February 3th
2008
5:16 PM
I have been on Warfarin since Sept 2004 when I had multiple blood clots in both lungs. Since then I have had two more PE's (one with a therapeutic INR) and a blood clot in my left arm (INR was also therapeutic). Genetic tests show nothing.
Since starting Warfarin I have had
- dizziness issues,
- eternal extreme fatigue
- hair loss
- short term memory and cognitive issues,
- joint pain and
- head aches all the time. I think the headaches are the worse since I can't take any NSAID's for them.
I have lost weight and push myself to exercise because it is supposed to make you feel better, right? Well not yet. I keep waiting.
I have not been able to return to work and worry about the long term implications of this.
Many times I have wondered about my sanity and if I was imagining all of this, so finding this forum at least lets me know that there is a possibility that it is not all in my mind.
I have been seeing a psychiatrist to help me work through the almost dying 3 times thing, but it is hard to accept since no one knows why I throw the clots. My INR is not stable in spite of close monitoring of Vit K and other drugs, and my INR must be taken twice a week.
-- By fiona | Reply | (6) replies | Private Message me
June 18th
2009
11:26 AM
I started coumadin 2 weeks ago, for a clot in my leg. I'm dizzy and lightheaded. I guess I'll be on it for at least 3 months. I've had abdominal surgery and a wrist fracture repaired surgically in the last 6 months and have had breast cancer (surgery, chemo, radiation) 4 years ago. I'm on Arimidex now. All of this is to explain possible underlying causes which I am investigating.
Dizziness seems to occur within an hour of my taking it - in the morning, but subsides by the afternoon. I'm thinking of switching the time I take it to the night - before I go to bed - maybe I can be dizzy in my sleep then and wake up with some sense of normalcy. Any comments?
-- By marianring | Reply | Private Message me