Cbs symptoms and conditions

To All...

I am an anchor and the Medical Specialist for the CBS station in Louisville, KY. I have read these compelling and shocking accounts of the side affects with Singular. I have also been in contact with some pediatricians here in our area. I am doing a special report on this subject, the many accounts of side effects, and whats being done about it. I need your help. Are there any families who would be willing to tell their stories on camera? This is not to embarrass anyone, but to inform and raise important question for the public at large and the medical community. I am looking for families in the Greater Louisville,southern Indiana, central Indiana or even central Kentucky area. If you're nearby those areas, we are willing to travel to get your story. If you are interested, please contact me. My original post was deleted because I had my personal information on it. However, I will send more information in my reply to my own post. So again, if you are interested in telling your story, please look for that reply. I look forward to hearing from you.

My Daughter was twelve when she got her first and second Gardasil shot. The first shot went well other than the normal irritation after the injection. The second shot hurt a bit worse and for longer after, but we thought nothing of it. Slowly, she started to get very down and very tired, it was around the holiday season so we thought maybe she was just stressed out. Then, she started bleeding vaginally. There were no "warning signs" that she was starting her period, so we treated it as a Urinary Tract infection, and that's what the doctor's told us it was, until a month later, she got it again and we found that it was her period. She also started having MAJOR stomach issues, having two colon scopes, and many other tests (as well as tests for Urinary Issues as well). All have so far come back negative, but all this started occurring exactly ONE MONTH after her second shot. Needless to say, please read her about her other symptoms, and the other posts on this site and others. Gardasil, does not seem to be as safe as they say.

I am 14 and received one shot in November 2007. I was very, very ill with throwing up and severe abdominal pain, kidney issues, high blood pressure, a strange rash, headaches, low grade fever and a few other symptoms. i was in and out of the hospital for about 3 or 4 months until i saw a nutritionist in California named M. F. Him and his wife (a chiropractor) have helped me get pretty much back to normal. If need any advice or help you can email me at ****** or my mom at ******. Please contact me with any questions. This shot has been horrible on my health and overall life but i might be able to help.

I just saw an ad for a local news special on WBZ - the Boston CBS station that will address the Singulair problems. This Wednesday at 11:00. I just TiVo'd it. About time!!

My 9 1/2 yr old son started Singulair in July 2004 when he was 5 yrs old.Looking back now we realize that he started showing signs immediately. We only gave him Singulair in the fall when he had the most trouble with his asthma. His asthma was under control immediately but was not worth the damage that was done. He complained of pains in his legs that I just thought was growing pains. He would sometimes run a fever with no other symptoms of being sick and then the fever would go away. He would also feel like he always had to go to the bathroom, especially after he went to bed. I gave him Singulair at 7pm before he went to bed. The biggest change we noticed in him was the signs of attention deficit. We first noticed that he kept getting out of his seat at dinner time. No matter how many times we told him to sit down he would sit down and then a little while later he would get right back up. We realized after a while that he wasn't doing it to be defient he just couldn't help himself. I asked his Kindergarten teacher if he had trouble sitting in his seat or with attention but she didn't think he was any worse than any of the other Kindergarten kids. In 1st grade, at the beginning of the year, his teacher said he had trouble keeping his attention but then by January she said he was a different kid. We usually stopped giving him Singulair in December. The same thing happened with his 2nd grade teacher. I question his allergist in the fall of 2nd grade but his allergist said Singulair wasn't the cause for his ADHD symptoms. When his 3rd grade teacher contacted us in Oct 07 with the same complaints I realized that it must be the Singulair. I looked online for Singulair side effects and came across this website. I couldn't believe it. I was so disappointed in myself for not doing it sooner but we took him off Singulair immediately. I called his allergist the next morning and questioned him for a second time and he told me that sometimes parents of kids with ADHD just look for something to blame for their childs behavior. I couldn't believe he said it to me. We made an appointment at Children's Hospital Boston to have him evaluated for ADHD just in case but couldn't get an appointment until Feb 08. When we had him evaluated he had been off Singulair for over 3 months. The neurologist said he did not have ADHD. When I asked him if he thought Singulair could have been to blame for the symptoms he was showing and he said there was "compelling evidence" that showed Singulair does cause ADHD symptoms in some children. We were happy that he did not have ADHD but were so sad that we gave him this medicine for 3 years without realizing what damage it was doing. My biggest fear now is that there may be long term damage. All his symptoms have gone away but sometimes he still seems a little out of it and I don't know if it is just his age or his personality or if it might still be some long term effect from the Singulair. He is such a sweet, loving, caring boy and I hope that I didn't do any long term damage by giving his this horrible medicine. I hope that something will be done soon to get this medicine off the market. My prayers go out to all the families who lost children on this medicine. I can't even imagine the pain you are feeling but I thank you for getting your story out and saving other children! I am thankful that I was able to get informed by this website because God knows my allergist wasn't looking out for my son! His asthma has been under control since being off Singulair and just seems like a happier child over all!
Thank you!

I'm going to be interviewed about my family's horrific experience with Singulair on Monday by a CBS news affiliate out of Boston. I am going to try and blow the lid off this story and will hopefully be posting my interview on youtube. This has gotten so ridiculous with the ALA "study" ....and I never wanted to go there....but it almost to the point of conspiracy. These people are just downright creepy!!!!!!!!!!

Please be sure to read the article and contact or email the following individual: Heather Grzelka
******
I have invited her to review the Medications.com site and contact any parent to discuss the negative side effects that their children have suffered. The word needs to get out about the living nightmare that some families have endured all due to the pediatricians that are not aware of the adverse reactions to Singulair and continue to prescribe this drug.

Let me start by giving you some history.

My sister is a 22 year old girl who worked full time and was never seriously ill until this summer.

During the last full week of June my sister started having headaches. She told me that these headaches were like none she had ever had before. Days later she started complaining that her legs and wrists hurt. She said that her legs were so tired and achy she could barely walk up the stairs. At that time I dismissed what she was saying. My sister constantly wears heels and I chalked up the complaint to a pair of shoes that were not yet broken in.

By July 4th, the headaches were so intense that she went to urgent care. The physician she saw in urgent care gave her an antibiotic and sent her on her way. By July 7th, she was having difficulty standing up and walking was almost impossible. My sister started complaining about severe joint pain. Her ankles began to swell and her stomach appeared distended.

On July 8th, my sister went to her primary care physician. I believe he sent her for an x-ray and said that she had a cyst on her sinus cavity which was causing her to have severe headaches. He then gave her another antibiotic and referred her to a rheumatologist never even thinking that these two symptoms may be related.

On July 10th, my sister saw the rheumatoid arthritis doctor her pcp referred her to. He dismissed her complaints saying that she probably has some form of arthritis, but that there are over 800 forms and it would takes months to pin point exactly which one she has. He then gave her a prescription for Celebrex and sent her on her way. She spent the entire week in bed because her joints were so swollen and achy that she could not move. She actually crawled to go to the bathroom.

By the middle of the following week, my sister's stomach began to burn. She contributed it to being a side effect of the Celebrex and stopped taking it on July 21st. We had no idea that the pain was so bad. My sister's last normal meal was on July 22. By the 23 she had no appetite and could not go to the bathroom. On July 24, the stomach pain was so bad that she could not work, or sit, or function. All she did was cry. She went back to her primary care physician who then prescribed her prevacid to help with the so called indigestion. He told her if the pain continues she could call him. On July 25th the pain became unbearable. My sister called her PCP as directed and he told her to go to the ER. Never once did he say he would meet her there! I brought my sister to the ER where they did an x-ray and cat scan of her stomach. They found nothing. At that time my sister had not gone to the bathroom or had anything to eat since the 22nd. The physician in the ER said that she was literally "full of shit" and needed to go home and take a liquid laxative. My sister is only 22 and my parents were away on vacation. We were stupid and didn't know any better and were so happy that they didn't find anything that we accepted his findings and got out of there.

My sister took the liquid laxative prescribed by the ER physician as soon as we got home. We waited anxiously for it to relieve her stomach pain. After many hours the laxative did not work and my sister ended up back in the ER. This time she was screaming in pain. One of the doctors there told her that if she couldn't calm down she needed to leave her ER. My sister did just that. At this point my parents (back from vacation) took my sister home and called Digestive Disease. A doctor there told my mom to give my sister 2 Enemas. He said that should relieve her pain. My mother followed the doctor's orders, but the pain did not stop. Sunday, July 27th my sister was right back in the ER - this time at another hospital. This time my sister was admitted to the hospital for severe stomach pain. After 5 days and numerous tests my sister was discharged. The doctors found nothing in her cat scans, x-rays or ultra sounds. The pain was more manageable (she was on morphine every 2 hours) and they said she was ok to go home.

August 1st my sister had a great day. She was sitting up in bed and seemed to be in good spirits. The following day she couldn't get out of bed. This time it was neck pain. My sister said the pain in the back of her neck was so severe that she could not lift her head up or move it side to side. By August 4th she was admitted to the hospital again. This time we brought her to University Hospital in Syracuse, NY. We were sure to get some answers there...or so we thought. As soon as my sister arrived in the ER they started treating her with antibiotics. They were certain she had an infection. They then told us they would have to do a lumbar puncture to check her spinal fluid for infection. We thought we would finally have an answer to what was wrong with my sister, so we agreed. The spinal fluid came back fine - no infection. At that time they admitted her to the hospital. While at University Hospital my sister was treated by a team of doctors. They tested my sister for lyme disease, west nile, lupus, leukemia etc. They performed a spinal tap, cat scans, x-rays, ultra sounds, blood smears, etc. All of these tests came back negative. The doctors could find nothing abnormal except for an elevated white blood count -22,000 (it was also very high during her last hospitalization), an elevated C reactor and a very high SED rate. After 4 days of numerous tests and pain killers (first morphine, then Dilaudid, then Dilaudid with a fentanol pain patch) they discharged my sister. The head doctor told her that he believed she had viral meningitis and that it would eventually work its way out of her system. By this point my mother and I were skeptical. We did the research and viral meningitis should only last approximately 10 days. Mig had been sick since the last week in June. No one was putting all these symptoms together. On the day of her discharge my sister started getting her stomach pain back. The pain was mostly on the left side of her lower stomach - under her belly button. Again she was told the pain was due to constipation and she should buy some Miralax when she got home.

My sister was home for a mere 2 days before she would be hospitalized again...for the 4th time. Her stomach pain was back and worse then before. My family could not believe this was happening. My sisters spirits were down and the excruciating pain was making her mentally unstable. This time the ER physician recommended a hematologist come in to see my sister. We just wanted answers so we agreed. This hematologist, Dr. R stated that she believed my sister had drug induced lupus. We were shocked as my sister was tested for lupus twice before and both times the test came back negative. Dr. R explained that she believed my sister got drug induced lupus from the Gardasil shot. My entire family was shocked. We had never heard of any severe side effects like this from the Gardasil shot. Dr. R asked my sister for her permission to test her again. My sister agreed and a week later my sister learned that she was positive for drug induced lupus. My entire family was so happy that my sister finally had a diagnosis and could begin treatment. We were told that after a 6 week steroid treatment (Prednisone) my sister would be back to her old self. We were ecstatic!

My sister was home from the hospital and on the steriod treatment for 10 days when things started to go wrong again. The doctors were very concerned with the dosage of Prednisone that my sister was taking (80mg. I'm not sure how many times a day). They cut the dosage down in half over the course of a few days to prevent kidney damage and other side effects. Once the Prednisone was decreased, my sister started getting sick immediately. Her forearms were very weak - she could not put any pressure on them. Her shoulders would tingle and she would get shooting pains down her right arm. One of her doctors believed she was developing fibromyalgia and prescribed her lyrica. Shortly after my sister began taking lyrica she started seeing stars. She had double vision and a migraine that would not go away. My mother called her doctor and told him about this. His answer was for my sister to stop taking the Lyrica. She did immediately.

On August 29th, my sister still had a migraine. This was day 3 without a break. She woke up early Saturday morning and began vomiting every 30 minutes. After a few hours of non stop vomiting my mother called her doctor. His nurse practitioner was on call and she told my mother to take my sister to the ER immediately. My mother went back into my sister's room to tell her they had to go back to the hospital and she found my sister having a seizure. My sister has no history of seizures. My mother called 911 and the ambulance came to bring my sister back to the ER...her 5th hospitalization.

Shortly after arriving at the ER, my sister had another seizure. Immediately after the seizure the ER doctor ordered my sister to have an MRI. My sister had one during her last hospitalization only 2 weeks before. That MRI was normal. This one was not. There are lesions all over my sister's brain. The neurologist told us that he cannot believe she does not have permanent damage. According to him there is no oxygen going to her brain.The neurologist also explained to us that her brain looks as though she has been poisoned. He said that her MRI is very similar to an MRI of a patient who has been poisoned with antifreeze. Later I learned that Gardasil has both aluminum and sodium borate (which is in both rat poison and cockroach killer). However, according to the doctor once your brain looks like my sister's all the poison is out of your body. My sister's team of doctors started debating as to whether this could all still be from the Gardasil shot...my sister's last shot was on 02/22/08. Some believe that the side effects started off as mild, but since they were left untreated for so long they've turned into a serious neurological problem. They told my family the only way to truly know what is going on is to do a brain biopsy.

Yesterday, my sister was transferred to Mass General in Boston. We were hoping for a bigger hospital, better technology, more seasoned doctors. So far my sister has been treated badly. When my mother told the doctors' about the Gardasil shot and the devastating effects it has had on my sister they dismissed it. When my mom asked the doctors to test my sister for heavy metal toxicity they completely ignored her. I fear that she will never get the proper care.

Hi to all,
I want to Thank all those who contacted me in regards to my request for help with the Media.I believe the reports are in now and the stories will be out soon.I am going to ask that if at all possible ,those that have contacted me wanting to come forward with your stories, let me keep your names for further reference if needed.If anyone does not want that, please reply and I will delete the information.I just cant thank all of you enough,you are helping many by coming forward with your stories.There is great power in numbers and every person counts that is willing to not lay down to this injustice done to our families.If you have a voice and use it, it is a tool to make a change.We all forget that years ago information was passed on by word of mouth,this maybe the only way this will get out until this investigation is over.Use every avenue possible and change will come.Thanks Again Kate and Dave M.

Hi,
I wanted to post this link just to give some small consolation to our concerns about the lack of awareness THAT DOCTORS HAVE ABOUT SINGULAIR.This is a voluntary online informational site,that doctor's can join. It provides updated information on serious label changes and safety concerns on drugs.Most doctors at this point still get snail mail updates,in the paper shuffle a lot of information gets misplaced.The AMA would like to have all information come in online,eventually.The link is ******
read it and tell me if you think more can be done By the way my pediatricians office does not have online communication.Our life is forever changed because of that ! Information is playing a vital role in this drugs destructive path ,or the lack there of information.Again this is voluntary for the Doctors to sign up .In this modern day of communication how does important information not get where it is the most useful, I ask you?When drugs are making multi billion dollar profits,that would be an educated guess.I am doing another interview with CBS affiliate out of Boston on the 23rd of June,they contacted me.I hope it will reach more people who are still unaware of this drugs serious potential side effects.If any of you parents have some connection to media ,please use it to your best advantage to get this very important information out to the publicAlso so many of you ask how to help.Contact your local Senators and keep bothering them to reach out to the FDA to expedite this investigation. Make a pain in the butt out of yourself and be persistent.I will try to make reference to this site so your stories are heard. Dave and I are coming up on a year since our son passed on to our lord .Still fighting Kate and Dave M.

I've noticed that NBC and The Weather Channel appear to be two of the biggest advertisers of Singulair. NBC can always be sure to have one on during the evening news, at least here where we live, on our local NBC channel. There for awhile, I was logging what time, and what channel I saw the ad. The ad only lists the basic side effects that aren't even dangerous. Merck must be paying NBC the big bucks because they still haven't dropped it. I don't know, should we bombard NBC with letters of negativity or boycott or something to get their attention on this murderous drug?

So how come in the news section the recent investigation of singulair by the FDA was not posted there??? GO TO CBS WEBSITE and google singulair. You can also go to google and google singulair investigation. Finally the word is getting out!!

I feel sick to my stomach over this. I didn't see the report on the news, but my husband told me a little about it. I didn't look till today and when I read all these postings I can't believe it. My 7 year old daughter has been on Singulair for several years. The past couple of months she has been having some anxiety issues. She started talking about death. Fear of others dying, and today she told me she didn't want to die. She is afraid to go into any room herself, unless someone goes with her (which was never an issue before), and she is super sensitive. Everything gets her upset. I can't believe this all could have been caused by a drug I thought was helping her prevent her asthma. Last night was her last singulair. I hope she gets back to her old self soon.

I almost stopped my car on the highway this morning when I heard the 10AM top story on our local CBS news radio station stating that the popular asthma drug Singular has been linked to thoughts of suicide.

My son started taking Singular approximately 5 years ago (he is now 10). We noted almost immediately a change in his behavior. My son was normally a very mild mannered child, yet when taking Singular he started experiencing severe mood swings, rapidly moving from quiet and happy to fits of rage ending with him saying he wished he were never born or that he were dead. We told his pediatrician about this observed behavior change, but she hadn't hear of that reaction before. I checked the Singular web site at the time, but I don't recall mood changes being listed.

My son is still taking Singular because it has been so effective at managing his asthma, nearly eliminating the need for Albuterol. We haven't had to make any trips to the emergency room since he started taking it, and he seems to stay much healthier.

I will be having another conversation with his Dr. ASAP about whether the risks outweigh the benefits, especially since my child will be moving into the normally volatile teenage years. The last thing I want to do is complicate things by risking increased volatility from the use of Singular.

Lipitor: Today I got a news letter from.net and would like to forward this:

A TV producer in Boston, MA has a request for anyone in the Boston area that meets the following criteria to contact her as soon as possible:
"I'm looking for someone who took Lipitor® who suffered cognitive or other damage. I would also like to know exactly what their doctor told them about possible side effects before they took it."
E.

I am glad to hear that CBS is looking into Lipitor. My feeling is that the posts that you read on this board are just the tip of the iceberg. For every one post here there are probably, at least, 10,000 others with similar symptoms. At some point there has to be a class action suit against these drug companies

I posted #5174 back in April. At that time my lower back was killing me. After stopping Lipitor the worst of the back pain went away. Unfortunately, there still is a constant low-level of pain. I am afraid that the Lipitor has done permanent damage. Also, the tininitus is still in my left ear.

Aside from the constant low back pain and the tininitus the muscle aches, toe cramps, and joint pain have gone away.