October 1th
2009
1:56 PM
I recently back in April of this year received Cyberknife radiation for Adenocarcinoma with metastasis to my brain. After surgery to remove my brain tumor in March of 2009. I went though whole brain radiation and the Cyberknife to my lung. The doctor was very adamant that as the lung heals from radiation you will develop what they call wet lung or neumonesis sp? This will have to be treated separately, or severe coughing would continue. My primary care doctor in the mean time put me on Lisinopril 20 mg for hypertension. I have not gotten a good nights sleep in 2.5 months since, then came the pneumonosis. This cough persist to this day waking me from what little sleep I do get, and amazingly am now suffering from joint pain especial in my hips. It's to the point I can't even cross my legs anymore it hurts. When discussing this with my primary she says its in my head as of today and reading this site and side effects I am taking myself off of Lisinopril and will seek a second opinion, even a third if need be thank you all so much for posting your side effects from this drug.
-- By geofhuss | Reply | (2) replies | Private Message me
July 28th
2009
4:43 PM
After taking Chantix for one month I now have breathing problems. I took
Chantix in November 2007. My last day of smoking was November 22,2007
I Started having breathing problems in late December 2007.
June 17th
2009
1:47 PM
Hello! I am 26 and a mother of 3 boys. I had C sections with all of them so since I didn't dilate insertion of Mirena was quite painful. I had it inserted 9/29/2008. The first few months were not bad. Had a period like every other month and spotted the ones in between. Starting in April-May I was having labor type pains so I called her, she checked it and I had an ultrasound, all LOOKED good. Well here I am 06/17/2009 and I have just made an appointment for removal! I feel like crap. I'm excessively bitchy, and I feel preggo! Bloated, crampy, and fatigued. I'm just tired of it. The nurse had told me I continue to have issues I can get it removed and then if I still have issues to go to my Primary Care Doctor. I know its the Mirena. I will just have to prove it when I have it taken out and I see her again for my yearly in Sept. The doctor is so sweet but the nurse makes me feel like I'm just complaining. I just hope I return to normal after.
Can anyone email me who has had it taken out and tell me how you feel after?
******
Thanks!
-- By momma_melissa82 | Reply | (1) replies | Private Message me
June 4th
2009
3:03 PM
I am posting this because I feel so strongly about warning young ladies of the side effects of mirena. I am a mom with 3 small children and wanted an easy birth control. I had the mirena for 2 1/2 years. The first few months were okay but then I started to notice no sex drive, I slowly gained 15-20 pounds even exercise and diet change would not slow down, and i was very irritable. My poor family! I also started having what my primary care doctor diagnosed as anxiety attacks. I didn't even know what one was until I began to have them. I would get a hot flash, my heart would start pounding and I would start breathing fast. I felt like I would pass out and I had no idea where it was coming from. I had to get up and walk out of appointments, and even church. I then googled mirena side effects to find many others had the same experience. My doctor told me he didn't think my symptoms were related to the mirena. I know myself and I know when something is wrong.
I had it removed 3 months ago and I am only now more convinced the feelings I was having were caused by mirena. Slowly, I can feel my body return to normal and have lost 5 pounds. I hope this blog is helpful.
If you are having life altering side effects like I did, insist that your doctor remove it. Birth control does not have to be at the cost of your sanity!!
May 26th
2009
1:46 PM
I was taking Topamax for about 4 years for chronic/daily migraines. It helped tremendously after I had taken almost everything else with no success. Then I had an episode where I ended up with 5 kidney stones. They passed but my neurologist wanted me off the Topamax in case that was the cause of them. I went off and my headaches came back with a vengeance. I had them daily until I begged my primary care doctor to put me back on Topamax. I honestly would rather have stones than daily headaches. I am a mother to four and have a husband and a job. I can't live with daily migraines. After being back on it for about two weeks the headaches have disappeared. I take 200 mg twice a day. I do have memory loss and loss of words big time. It is VERY frustrating. I feel stupid. But I can live with that. I have tingling cheeks , lips and hands. I'm sensitive to sun and have to wear my sunglasses a lot more now. I now talk in my sleep- a little nervous about that :) I lost weight last time around but haven't yet this time. I am very happy, not sure if that is the RX or just me reacting to not having headaches. I guess you have to weight the side effects with the benefits. The choice is ultimately up to you. Good luck everyone!
-- By jescape | Reply | (2) replies | Private Message me
May 3th
2009
1:34 PM
Unfortunately I've had to stop the Lupron injections. I lost my job and with that my health insurance. I am wondering can anyone tell me when I can expect my period to start again?
November 6, 2008 was my last injection and it was a 3 month dose. It is May 2009, I am 39 years old and I have not yet had a period. My fibroids ae back to their large abdomen filling size so I am very worried.
Not having insurance or adequate funds has reduced me to the internet for research first before venturing out to a doctor as a "self-pay" patient.
-- By tyates | Reply | (3) replies | Private Message me
March 5th
2009
9:08 AM
After one dose of Simvastation, on 2/28/09, eight hours later I woke to extreme vertigo, vomiting, cold sweats, muscle aches. I called my cardiologist at 1:30 a.m. and was told that I had the flu. Ya right! My vertigo has not left yet, and I have seen my primary care doctor who has ordered blood tests, and CAT scan. Just waiting for results. Still dizzy though. Anyone else have these symptoms?
-- By donthedoorguy | Reply | (2) replies | Private Message me
February 6th
2009
2:12 PM
I started taking Levaquin 500mg on Jan. 28,2009 after having it prescribed fby my cardiologist for a lung infection, after he conducted blood, urine and heart ecosonogram tests over the three previous days. I had an infection, everything else was fine. I am 55 and have mitral valve prolapse and have been treated 20 years ago for atrial fibrillation, hence my primary care doctor is a cardiologist. Willingly starting the treatment of one tablet a day, I noticed insomnia the first and subsequent nights, tiredness and probably depression as my friend and wife said I was acting a bit "needy" and anxiety. My family commented on my anxiety as did my friend who I only email and phone. My infection noticeably improved so I was feeling better and marked it up to having been sick, until the 4th day when I starting having shortness of breath and I noticed a feeling I knew well but had not experienced in 20 years, my heart area hurt in a mild way and I felt flutters, just enough that I pulled the medical paper for the Levaquin and read the side effects bar. Low and behold all my side effects were listed. "Rare but could happen in patients predisposed to heart problems" On Monday Feb 2nd I called the doctor with my concerns but he assured me that is was not the Levaquin but he made me an appointment to check things out. So one week into the 10 day course of treatment I had another checkup only to find an erratic heart beat but on the slow side not the pounding which is normally associated with this problem. So now my doctor "who is a friend" so I am not a number, wants me to start on an anticoagulant"Coumadin" to ease the pumping in my heart and then further exams and medication for "life" for my fibrillation! Problem now is I have one more pill of the Levaquin of the 10 pill series which I "should take in 10 minutes ( I just found this site)! I have decided not to take any more test or medication of any kind until I feel this Levaquin is completely out of my body. Does anyone have any ideas how long that could be? P.S. My heart still feels like it did earlier in the week!
-- By patrick53 | Reply | (3) replies | Private Message me
January 30th
2009
2:57 PM
two years ago I had the pneumonia vaccine. Less than a year ago, I had a cold. .. and while taking Advil, my cold quickly turned into pneumonia and I had to go through two different antibiotics to get rid of it and this ended up going on for about 2 months to get free from it all. A real mess! By then I came off Advair as I thought it might be related to the reason I got Pneumonia!
A year later, I have a cough --getting over a cold - and my primary care doctor wants to put me back on Advair again. To be honest, I don't want to touch the stuff. I'm very sensitive to drugs. If they give me pain killers at the E.R., I am a "sinker". I know my doctor is trying to do the best, but I'm really hesitant about it! I think my cough will get better on its own..with my inhalers.. atrovent, etc. although it's constant. But I have a suspicion that Advair could have been a part of the reason I got pneumonia. Any ideas on any other help?
-- By hisammy | Reply | Private Message me
September 25th
2008
10:40 AM
My son Tyler was 5 when he started taking it. He was on it for approx. 2 weeks when he started bleeding out from his ears. I phoned Merck and made them do an incident report and mail it to my sons primary care doctor as well as myself. Tyler was in the 2% that had that had happened to. I was infuriated and I tell everyone I know how the I was deceived by not being told of all the side effects.
-- By coop | Reply | (2) replies | Private Message me
September 3th
2008
7:21 PM
Was previously on Micardis HCT; dr. switched to generic Lisinopril HCTZ 12.5 in 11/07 when I went on Medicare & was concerned about cost of Micardis. Since that time I've put on 10 lbs. and had increased pain/muscle fatigue and general lethargy. Unusual, as I've exercised 4-5 days per wk. (incl. aerobics/strength trng/flexibility.) for 20+ yrs. Also, frequently, have problems swallowing pills due to feeling of obstruction in esaphogus tube. In July '08 I awakened to slight numbness/tingling in lips and my lips then proceeded to the swell to the point of pain and my lips (in profile) protruded further than my nose. I received steroid injection and prescription for steroid pack. Diagnosis was possible allergic reaction to new cosmetic product. Today (9/3/08) I woke up with the same symptoms and again had to go to the dr.for a steroid injection & meds. Diagnosis this time (different dr.) was possible side effects of "blood pressure meds." Has anyone else experienced edema of the lips, wt. gain, and problems swallowing?
-- By laura65 | Reply | (8) replies | Private Message me
August 30th
2008
12:28 AM
i am a 42-year old woman diagnosed with chronic angioedema and it has become life threatening. the doctors say that it's idiopathic--can't tell what's causing it--and don't seem to know how to treat it (or me for that matter--my primary care doctor no longer wants to treat me, wasn't even kind enough to refer me out, the allergist most condescendingly said that in 20 years he's never seen or heard of someone so affected, and my dentist won't touch me because of my allergy to lidocaine.) i've been living with a daily minimum of 75 mg. of benadryl for the last four years but sometimes i've got to up that dosage to round-the-clock so some days as high as 450 mg. i'm allergic to meat protein, sea food, dairy, sodium and most spices, and certain fruits and vegetables. about 3 weeks ago i had a vegan meal at an indian restaurant and the spices accelerated my condition so on the drive back from the eatery my throat began to close and swallowing and breathing became difficult. i have had about 8 such episodes since then and twice have had to call 911 for emergency treatment to get things under control. on my first visit to the er about 2 weeks ago, in addition to the shot of epinephrine, i was given an iv in which they put a shot of benadryl and a shot of some sort of steroid. the doctor gave me a script for prednisone which was on a sliding scale (low dosage, one week.) i ended back up in the er about 4 days later and was given the benadryl and same steroid (think it started with an "s") again, and pepcid (doctor said it was for g-i and would help to limit the histamine being released into my system. since then, i have gotten the swollen belly side effect which i believe is from the prednisone (the angioedema causes blood vessels to swell beneath the skin but i don't think any swelling of this magnitude can be attributed to that). i have yet to find out if this swelling can be reversed with treatment or will go away of it's own accord. i've tried reading up on the reversal of the side effects but just hear more about how horrific they are--you all are truly in my prayers, keep your heads up!!!--so if anyone has experienced the dissipation of the side effects, please let me know and how soon after discontinuing the drug i can expect this disfigurement to go away. i too am dealing with depression for which i am prescribed but i dare not take the meds--far more too many side effect which with to deal and like some others here, i have no support system. i am the mother of the most wonderful 10-year old girl -- she is my heart and my world--but i dare not have her live with me because of this life threatening/altering/controlling condition.
sharing and hoping for good feedback.
blessings.
-vanessa w.
-- By vanessa_williams | Reply | Private Message me
August 14th
2008
7:21 PM
My husband was hospitalized with pneumonia on July 14, 2008. He was given Avelox via IV in the hospital and a 7 day pill prescription when he came home. Even in the hospital, he complained of muscle aches, but no one keyed on the antibiotic as an issue. When his breathing was better, he assumed he should try to do physical activity...but when he tried to play some golf one day, and do a little deck staining another, he payed for it with severe joint pains...even then, no doctor said anything about the antibiotic. He has lost over 25 lbs since this began, and has lost absolutely all muscle tone in his body..
He's stopped trying to do anything, but the last month has been terrible for him...every joint in his body hurts--he can hardly walk, there were days he couldn't lift a fork to his mouth with one hand... I brought him back into urgent care on Aug. 9th...that doctor was the first to mention that it could be a side effect of the Avelox he had taken 3 weeks before...
Since then, we have been to his primary care doctor, who doesn't think "the Avelox has anything to do with it. Now that I've googled it and seen the new FDA warning, I can't understand any way it wouldn't be at least part of the problem!
He's been give Vicodin for the pain, and they're running more tests, but I intend to go into the doctor with every thing I've seen on this..I don't have a problem with them using this medication for his pneumonia, but am so frustrated that they didn't tell warn us of this side effect--especially when he's tried to tell them what he's feeling.... I just think he would have been so much better by now if they would have switched him off of the drug as soon as he noticed the pain..
-- By jogrif316 | Reply | (1) replies | Private Message me
July 17th
2008
1:32 PM
Very disappointed...I became Hypoglycemic!
My story: I became Hypoglycemic within weeks of having the Mirena inserted. My symptoms were; anxiety, shakiness,irritability and nightmares.
I went to a primary care doctor and then to a endocrinologist complaining of that my blood sugar was becoming a problem. I was aware of the feeling of low blood sugar because when I breast feed my two boys (ages now 7 and 10) I then easily became hypoglycemic. However, I have not had this problem since.
Both physicians thought that i had reactive hypoglycemia because my fasting glucose was within normal limits.I have a healthy diet but i changed my eating habits even further (e.g. gave up all caffeine, sweets, alcohol. I started eating more whole grains and had small meals every 3 hours).
Even though I change my eating habits the side effects still became worse.I was starting to get panic attacks, I had never had these before. During one of my worst panic attacks (9 months after I had the Mirena inserted) I called my sister. I kept saying "I don't know what is causing me to be so anxious, I have never been like this before." Well, that statement sank in, I started to think about what was different. The only thing was the Mirena. That night I look up side effects of the Mirena and came across several blogs all describing their disappointment and many speaking about anxiety related issues.
I have to say I felt relief. It was not going crazy. The following day I read the official FDA Mirena web-site and that is when I found out about the effects on blood glucose. It is stated that Levonorgestrel may effect glucose tolerance and the blood glucose. However, my gynecologist never mentioned this side effect so I was not aware of this potential reaction. Btw, I had told both the primary care doctor and the endocrinologist that I had a Mirena IUD but neither of them new about the effects to the blood glucose.
The other interesting thing I noticed on the official FDA Mirena site is that when the list the Adverse reactions (depression,nervousness, weight gain etc...) they say reported by 5% or more subjects...hmmm, MORE...i think that is a key word!
I had it removed one month ago and I am starting to feel better. From what I understand, it may take up to 3 months to get the Levonorgestrel to get completely out of the system. however, my hypoglycemia is starting to diminish, I recently had a cup of coffee without getting the shakes and I can now enjoy a glass of wine at night too. My anxiety is almost completely gone.
What a relief to have figured this out!
-- By sooz1 | Reply | Private Message me
June 15th
2008
11:02 PM
My daughter is 15 and on Thursday June 5, 2008 she received her second shot of Gardasil. A couple of hours later she complained of difficulty breathing. I took her to the ER where the doctors made me feel like I was crazy to think it was a reaction to the Gardasil shot. They said she might have asthma. They gave her a Nebulizer treatment that didn't help and sent her home with a prescription for Albuterol which too did not help. I took her in to see her Primary care doctor who said the same thing, it could not be the shot and diagnosed her with Bronchitis. She has no signs of bronchitis, no wheezing, cough or phlem. I then took her to see an allergist who again said the same thing, not the shot. He to said she may have bronchitis. They have given her 4 types of medication and none of them have helped. Today is day 10 and she continues to have difficulty breathing. Is there anyone else out there with these same symptoms?? If so I would really appreciate and advise you can give..
-- By yvette563 | Reply | (2) replies | Private Message me
June 6th
2008
2:53 PM
I'm a 31 female. I was diagnosed with bronchitis/sinusitis on 5/28 and was given Biaxin which did not help. I was instructed to return to the doctor if I did not feel better within 2 to 3 days. On Monday 6/2 I returned to the doctors per instructions because I was not feeling better. He switched me to Levaquin 500mg 1 a day. I took Levaquin at 8pm Monday evening. I was unable to sleep that evening so I researched the medication the following morning and saw that Insomnia was a side effect. Starting at 10am today 6/6 I begun severe hip pain in my right hip. I called the doctor and they instructed me to stop taking the medicine for 24 hours and begin treatment again if the pain reduces. After reading this information I'm now reluctant to start "if" the pain subsides.
-- By audprice | Reply | (1) replies | Private Message me
May 20th
2008
9:37 PM
I received my first shot of Gardasil in January 2007. It could have started sooner, but about a month later my hairdresser noticed a bald spot in the back of my head. I rushed back to my ObGyn and asked her if the Gardasil could be the cause as nothing else had recently changed. She said that she had not heard of this, but she referred me to a dermatologist. I asked him if my hair loss had anything to do with the Gardasil. He replied that I had Alopecia areata and one thing had nothing to do with the other. He advised that I continue with the Gardasil and that he would start treating me for the alopecia. I wish that I would not have listened. I don't know what would have happened if I had stopped then, but I didn't I proceeded with the treatment to the end now over half of my head is bald!!!
I don't know what to do. I keep going back to the dermatologist for treatments for the alopecia, but it just keeps getting worse.
If anyone has had a similar experience and would like to share or has found some other treatments that work, please post a reply.
Melissa
-- By melissa814 | Reply | (8) replies | Private Message me
May 6th
2008
9:04 AM
basically, this was my experience with the paragard:
1. Dec 2004 - Paragard iud was placed post-partum after my 2nd daughter was born. i was breast-feeding, and had no noticeable symptoms until Nov 2005.
2. Nov 2005 - had my first period since my daughter was born. it was heavy and crampy, but i thought "i haven't had a period in 2 years, so this is the price i pay..."
3. Each period hence was heavy, long at 6-7 days, and cramps were intense. again, i just decided that i could manage.
By the end of 2006, my periods were so bad that my husband and i decided i had to see the doctor.
4. Jan 2007 - saw the doctor about removing the copper IUD. she said that the paragard should not be causing such bad symptoms, and since i was did not want to get pregnant, she decided we should try to control the symptoms with birth control pills and Prometrium. I did not want to try Prometrium since I was unsure of how I would react to the hormone. she believed that i might be suffering from severe pms, called PMDD. note that i loved and trusted this doctor - i had some complications during my 2 pregnancy, and some problems post-delivery, and she was attentive, personable, and caring. i was very comfortable and trusting, so i listened to her recommendations. i tried yaz, yasmin, and 2 other pills over the next 3-5 months, but was extremely nauseous and sick with all of them (plus break-thru bleeding).
5. Feb - September 2007: i started having pre-period symptoms of nausea, vomiting and/or diarrhea, abdominal cramps, severe fatigue. the first 2 months that i had these symptoms, they were so bad that i believed that i had an intestinal virus - same cramping, throwing up, and bad diarrhea, plus this was BEFORE my period. I then made the association between my symptoms, and the fact that they occurred 3-5 days before my period, and then they would subside about 3 days after my period started. my periods were still long with heavy bleeding.
6. September 2007 - was having same symptoms, but started 7-10 days before my period, and they were so bad that my husband had to take off from work to take care of our 2 girls each month (i stay home with them). i went back to the doctor during September, and was told to modify my diet (no white flour, sugar, low fat, high protein, lots of water) and to try some vitamin supplements since i didn't want more medications. she again recommended taking 100 mg Prometrium to help ease the symptoms. I asked to remove the IUD, again, and she said that "before she took out something that expensive, she wanted to make sure that something else was not wrong" - I was shocked at her statement, but agian I liked her and trusted her, so i went along for the sonogram.
7. October 2007 - In the meantime, I was desperate, so i took the vitamins and Prometrium, which sent me into what i can describe only as a psychotic episode. i had severe emotional outbursts, i was irrationally angry and irritable, and had absolutely zero patience. i am usually a smart girl, and in my normal "mental state" would have associated that the Prometrium had caused this severe reaction, but I was no where close to my normal state of mind, and i just thought that my physical symptoms were now affecting me mentally.
8. LAte Oct 2007 - BY this time I am so down and really ready to get my life back. I am still sick with nausea, diarrhea, vomiting, severe abdominal cramps, severe fatigue, and now my abdomen stays sore and tender through the whole month. FINALLY the doctor calls with the ultrasound results. she said that there were 2 small ovarian cysts - and i was relieved - i thought that FINALLY, we were getting somewhere - but in the next sentence she said that she didn;t think that they were responsible for my symptoms. i was deflated - and at such a loss of words. i listened to her tell me how she thought that i had IBS, and that she was going to refer me to a GI doctor. i know that IBS is a catch-all category of symptoms that some doctors throw on people they can;t diagnose. and remember, i was just a few days out from recovering from 1) having a severe personality reaction to a drug, and didn't know it was because of the Prometrium - i thought i was going mad, and 2) i was just getting over being sick before my period - AGAIN.
I finally called her back a few hours later and left a message with the nurse "since she doesn;t think that the cysts are causing the symptoms, could we please remove the copper IUD?" i never got a reply.
I called my niece who is an RN at a respected women's health center in NC and cried a lot and told her what was going on. she got me an appointment with a doctor there for mid nov 2007.
10. Mid Nov 2007 - tell the NC doctor my medical history, and she says "we need to get that IUD out". in less than 30seconds it is gone with minimal discomfort, 25% of the abdominal soreness and tenderness is gone within 24 hours of removal, and completely gone within a week. THIS WAS THE FIRST TIME IN MONTHS THAT MY TUMMY WAS NOT TENDER OR SORE!!!
i have a follow-up appointment for mid Jan 2008 with the NC doctor and possible placement of the Mirena
11. Nov 29, 2007 - have my first period in over a year where i am not sick etc - it is heavy and a bit crampy, but is shorter in duration.
12. mid dec 2007 - i start to suspect i may be pregnant, but think that we have been cautious, and my period is probably going to be irregular with all of the crap that has gone on
13. jan 5 2008 - yep - i'm pregnant!! but that was ok - we wanted another anyway.
14. jan 7, 2008 - catch the respiratory flu that has been going around and stay VERY sick for 4 weeks, and i just know that something is unusual - i can't eat i am so sick and am so weak that i shake whe i stand up - call a new local OB doctor and see them.
15. jan 30, 2008 - have miscarried the pregnancy
16. April 2008 - the new ob doctor places a mirena
17. first of may 2008 - my husband is asking if i feel ok, that he has seen similar but much less severe symptoms in my mood as when i was on the Prometrium. i have never had acne this severe on my face, neck and back - it actually hurts and i have some scarring even though i have not picked at it.
By the way, my new local OB told me that HE WILL NOT PLACE PARAGARD COPPER IUDS FOR HIS PATIENTS BECAUSE THEY WORK BY CAUSING INFLAMMATION IN THE UTERUS.
however, he also said that i shouldn't have any issues with the mirena, and now i am starting to wonder if i am going slightly mad...
i want my life back...
i now realize that there is a side effect to EVERYTHING that you put in your body...
i am terrified of getting pregnant right now even though a few months ago i was excited about this wonderful possibility...
i am now talking to a counselor to try to work out the events of this past year+ so i can move on...
i feel like my voice was NOT heard or even acknowledged...
the reality is that WE are ultimately responsible for our own well-being, both physical and mental, and that doctors do treat with preconceived notions about the way health should be and how medications and devices should work...they listen to pharmaceutical reps and not their patients...
i don;t know what to do about birth control now...i suspect the mirena is making me feel this way, but i am terrified of getting pregnant, i can't take birth control pills, and am hesitant to put any thing else in my body that is a chemical...however, i have no libido anymore (my poor wonderful husband) and i use to enjoy the closeness and intimacy of being with my husband...
i don't know how this affects your decision about the copper iud, but i just caution about 1) be careful with sex after the mirena is removed and 2) be mindful of anything that we eat or place in our body.
i do know that i could not find any other information from women who experienced my symptoms, but i find it very difficult to believe that i am the only one who experienced this.
lots of luck, and thank you for sharing your experience with the posting site! it has helped me make an informed decision about removing the mirena, and i hope that the information here will help you make an informed decision about the copper iud.
April 10th
2008
12:31 PM
I posted this on Mar 15th regarding my experience with Topamax...
I took Topamax for only 4 days. I ended up in the ER on Feb 22nd because I felt like I was going to pass out, getting dizzy, couldn't concentrate or think, numbness, rapid heart beat, shortness of breath and this was intensified by anxiety from all this stuff going on. I stopped taking it immediately. I have had episodes of these same side effects since then. I had these side effects last week and missed 3.5 days of work. I have been doing pretty good this week but today I had to leave work because the same side effects came back. I had to have someone come pick me up form the side of the interstate half way on my way home because it got so intense I could not drive. My doctors have done blood work and I am waiting for the results.
Since then, here is an updated on my side effects and what has been found by my doctors. I really hope this helps someone since this was very devastating for me. It got so bad I had to go on Medical Leave from work due to the side effects.
I had 10 tests run on my blood and tests and pictures done on my heart and everything checked out to be normal. Apparently since this medicine messes with the chemicals in your brain, it also has the capability of turning on anxiety, depression, panic attacks, etc. My primary care doctor, my neurologist, my cardiologist and a stated licensed counselor/therapist all have diagnosed me with anxiety leading up to panic attacks. Basically what I was told by my counselor was that my level of anxiety in my brain was turned on so high, it didn't know to come back down after I stopped the medicine. Now anything can set it off and it's quickly escalates into a panic attack without control. I was so bad that I was having anxiety/panic attacks about merging into traffic, going to work, going through the drive thru at McDonald's, going to WalMart and just anything in general. I started a medicine that controls anxiety and I have been on it for a week. Although I still get anxiety, I am able to control it and it's not escalating into the panic attacks. The best thing is with this type of medicine is that it can take "a couple of weeks" before it's built up into my system, so this should take care of it. I was advised with some counseling to learn how to control my anxiety and some medicine, this can be taken care of. I just have to allow my brain to get the levels of anxiety back down to normal levels and then I can eventually stop taking the medicine.
-- By eriknokc | Reply | (2) replies | Private Message me
March 28th
2008
12:26 PM
I am a 60 year old woman,and was on Singulair in 2000 for the treatment of asthma. At the same time I was put on inhalers Flovent and Serevent, taking the inhalers twice a day. Almost immediately, I began waking up at night, screaming my lungs out, having a very strong, vivid feeling that my heart had stopped, the blood was draining from my head and arms and this was my last breath and I was dead! It scared the hell out of me. After calming down I would go back to sleep and it would happen again. Sometimes it would happen 10 - 12 times a night, and sometimes even while I was awake. It wasn't a dream. It frequently was accompanied by a restless leg. I spoke to my allergist, my primary care doctor and a pharmacist, and all said it wasn't related to my drugs. I had a sleep test and woke up screaming my lungs out, scaring the night-shift technician, but nothing showed up on the tests. This went on for about 6 months, and then I quit taking the inhalers at night. My "night terrors" eased off a bit to only once every couple of nights, but didn't go away. I quit taking Singulair and Serevent after about 2 years, and only then did the terrors really subside. I had thought they were caused by the Serevent alone, but after reading these stories I suspect it was a combination of the 2 drugs. I still have the terrors a couple of times a year, generally preceded by a restless leg.
-- By annieo | Reply | Private Message me
March 28th
2008
12:23 AM
I can’t believe this… Can this be what is wrong with my son…..
February 18th my son was put on Singulair for his allergies. He has frequent ear infections and the doctor thought this would help open up everything and felt this would help him start feeling better. Over the next two weeks my son started complaining of a choking sensation when he ate things…. He felt as though things were stuck in his throat every time he ate. I didn’t think anything of it…
Then on Saturday March 1st while at a restaurant my son felt as though he was choking on his dinner. To the point he needed to spit out what he was eating. Even after that when he tried to continue eating the sensation that something was in his throat still was so strong that he basically had a full fledged panic attack. He begged me to take him home… and that I needed to help him he was going to die. He swore that something was in his throat he could feel it. I tried to calm him and it was IMPOSSIBLE. The fear in his little 7 year old face was so scary. He wanted me to help him throw up .. just get it out. He wanted to go to the ER, and so we brought him to the Emergency Room. Based on his behavior they felt he just had a panic attack because of the choking at dinner. They sent us home with no tests run… and Adavan to calm him down.
The medicine made him sleep but no cure. He would hardly eat all the next week and we had him once again to the ER at Children's Hospital. As a mother I could not relax until I ruled out all things medical. He had lost 7lbs at this point and the Urgent Care doctor agreed. Go to the ER and get Xrays done. So again… Wednesday the 5th of March we went to the ER. They did Xrays and found nothing. This was not proof enough for our son and still continued to not eat. The ER doctor said … go to the ENT with his history of allergies and also see a G.I. doctor to rule all things out. But … hinted to the fact it was all anxiety.
So….. I was loosing it on the 8th of March. How could I watch my son go through this… I couldn’t stop thinking about the only thing that has changed for him and that was the singular. I called a pharmacist the 6th or 7th. Called a Nurse on the 8th and I believe it was the 9th that I called and again said COULD HE BE having a reaction to Singulair. And ALL OF THEM SAID NO. My instincts told me otherwise and I stopped it that day. Despite me being told it couldn’t cause these problems. And it must be Anxiety.
My son still does not eat anything but liquids and Mashed potatoes. It’s been such a roller Coaster. Last week we had him at the ENT to rule out problems with his allergies & Adenoids and just today… our last option to find something Medical… we had a scope done of his upper G.I. Nothing was found. I felt lost and sadly …. Upset they found nothing. This meant it was all in his head… . I’ve been pacing the house trying to figure out what to do with my poor son who swears to me that something is wrong with him… and to help him and to make his brain stop thinking food is going to hurt him or make him choke.
Then on the 9:00 news I see the info on Singulair. And I though NO WAY. The one drug I swore to everyone was the root of this… and they said NO, in fact could be what caused all of this for my son. Could it be?
But …. My son stopped the Singulair on the 9th of this month. Does anyone else still have symptoms after having stopped this? Could it still be in his system… or could it still affect him in this way.
This all started after being put on this drug. …. This has to be it….. but now what?
Please help – let this be the answer
J from Cottage Grove, MN
March 22th
2008
9:20 PM
I originally posted my side effects on January 8, 2007. I had been taking Lisinopril for about 1 year prior. The dry hacking cough was driving me mad, so my cardiologist switched me to ATATCAND on February 9. On February 28 I posted that I had my first full day without a cough. Well, it is now March 24 and I have been cough-free for 3 weeks. Most of the other side effects have subsided also.
I know that only a small percentage of people taking this drug report this side effect. I normally do not react to any medications, but this stuff is poison, literally. I wonder if only a small number of people have side effects, or if more people have them, but do not report them, or are treated with other meds for their problems.
If you have a dry hacking cough and think it may be related to Lisinopril, don't wait. See your doctor and tell him that you are allergic to ACE inhibitors. It is well know by my primary care doctor as well as my cardiologist that this allergy exists.
March 17th
2008
10:56 AM
i just started my 7 month pack and ever since last month, while on the active pills, my heart seems to flutter or feels like its skipping beats. it does it alot and it scares me because i am scared i am going to have a heart attack or something. do you think its from femcon and if so, should i stop taking them?
-- By skhender | Reply | (2) replies | Private Message me
March 15th
2008
1:54 AM
Recently took a twenty day run of 500 mg Levaquin for a cellulitis infection that popped up after a knee surgery. It seems that unlike most people I tolerate the drug pretty well. The only side effect I have noticed is a little muscle stiffness when I wake up which is quickly remedied through light stretching and a warm shower. After being put on this medication I looked up it's side effects and was frightened by how many people have had terrible and debilitating side effects. Next time I'll trust my doctor and not look them up. I think any lost sleep and nervousness can be attributed to worrying about side effects that never came up.
-- By railguncannon | Reply | (8) replies | Private Message me
Levaquin (7) Yasmin (7) Lisinopril (5) Mirena (4) PredniSONE (4) Kenalog (3) Singulair (3) Advair HFA (3) Topamax (2) Gardasil (2) Levaquin Leva-Pak (2) Sulfamethoxazole (1) Chantix (1) Lupron (1) Pravachol (1) Wellbutrin (1) Femcon FE (1) Avelox (1) Lovastatin (1) Lipitor (1) Simvastatin (1) Toprol-XL (1) Synthroid (1)
November 19th
2009
9:07 PM
I had a kenalog shot a year and a half ago and over time my purple hole on my hip/but area was just getting bigger and bigger just last week my doctor cut it out it now is a nice straight line and all filled back in when she pulled the fat back together I am very happy with the results any primary care doctor should be able to do it and insurance should cover it because it is suspicious behaver of your skin. I am a medical assistant and this has really awakening and I make sure I use a appropriate needle every time and go nice and deep I would never want to scar one of my patients I think your nurse does not want to hurt you so she/he might use a shorter needle alot of us do not know about the divet/hole kenalog can cause I learned the hard way but I would rather the shot hurt a little and have no scar/divet.
-- By shirlytemple | Reply | Private Message me