September 16th
2007
7:19 PM
I have had a severe case of polymyalgia rheumatica and was initially put on 60 mg of prednisone a day. It was wonderful! Within hours my pain level dropped almost in half. From there the pain has gradually improved even more. I went to 40 mg per day to 20 mg per day to 15 mg per day. Have been on the 15 mg for 2 months now and want off as soon as possible. Yes, I too have the moon face, camel hump, slight weight gain, nausea, digestive problems, cramps, depression, etc. Not fun! My question is - does anyone experience burning/stinging in their face, arms and legs from the prednisone? I wonder if it is the polymyalgia rheumatica or if this is a side effect from the steroid. Thanks for your comments.
-- By cabfromtn | Reply | (5) replies | Private Message me
August 9th
2007
10:58 PM
Hi there... I have just found this site and I'm very grateful to everyone who has taken the time to sit down and tell us their story mine is very similar. BELIEAVE me I feel like I am pushing my family away and I'm losing my relationship with the one person who used to make me feel like I was the most beautiful woman in the world.
I'm a 40 yr female have or maybe had a great job that I loved... On April 12 I noticed a small red rash on my lower right leg no big deal went to the Dr. gave me some cream and sent me home well I went to work and by the afternoon things just seem to get bad my legs began to swell and little blisters started to pop up so I went to the E.R. they had no Idea what was wrong with me got me an appointment to see a skin DR. so I went home but the pain from the swelling was so bad I could not walk any longer went back to the E.R. they gave me some pain meds and called in some other DR. things had gone from bad to worse my feet had gotten to big I could not put on shoes and I had bruised completely across the bottoms of my feet they put me on 30mg of PRED. and it seem to be under control sent me home after 3 day in the hospital things were good for about a day or so I thought I would go back to work well that was not a very good idea.... My sister had to come and take me back to the ER where they did 2 biopsies and still have no idea what is wrong with me. so now they put me on 60mg of PRED the rash has gone, lots of scaring on my feet because of the blisters once they broke and dried out but I can live with that....
It's the side effects that they don’t tell you about,
MOON FACE I can't look at myself cause really that’s not me anymore,
WEIGHT GAIN I have always been thick but I can't handle the extra 30lbs I've gained,
MOOD SWINGS are unbearable,
PAINFUL JOINTS, CAMEL HUMP, BLOODY NOSE, BRUSING, SORE TEETH/GUMS, DRY EYES, FAITIGE, and worsted of all
I don’t have a support systems in my life so I'm fighting this by myself everyday, I have 3 kids that I have tried to explain all this to but they don't get it and well my boyfriend he tells me he understands that its the meds pushing him away but if I can't figure away to control this I will lose every thing including my job. I cant even get the energy together half the time to make it up and down the stairs which also comes with the pain of just trying to lift each leg up to climb the stairs, I also have the camel hump which I find very painful, The acne and the hair growth that I have to get wax off once a month cause I feel like a man I feel like a loser and as of the last couple of days I just want to give up I am now down to 20mg per day but I find that I am feeling so sick I cant think straight I hope and pray for each and every person out there that has to take this MED that you get better and I do hope that my symptoms wont come back. Thanks for being here and I’m glad I found this site. I know now that I’m not losing my mind completely. Elizabeth.
June 13th
2007
5:19 PM
Hi! I am a 36 year old female and have been on this HORRIBLE HORRIBLE drug (prednisone) for 2 1/2 years now..... Hopkins doctors still arent sure exactly what i have. My immune system is attacking my liver so to speak. My body is basically looking at my liver like it doesnt belong and is attacking it with large multiple lesions that is eating it away... the good thing is that it hasnt interupted the functioning of it yet but is leaving horrible scar tissue. I have been in and out of the hospital 13 times, have had just about every test imangable, 12 liver biopsies and they STILL have NO clue! They are leaning towards Church Straus desease and Wegners but the weird thing is i have half symptoms of both. The first year they had me on 80 mgs of prednisone a day which had seemed to put me in remission for about 4 months and then they came back even worse so i was put back on the prednisone, 80 mgs a day AGAIN along with 100 cc's of Methotrexate, another not so nice drug... i had EVERY SINGLE BAD SIDE EFFECT OF BOTH DRUGS!! This second time around was ALOT WORSE for some reason!!! My body DID NOT LIKE IT!! Nausea, hair loss, moon face, gained 40 pounds (and i was in great shape, worked out, i am 5'4 and was 110 pds!), EVERYTHING was swollen, legs, ankles, arms, neck, face, had the camel hump, fingers and especially my belly!!! UGH!!! Have bone, muscle, and SEVERE joint pain! Kaliedescope vision, dry eyes and then had mucus discharge (kindof like pinkeye), headaches, intestinal problems.... VERY CONSTIPATED and then the opposite!!! I literally felt as if i had turned into a man in my behind!!! Sorry to be so gross but thats how bad it was!!! Jaw problems, teeth and gums as well, skin sensitivity and have little bumps all over my skin (kindof like tiny little moles), itchy, broke out with acne and pretty much NEVER had more than 1 pimple a month, had facial hair (VERY DISGUSTING!!!! HAD IT WAXED EVERY WEEK!!!!) and then on top of all of that the swelling of my liver not to mention the PAIN! I was recently in the hospital again with 12 new lesions, pneumonia, and 104 fever. My doctors said the Methotrexate was the cause and i was having a bad reaction to it so they now have me on 100mgs per day of Azathiroprine. I am now finally down to a maintenance dose of 5 mgs of prednisone cause my body was starting to reject that as well. I thank god that i am now down to that dose!!!! It as only been 2 wks and the withdrawl symptoms are horrible worse then they were but i know what is to come =) loosing all this fluid and all of the HORRIBLE side effects i listed above. I will have to be on the maintenance dose of 5mgs the rest of my life and can live with that cause when my body gets back to somewhat normal i wont even notice that im on this CRAP!! I will be on the high dose of Azathiroprine for a few years and then on a maintenance dose of that as well for the rest of my life to keep whatever this is that i have under control.... the scary thing is is that they arent even sure that all of these meds will even work...... im a guinea pig..... The only thing that i am on out of all 25 pills/meds that i take everyday that works is my pain meds. Oh and i also forgot to mention that i had to be put on some "HEAD CASE" medication (thats what i call it =) ) for depression. Its a low dose but it does seem to help... I am terrified of what the future holds but continue to be strong and have an amazing support team... my fiance and family =) I dont even want to think about how i would be without them. I go back on the 25th of this month for my MRI so please who ever reads this keep me in your prayers as for all of you are in mine. I feel for each and everyone of you that has to endure this horrible drug everyday and i hope that everything works out you. =)
Sue =)
-- By sue36 | Reply | (5) replies | Private Message me
June 13th
2007
6:09 AM
I am currently on Prednisone for Minimal Change Kidney Disease. I started at 60mg a day and my symptoms from the Kidney issues (swelling in my ankles and legs) went away within about two weeks. I had a lot of energy at first on Prednisone and trouble sleeping. I actually enjoyed the added energy. I also got headaches those first couple weeks and jaw pain. I wasn't really upset about the drugs until my face started getting puffy at about 4 weeks. I was reduced to 40mg at that time. I definitely noticed an increase in appetite and have just recently started counting calories to avoid potential weight gain. My weight so far has only fluxated about 5lbs. I am currently on 30mgs of Prednisone and can not wait to be off. I do have some slight acne on my upper back and notice a little extra weight there (maybe that camel hump thing someone mentioned). I am nervous these things will only get worse so I'm hoping my doctor will reduce the meds more rapidly after my next appointment. Overall it seems the Prednisone has done its job, but I'd still like to be off. I have been on a total of about 2 months now.
While coming off I have noticed heartburn (severe at times), mild depression, loss of energy, and I've been very bloated throughout the process.
I would only take Prednisone if absolutely necessary and get off it as fast as possible. Good luck to you all.
-- By thisisme | Reply | (1) replies | Private Message me
February 27th
2008
5:40 AM
Stay away from Prednisone
My prayers to all of you who take these destructive "medications". here's my short story.
I had been diagnosed with Sarcoidosis back in 2003. My doctor gave me 60MG per day (three 20 MG tabs) for over six months, with the weening off period lasting another six. To make a long story shorter. I went through many of the same problems like, bloating in the face and body, rashes, a bump that looks like a wart--that still won't go away, and a continuing state of memory loss. I get baffled easy now. I also continue to go through mood swings.
But here's the kicker, I haven't taken Prednisone for over 3 years and I was trying to begin lifting weights. I thought I popped something in my arm, but the doctor says that I have "aseptic necrosis", that has developed in my left shoulder and soon to start in both sides of my hips. For those who don't want to "google" the term, basically parts of my shoulder and hip bones are not getting blood flow and are dying (necrosis).
With my memory loss, I am having difficulties performing at work and doing routine tasks at home. I did not think this "medication" would have affected me this much.
Prednisone needs to be on the banned list of medicines.
-- By kontra | Reply | (1) replies | Private Message me