June 1th
2009
11:19 AM
I took Zocor for 9 months after I had a heart attack. After about 8 months I began having sever muscle spasm in my legs. I had a couple of episodes where when walking I couldn't pick up my feet and thought I was having a stroke and had to sit down and rest before walking on. I had to do this several times to get where I was going. I told my cardiologist and he had me stop the Zocor. The spasms stopped but I never regained the strength in my legs. Today I have had to put ramps in at home cannot climb steps. The ramp is difficult because of the incline but it is better than crawling up my steps to get in the house. I can only walk about 50 steps before my legs give out on me. I cannot walk on uneven ground without holding on to something or someone. I have now had 2 back surgeries because I have been told over and over it is my back with no relief for the legs. This last surgery my left foot drags and my big toe hangs down and I cannot pull it up. Now I fall a lot because of that and have to wear an AFO to keep my foot and toe up so it doesn't drag and trip me. The back doctor thinks it another pinched nerve and wants to open back up again. I am so tired of them trying to convenience me it is my back when I know it was the Zocor and the damage apparently is irreversible but no one wants to agree with me. I am sick of it and just wish they would say yes it was the Zocor and get you a scooter and live the best you can. I know I am headed for that road I use a walker and cane when I don't have someone with me to hold on to. Because I am so unstable on my legs.
-- By tyleen | Reply | (8) replies | Private Message me
October 8th
2008
7:07 PM
Oh my goodness.....my daughter, age 17, had her first injection in June 2008, started losing her hair w/in a month. We thought it was form straightening, some high lightening etc. She had blood work done which showed she was anemic...strange, as 2yrs prior her blood work was stellar, and she had not changed her diet, or physical activity. She increased her iron and protein intake (along w/ supplements).....three months later, and after her second injection, iron was still anemic....worse actually, and her hair loss significant.I found this website last night....and I am floored......I called MERCK today and spoke to a representative wh o was not aware of the hair loss issue, but said that in their case studies, Autoimmune Hemolytic Anemia was a side effect.....which leads to hair loss itself.....so I am researching now what to do next.....anyone else have this issue??????
-- By wmk | Reply | (7) replies | Private Message me
April 13th
2008
11:16 PM
Alright. After observing my daughter for two full weeks after discontinuing Singulair, I have decided to share our story.
Our daughter started taking Singulair last August (2007) to relieve her allergy symptoms. I'd like to add she is an identical twin, whose sister did not need to take the medication, for she had mild allergy symptoms that were easily relieved by taking Allegra. So we clearly have a side-by-side case study where one twin took the Singulair and the other did not. About two weeks later we noticed changes in her behavior and thought it was due to the new school routine and changes, etc. Then she started not eating, and when she did eat, she ate very little. Both girls are in a select soccer league are physically active 4-5 times a week.
Long story short - she stopped eating, lost weight, stopped growing and is now 2.5 inches shorter and 15 lbs. lighter than her identical twin. They are fifth graders, I might add, so 15 lbs is ALOT of weight at their age. She was withdrawn, known to have deep depressive episodes, reacted adversely to everything and, in general, wasn't acting herself since last August. She was not enjoying life at all.
She is usually a quick-witted child, one with a sunny disposition and who interacts with others very well. She is joy packaged in a colorful bottle, ready to share her thoughts with you.
We took her to her pediatrician, a nutritionist, a psychologist and all said she was clearly depressed and that is what led to her changes in eating. No kidding, I thought. But why? What has happened that could have changed her so drastically?
I had never felt so far away from my child as I had with her during this time period. We are a close family and we pride ourselves on being able to freely express how we feel.
My dear mother-in-law saw that the FDA was probing the side-effects of Singulair with children and she mentioned it to me, because she knew that is what my daughter was taking was taking. I never thought about the connection, because I take Singulair. I will add I also take an antidepressant and have made an appointment with my doctor to discuss all of this.
After talking with our pharmacist and getting an exact date as to when she started taking it, I called her pediatrician and discussed it with him. We had not been to him since October, because we took her to everyone else (psychologist, etc), so he had not known exactly what was going on with her mental health. He did, however write in his notes (and told me when I called), "Discontinue Singulair if symptoms persist." Hmmmm. Exactly why I wasn't told this from the beginning, I don't know and am very bothered knowing he wrote that on her chart.
Well, after taking her off it two weeks ago she is now back to her happy, connecting and eating self. People (her father, twin, and I included) noticed a change in three days from stopping use of Singulair.
She has changed IMMENSELY since getting off the Singulair that it has been easy to pinpoint her taking that medication as the reason she has been absolutely miserable for the past SEVEN MONTHS. I thank God it wasn't longer and that she didn't suffer any longer than she already did, but it was a true hell to watch her go through what she did and to watch her decline and to not know (professionals included) what to do. Words diminish how we felt and how we feel now after having her back.
So there you have a side-by-side comparison. One identical twin thrived while NOT taking Singulair and the twin who did take it suffered terribly, physically and mentally, while she was taking it.
The allergy relief she experienced was clearly not worth the internal suffering she endured while taking Singulair. I wish we could turn back time and give her those seven months back.
-- By nran | Reply | (6) replies | Private Message me
April 9th
2008
6:52 AM
i have been taking levaquin for a week now and i cant move my body it is too sore to move.also i have extreme stomache pain and diareah.i have yet to feel better and feel things are getting worst. now i feel like throwing up too. not really sure what it is but after seeing the sideaffects everyone is having i contribute it to this drug
-- By stevedore | Reply | (2) replies | Private Message me
April 6th
2008
9:37 PM
In response to Concernedcitizen with regard to the additional medications prescribed, we never got that far, but we were close. My son, as I've mentioned on here before (sorry for the repetition, but I think it's important), was about to be diagnosed as bipolar, which would no doubt have led to a whole host of other drugs.
Also, I totally agree with concernedcitizen with regard to not necessarily blaming our doctors. We should expect them to listen to us and take our concerns seriously, though. My son's first pediatricians were dismissive and condescending. We switched doctors and when I handed the new doctors a printout of all the posts from this site (back in 2005), they looked skeptical, but guess what? They READ it. And, my son's primary pediatrician has since told me that he's taken several kids off Singulair based on our story and the posts he read. The research provided her by concernedcitizen is INVALUABLE. If enough doctors see this stuff they'll start to question it and at least look at some of these children differently. Rather than throwing a prescription for Ritalin at them or stuffing them full of wellbutrin/abilify/lithium/klonopin/cymbalta/ they might think, "Hey, this kid's on Singulair...maybe we should try taking him/her off for a while to see what happens."
Finally, I wanted to put it out there that while kids may show mild side effects in the beginning (so mild that they can be dismissed in one way or another) I, personally, believe that with this drug side effects intensify over a period of time. My son, for example, was highly functional on singulair in the beginning and it completely eradicated his asthma and allergy symptoms, so it was great. Over time the side effects were more numerous and increasingly intense. Finally it got to the point where we couldn't dismiss it as bad behavior anymore, it was just completely outrageous behavior and my instinct told me it HAD to be the singulair. So these case studies that look at kids over a 24 week period are useless. In 24 weeks my son was fine. 52 weeks? Totally different child.
Definitely use the info provided on here, it will help not only your child, but other children as well.
-- By cheflette | Reply | Private Message me
March 22th
2008
11:23 AM
I am a 55 year old male. I have been on 40mg of Lipitor for 2 years after having a stent put into my heart. About 6 years ago I was on 20mg ov Lescol for a year but I stopped taking it because my knees became very weak and I could not walk up stairs without holding on. I am now experiencing severe lower back pain down into my left buttock, leg muscle and knee weakness, and I also have mild depression or a lack of motivation may be a better term. I am going to stop taking the statins and see if I have any improvement. Several years ago, when I stopped taking Lescol, my knee weakness and pain did not improve. Through research on the internet I discovered that some symptoms do not improve by stopping the medication. My goal now is to ensure it does not get any worse.
-- By hyatesjr | Reply | (1) replies | Private Message me
December 25th
2007
2:00 AM
Within 5 days of beginning course of Geodon, 40mg daily, doc doubled my dosage to 80mg, began to have problems. Intensely manic, easily frightened, insomnia, terrifying dreams. I decided to get out of hospital ASAP and decide if to quit taking Geodon.
On day six already my face was twitching, was irritable and manic, pacing, increasingly manic throughout day, decided to skip evening dose, keep total dosage same as before, 40mg. Began tripping around midnight and it was all downhill from there. Sleepless all night, by morning I had convulsions, increased heart rate, fear and anxiety, psychosis, uncontrollable crying. Had another seizure 12 hours later. Slept a little with help of Valium. Next day developed Parkinson's like symptoms, had my father not been there to help me, Lord knows what would have happened to me. Still awake in day 3 of withdrawal. Hoping the worst is over.
December 2th
2004
2:21 AM
My 15 yr. old daughter was given Levaquin at age 12, thats 3 years ago. After the first pill she started having leg muscle cramps and pain in her elbow. As the more of the 5 pills she was to take went on she continued with joint pain in knees and hips and her feet. Well its been 3 years of this and she is no better, the pain is not severe all the time but it is still there. What are you suppose to do. Why was she given this medicine when it plainly states on the package not to give to children under the age of 18, well the PA who saw her did not pay attention to this and the Doctor who signed his charts did not catch it either. I am sure the Dr. didnot even read the notes, but reguardless my daughter is left with these painful side effects and the Orthopedist we took her to right after it happened said oh give it time it will get out of her system. Well we are still waiting 3 years later. How much worse is it going to get? I have hired an Attorney but as there are no case studies on children he cannot do anything. There is plenty of case studies on small or young animals. A shame I didnt give birth to a animal isnt it. Please tell me where I can find my answer to the studies reported on children. We are desparate I want to know when this is going to stop? thank you mltbranch
-- By mltbranch1955 | Reply | Private Message me
Singulair (3) Levaquin (2) Geodon (1) Gardasil (1) Lisinopril (1) Lipitor (1) Zocor (1)
July 12th
2009
8:56 PM
I have to agree with the July 11th comments. This medication should not be on the market. I was on Toprol XL for years and experienced side effects from that. Then my doctor recently changed my medication and put me on Lisinopril. Within days I started to experience dizziness, fatigue, muscle weakness, insomnia, racing heart ( these attacks would last for 30-45 minutes following muscle weakness ), weight gain, and oh my goodness the COUGH. That would start shortly after laying down and I would go on coughing for 2 hours. Between the cough and the insomnia what was the point of sleeping. I have been to the doctor twice complaining of the symptoms and they look at me like I am nuts. The worst part is the racing heart episodes which make me feel like I am having a heart attack. The amazing thing is, after all the tests that have been performed since I started this medication, I am a very healthy person. So why is it the doctors I have seen,who have run all these tests, at the cost of my medical insurance, never thought that maybe it is the side effects of this medication. WHY don't doctors listen more and WHY don't they take the time to inform themselves of these medications before prescribing them. They need to LISTEN more to their patients, after all
-- By vath5 | Reply | Private Message mewe know our bodies better than they do. My blood pressure is 104-63 with a heart rate of 110. I am 53 yrs old and my blood pressure should be between 129-142. Don't you think there should be a red flag some where?
This is where my trust factor is zero. I think the more medication doctors can prescribe the sicker it makes us. I can't speak for all doctors but I have seen 4 doctors and not one of them seemed to be looking out for my best interest. DON'T START THIS MEDICATION. Apparently there have not been enough case studies on Lisinopril. Oh by the way did you know that taking this medication increases your chance of a stroke by 60%. One more side effect. Thank you for this web site.