Chemo symptoms and conditions

My father had such severe mouth sores that he could not eat for 2 weeks which eventually led to his organs shutting down which in the end led to his death in 2 weeks time. Please make sure to insist your doctor does something to help with the mouth sores before they get so bad that you cannot eat! Actually, if any loved one of mine gets cancer, next time we are heading to Mexico to the Hoxsey Clinic. I will never again subject a loved one to the poison of chemo again!!!

I began taking Aromasin 1 year ago for advanced (Stage 4) BC with mets to the bones. I have increasingly had severe joiont aches, my hands and fingers ache so badly at times, I feel I can barely hold a book, or type, etc. My hands and fingers tingle and feel numb. I also have severe wrist pain so much so that I sometimes use a heating pad for some relief. I do not wish to discontinue it because it seems to be working and my Oncologist says the side effects are more tolerable than chemo, which I have already had before. I feel like my Dr. sometimes thinks I am exaggerating my pain levels, but I struggle with daily activities. I am on Fentanyl patches and even have to resort to Hydrocodone when it becomes to intolerable.

I suggest to anyone that has Hashimoto's Thyroiditis (type of Hypothyroidism) to have a blood test done for Celiac Disease. There has been research done linking Celiac Disease and Hashimoto's Thyroiditis. Celiac Disease can be controlled by a gluten-free diet (wheat, rye, and barley free). In the US, not many doctors recognize/know of this link. I have been hypothyroid for 20 years (had Hodgkin's Disease (cancer) - radiation/chemo at age 16) I have 2 sisters with Hashimoto's Thyroiditis and were iron and B12 deficient. I was diagnosed with Hashimoto's Thyroiditis 3 months ago with iron and B12 deficiency. I have been on a gluten-free diet for 2 months now. My dosage of synthroid (levothyroxine) was 175 mcg and now is down to 137 mcg. I hope that I am one of the lucky ones that will have their antibodies to their thyroid normalized (no more synthroid!) I have a couple of days left before my next blood test and I hope that it goes down more. I am feeling better now than I have in a very long time. I have attached a link for those of you interested. It is an endocrine article from Finland outling the link between Celiac Disease and Hashimoto's Thyroiditis (among other things). I hope that this helps some of you. http://edrv.endojournals.org/cgi/content/full/23/4/464

I was on 200 mg/day of topamax for migraines. It did lessen the frequency and severity of the migraines. I lost 20 lbs and looked great. I felt horrible. I was suicidal and paranoid, cried frequently and thought that I was going to die. I was very tired, probably due to the topamax and the fact I was only eating about 500 cal per day on a good day, I was only rarely hungry and then would feel full after a few bites. I loved being thin, but was too tired to enjoy my life. I'm a nurse and couldn't remember anything, so I wrote everything down. My husband said that talking to me was like playing charades, because I couldn't remember the words for what I wanted to say. People would talk to me and my comprehension was very poor - it was like they were talking in another language that I didn't understand very well. I had always been sharp and quick witted, but on Topamax I was lost in a brain fog. I went off the drug under an MD's care. It took a while to feel like my old self, but life is now normal.

I was considering going back on it to lose the weight I put back on, but after reading all the other posts, I realize it's just not worth it. No, not everyone experiences all the awful side effects, but the side effects are not rare and some of them are horrifying. One of my friends who went on it couldn't even remember her children's names and she was on just 25 mg. I think this drug can make you feel like you are dying - just like a cancer patient at end stage. You don't want to eat, there is little enjoyment in life, your brain is foggy like you've been going through chemo and you feel incredibly sad as if you're going to die.

My advice would be to use the drug only if absolutely necessary. Try acupuncture, other migraine meds or seizure medications before this one. If you are taking it and notice that you are having extreme side effects, ask your doctor to be taken off it. If you can take it and the only side effects you get are a little pins and needles and an aversion to soda, go for it! But please note if you have strong emotional changes and try to eat healthy while on topamax.

My sister was prescribed Avelox on Tuesday, March 11, 2008. Within 15-20 minutes she began having breathing difficulties. Because she has asthma her initial thought was that she was having an asthma attack. She tried asthma treatment and it didn't help. She soon was unable to breath. Her husband called 911, they responded quickly but had to intubate her in the ambulance. They know that she was without oxygen to her brain for at least 3-5 minutes. This caused seizures that lasted 20 hours before I.C.U. could get them under control. Unfortunately it caused brain damage leaving her with no higher brain function (vegetative state). As she has worked in the medical field for over 14 years she did not wish to be kept alive by artificial means. On Tuesday, March 18, 2008 her ventilation tube and feeding tube were removed. It is now Thursday, March 20, 2008 and she is in a wonderful Hospice House awaiting her death.
She had taken the same class of antibiotic in the past with no reaction. Really not sure what caused this one. She was going through chemo for breast cancer, but had just finished and was scheduled to start her radiation treatment. Her chemo doctor told us that since her reaction, they have had another patient who went into anaphylactic shock after taking Avelox.
My sister is only 43 years old. This medication should be taken off the market.

started Levaquin 2 weeks ago for pneumonia & pleurisy (had been prescribed 5 day kpack but that didn't work). after a couple of days started the insomnia, joint pain in left elbow, knee & hip. then started having problems walking, dizzy, nausea, headache, called my docs and they had me come in. they sent me to emergency room to make sure I wasn't having stroke! no stroke, but stopped Levaquin (it was helping my pneumonia) and switched to another antibiotic. my side effects were not going away, though, and the night before last I took a vicodin. DO NOT TAKE VICODIN! woke up crying in the morning and could not lift my arms cause of the pain. my husband had to hold a glass so I could drink water to take pain meds. couldn't even type! I did go to acupuncture, and last night I took Advil pm (2) and today slept till 2pm! I feel MUCH better, though side effects still not gone. I am mid 40's, fairly healthy, (had breast cancer last year, though, w/mastectomy & chemo, and had radiation for hodgekins in my early 30's) so my immune system is a bit weaker than most, but I get around and am VERY active, so this threw me for a loop. any advice anyone? gmf

Hey there ladies, I just started taking Loestrin 24. I am 41 yrs old. I have a history of endometriosis, with bleeding lasting for 10-12 days a month. I was at my wits end with the monthly pain. I was on the pill for many, many years. I went off it 6 years ago, I went through chemo for Hodgkins lymphoma, and wanted my body to run naturally no hormones no nothing. So here I am taking the pill again, and to my surprise, I have severe PMS!!! I never had it before, but the rage I have is just terrible. I know it is not me, but it scares me. I have breast tenderness, brown spotting too, sharp pains in my side, dull headache,acne, and yes the rage. My poor husband was chewing food next to me, I wanted to beat him,the noise errrrr. Cybil (lol)

I just started 80 mg of Prednisone for Vasculitis in my kidney’s. I also have RA. This treatment is being augmented with low dose chemotherapy. The Chemo is nothing compared with the side effects of the Prednisone. It is Horrible. It has so messed with my brain I never knew what an awful existence obsessive compulsives live. I can’t sit still and stop doing things if there is anything left undone! I have trouble with controlling my emotions, responses etc. Thinking isn’t easy either. And I’m awake most of the night. (Not a bad thing since we just were blessed with twins however). But it is really straining my relationship with my 6 year old son who can’t understand why his Dad goes from nice dad to mad dad in a second. I’ve also have horrid muscle fatigue in my legs. For me this is the worst because getting up and moving and walking up stairs is almost impossible. And I was hiking up to 5 miles in rough terrain just a few weeks ago. I’ve actually LOST 10 lbs.

So I am wondering if anyone has any tips, tricks or ideas they have found to combat the muscle fatigue? It would be greatly appreciated if you could share any ideas you have. I’ve been drinking water and electrolyte replacements, (G-2, the new Gatorade) but that has not solved the problem.

Thanks.

Hi, I was diagnosed Sept 06 with a small breast tumor following a routine mammogram I had a Lumpectomy and 4 lymph nodes removed in Oct 06 In January 07 I started 15 sessions of radiotherapy and then was started on ARIMIDEX which i have taken religiously each day for a year even though I have felt WEAK ,slight ACHES in my knees, TIRED, and WEARY, SINUS infections, BOWEL PROBLEMS, METALLIC TASTE all of which eventually in December got me down so much my GP signed me off work with depression and I am now taking fluoxetine to lift my mood I am convinced the Arimidex affected me and has played a big part in the way I was feeling for the last year I told my breast care nurse about this she advised me to stop taking it for 1 month I have not taken it for 4 days and feel a different person already having more energy and feeling like I can cope with life and full time work again Has anyone else experienced the same side effects as me? from Rose SNY

I had the Mirena inserted before starting chemotherapy in August 2007. I thought all of the side effects were related to chemo and steroids, but I've been off of those for 5 months now. I'm beginning to think all of my symptoms are being caused by the Mirena. I have horrible, painful acne. The worst I've ever had in my entire life and I'm 34yrs old. I had weight gain with the steroids, but have only been able to lose 10 lbs since I stopped taking them. I have headaches, dizziness, fatigue, acne, dry skin, dry mouth, itchy scalp, seem to be loosing a lot of hair in the shower, no sex drive, no orgasm, insomnia, nightmares, lack of concentration... and the list goes on. I went to see a dermatologist who told me the acne was mostly likely being cause by the hormones from the Mirena. I'm calling my Ob first think on Monday to have it removed. I can't wait to feel like myself again.

There has been at least two documented cases of women having extremely high acid levels due to taking Xeloda. These high levels ultimately caused their deaths. All drugs cause side effects but death is not one listed in any of the literature that Roche presents with this drug. If you are taking this drug please make sure that your acid levels are checked regularly and if you know of someone who had the same complications from Xeloda please contact us.

I had a kidney transplant a year and half ago, and had to take Prednisone as one of my post-transplant med's. I was on it for about 2 months and I went through a lot of the same side effects mentioned by other people, increased appetite and weight gain in odd places, sleeplessness, and acne. Then recently I had an allergic reaction to an antibiotic and was again prescribed prednisone for three weeks, but this time the acne is so bad it looks like a rash, and it's all over my back, chest, neck especially, and on my face. I can deal with it because I realize it's what I need to do, and I am grateful that there is a drug that can treat the symptoms from the allergy, but I am wondering how long it will take for the acne to clear up once I finish the 3 weeks? Does anyone know how long it takes when you've been on it for that amount of time? Any thoughts would be helpful. Thanks.
Megan

I took levaquin, cipro and avalox in a 4 month period due to a severe sinus infection, back in Jan to april of 2006. I had tolerated it most of my life, but at that time, I had had 'neck surgery due to 2 pinched nerves, left shoulder operated on, major tears, due to extreme 'flat roof roofing repair' for 6 months trying to save our 'dream home from satan'. (we lost it, foreclosure)
I complained to my dr the next day, (and most every week) he ignored my halluciations, (actually "snickered" in my face), mood altered, ignored my complaints of feeling like a hot rake tearing my muscle and tendons apart. pain, told me to continue taking it:(, blame me for listening and NOT doing research soon enough, I learned later the dr is supposed to STOP the drugs immediately to rule out tendonitist to prevent pernanent irreverable damage AND it's not to be given to 'muscle challanged people'). after that 3rd round in a 4 month period, I told him I'd rather die than to take them again. mom always told me I was allergic to pennicilin, I wasnt, it helped clear my infection.

I now have hodgkins lyphoma, (affects men mostly, i'm female, 51 yrs of age), I shouldnt have 'this cancer'. My face started breaking out w/2 types of skin cancer, basal cell, and precancer A. keratosis eveywhere. I was 120 lbs, cut muscles, always had been physical. Now, flab, lost mucle strength everywhere. Every day now is filled w/severe pain and NO dr will listen, I've been called crazy so many times, I could puke. The dr's dont WANT TO KNOW because of the extensive lawsuits that will exist due to them NOT knowing side effects and stopping meds, it's their 'brotherhood', protect each other no matter what the patients 'cost' is, as in mine, complete mind and body destruction:(
To MOST people, this drug is okay. To many of us, it's a life destroying slow death. Cant work, cant get disability. Have reached for 'help to heaven' so many times, but never followed through:(. I still HOPE for some dr to listen and do necessary tests so I can sue the crap out of my previous g.p. He should have known . HOPE is a forbidden 4 letter word, yet I cuss like a sailor.
Peace my fellow quin sufferers, Sandie in S.C.

I have been off Lisinopril for 5 weeks and feel 200% better than I have in almost a year. All of the side effects have disappeared except for the cough and that too is almost gone.
My family doctor told me to just stop taking it and I did. Cutting it out slowly doesn't work. You still have all the side effects.
My oncologist and ENT doctor said this drug is nasty to many people.
I live on chemo meds because I have metastatic breast cancer and they don't give me any problems.
Funny how one 10mg BP pill could cause so many problems.
Dyazide keeps my BP in check with no side effects.
I think a lot of doctors are brainwashed in regards to Lisinopril. Thank goodness for doctors who listen and bother to check things out. I have 3 of the best..Life without Lisinopril......Wonderful !!!!!

My friend got CMV retinitis because her immune system tanked during chemo for leukemia--ALL. After the chemo was finished she still had problems with the eye and the ophthomologist gave her an injection of Kenalog right into the eye. A few weeks after that my friend started to gain weight, sometimes as much as 10 pounds a month. At the time of her injection her TSH was normal. Yesterday, 35 pounds heavier than she was 6 months ago, the TSH was > 100!!! Basically, she has no thyroid.
This is a very serious situation. Please be aware of possible side-effects before you have a Kenalog injection.

i went to google to type in swelling of the mouth and applecider vinager this came up. wow i thought i was goign nuts my whole body feels so funny on this medication. i had the cough now for over 2 months along with lots of mucous. lately. cause of my sinus. got involed with this dumb drug. im on 2.5 mg.been on it for 2 yrs now thank you chemo thereapy ate over 75 percent of heart muscle away. i thought i was going nuts my doctor kept blaming my symptons and weight gain on my over eating and iam not over eating . i want to thank you. for this.

I was put on 10mg. Prednisone 5 times a day by my rheumatolgist. This past Wed. I had to go to my GP doctor because under my right armpit it was red & swollen 2 inches high and 5 inches across. I was in agony. He flipped when saw how much Prednisone I was taking. He said that is what caused my armpit problem. He could not drain my armpit because it was too hard. That was when I just went to pieces because I wanted some relief.He put me on antibiotics and pain meds. He noted a yellow spot in the corner of both eyes and amde an appt. with an optomolgist. He told me how to taper off of Prednisone and I will go back next week. It has been 2 days since that visit and here are my new problems: white bumps on my tongue, numb tongue and lips, pus sores in my nose,bloating, bright red spots on my thighs, bruises I can't explain, moonface, pain under my rib area, I could eat eat our house like a termite, not sleeping, sweating. My husband half expects me to grow a new leg or develop leposy or something. I had no idea a drug could do so much damage so quickly.Who knows what new side effect I can get tomorrow.

My Aunt is 61 and had a one sided Mastectomy in January of this year. She had been suffering for about 8 years with the menopause (she took HRT for 18 months a few years back). She was told her cancer was hormonal and once she had the tumour removed (behind her milk gland) she was advised that she didn't need any chemo or radiation. She had 6 lymph nodes taken and all were clear. She was originally put on Tamoxifen for 4 months and then switched to Arimidex. She has suffered with hot flushes and extreme coldness (she had this beforehand) but has increasingly suffered with very painful indigestion/heartburn/acid reflux or possibly IBS. She has tried all the over counter indigestion medications to no effect. Is this normal? I am trying to get her to go to the DR about it - but she is very apprehensive. Is there another drug she could try other than Arimidex and Tamoxifen? Are these stomach problems normal? I would also say she seems to suffer with depression and tiredness. She doesn't sleep well because of the hot sweats etc. She also bloats out quite a bit and is still numb from where they took the lymph nodes under her arm. She also says her scar gets sore. Her mastectomy was Jan 3, 2007. She obviously didn't have reconstruction and doesn't intend to.

Is there anything I can get for her to make life easier? I am at a bit of a loss as to how to help her. Any thoughts would be very much appreciated.

I'm a 34 year old petite 110 lb female and have been on Prednisone for 7 weeks now for a kidney disease (Focal Segmental Glomerulosclerosis). The treatment is supposed to be 3-4 months to see if I go into remission. If not, then I'm "steroid resistant" and they will have to move to a more aggressive treatment (a type of chemo). So I'm praying that this prednisone works!!

The first 2 weeks were a peice of case, then I developed many side effects, but the following being the most troublesome:

- 2 weeks - Edema. I got really bad fluid retention in my lower body and was put on a diuretic. A few days later my heart started pounding so hard I thought it would pop right out of my chest. Well turns out I was totally dehydrated from the diuretic so I'm off that now but the edema seems to be under control anyway (following a low-sodium/low carb diet). At the same time as the edema my skin dried right up too, and I need to put moisturizer on all the time. Even when I bend over I feel the skin on my back stretching.
- 2 weeks - Bloating. Really bad bloating. I'm bloated constantly now. Eating a low sodium diet helps, but not much. At night I weigh 5 lbs more than I do in the morning. I have terrible gas (burping mostly) all of the time. Sometimes it looks like I'm 6 months pregnant! And I'm sure people think I am because as I mentioned I'm normally thin and now I have to wear looser clothing to hide my belly, which doesn't really work and just looks obvious.
- 3 weeks - Sore knees. It feels like there's something growing in between my kneecaps that make it very difficult to climb stairs and it feels spongy when I walk. I can not put any pressure on my knees, I can't squat down, bend to pick something up, kneel, anything. And it gets worse at night.
- 4 week - Moonface. And my face has been blowing up like a balloon ever since. As I sit here and type I can actually feel it throbbing and growing still. I've got fat on my neck under my chin now that actually feels like it's choking me if I sit hunched over. I'm finding the moonface very difficult to cope with. I do not like to look in the mirror any more. I feel like a candy apple.
- 4 weeks - Cramps. Terrible terrible hand and feet cramps. Sometimes if I'm using my hands to chop vegetables or write or even use a fork, my hand cramps up like a lobster claw. I try to use the other hand then the same thing. And then almost every day, my feet. First one, then the other. Excruitiating cramps that seem to go in 15 minute intervals that make it impossible to walk, stand, sit, anything.
- 4 weeks - Very moody and aggitated. I am usually very easy going, now i have patience for nothing. I will be in a good mood one minute, the next I feel like I can kill someone. My boyfirend and our dogs are being very patient with me... I just hope they know it's the drugs not me! I just don't seem to have any control over my emotions.
- 5 weeks - Extreme fatigue. I used to have lots of energy, especially at the beginning of my Prednisone journey. But now I'm just wasted all of the time. I walk to and from work and the last couple weeks I want to just lay down on the side of the road and have a nap as I walk home. I used to do pilates (as much as possible with the sore knees) but it's too hard now. And forget about any elliptical training or cycling. It's enough just to get to and from work and I'm just exhausted.

There are more issues and I could go on forever, but those are the most troublesome. I just try so hard to stay positive but it's very hard sometimes. I pray that this is working, and that it is not all for not. I can't wait to be off these drugs, and my heart goes out to each and every one of you enduring the same thing and pray that it works for your too.

Good luck everyone.

:)J

I'm 31 and a recovered cancer patient (in remission since 2001). I've been trough it all. Surgery, chemo, radiation, BMT's, you name it. I currently suffer from three separate sleep disorders, as well as hypothyroidism. As you can imagine, I've grown to become very in tune with my body. And, having gone through everything I have over the years, and having taken all kinds of medications, I have never experienced such dissatisfaction and such a high level of negative side-effects as I have with Toprol XL.

My primary care doctor, who is also a cardiologist, put me on Toprol XL to treat an elevated heart rate -- as a result of all my past health issues, my auto-regulatory system is, as he puts is, “just messed-up now.” He started me on 50 mg a day. Immediately, I experienced trouble breathing: I woke one night and felt as though I was drowning. Over the course of about 8 months, he's lowered my dose to 12.5 mg a day. And, for a while, that seemed to be OK. But, recently, the trouble breathing has returned.

I'm at a point now where I'm afraid to go to sleep -- the moment I lie down, I find myself gasping for air. All day long, I have a constant wheezing. I can't go up a flight of stairs without needing to sit down and catch my breath -- I feel as though I'm about to faint from loss of air. I spend most of my day with a sensation of being suffocated. I cough frequently, but it gives me no relief.

I have noticed other side effects. Notable is the weight gain. I've never in my life weighed more than 145 lbs. I’m 163 now. I was blaming the weight gain on the thyroid, but I'm on a fairly high dose of that medication, and I've yet to experience any loss of weight. I'm gaining, despite only eating one meal a day. I attribute this weight to the Toprol.

Also, I have been experiencing moments of extreme anxiety -- this is very unusual for me. I also want to say that never once during all my dealings with cancer did I ever experience depression, and that right there should give you an indication of what type of person I am. Yet, now, since being on the Toprol XL, I find I lack the energy and desire to do much of anything anymore.

My doctor seems very quick to dismiss my concerns, telling me, "you need to give this medication a chance." I think 8 months of my life is enough -- I have lost all patience with this medication, and I'm just about losing it with him, as well. I didn't survive cancer and all the other complications that came with it just to have my life brought to a total standstill by a single medication. This is so infuriating.

I'm making an appointment to speak with my doctor right away. If he continues to insist I stay on Toprol XL and ignore my concerns, I will tell him I no longer feel comfortable with having him as my primary care physician. I want my life back.

I've had crohns for about 10 years. My last flareup was in December of 2006. I was on prednisone for 2 1/2 months. Since I've stopped the meds, my hair has started to fall out. It's been falling out now for two months and I'm afraid it will all fall out. I have yet to read anything about hair loss as a side effect of prednisone. What is going on?

49 post surgery, chemo, radiation. Took it for only 2 and a half month,
Initially had buzzing sensation in body, panic at night, increased hot flashes....and then it got worse, sever abdominal cramps...Doctor tokd me to take pain meds. I wen another two weeks, pain unbeatable, got a sonogram....It had grwon me huge ovarian cysts!!!
This is not commonly mentioned, but alloiver the web.
I may have to have more SURGURY. Ansd possibel removal of my ovaries.
I am furious. After all I went through. It is a miserable drug.
I am angry when they make light of women not able to take the side effects.

I have rcvd 2 Lupron injections so far. After the first injection, I experienced a strange memory loss. I was driving home and I totally did not know where I was. I couldn't remember how to get home. I was terrified. Finally after driving around and around for an hour I found my way home. I was hysterical crying from the fright. My doctor said it couldn't be from the Lupron. Yet others say they had same side effect. After the second shot I experience Vertigo (dizziness). I felt drunk and kept falling down. When I sleep I feel like my mattress is floating and turning sideways. I keep feeling like I'm going to fall off of it. I have to drive to work and when I'm this dizzy its so dangerous. Its so difficult to work. I get headaches and feel sick to my stomach all the time. I get joint aches and severe depression. I already have severe neuropathy from the chemo I took. Now this! After reading your posts, I am scared to death. I don't want to take this any more. I'd rather die from the cancer than deal with this.

All I can say is that I sound like guest no. 2kclark. Same age etc. I have 3 herniated discs, need artificial disc surgery but thank god i have been scared and skeptical since law suits are coming out on the charite disc. further i was then diagnosed with CFS (EBV) and fibromyalgia and AS (ankylosing spondilytis). I also apparently have a rotator cuff tear....all because of incidents at work...of which i am embroiled in a heated law suit over. my rheumatologist has given me 2 shots over the last 90 days. this last one was 2.5 weeks ago and i am still hardly walking around because of it. i feel like i have the flu and any act of normalcy is completed with shear painful effort. i called another doctor who wanted to inject my spine and told them that i was not having any injections for awhile bc of the reaction that i had to this 'kenolog' shots. to my surprise the lady said yes she had heard about those - the are like 'chemo'. her friend has lupus - she said others patients have had something but not sure what, and they are having a hard time with the shots. apparently 3 bad weeks then 1 good week just to go back and get another shot. well not me. just thought yall might want to know this. it apparently is for the pain? which is what i got it for....which it helped that but the fatigue and numbness across my entire body and the feeling of dying, i think i would rather have the pain. and no, i was not told of the effects either.

I started Methotextrate 5 months agoi and I have been on Prednisone for three months now in combination with the methotextrate to attempt to get the symptoms of RA (Rhematoid arthritis) under control. Last month the Dr. tripled the dose from 5mg up to 15mg. I have been having problems with my vision. Sometimes it just blurs and then will clewar but there is no warning so I fear driving. Thinking is almost painful. I forgot my daughter's name. My thoughts often feel fuzzy. My muscles ache and sometimes I feel like moving takes to much energy. I couldn't use my left arm the other day because it weighed to much. I never really sleep and when I do the dreams are so real and vivid they wear me out. I get muscle cramps so bad taht my body is stuck until the cramp subsides. I feel weak much of the time. My primary Dr. sent me for an MRI thinking maybe I have MS but the MRI was beautiful. I do not have the intense pain from The RA I used to have now that I am on Prednisone
but I am thinking the pain was much better than the side effects (which never were really mentioned). I have read many of the postings here and have any of the same side effects but the above mentioned are the most disturbing. I am fortunate in that I am loosing weight and have not had the weight gain mentioned by many others. I guess I can thank the chemo for that:) I am comforted to know so many other people have problems with this drug (not that I wish suffering on anyone). I was starting to feel like maybe I am just crazy. I try to be a positive productive person but lately that is a challenge. I am going to be talking to the Dr. nad get off these horrible little pills. RA is easier to deal with than the side effects of the treatment.
Thanks for listening.
Liz