October 13th
2008
2:43 PM
Oh My Gosh - as I sit here with abdominal cramps typing my experience - I can see the light at the end of the tunnel. I started taking Lisinopril in late April 2008. On May 2 I had severe abdominal cramps and massive vomiting for 8 hours. Finally got myself to ER after I sent my family on to our vacation (I joined 2 days later). The ER attributed it to food poisoning. Lo and behold, I had another "attack" on May 9th. Back to ER I went (my husband witnessed my attack and insisted I go). They took X-rays and MRI - found intestinal inflammation but didn't know why. My internest send me to gastro dr. Third attack hit on June 5th and gastro doctor sent me to major hospital ER. They, too, did MRI & blood work. Looked at gall bladder, pancreas, stomach, intestines, etc. They found intestinal inflammation. Gastro Dr. took more blood and did more test (CT, MRI, Colonoscopy, Endoscopy). He couldn't find anything so he sent me to rheumatologist. She did add'l blood work and genetic testing. She though I had an auto-immune disorder - like Mediterranean Familial Fever! Please...! But all her tests came back negative. She too had no answers, only treatment for symptoms - Colchicine and Prednisone. Yuk. After having my 8th debilitating attack yesterday (since May), I've had enough. I went to the Web and found this wonderful site - along with some others with helpful info. I don't have confirmation that the lisinopril is causing this - but it sure sounds like it. I am a 49 yr old female and I've had no "life changing" events in my life (except for this nastiness) and have been on no other meds. I find it interesting that out of all the doctors I've seen - and all knew of the lisinopril - that none suspected this as a side effect.
-- By pastrouhal | Reply | (6) replies | Private Message me
October 2th
2008
1:17 PM
To the best of my knowledge I never had any of the 'immediate' symptoms.
My problems are probably due to the fact that I was prescribed Cipro 3 possibly 4 times from Aug 06 - Dec 07 and then finished up Dec 07 with a round of Levaquin. My father is over 60 and was recently given Levaquin and had immediate and serious problems. He is seeing a doctor recommended by the CDC today. Yes, he is even working with the CDC on
this one. Due to all he is being told he is convinced that the medication is behind my medical decline as well. Since taking these medications (symptoms started slowly in 07), but after taking the Levaquin at Christmas time I never got up from the couch. My thyroid gland has quit working, my adrenals are shot, I have been diagnosed with fibromyalgia, chronic fatigue, blew out 3 disks in my back, vision is deteriorating rapidly, and really so many things I can't list them all. I had a complete physical
in Oct 05 and was given a perfect bill of health. Through Aug 06 I was riding my bicycle 33 miles per week. I'm still trying to figure out what hit me??
What my father has been told is that in some individuals Levaquin will attack the glands (like the thyroid) and will compromise the immune system. This damage appears to be permanent. All I know is that I went from being extremely healthy to terribly sick. If in a day's time I have enough energy to load and unload the dishwasher it is a banner day. I can
not work and seem to get worse instead of better as each day passes.
My husband also had pneumonia at Christmas and took Levaquin but does not seem to have had an problems. I suspect it was possibly the cumulative effect of having basically 4-5 rounds of the antibiotic in a years time. According to the people at the CDC that have spoken to my father the symptoms that I have can all be traced back to the medication. One never knows what effect a medication will have. Just please be careful when taking this medication, and limit how many times you take it.
-- By cdsgoddess | Reply | (2) replies | Private Message me
July 20th
2009
9:15 AM
So here is the caveat, I am not sure these symptoms really are related to Lisinopril or not, but they all started about three weeks after taking 10 mg a day. Waking at night with rib pain, hip and low back pain. At first this was only at night, for several months (the pain was very intense). The pain would move from rib, to right hip, to low back (mid), left hip seeming to make no sense. I have had every test under the sun, MRI, CTSCAN etc. Now rheumatologist believes I have a thing called Ankolosing Spondolytis which is an auto immune disease in which the body attacks the large joints of the body (I tested positive for the HNLAB27 marker). I will be having a special MRI to test for AS.
So maybe Lisinopril has played no part in this, but I think it is very coincidental that this all started when I started taking the Lisiniprol. I am wondering if Lisinopril could have been the trigger for AS (if it is AS). Until this started I was in excellent health, 40 year old mom of 4!!
-- By jcooper1 | Reply | (2) replies | Private Message me