November 3th
2008
12:25 PM
I am on 300mgs of topamax a day for epilepsy, and my side effects are the flat tasting carbonated beverages. But the worst side effects is the feeling in the bottoms of my feet. They feel as if my sox are all bunched up and stuffed between my toes, and knotted up under the balls of my feet. It is a miserable feeling. I get the tingling feelings as well. My wife and I love hiking and I a try to stay in shape by doing 4 miles a day on my treadmill. I am 60 years old. I have to really push myself mentally. I hate this feeling. I don't mind the flat tasted, as I can do without the carbonation anyway, but the feet stuff has got to go.
-- By junkhead | Reply | Private Message me
May 23th
2008
7:03 PM
I have been taking Topamax for 3 years. I started out at 25 mg, ramped up slowly to 75 mg and have been on 100 mg for 1 year. Over the past 2-3 months, though, I've been feeling very weird, almost like I'm not here sometimes. It's hard to explain. Sometimes I'll get all the way to work and I can't even remember getting ready for work. My short term memory is shot, and that's bad for me. I used to remember everything. I just don't feel like me anymore. I did lose about 30 pounds when I started taking it, but I've gained that all back. I also had tingling and the carbonation in sodas went away for about 6 months. It did take away my headaches for the most part. Axert alleviates any that I do get now.
-- By acbt68 | Reply | Private Message me
January 21th
2008
9:35 PM
I have been on Topamax for a little over a year. I've had most of the side effects; tingling, numbness in the fingers, dry mouth, forgetfulness, and weight loss - love the weight loss. All the side effects have sort of slowed down as I've been on the medication longer. The weight loss has slowed and I've even began to get my appetite back- I'm afraid I'm going to start gaining weight now! I've lost about 40 pounds and I needed to lose it, so that was wonderful. I've had a very hard time losing weight all my life so this was wonderful.
I was addicted to Coca Cola and this med also helped me kick that habit because I lost my taste for the carbonation.
Does anyone know if the weight loss usually evens out after about a year or a year and a half? I need to lose about 30 more pounds and was hoping that I would continue losing weight!
Anyway, I was on the Topamax for headaches and it has completely helped that! It has truly been a God-send for me. Other than monthly hormone headaches, I don't get migraines hardly at all!
I am wondering about having my doc up my dosage for the weight loss aspect????
-- By mzcheryl | Reply | (19) replies | Private Message me
January 4th
2008
6:50 PM
Today is day 8 on Topamax. The only symptoms I've really had were the first few nights on it I woke up in the middle of the night but that has stopped. I had a few bad dreams but that has stopped. Drinks taste a little weird to me, but nothing like anyone else on here has described. I can still taste the carbonation at times. I just started taking 50mg today. I do 25mg in the am and I am going to take 25mg in the pm. For the previous 7 days I was only on 25mg per night. I have heard all this talk about weight loss on Topamax. That's part of the reason I am on it...to counteract the weight I have gained since I've been on Lamictal. Anyway, I haven't noticed a decrease in my appetite OR any weight loss at all so far. I was just wondering how long it took to start affecting you guys with the weight loss. Is there a certain mg you are on that it starts to affect your appetite/weight loss or a certain time frame or what? Any information would help. Thanks!
-- By cmbandrwb | Reply | (3) replies | Private Message me
October 10th
2007
7:27 AM
I have only been taking Topamax for one week, I have horrible migraine headaches. I feel very exhausted from taking topamax, and have HORRIBLE HEARTBURN, and I love pepsi, and it doesn't just taste flat, it tastes horrible, like I'm sucking on pennies! I unfortunately think I'm going to have to quit taking topamax, because I just feel so horrible....I can sleep 8-10 hours a night, and then wake up, and feel like I didn't sleep at all! Does anyone else know if these side effects get better as you keep taking the meds? Help!
-- By ksmolnar | Reply | (1) replies | Private Message me
August 31th
2007
6:04 AM
My doctor put me on Topamax for migraines, but I can not handle the effects. I just started the 75 mg dose just as I was moving into a new college apartment with new roommates, and I felt like I was going crazy! I couldn't eat anything without feeling completely ill, I was spacing out, and I couldn't remember words.. for three whole days I couldn't remember the word 'tapestry.' I finally had to look it up in the dictionary.. not a good sign for a college student. The worst, though, was the overwhelming sense of panic that was getting worse by the day. I was no longer myself! The last straw was a panic attack, complete with hypernentilating. I have never felt so scared in my life. I actually had to go the ER to get something to calm myself down.
So, I decided to stop taking it. My parents talked to my pharmacist, and she told them that Topamax IS the type of drug you can stop "cold turkey." But after a week, I feel almost as bad as I did when I was on the drug! I still can't eat anything. Also, I wake up hours before my alarm goes off, completely sick at my stomach. I feel panicky and nervous. I have several bouts of diarrhea and this morning I almost didn't make it. I share a bathroom with three (normal!) girls, and it is getting to be embarrasing and annoying. Please, can anyone tell me.. when do the side effects go away?? I want to be a normal 19 year old again!
-- By acw21 | Reply | (3) replies | Private Message me
August 2th
2007
9:17 PM
topamax = no more bubbles in your soda
that was the first thing i noticed, and i had trouble believing THAT could be a side effect from a medication. soda and beer and seltzer all tasted the same, but felt completely flat. it didn't feel like a mistake on my brain's part, it just felt like someone had sabotaged EVERY bubbly beverage i happened to try.
little did i know it was only the begining. i have tried many drugs, treating mood disorders, and after topamax i swore to only "treat" my "mood disorders" with time-tested mother approved drugs that make sense. ok thats a bit harsh, but topamax made me miserable.
after the carbonation episode, which never improved (until i stopped the drug), i noticed substantial mental dulling, inability to follow conversation, inability to form intelligent sentences, make connections, etc. sometimes my body would just burst into sensations of being on some psychedelic drug. was i floating? was i tingling? was i swirling? did i even care? nah... i began sleeping all day, or most of the day, or something in between. slowly my muscles and joints began to hurt. then they basically stopped working. i couldn't bend or stretch or do anything without feeling like i was 95 years old. i became an insane bitch (meaner than usual, but without the wit or speed to be an impressive bitch). i lost ANYTHING close to an appetite. my sense of humor turned into an uncarbonated mush.
i dont even remember stopping. i was 18 at the time, and im assuming one of parents noticed that i had aged 80 years in one month's time, and stepped in... offered me a soda pop... and gently guided me back to the doctors office.
definitely my favorite and most bizarre tale of side effects. too bad i can't remember all the hell that took place. i wish it had been videotaped or something.
ok so be careful with that stuff. it you NEED to try it, try it, but start slow... and take note of the side effects... and good luck : )
-- By petrakleinchen | Reply | Private Message me
March 31th
2003
7:47 AM
I have been on Yasmin for two months. I was on Levlite which I had to go off of, because I was having long unending spottings midmonth, then Levlen which caused me great ill and panic attacks, trouble breathing, headaches, severe fatigue. My doctor put me on Yasmin after this.....My breasts have grown larger in size (and they are already Ds. They are constantly tender and feel like they are severely bruised when touched. I have begun to gain weight; seven pounds in eight weeks, no matter how much I try not to eat a lot and go to the gym. My appetite has SOARED. Tripled in amount since I've gone on it, I'm a vegan, and before had eaten very mildly and lite, I crave water, my urine is very concentrated no matter how I drink, and crave sugar and carbonation. I have trouble sleeping because of very vivid and severe dreams and nightmares. (I take my pill at night before bed.) Always tired during the day, large pimples that last two to three days (cystic), then disappear. Pop up anywhere and everywhere on my face, and I've NEVER EVER had pimples or acne before in my life up till this last year with the birth control pills. It is embarrassing. I am having stomach pain with the Yasmin, feels like ulcers, but happens at any time during the day, like I've got a soft stomach and cant eat like I used to, coffees, etc. are unbearable, mostly in the morning when I wake, and in the middle of the night. I eat lots of tums to counteract it. Going to the gym is the only thing that makes me feel better, and then an hour later, I'm right back at being in attack mode. My boyfriend thinks I am insane. Things I say don't make sense, pieces of rationale are missing from arguments, I fly off the handle at any little thing, or difference I may have with someone. I am angry spitting fire, and then sad the next moment and in tears, ESPECIALLY FOUR DAYS BEFORE PERIOD UNTIL about three days into it. I am going to give this one more month, since I have endometriosis and am trying to do a continuous dose though the Yasmin isn't stopping my period from coming while I am continuous dosing, and I have been on four other pills in my lifetime, knowing changing pills is difficult and doesn't always come out with good results I am frightened to try something else, worried that the Levlen effects, which were the worst for me so far, with breathing difficulty and chest pain, will happen with another pill. I'm thinking that the severe mood swings, breast tenderness, and acne is worth it, as long as I can function without panic attacks caused by hormones. I am also having trouble with vaginal odor, a more pungent fishy smell that I've NEVER EVER had problems with before and only started with the Levlen, and now continues with the Yasmin, which is very disconcerting when in sexual circumstances; perhaps a vaginitis problem that hormones can cause since I am very monogamous. I'm unsure. I hope this helps someone else, or makes someone feel like they aren't insane or alone in this search for bcp.
My endometriosis, warrants me to stay on a bcp until I have children and/or a hysterectomy. I've had two laparoscopies for ovarian cysts in the last year. For people like me, bcp is the only fruitful option. If I didn't need bcp for this, say I just was using it as a birth control method solely, FORGET IT, I wouldn't touch this hormone stuff for all the money in the world. It is a horrible horrible thing to do to your body, and your outlook, your experience of the world, it takes your life over and makes things more difficult than any man or woman without gynecological problems could ever realize. Hormone supplementation or replacement is a curse. And I feel sorry everyday for women who have these problems to deal with in addition to the normal difficulties of daily life. I feel like the test of every decision daily are a constant drain on me, knowing at any moment I could fly into a rage or cry at the drop of a hat because of this and other hormone.
Good luck with your search ladies.
-- By guest204 | Reply | Private Message me
October 2th
2009
6:45 PM
I took Topamax 50 mg for about 2 months and experienced a change in menstrual bleeding. I wonder if Topamax effects progesterone levels. I had light spotting 5 days before period due for both months. This medication also made me very depressed and angry. I quit taking it about 5 days ago and felt the depression lift on the 2nd day after stopping the medication. This was my 2nd round for Topamax. My first time taking it I worked up to 100mg and lost 15 lbs in just a few weeks. I had no appetite. I also go very sick with a respiratory infection and dry coughing. I had menstrual problems with the first round too but didn't figure out if may be the Topamax until my 2nd round. It did help my migraines significantly. But I'm uncertain how if potentially messes up menstrual cycle. The warnings for the medication says "menstrual problems" but doesn't go into detail. Anyone else have menstrual problems.
-- By ramsey2010 | Reply | (2) replies | Private Message me