November 23th
2008
8:51 AM
after about a week on my methadone my feet and ankles swell they diagnosed it as cellulitis but cellulitis doesnt go away w/out antibiotic treatment so the next 2x it happened i didnt get antibiotic treatment i just put my feet up and stayed off them and the methadone and the swelling went down! also after about a week i start to do random episodes of passing out once with my face in bowl of cereal and once doing dishes and this was at prescribed dosage!!! be very careful i am on blood thinners and i think the dosage builds up quicker in my system perhaps. i didn't tell doctor because they work for my pain better than anything else he has given me and its hard enough to get something that even takes the edge off my pain i have so many medical problems that three very reputable neurosurgeons refused to operate on me due to my risk of stroke and i am only 49! i have deg disk deg joint rheumatoid arthritis, bilateral neuroforaminal stenosis in lower back l4-5 and s-1 several disks that are dehydrated and dessicated , many bone spurs poking in spinal canal in cervical spine every disk in cervical spin either bulging herniated or previously operated on severe arthritis in feet toes and severe nerve damage in right foot where big toe and baby no longer can lift up neuropathy in right arm radiculopathy in left missing protein s in blood which is the protein that keeps your blood from overclotting so i have been on blood thinners since 29 yrs old and have had several pulmonary embolisms b4 age 29 and proper diagnosis and the list goes on! and yet even though i got my soc sec disability by myself w/out lawyer assistance due to list of medical problems which spoke for itself i still cannot find a doctor who will try to work with me realistically on a pain management program that even manages to take the edge off to enjoy the quality of life enough to be able to spend time with my 4 yr old granddaughter doing things like fishing and playing with her in ways that i would like such as camping amusement park rides (which they have forbidden!!!) can anybody out ther help me find a doctor who will not be afraid to prescribe something that will really work enough to put me back in the game off life ? did i mention that i need right hip replacement it is bone on bone and left isn't far behind and lower back was listed as severe bilateral neuroforaminal stenosis needing surgery also as of 2 yrs ago and also need several cervical surgeries and that i have a benign tumor in thoracic spine that cant be operated on but does still cause pain! so please if you can be of help to me/as winter is upon me now ,which as we all know multiplies most of our pain problems so speed of the essence!!!!xoxoxoxo please e-mail me if you know of any doctor who can be of real help managing pain no surgeon will touch me due to risk of stroke , i stayed awake for last major surgery it had to be done risk outweighed stroke risk if it didn't get done. i am currently on methadone 10mg 4x daily and it barely takes edge off and causes too many side effects which i wont tell dr. because it is the closest thing ive had to pain relief and have been on same dose for 4 yrs ,and my pain has no hope of improving but only the certain knowledge that it is going to get increasingly worse every day and my granddaughter only has me her grand papa and her uncle, my son, that she can depend on being ther in a good role model form as well as being her only consistent source of love ,affection and proper parenting! I love my daughter but her and her boyfriend ,my granddaughters father of course, are 2 of the most self centered people on earth and unfortunately they put their needs b4 thier own daughters on every level and in way to much detail for me to put here i need only say this combine 2 totally self centered individuals with a pretty big cocaine addiction and you will get enough with that to know my dilemma! they buy her many clothes n toys n moviiiies to keep her busy while they play but never enough food or mmeds or real needs such as affection, love ,food, drinks etc!! they both work in a hosp making great money but i have to provide my sweetie(grand baby) with food meds affection love and all the things they should be doing! this is why it is even more urgent i am able to function well w/out as much pain as possible she needs to be here with me and her pa pa in a healthy ,wholesome loving and affectionate home she loves to bake and read and learn with us she never wants to leave and it tears my heart out when i drop her home with her daddy and she cries hysterically because she doesn't want me to go and she wants to stay with me and i cant! so please help me find a good doctor who can help me function at highest level w/out pain but also as coherently and safely as possible!!??? i would be forever indebted to you for your kindness and help! e-mail is ******* please send referrals or recommendations of any and all sorts tysvm, i live in the area of erie county new york tysvm,xxxooo tysvm for all your time ,much love, pained and troubled grandma in n.y who needs your help to be able to help my sweet grandbabyxxxooo
-- By gumbyrk777 | Reply | Private Message me
September 22th
2008
10:16 AM
Anyone Else?? Trying to figure out what is causing the following.
Bruising like feeling at the sides of my pelvic bones...Tail bone pain when sitting...Low back ache. Started 20mg Simvastatin Feb 2008.
Michele
September 3th
2008
2:21 PM
I have muscle pain, weakness, and chronic lower back pain. Started statin drug, Simvastatin, on 11/21/07. I take no other drugs. Within two weeks, I could not sit without severe lower back pain. Reported problem to family medical doctor on 1/11/08. M.D. sent me to physical therapy for 8 sessions. No relief from physical therapy so I requested an X-ray on 3/20/08. X-ray shows very mild degeneration at one lower vertebrae. M.D. sent me to an orthopaedics doctor who recommended continued physical therapy. Went to a Chiropractor instead. After six chiropractic sessions with little relief, I made an appointment with an Osteopathic doctor. My M.D. sent me to a rheumatologist who prescribed high dose naproxen for two weeks. The rheumatologist ordered and X-ray of my lower back area. The lower back X-ray produced no negatives. The rheumatologist's next step will be to order and MRI of my lower back area. The D.O. suspects statin induced myopathy and because of hyper reflexes he ordered an MRI of my brain and cervical spine. I am now recommended to a neurologist who specializes in the diagnosis of multiple sclerosis. Am I getting the run around? Only one doctor said I might have statin induced myopathy. The rest will not even mention the statin drug theory. I just pray for ache and pain relief. I have some improvement after four months off of the statin which I believe is quite a strong point that it was the statin drug and not some unknown condition. I don't think arthritis or MS conditions improve. All I know is that I had no health issues before taking the simvastatin. Good luck to everyone who has or is taking a statin drug. BEWARE!!!
-- By pdsdenver | Reply | (4) replies | Private Message me
July 24th
2008
12:08 PM
I am scheduled for 2 trigger point injections tomorrow in the cervical spine and now I am almost ready to cancel this after reading these articles on side affects.
I would probably be better off having surgery later if necessary. Any comments, please reply today, July 24, 2008
-- By bprevot | Reply | Private Message me
June 27th
2008
5:58 PM
I started Topamax in November of 2007 the usual 25mg and worked my way up to 150mg. I have always had pretty thick hair and now have hair loss in the widows peak and top part of my hair. Needless to say I am devastated. I have cut myself down to 50mg in the am and 50 mg in the pm. My Neurologist states that she has not heard of hair loss but even this web site and the drug company states that it can cause hair loss. I have with the help of a very good massage therapist determined that my migraines are cervical so I am seeking a second opinion and taking myself off this drug. Not worth the hair loss if I don't need to be on this drug.
-- By summergrl | Reply | (3) replies | Private Message me
April 24th
2008
10:41 AM
It is scary to read everyone's posts on this drug. I also had two shots of Kenalog within the past 3 months for a problem in my cervical spine. I had mild side effects from the first shot, but since the second one, the side effects have gotten more severe. I've gained 15 lbs (and I've been on a strict diet so there's no reason to have gained that weight). Also, after the second shot I had absolutely excruciating joint pain in my knees and ankles, my face is puffy, I have a hump on my back in between my shoulders, my resting heart rate is up at about 108, and I have random stretch marks on my thighs. I believe that all of these side effects are from the Kenalog because I've always been very healthy and in excellent shape and have never had health problems until now. My dr. did all kinds of blood tests and an EKG and everything came back normal, which also tells me the problems are from the drug. This shot was the biggest mistake of my life! My dr. is still insisting that my problems aren't from the shot and he wanted to do a third injection. I said ABSOLUTELY NO! I went and got a second opinion, and my new dr. said that all of these side effects are from the massive amounts of Kenalog that was pumped into my spine and I'm on a new treatment plan. I am against these types of injections. It has caused me more harm then good.
-- By me24267 | Reply | Private Message me
December 27th
2007
11:49 PM
My ENT prescribed Levaquin 500mg per day for 12 days for an unusual bacterial sinus infection. Within four days I was feeling horrible. I have been off the medication for four days now but my symptoms haven't improved much.
My biggest complaint is that I can hardly walk due to terrible ankle and foot pain. All of the joints in my feet hurt but particularly both ankle and big toe joints. I can’t find a pair of shoes or even slippers that are comfortable. Every joint in my entire body aches. My shoulders and my arm muscles are so sore that it hurts to do anything. My wrists and my hands and fingers hurt and feel swollen. I can’t open jars or similar tasks. My knees and hips are sore so walking is painful. My lower back hurts if I walk much. Joints that I've had problems with in the past hurt even worse including my neck (cervical spine). My skin is very sensitive to touch even to my clothes, bed sheets and slippers. I’m miserable. I already had dry eyes but this drug has made them MUCH worse. My eyes are so dry, they both hurt and they are both bloodshot. My eyes are now even more sensitive to light so I wear sunglasses to reduce pain causing glare. Cognitively, I feel like I am in a fog; it’s kind of a spacey, surreal feeling. I feel like jumping out of my skin. I have had chest pain twice. My heart races at times. I have an intermittent, frequent knife like pain in between my shoulder blades (on the left side) and it is worse when I breathe deeply. I have tingling in my hands and they usually feel cold. I feel queasy at times. In general I feel ill and I have no energy. I fatigue easily. I don't know whether to cry or to scream but I feel like doing both. I've always had headaches but they are more frequent now. On top of it all I still have intermittent burning in my sinuses so I don't know if the drug has even cleared up the infection or not. I was re cultured today.
I have taken Cipro (similar to Levaquin) in the past so I did not make the connection between the Levaquin and my symptoms until two days after I had completed the drug. It was Christmas Day. I was too sick to join in the festivities. As I sat alone I started to think about my symptoms and I went online to research my symptoms. To my shock I discovered that there are thousands suffering as I am with similar symptoms due to this drug. I now fear that I may suffer permanent damage as a result of this drug. I was never warned regarding ANY of the dangers. The common adverse problems associated with this drug is NOT common knowledge in the health care setting but it should be. I printed out pages and pages of postings of sufferers and brought them to my ENT. I provided him with a list of sufferers web sites. He sat in stunned silence and it was obvious that he had been painfully unaware of the suffering that this drug was causing.
I blame the pharmaceutical companies and the FDA for allowing this tragedy to continue. I would like the name of a competent, experienced attorney with a proven track record against pharmaceutical companies. If any of you can provide me with the name of an attorney I will be in your debt.
I thank you all for your postings because at least I know that I am not alone. My heart goes out to you all.
Chris
-- By chris13 | Reply | (1) replies | Private Message me
April 8th
2006
7:24 PM
I have had several kenalog injectins in my lumbar/cervical spine.after the last one I informed my pain mgt Dr. that I do not want anymore as they cause me to swell all over..I have trouble sleeping and my pain worsens and my stomach burns non stop..I suffer mood swings and hair loss..so he agreed no more injections...I was sent out to a different Dr for my ankle...and without telling me at first that it was kenalog gave me an injection..I told him my body response badly to the drug...well after the shot I have blown up again...my stomach is burning i havent had to shave my legs in 2 weeks..and the pains is twice as bad in my ankle...trust me it is a very very bad drug for me...I also have a pain in the area of my kidney that has been there since the day after the last injection..I think to many Practisioners look at this drug like a miracle cure for pain...I will never let anybody give me this drug again
-- By netsroses | Reply | Private Message me
January 26th
2006
4:39 PM
I received an epidural shot of Kenalog in my cervical spine (C-7). Within 5 minutes after the procedure I had a burning cough and coult not take a deep breath; a problem with extreme excess saliva which lasted hours; a migraine headache; blood pressure of 150/100. Later that evening, I was so high I felt like I drank 20 cups of coffee. I could not go to sleep until I finally took valium at 4:00 am. I woke up a few hours later and once the valium wore off I was still higher than high for almost the whole next day. The doctor claims "you were having a stress reaction". I don't think so. Watch out for this stuff!
-- By missy931 | Reply | Private Message me
July 27th
2005
11:58 PM
I have lupus and a congenital malformation of my cervical spine which causes lots of pain and inflammation.
Anyway, my side effects are always the same -
Hyperactivity, loss of appetite, loss of weight, insomnia,
and an overzeolousness that only an employer loves of is employee... who suddenly wants everything done perfectly..... I become exhausted and have to take sleeping pills to get any rest or I will NOT SLEEP at all...no fun when you are on 75 mg and tapering on and off .... the horrible thing is I get these symtoms even on small dosages...it is like being on speed or some hyper drug...I don't know what else to take for my lupus that helps with pain and other problems I have. I just want to sleep and not feel manic...
April 6th
2005
3:09 PM
i had a neck injury and was getting cervical spine epidurals withprednisone. i started having night sweats , trouble thinking an bad bad mood swings. to keep the list going ,terrible headaches ,muscle weakness,numbness in my arms and fingers. i thought i was going nuts and then was told it was a reaction the the drug. nice that they told me. if i had known the sid affects before i would not have gone ahead with the epidurals. does anyone know how long this will last?
thankstami
Kenalog (5) PredniSONE (3) Simvastatin (2) Oxycodone Hydrochloride (1) Levaquin (1) Morphine Sulfate SR (1) Methadone Hydrochloride (1) Topamax (1)
January 22th
2009
10:17 AM
I was giving prednisone for only 5 days (not sure about dose, but it tapered to one pill on the last day) for a bronchitis induced severe asthma attack. I have only had asthma twice in my 50 years, both times associated with a bad case of bronchitis. The "doc in the box" reduced his original dosage due to the 3 corisone injections I recently had in my spine. After reading these posts I feel grateful I wasn't on a higher, longer term dose. I have some of the same side effects listed here including uncontrollable appetite, fat gain around the middle, water weight gain, constantly having to urinate, superhuman energy, heart palpitations, and approximately two weeks after finishing, I began to get a mustache (hairs that were previously white became brown over a two week period). I have read on the internet and been told by my pharmacist that this is temporary. I have also read and been told that the 2mg estradiol I take every day since my hysterectomy causes the body to retain and not rid itself of the steroids as it normally would (estrogen is actually listed as drug interaction with prednisone). The doctor in the box apparently just ignored this interaction and prescribed it anyway. However the main reason I am posting is a very strange possible side effect that occurred approximately 1 week after my final dose. I was awakened in the middle of the night with SEVERE pain (felt like bone pain, not muscle) in my right knee that lasted until morning. By mid morning it was gone. The next night I had the same experience but in both knees. It lasted about 5 more days, gradually tapering in intensity, and then just went away. I do have severe arthritis in my lumbar and cervical spine, having had surgeries to repair injuries from a snowmobiling accident. I have normal arthritis elsewhere for a 50 year old, but have NEVER had issues with my knees. Has anyone had this strange symptom? None of my doctors (internist, rheumatologist, physiatrist - who gave me the injections and prescribed physical therapy for my spine) had any explanation. The only explanation I have is the prednisone because I had taken the Z-pac (antibiotic) with no side effects several times in the past. Weird!
Incidentally, I am off the prednisone for about 5 weeks, am still hungry all the time, still fat, still bloated. Unfortunately the extra energy is gone. Best of luck to everyone on this strange drug. My heart sincerely goes out to all of you on long term therapy. God bless.
-- By valinal | Reply | (5) replies | Private Message me