Lamictal (2) Zocor (2) Reglan (2) Avelox (2) Zyrtec (2) Ortho Tri-Cyclen (2) Effexor XR (2) Celexa (2) Estrostep Fe (2) Advair Diskus (2) Levoxyl (1) Kenalog-10 (1) Dexamethasone (1) Bactrim (1) Amoxicillin (1) Vivelle (1) Niaspan ER (1) Zetia (1) Aviane (1) Remicade (1) Ortho Tri-Cyclen Lo (1) Metoprolol Succinate ER (1) Prozac (1) Gardasil (1) Kenalog (1) Lactaid (1) Hydrochlorothiazide-Lisinopril (1) Depakote ER (1) Depakote (1) Effexor (1) Winstrol (1)
November 6th
2009
6:22 PM
It has been interesting for me to read this posts. I have been wondering about the long term side affects to singulair- mostly because my 11 year old has been on Singulair for several years now. We spent many of nights in the ER for asthma when he was little and no Dr. did testing. When he was 5 his pediatrician tested him for allergies and put him on Singulair. We have had a great experience with it. I find it interesting that many of the health issues on here- joint pains, bouts of depression, weight gain...I personally experience all of them and i am not on any medication. My 11 year old does not experience any of the mentioned side affects. I wanted to find out long term side affects for my own personal knowledge. Prior to Singulair, he was on Zyrtec which was not a good fit.
-- By rroses | Reply | (1) replies | Private Message me