Brain surgery symptoms and conditions

I am an intensive care physician , one day we got a 75 year old male patient for acute allergic skin manifestation and general body swelling , the patient has been taking Lamictal tablets for seizures control after brain surgery few months before his presentation the patient was put on i.v steroid therapy along with antihistamine, on the second day we noticed that his skin is peeling off and his breathing got embarrassed , the case was diagnosed as( TOXIC EPIDERMAL NECROLYSIS) which is the most severe form of drug allergic reactions as a side effect of Lamictal administration , one week later the patient died due to acute respiratory failure (ARDS) however he was on mechanical ventilation support.

Hello, I can't help but get into the Mirena conversation. Three months after my son was born, I was put on the Mirena IUD. I had a ton of symptoms. My hair was falling out, tired, weak, headaches, stomach cramps, and just all around felt like crap. I went back to the doctors to have the Mirena removed positive that it was the Mirena that was making me feel like crud. The doctor persuaded me to keep it in longer and after much debate and feeling flustered with the doc I agreed for a couple more months. Well symptoms got ten times worse to the point I called and demanded to be seen right away to have it removed. Well after it was removed, I felt better but not completely. I started losing weight, I had periodic migraines which mind you I never had a migraine in my entire life, and felt like a truck ran over my body every morning when I got out of bed. I went to the doctors and they ran a slew of tests and NOTHING! Well about a month after a car ran a stop sign and crashed into me. I hit my head. IT was the best damn thing ever, I got a cat scan and it showed something on my brain. A MRI picked up a right cerebellum hemangioblastoma about 3cms. I had to have brain surgery to have it removed. They decided to do a full scan and I now currently have a kidney hemangioblastoma. Moral of this story. I am 31 years old, I have always been healthy with no migraines, no ailments, nothing. I have the Mirena put in and I feel like shit and they found a brain and kidney tumor. The estimated both my brain and kidney tumor to be about 2 yrs old. THE EXACT TIME I GOT THE MIRENA IN. Hemangioblastomas are either sporadic of VHL. With sporadic, usually you only get 1 and if you get another its later on down the road and my two tumors would not be the same age so it rules that one out. VHL, I had a genetic test done and it came up negative. So anyone of answers for my mishap. I know the Mirena caused this for me. Im just looking for someone with a similar story

this is probably the worst thing Avelox caused, besides death, which would have happened without help..

7th day on Avelox for sinusitus - massive pain back of my head, sweating so much my clothes were soaked, threw up 2 times, legs were uncoordinated when trying to walk

Called 911 - paramedics took blood pressure - guess what.. 210/180.. something was definitely wrong. Rushed to hospital - passed out in ER - woke up with wife and family present - CT scan found my brain bleeding and brain surgery was performed to remove the clot..

But wait, it gets better... 2 days in the ICU my brain swelled from the surgery and the fluid stopped circulating.. I was semi conscious in the ICU for probably 4-5 hours and nothing was done. My wife came in early in the morning and thought I was sleeping, but could not wake me.. The nurse said that a doctor was called and will be there later. I'm DYING right before their eyes in the ICU!!! My wife demanded I get a CT scan immediately. If she didn't I would have stopped breathing. Later CT showed my ventricles enlarged with fluid backed up so much that my brain and brainstem was ridiculously squeezed so much, my head was all ventricles and barely any brain showing in the CT. I attribute my current brain damage to this episode.

A shunt was placed in my head for about 3 days.. basically a needle is inserted into my brain and left there to drain the excess fluid.. After my condition stabilized, the shunt was removed.

Spent 1 week in the hospital, then transferred to another hospital to stay in for inpatient PT and treatment. I didn't know left from right, had double vision, was throwing up constantly, was hot, then very cold, my legs hurt, had hallucinations (was believing certain things were happening, that really weren't) was incontinent, had a new catheter inserted every single day, was taught to walk again, had to use a wheelchair.

I had always been healthy, was vegetarian and did not smoke cigarettes.. I exercised regularly, did not use drugs (i.e. - cocaine or methamphetamine which can cause high blood pressure leading to a stroke)

Didn't know what happened to me, but realized I had to be there.. After 1 month, decided to go home (the hospital was becoming too stressful, somebody was always screaming and yelling at night and the daily catheters were uncomfortable), to be back in the lifestyle I knew.. my wife, my granddaughter, my house, my dog, cats, and other pets were sorely missed.

Once home I found that I couldn't do what I used to anymore - could not mow the lawn, drive, speak well, walk properly, had double vision, a tingling on my face, a metallic taste in my mouth so bad that good food tasted bad.

My wife set me up for physical therapy three times a week daily outpatient at the hospital I was at. Vomited regularly from the daily dizziness.

This was most disturbing, I developed a pain in my left hand and left shoulder, to the point where I could not raise my arm above my head and had to sleep with my arm straight down for at least a year. After playing guitar for 30 years, I found myself unable to play my guitar anymore. My left hand had lost all its dexterity and was not usable. I did not realize what happened to me until my wife explained the entire thing to me.

In the next few weeks I spent each day trying to put "2 and 2 together" and figure out why this happened to me. When doing research on strokes, I realized that certain things happened to me that were not consistent with having a stroke. In my brain damaged condition, I remembered taking the antibiotic Avelox, based on a physicians prescription. I researched the adverse effects and to my amazement, the listed side effects were consistent with what happened to me.

I began a quest to file a lawsuit - was unable to find a lawyer willing to tackle such a huge case.. although one lawyer did file before the 2 year time limit expired.. I had MRI's performed on my hand and shoulder which revealed scarring and previous ligament tearing.

During the time of having more outpatient and in home therapy, I regularly visited a psychologist and my physician confirmed that the Avelox most likely caused the brain bleed, tendon tears, and other mysterious symptoms when I presented him with my research. I was unable to work and my only income was from monthly Social Security Disability benefits that didn't begin until 6 months after the incident.. leaving me with no income and unpaid bills for 6 months. The mortgage payments fell behind and soon foreclosure notices arrived. We decided that an alternative would be to sell the house.. it could not be sold after 1 years attempt, so my wife and I moved to an affordable apartment. I put household items in a storage facility. I either sold to pay bills or threw away much of my personal things,since I was devastated by what happened to me, I didn't think I was going to survive long after reading statistics on strokes.

While in the apartment, I needed an income and was forced to take what was in the scpoe of my limited ability. I accepted an early morning paper route and then made deliveries for a courier company using my own vehicle.. That was a 12 hour work day. Being completely upset over what happened, losing everything including my house.. I decided to attempt to escape the overwhelming things that happened and were still happening. I found a house for rent that was less than the apartments rent, except it was in North Carolina. At the time that seemed perfect, a 3 bedroom house located in a far away place where I could forget everything that happened and make a fresh start. Only problem is my wife not want to go, but I was adamant upon doing it. She helped me move everything, including all storage items.. I had moved to North Carolina, but soon found being alone and unable to find suitable employment unbearable. I was being contacted for back rent owed, but could not do everything alone - I became more depressed to the point of feeling suicidal, so I called my aunt in NY and she said just leave everything and get myself to her house. I did, leaving everything behind, and stayed with her for a month until my cousin invited me to stay with him.. which I did. I stayed with him for 3 months, all the while searching for employment.

With help from my family I moved back to my familiar area in NJ in the summer of 2008. I had lost everything..unable to be physical with my wife and being seperated for 18 months, she has requested a divorce. Currently I live by myself and am still slowly recovering, yet my left arm and hand are uncoordinated, my talking is difficult, slurred and gravely (diagnosed with dysarthria), my balance is bad and am dizzy every single day for the past 4 years.. Although brain damaged, I am attempting to rejoin the computer support business again.

My entire past, everything I knew and did, everyone I knew, who I was, etc.. is all a strange hazy memory. If I don't take a sleep aid, I wake up around 4am with racing thoughts, unable to sleep.. My depression and anxiety are so bad, it is difficult to function and interact with others. My psychiatrist has diagnosed me with post-traumatic stress disorder and prescribed Zoloft and Xanax.

Upon proper research, I have to blame the prescription and subsequent use of Avelox for causing the brain bleed which led to my life being completely and utterly destroyed. My intentions are to file suit against the manufacturer Bayer and/or the hospital for allowing me to die in the ICU

I had Mirena inserted Nov. 2007 after the birth of my baby girl. I went from an extremely high sex drive to NO DRIVE at all. I had unexpected brain surgery 3 weeks after my daughter was born to remove a tumor, so I thought that I wasn't ready mentally or it was all the medications I was taking, I was never informed on any of these side effects (shame on me for not checking into it more- trust me I paid for my mistake by having my sex drive abolished). Two days ago, I noticed something poking me, upon investigation - The Mirena had completely come out. I discovered this about an hour after having sex!! My husband and I are not ready for a third child so I pray that I am not pregnant. I have yet to read another story where one has actually fallen out, so it must not happen that much. I hope I get my sex drive back and make my husband feel wanted again after a year as I will not be replacing it with another Mirena, I would have never had this inserted had I known there were sexual side effects because a high sex drive or any at all is now very important to me. I am now researching Paraguard, and aside from a regular to heavy period it sounds good to me because it is hormone-free. Aside from no sex drive and it falling out, I did not have any other issues like others have had with hair loss, cramping, etc. We did have the issue of my husband feeling it during sex every once in a while because there is a limit to how short they can cut it. In the beginning I had light spotting every 3 or 4 weeks for several months and then at about 1 year, no period at all. I have had more depression than usual, but we have had a lot going on in the last year so I can not blame the Mirena for that. Aside from the sex drive issues it worked very well for me and had it not fallen out I would never have been reading all these forums and educating myself.

I was on 80mg of Geodon for about 1 year. I started having uncontrolled eye and neck movements. I was taken off the drug. However, I've been left with the side effect of Dystonia. I have no control over my neck muscles, my head is in the backwards and to the left position. Trying to move my neck to the right is very painful. I have to get botox injections every 3 months in my eyes and neck. The shots stop the movement for a few weeks but do nothing for the positioning of my neck as the shots weeken the muscles. I've been told I will have this the rest of my life and the only other treatment would include brain surgery. I am in pain on a daily basis, and when upset or in public the movements are greater which only causes anxiety.

I was on 80mg of Geodon for about 1 year. I started having uncontrolled neck and eye movements. The Dr. took me off immediately. However, I was left with the side effect called Dystonia. I have uncontrolled neck and eye movements. I have to have botox injections every 3 months in my neck and eyes. I'm left with my neck in the backwards and to the left position. I've been told that this is something I will have to live with the rest of my life. I'm in pain on a daily basis. Trying to move my head to the right side if extremely painful. I've been told other then the botox treatments which don't work that well and wear off my only other course of treatment would be brain surgery.

I had been prescribed Reglan for my Reflux condition and was so hopeful that this new RX would help me get through the night without losing my dinner!! Well, after only 3 days on the medication, I began to experience the most horrendous anxiety attack that I ever imagined possible!! I ended up in the ER because I swelled up like a balloon and couldn't breathe! I don't know if that is a direct affect of the Reglan, but I do know that I thought it was the end of the world for me!! I truly felt that if I could, I would have jumped out of my own skin! I couldn't breathe, I couldn't sit still, I couldn't lie down, I couldn't stand to have the ER machines hooked up to me or even stand to have the gown on!! I have several medical conditions which cause me to have to go through periodic testing and lots of blood work, etc. -- I've even been through successful brain surgery and never experienced the type of fear and anxiety I experienced after only 3 days on Reglan!! This is a very dangerous drug and any doctor considering the possibility of prescribing it to a patient, please re-consider if there is an alternative, and if not, please warn the patient about the unbelievable hell they may experience if their body cannot take this drug!! I don't want anyone to go through what I have experienced!! I am still feeling the effects and I have stopped taking the drug. I will NEVER touch Reglan again!! Thank you for the opportunity to share this experience with the hope that it will help stop others from having to go through it!!

This is in answer to concernedcitizen. My son, when he began to have behavior issues, was placed on Tegretol, Wellbutrin, and Abilify. He could not tolerate the Tegretol. So he stopped that. His "depression" seemed better so they took him off the Wellbutrin, he continues to be on the Abilify. We tried to take him off of that once, it wasn't pretty. His anger, frustration, rage, crying, depression, etc all came back....of course he was still taking the Singulair. (little did we know then....) We see his neurologist very soon. I am going to ask about trying again to remove the Abilify. My son is 7. He was started on these meds 4 months after having surgery to remove a cyst in his brain....we thought all the problems were just who he had become after having brain surgery. It was very depressing. I read all of your research with great interest. I had thought it had to be a something in the brain being triggered. My son had a tendency toward these things due to the location of his cyst....we had the "luxury" of knowing he would have behavior problems. So did his doctors.... Now with all the research it would seem someone like my son, who has a cyst in the left temporal lobe (a region that controls behavior) should not have EVER been placed on a medicine like Singulair. At the very least, he should have been taken off that medicine, before being placed on anti-psychotics. Good Grief. Thanks again for all your work. I will be taking some of the literature with me to the Dr. As I am sure others on this board will.
By the way - My son has been off Singulair for 10 days now. He is a very happy boy. Downright giddy. He is annoying his sister to no end. Dad and I are enjoying every blissful minute.

Hello, Ladies.. I am 33 yrs old.. I have suffered a stroke from taking these birth control pills yasmin.. I was only taken these pills for about 4 months.. I woke up one day with a serve headache.. I had taken all the amount of tyelnol I could take in a 8 hr day. And the headache did not go away.. I just thought it was the weather or something.. It lasted for 2 days.I am a single parent of a 9 yr old daughter.. I woke up on monday morning still not feeling good. I got up and was going to start the day like I normally would.. Well I got in the shower and then got out and felt very dizzy. Then the next thing i remember was that my arm was shaking uncontollably and would not stop shaking.. I had to get my daughter up and she got dressed and got me dressed and called my dad.. Then she called 911. I was having a seizure.. Then by the time the ems got here my left side was completly numb.. Could not feel anything.. So then they did a ct scan.. I had a blood clot in the main vessel of my brain and it was bleeding.. Then they told me and my family that I may need brain surgery.. Then had to be transported to riverside methodist hospital.. Then I went into a full blown seizure.. I don't remember that at all. I remember curling into a ball and shaking and that is all that I remember.. Then I was at the hospital for 2 weeks.. Then when I came home about 4 days after that I went back.. My right side was going numb.. That was due to I was having more seizures.. I would love to get together with all of u and form a class action suit against this drug company. I am not like this but this is my life and the lives of other people.And not only that I have a daughter to raise and think about.. So if any of u would like to contact me..Please feel free to do so.. My email address is mcottrill2@verizon.net..

I am 16 and soon will be turning 17 years old. I have been on 10 mg. Singulair for about six weeks. I am already having side effects. I am on Prozac already, this med was to help calm me down, especially about my dad who will be having his fourth brain surgery. At first, I was really nervous and we thought it was because of my dad. After taking Singulair, things went downhill. It made me feel worse and I've had two sinus infections in these 6 weeks. After 2 weeks of starting this medication, I became really nervous and began to pull out my eyebrows. I haven't stopped and now I hardly have an eyebrow,I wear eyebrow pencil to cover it up, but it feels as if I can't control it, if I don't do it, I'll get really grouchy and irritated. I already have to go to a doctor for my stomach and Singulair has just made it worse. I don't care what my doctor says I WILL NEVER take Singulair again!

I have been on Topamax for a little over a year. I've had most of the side effects; tingling, numbness in the fingers, dry mouth, forgetfulness, and weight loss - love the weight loss. All the side effects have sort of slowed down as I've been on the medication longer. The weight loss has slowed and I've even began to get my appetite back- I'm afraid I'm going to start gaining weight now! I've lost about 40 pounds and I needed to lose it, so that was wonderful. I've had a very hard time losing weight all my life so this was wonderful.

I was addicted to Coca Cola and this med also helped me kick that habit because I lost my taste for the carbonation.

Does anyone know if the weight loss usually evens out after about a year or a year and a half? I need to lose about 30 more pounds and was hoping that I would continue losing weight!

Anyway, I was on the Topamax for headaches and it has completely helped that! It has truly been a God-send for me. Other than monthly hormone headaches, I don't get migraines hardly at all!

I am wondering about having my doc up my dosage for the weight loss aspect????

I was on Deltasone for a week prior to Brain Surgery and two weeks thereafter. I weighed 118lbs when I started to take the medication. Within 8 weeks my weight had increased by 62lbs. The increased weight first appeared around my waist then spread. My urine became bright green with large amounts of suspended protein visible to the naked eye. I developed what I was told was IBS which is how the health care system accounted for the blood in my stools. My urinary P.H. level went from a average 7.0 to a 5.0 and below beacuse I no longer absorb potassium. Unusual mood swings, severe anxiety attacks, insomina, muscle spasms, because of the severe heartburn my Zantac dosage was increased leading to more side effects from the Zantac and at one point (for 5 months) my bladder just barely function and I could only pass urine in small quanities even though my bladder was full and painful. After an ultrasound the first urine I passed was 75% gravel to the 25% urine. An average blood pressure reading for me is now 95 over 59 with an elevated pulse. Still the Nova Scotian Health Physicans either did not know or did not believe me that it could possibly be drug side effects. After all I was only on the Deltasone for 3 weeks. I am now seeing a Homeopathic Doctor, an Osteopathic Practioner and a nutritionist. Deltasone/Prednisone should be recognized as a dangerous narcotic.

My mom had a major brain surgery last year and she just recently had a seizure. She says now that she is taking dilantin her tips of her fingernails feel like they are going to fall off. She is always tired and hungry. Are these side effects normal??

Greetings.....I have been on Predisone for a couple of years now.. I have Sarcoidosis and had double vision, lumps all over my body, had brain surgery because they though I had a brain tumor, but didn't. They sent samples to 5 big hospitals in the US and no one could find what it was. I had biopsies on my arm and it's Sarcoidosis.

Take the Predisone my sight can back in one day, but I have gained over 80 lbs., swollen severely, can't sleep well, and my body hurts.

I had Cytoxan treatments ....didn't work
I was on Remacade treatment and even the Dr. didn't realize how much better I was. It was stopped because of painful lumps on my middrift. Big mistake! Now all symtoms have returned and worse.

I was to go back on the Remacade but I had a rash and bleeding from my rectum. Is the bleeding from the Presidsone? Does any know? They said I shouldn't have the treatment because where the bleeding is I could get an infection. I also have/had Rectal Fissure, it that from the Predisone too?

I'm a miracle in Progree....Thank you and God Bless!