November 4th
2008
12:04 PM
Only on it for 1 month so far and already having issues. I apparently have the worst case of endometriosis all my doctors have seen, including a cancer specialist that had to do all my surgeries because of the severity. Granted, I am only 31 years old and have had a full hysterectomy. So, after 3 surgeries I am still having severe abdominal pain and bleeding (don't know where that is coming from since I don't have a uterus anymore) so they said try Lupron and I finally gave in. Now I started getting such severe pain in my lower back that I can't stand for longer than 15 minutes and terrible side aches. I started getting headaches (which I already take pills for for years now),and have gotten the hot flashes as well. What are we to do ladies? I am so sick of complaining to the doctors about pain. You feel as if you are a big cry baby. What are my options here and does this ever stop?
-- By 3surgeries2many | Reply | (6) replies | Private Message me
September 14th
2007
6:27 AM
I just took my first of six shots 2 days ago. I'm already experiencing a general hot feeling, hot flashes and insomnia. I'm worried after reading these posts. ... My doctor did not explain the severity of the side effects prior to recommending the drug. Should I continue the treatment? My endometriosis only effects my life during my periods, and have no symptoms while im not menstruating. However, my period pain is so severe it impairs my ability to function. What do i do?
-- By darlandk | Reply | (1) replies | Private Message me
March 19th
2009
9:19 PM
Been taking Topamax since August 2008 for migraines . in November 2008 my doctor upped the dose from 50 mg to 100 mg because I began having daily headaches , even though these weren't migraines . This headache has been CONSTANT for 3 months, right behind my eyes , is with me morning . noon and night along with blurry vision . I have been taking hydrocodone for the pain while I went on a round of doctors visits and tests ...blood work - normal , ct scans -normal . Interestingly , along the way , my OB found an ovarian tumor that was 12cm and made with thyroid tissue of all things so I had surgery to remove my ovary ...but still the headache remains and the awful eye pressure . Also , word recall and math skills have become laughable ...doctor kept saying .you are 43 . maybe you are just getting older . after reading these posts I say I believe that my eye pain and my headache and my sudden stupidness and maybe possibly even the tumor can be attributed to the Topamax ...tonight I start titrating down from 100 mg back to 75 then 50 then OFF because I am not brave enough to go cold turkey ..I am already not sleeping at all since I gave up the ambien last week ( I have decided less pills may equal more health ) but the topamax seems to make me anxious NOT sleepy like it does some people , so I will also start splitting the dose am and pm to see it that helps . I will write back in a week or so with an update . How simple it will be if 30 doctors visits ( at 20.00 each ) plus a cancer specialist for the tumor ..weeks in waiting rooms and hundreds of hours on the internet wondering what was wrong with me could all boil down to ....one little pill. For me , I will go back to working with my migraines if this is the case .......
-- By diannaw | Reply | Private Message me