Cellcept symptoms and conditions

I have no idea if these are side effects from Remicade or not- because doctors always dismiss it as "probably just you". Definitely HEADACHES. I would occasionally get headaches before, but since being on Remicade the past year, I get really bad headaches. Neck/scapula pain/strain. I have woken up with immobile neck 3 times now in past 2 months. It's getting ridiculous. The doctors just say I need PT or to stretch. But I really wonder what's up and why I've never had that in my life until now. Also flushing with inital infusion, but that really is no biggie. I definitely feel STUPID. I've heard of "chemo brain"- does the same thing happen with Remicade?
I am 31 and taking this for inflammatory condition NOS. I have an autoimmune/inflammatory eye condition NOS that left me with significant Retinopathy. I did Prednisone, Methotrexate, Humira, Cyclosporine, Tacrolimus, Cellcept all for a few years- and nothing helped except steroids. Which obviously you shouldn't take long-term. Plus I HATE them, they make me fat, hairy and psycho! So Remicade has been a god-send in some ways. But I am a mother of 2 and love my husband, and worry that I may not go blind but will die young from side effects of this medicine. But why should I worry? Every health care professional says there are "NO" side effects. What's the deal?

I was just placed on Cellecept last week- 500 Mg 4 times a day-
for my autoimmune muscular myopathy- I was a body builder 6 months ago- now I can barely make it across the Target parking lot.
I am sure the myopathy is Statin induced as I was on Lipitor-)rather than Prednisone as my doctor said less side effects.
He said I should see improvement in about 6 weeks- is any body taking Cellcept for autoimmune disease?
Thank you.
PS; So far- side effects seem to be weakness- more shakiness-

I was put on Prednisonsone for Uveitis, inflammation of the eye. He started me on 20mg at 9 pills a day, then each week it was lowered to 6 pills then now i'm on 3 pills and then next week it will be 1 1/2 pill and i'll be off. I got the puffy face, my feet swelled, everytime i hate my stomach bloated and hurt, my face and neck turns red, i stayed hungry although i fought the temptation of eating for not wanting to gain a lot of weight, which I don't think I've gained any. But now I wake up in the middle of the night and severe knee pain, it feels like my knees they are in some kind of device that is crushing my bones they hurt so bad. i caught a bad cough and it's been around now for about 2 weeks and won't go away, i told the nurse about it and she says, i probably just got what everyone else has gotten, just a bad cough, well what's if it's some kind of infection? I look like a chipmunk, my face is so puffy. When i get off these prednisone in another week I WON'T BE going back on them, no matter what the case. I'm in more pain being on them and have more side effects while on them than the problem i was having with uveitis. I think some co workers thank I'm over reacting, but they're not here they don't see all the pain and frustration i'm going through while on this drug. The leg pain just started this weekend and i Know i can't deal with waking up everynight like this in severe pain. Everyone just makes me feel like i'm over reactin and it's nice to know that somebody out there is going through the same thing. Any comments will be great.

I am 22, I have Lupus and RA. I am on other meds too but I am more than positive that Prednisone has brought about my moon face and maybe my sleepless nights. I workout everyday and in the best shape I have been in my whole life but it sucks because I am only able to be this healthy because I am on all these meds including Prednisone. I probably would be using a walker. So basically its a choice of vanity(huge head) or good health.But I have asked my doctor to lower my doses. Was at 30mg, I am now at 20....hopefully I can get down to just 5mg and still be able to move my joints as freely as I do now

This is about my sister who was diagnosed with dermatomyositis about 1 month ago. She has been on prednisone ever since and just a few days ago started experiencing really bad stomach pain and back pain/burning on the left side. we took her to the e.r. where they ran a number of tests and didn't find anything wrong. i have been researching all her meds and can only come up with this: prednisone has to be the culprit. God bless all of you who have to take this drug for anything. I wish you all the best. It has been hard seeing her suffer, but without it her condition would not get better.

I have taken predisone for 15 years ranging from 120mg to 10mg. I also take 2000mg of cellcept, 400mg og plaquinel, 1000mg metforin, 10mg zeita, 130mg antera,60mg cymbalta, land lyrica., Foreto Injections (for osteoprosis, due to predisone). In the beginning I gained alot of weight and became depressed and very angry. I have Systemic Lupus Erythomous (SLE), I also do self catherization. I have found over the years to stay away from suger, salt and fat. It is very hard because as you know predisone can make you want to eat all of the time. I get headaches and alot of infections, but the alternative is death. Predisone is a very good drug and a very bad drug, but it really does work if it depends on your life.

Been on high dosages of prednisone since january. the highest 80mg to 10mg. being treated for a kidney disease, vascullitis. this past week i felt like my energy has been drained and some times anxious, also unable to concentrate. unfortunate this week we had the psat's, which was hard for me to concentrate on. i would have been off of prednisone in June but i came down with shingles causing my dosage to go from 20mg back to 60mg. i am also taking 2 grams of cellcept and two blood pressure medicines. i am happy to say i am in remission.

tingling of fingers,tremor,gum discolouration (not sure if caused by cyclosporine or cellcept and unusual hair growth

I have been on prednisone 15mg,plaquneil 200mg,cellcept 1750mg everyday for the past 19years. I have chronic Lupus Nephritis ever since I was 8yrs old. But recently I had a major relapse so thats why I am currenlty on alot of meds. But I want to get off prednisone I don't like it.So I am going to get a second opionion from a different nephrologist. I want to go on Immuran instead of prednisone. Lets see how it goes. God bless!!

I was diagnosed with myasthenia gravis in July, 2003. I was put on Mestinon at that time. Due to a deterioration of my condition I was also put on Predenisone in mid-October, 2003, 40mgs per day. In the first week of December I began to decrease Prednisone by 2 1/2 mgs. per week. I now take 40 mgs one day and 7 1/2 the next. plus 1500 mgs CellCept per day.